Block and Foulkes address Aging, Disability, Behavioral Health at Gubernatorial Forumof Healthy

Published in RINewsToday on October 5, 2026

By Herb Weiss, contributing writer

Democratic gubernatorial candidate Helena Foulkes and independent candidate Ken Block squared off Friday, Oct. 2, at a gubernatorial candidate forum focused on issues affecting older Rhode Islanders, people with disabilities, family caregivers, and those receiving behavioral health services.

The forum, held at Rhodes on the Pawtuxet in Cranston, was sponsored by the Senior Agenda Coalition of Rhode Island, AccessPoint Rhode Island (SACRI), and the Mental Health Association of Rhode Island.

“It was an honor and a pleasure to partner with AccessPoint RI and MHARI to present this forum,” said Carol Costa, Executive Director of SACRI, emphasizing their continued dedication to the intersection of Behavioral Health, Developmental Disabilities, and Aging.

“It was a distinct honor to welcome gubernatorial candidates Helena Foulkes and Ken Block to a forum focused on issues that directly affect older adults, people living with mental health challenges, and communities across Rhode Island,” said Costa.

“We appreciate the candidates’ time and their willingness to engage thoughtfully on these interconnected priorities,” she noted. “At a moment when democracy and civic discourse matter more than ever, their participation demonstrated a meaningful commitment to respectful dialogue, public service, and the people of Rhode Island.”

Unlike many gubernatorial forums that focus heavily on taxes, housing, education, and the economy, this forum allowed the candidates to address issues that often receive less attention during political campaigns: aging in the community, long-term services and supports, nursing home care, Medicaid, family caregiving, behavioral health, and services for persons with disabilities.

Here is a video of the forum, courtesy of Pat Ford, The Coalition Radio Network. Following the video is a “transcript” of the questions and responses.

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We edited the questions and candidates’ responses for length, grammar, and clarity. We did not change the meaning of the questions or the candidates’ responses. Refer to the video here for more information.

Carol Costa announced the following at the beginning of the forum:

“Before we begin, you’re all entitled to know that Aaron Gukian committed to taking part in this forum. He accepted my invitation and we planned this program around his participation. He is not here today. I received a phone call at 3:00 PM that he would not be here. I’m not going to let that take time away from this value forum. We’ve adjusted the program, and we will move forward in a focused and streamlined way so that these candidates who have taken the time to be with this audience get the forum they deserve. But you should know he did make a commitment to this community and he did not keep it.”

Here is what Foulkes and Block told more than 80 attendees at the forum.

Opening Remarks

  • Helena Foulkes (Democrat):

I really wanted to thank the SACRI for pulling this together, the Mental Health Association of Rhode Island, and AccessPoint Rhode Island for all you do.

I want to say that I feel very strongly that the senior population in our state is an incredibly untapped resource.

The wisdom, the expertise—and we’re going to talk a lot tonight, I’m sure, about caring for many of the elder folks and others in our state who need our support. But I think we often forget how much wisdom exists and how much more we could benefit as a state by tapping into all of your expertise.

I am very excited to be looking to the senior community to help me think about things like a Senior Corps-style effort. How do we take, as I said, the wisdom and expertise and tap into your sense of volunteerism?

I’ve been crisscrossing this state for the last few years, mostly in people’s kitchens and living rooms, listening, showing up, and asking people, “What’s one thing you’d love the next governor to do for you?”

  • Ken Block (Independent):

I’m very happy to be here tonight. Helena and I have been in front of many forums this year, hosted by advocacy groups for different purposes, all providing services or looking out for the interests of different groups of people.

This group has been remarkably effective at educating me about their issues and talking with me about the challenges different groups experience as they age.

I have been on this journey with my parents as they’ve aged and passed away. My wife’s parents are now in their 80s and are experiencing a very different journey than my parents did. They’re aging in place, let’s say, challengingly.

Dealing with that remotely has been a challenge for both my wife and me. It makes me realize that while my parents and Jen’s parents have been really supported, others on the journey don’t have the level of support and family involvement we had.

That’s where groups like this, or advocacy organizations like the ones we have here representing different services that can provide the help people need, are so vitally important.

  1. As governor, what would you do to strengthen the Office of Healthy Aging (OHA) and better support healthy aging and aging in the community?
  • Helena Foulkes (Democrat):

On this topic, I absolutely am open to the idea of a cabinet-level position. I need to understand it more closely, but I would say Maryland is a place where this does exist.

I’m good friends with Wes Moore. So this is an example where, using some of my relationships and even many other governors, I’d love to understand what does great look like as we think about serving the senior population.

I also want to speak to the fact that I think we need a whole-of-government approach. Tonight, it’s really hard to give you a hard commitment on dollars given that I don’t know what the state of the budget will be.

You look at education, the Department of Labor and Training, and the Rhode Island Public Transit Authority—lots of places where seniors need access to support. And we’ve got to have, under my leadership, a government that is really focused on how we serve seniors in the state because, to Maureen’s point, it’s a huge portion of our population, higher than most other states.

I would also like to have a master plan on aging. I’m sure many of you have parts of that. I want to pull it together.

So that’s where we need a governor who will set the expectation that I want to see – a plan. I’ll have deadlines because I want to benefit from the expertise, as I mentioned, involving you. Still, I also want to make sure we have a plan where we can hold ourselves accountable to making seniors’ lives better.

  • Ken Block (Independent):

Yes. I believe OHA should be a cabinet-level position for a simple reason: a substantial portion of our population has interests that line up directly under OHA.

And as governor, I want to make sure every large group of people who live here has a voice I can hear. Having OHA as a cabinet-level position gives me the ear I need to hear their needs.

I don’t disagree with anything Helena just said, but I would like to tackle the issue a little bit differently because I don’t think the state is being responsive enough.

I hear a lot of dismay and unhappiness with how responsive the state is to the needs of advocacy groups and the nonprofits that work with it. Several areas of dysfunction seem to be particular sticking points, especially OHHS.

So I describe myself as an operational manager. I’m a specialist in understanding where an organization doesn’t work well, where the friction points are, and what changes we need to make to improve it.

And I look at Rhode Island as a—right now, Rhode Island government’s kind of a target-rich environment.

  1. What steps would you take to reduce the number of lower-acuity residents living in nursing homes?
  • Helena Foulkes (Democrat):

I want to start on a human level around this question because I think the idea that more of our senior citizens should be able to live at home and have caregiving at home is a really great aspiration.

I think one barrier is not having the home healthcare workers we need to support folks in the state.

I speak to a lot of caregivers who don’t even talk about the dignity of their own work, how challenging it is, how low-paid it is. Most of the people I speak to don’t even have healthcare insurance themselves.

So I think we need to start by understanding what the gap is to get to this target, what the gap is in terms of the number of community healthcare workers who can do these jobs, and how do we make sure more of them get trained up, paid appropriately so that we can really be providing service.

You have Donald Trump, who is now essentially targeting many of these home-care providers and healthcare workers by threatening to send immigrants out of this country.

And I’ll use the Haitian community as one example of that. An incredible community of hardworking, loving, dedicated healthcare workers who are now unsure whether they’ll be able to stay here.

  • Ken Block (Independent):

Research shows that care for nursing home residents who need lower levels of care can be provided more cost-effectively outside nursing homes.

So from the governor’s office perspective, my job would be to make sure that we can pave the way for these alternative treatment and housing solutions, that they’re available, and that we can help families who might be taking on some of the burden of caregiving by providing resources to them to make the job easier.

As you all know, the state budget is under tremendous pressure, both from within and without. Washington, D.C., is threatening us. We have a structural deficit coming into this budget year, and Helena and I have both heard requests for what I estimate to be billions of dollars in additional funding this year from the different groups we’ve spoken to.

I have no idea how we prioritize all the different needs or how we can pay for them. It’s going to be very difficult.

But what you have done here, and what other groups have done, has demonstrated beyond a doubt that your requests are worthy.

  1. What would you do to expand home – and community-based care for persons with disabilities and behavioral health conditions?
  • Helena Foulkes (Democrat):

What I’ll add to my last answer is the idea of helping families navigate the complexity of this and thinking about this concept of “no wrong door.”

The idea is that I could go to a state website and get help figuring out how my loved one gets the best level of care in the state.

It’s really hard right now.

And what I’ve always said in my career is I don’t need to be the smartest person in the room. You all know much more about this than I do.

But what I want to do is ask all of you, as it relates to something like this, what are all the stupid things we do? What barriers do we put in your way, and how can we make it much easier for families navigating the complexities of this issue?

  • Ken Block (Independent):

With developmental disabilities, you have a challenge at some point where the severity of it is such that a home-based solution can be not only very difficult, but at times could also be maybe somewhat dangerous.

So I believe that the state government, the governor’s office, our job would be to make sure that people understand whatever services are available, whatever programs of support are available.

It’s a good idea when it works and as long as we can do it safely. That would be my biggest concern: making sure everybody can be safe.

We know that moving eligible individuals out of group homes or institutional settings and into the home environment can often lead to better results.

  1. What would you do to ensure implementation of the nursing home behavioral health per diem and protect the principles of Olmsted regardless of federal challenges?
  • Helena Foulkes (Democrat):

The last couple of years, the drumbeat around healthcare has gotten really loud. People are really worried that their primary care doc is going to retire and they won’t be able to find anyone.

We have two hospitals in our state that are on life support, I would say: Roger Williams and Fatima. We made a deal to keep them alive earlier in the year, but there’s still a real risk in those hospitals.

We have the federal government, which is just ruthlessly attacking people around healthcare in this country, with 40,000 Rhode Islanders who are going to lose access to Medicaid starting in January.

It’s so cruel. It’s so inhumane.

So a big thing that I’ve been focused on, in all honesty, is: how do we make sure people don’t get kicked off of Medicaid?

I want to use the faith-based community. I want to use senior centers. I want to go into some of the high-rises where seniors are living and bring the paperwork and resources to people, because the really sneaky thing about President Donald Trump and what he did with H.R. 1 is he’s making the paperwork so complicated that people won’t get through it and will give up.

I think healthcare will be the tsunami that will hit the next governor.

  • Ken Block (Independent):

I’m really glad Rhode Island cannot mint its own currency, because it would let politicians overcommit.

One of the easiest things for someone like me sitting here facing a room with people like you, on every question that asks, “Can you fund us? Can you fund us? Can you fund us?” The simple question always has the simplest answer, and the one you want to give as a candidate is, “I’ve got you.”

In this circumstance, I can’t tell you that I’ve got you. The General Assembly can’t tell you that they’ve got you. We don’t know what is coming at us.

So what I will tell you is I fully understand the need. I understand completely how important the program is. I get it. I really do.

But what I can’t tell you right now is, because I don’t know what’s coming, to make a promise now that I don’t keep is something that I really want to avoid.

I don’t want to be the guy who said, “Yep, absolutely.” And two months after I get into office, it’s like, “Oh my God, I can’t keep any of the promises that I made.”

My answer to you, with all sincere respect, is I don’t know.

  1. What role should Eleanor Slater Hospital play in meeting the long-term care needs of older Rhode Islanders and persons with disabilities?
  • Helena Foulkes (Democrat):

From talking to folks in the community, I know this sector of healthcare has been under a lot of strain for quite some time.

Getting people together and thinking about a holistic healthcare strategy in our state is a big priority of mine.

I think we’ve been putting Band-Aids on a lot of problems, but not really stepping back and asking: how do you serve people, and what assets do we have in the state that can help us do a good job for folks?

And Eleanor Slater is one component of that.

  • Ken Block (Independent):

I’m definitely open to using any existing resources that we have to address the issue.

So the direct answer to your question is I’m open to it. Yes.

  1. What steps would you take to implement Rhode Island’s 2025–2028 State Plan for Family Caregivers, including respite services, the Temporary Caregiver Insurance Program and a family caregiver tax credit?
  • Helena Foulkes (Democrat):

I think this relates to having a really solid plan that I talked about at the beginning and, in each one of these, understanding what is required. What’s the community’s priority?

If we can’t get everything done, what do you all see as most important?

It’s an incredibly stressful extra job that caregivers take on. I’ve spoken with many, many caregivers in the same generation, who are obviously working themselves, taking care of kids, and having parents.

And then you talk about the economic stress of just not being able to take time off.

I absolutely believe we need to expand caregiver assistance and support, but I need to understand, at the end of the day, what all of this costs and make sure I’m not making promises I can’t keep.

I won’t do that.

What are your mission-critical issues, and how do we actually work to get them done?

  • Ken Block (Independent):

I watched and participated firsthand in my relative’s home healthcare.

My mom was diagnosed with early-onset Alzheimer’s at age 61. We moved them to Providence, to an independent living facility. And my dad was my mom’s caregiver, and I watched the toll that it took on him.

One day I got a phone call, and he said, “Ken, your mom just kind of slumped down.”

I was like, “Oh my God.”

And he’s like, “No, she’s okay. She just slumped down, but she can’t get up, and I can’t lift her, and I don’t want to call anybody at the facility because they’re going to kick us out.”

I raced over, lifted her onto the bed, and that was it.

I realized right at that moment that my dad’s ability to care for my mom had ended.

The emotional and physical toll on caregivers is enormous. Enormous. I’ve watched it.

My dad aged 40 years while he cared for my mom.

And one of the things that I think the state has to watch out for, especially if we’re going to begin subsidizing people to provide care at home, is: how are we going to make sure that we are not putting many more people at risk because they want to take advantage of the money without regard to what the toll is really for both the patient as well as the caregiver?

We have to make sure that we are smart about it.

  1. How would you help older Rhode Islanders and persons with disabilities pay for long-term services without having to rely on Medicaid or sell their homes?
  • Helena Foulkes (Democrat):

This is a really hard problem, and I’ve met lots of families who have been put in this situation of selling the family home to put a loved one in a nursing facility.

I believe we need to raise Medicaid rates in the state. Our state has an older, poorer population than most of New England.

And Medicare, unfortunately, is fixed. The federal government sets it. It’d be great if it went up, but we can’t plan on that.

Medicaid: we have an opportunity to raise Medicaid rates by $70 million, and this last session we could have gotten a $126 million federal match. And that would make a real difference in the healthcare system.

I’ve met so many healthcare providers who live in this state and work in Connecticut and Massachusetts every day because they can make 20 or 30% more just by crossing the border.

I will also make sure someone on my team is dedicated to getting every single dollar of federal funds that we can.

And so, the needs are quite great, but a big part of it starts around funding Medicaid the way we need to.

  • Ken Block (Independent):

Medicaid is at the root of a lot of our healthcare challenges.

And in this case, the cost of assisted living is dramatically raised because the same facilities that provide higher-end services, like full-on nursing and memory care, are under-reimbursed by Medicaid, and they make up for that shortfall by sticking it to the private people who are paying for assisted living.

Everyone has to recoup costs, and we see this repeat in many different areas throughout our healthcare system over time.

So, interestingly, the answer to your question is that we have to figure out how to raise reimbursements for both Medicaid and Medicare.

If we do that, in theory, assisted-living costs should come down.

We spend a lot of money. Many different people have told me some of the money’s being well spent, some of the money’s not being well spent, and we have to make some hard decisions and assessments.

So I don’t think we can take the Medicaid budget from $5 billion to $7 billion. We don’t have the capacity for that.

But in that $5 billion, let’s make sure every penny is spent right. And the pennies that aren’t spent right, then we have to put them towards the things that solve the most problems.

  1. Would you support Medicaid reimbursement rates that reflect the cost of care and fair compensation for direct-care workers, while helping build and sustain the long-term care and behavioral health workforce?
  • Helena Foulkes (Democrat): Yes.
  • Ken Block (Independent): Yes.
  1. Would you support using 30% of state housing bond funds for older adults and persons with disabilities, increasing accessible housing units, and publicly tracking accessible and supportive housing?
  • Helena Foulkes (Democrat): Yes.
  • Ken Block (Independent): No.
  1. Would you support a small monthly telephone fee, similar to 911 funding, to sustainably fund Rhode Island’s 988 Suicide & Crisis Lifeline and broader behavioral health crisis response system?
  • Helena Foulkes (Democrat): Yes.
  • Ken Block (Independent): No (opposed burying another fee in the utility bill. Supports program but not the proposed way to pay for it.)
  1. Would you support eliminating the Medicare Savings Program asset limit and providing an annual cost-of-living adjustment to the state’s SSI Supplemental payment?
  • Helena Foulkes (Democrat): Yes.
  • Ken Block (Independent): No answer given because he didn’t have a cost estimate.
  1. Would you support developing and providing resources for a Rhode Island Multi-Sector Plan on Aging?
  • Helena Foulkes (Democrat): Yes.
  • Ken Block (Independent): Yes.
  1. Would you support legislation creating an Office of Elder Advocate?
  • Helena Foulkes (Democrat): Yes.
  • Ken Block (Independent): Yes.
  1. What would you do to improve transparency and accountability in the delivery of human services?
  • Helena Foulkes (Democrat):

Yes, we need much more transparency across the state.

Think about bridges and roads, the lack of transparency there. And it really breeds mistrust.

One thing I feel deeply, as I’ve been listening to people over the last few years, is that people have lost faith in government. They’ve lost faith that those of us who are working in government are committed to making life better.

And I know there are so many dedicated public servants, but it is so trust-corroding when we’re hiding information.

So I support anything we can do to increase transparency and make sure people have access to the information.

What programs are working really well? What programs aren’t working?

I was also a big proponent of the Inspector General because I thought, look at the billions of dollars that we got during the Biden administration. We don’t even know where that money went.

What worked? What didn’t work? What should we keep doing? What should we stop doing?

Those are really basic questions we’re not answering today, and I’m very committed to transparency.

  • Ken Block (Independent):

Pretty much my entire adult life has been spent following the data and letting it take me wherever it leads.

I’ve been more frustrated than happy with Rhode Island state government’s ability to provide data. And I know many people have asked the state for information.

They’ve been frustrated, and sometimes people within government can’t even get the data that they need to make decisions.

So this is an area where I literally eat—this is what I do professionally.

I’d like to see a whole—this is really nerdy stuff—but I want to see a bunch of dashboards and other tools that will ultimately help us understand much better than we can now where we’re spending the money and where the data is, so we can make informed decisions.

We can’t make good decisions without the underlying information to tell us what to do.

The challenges that are in front of us are daunting, but they’re fixable. We have seen other states tackle hard problems. We can tackle hard problems.

On the transparency side of things, we have not covered ourselves in glory, and I’ll issue executive orders immediately upon becoming governor that get right at the issue of transparency and make sure that, moving forward, our government is accountable to you.

Government doesn’t serve itself. Government serves, temporarily, the people who elected it into power.

Closing Remarks

  • Helena Foulkes (Democrat):

Thank you all so much for being here, for the great questions, and for your time and energy on these topics.

I want to be a governor for everyone. One reason I did so well in the Democratic primary is that I know Rhode Islanders are ready for change. They’re hurting. Everywhere I go, people talk about how much pain there is in this state, but at the same time, how much people love it here.

I’m optimistic we can do great things together.

When I think about our state, I want it to be a place where our children and grandchildren can live a good life.

I want this to be a place where people can afford healthcare. They can send their kids to a good school. They can have bridges and roads that actually work for them.

So many basic things aren’t working, and I think people lose hope. They lose faith that government can work.

Last night I was talking to a young man, and I always say, “What do you want the next governor to do?” And he said, “I want someone who will be honest with us.”

I’ve never thought I was the smartest person in the room. I will absolutely be leveraging your expertise. You can expect to hear from me, and I’ll be an advocate and a champion for the people that you’re serving.

  • Ken Block (Independent):

Thank you for the opportunity to come here tonight, and thank you for the advocacy work that you do. Thank you for the services that you provide. Thank you for caring so much about the issues that have come out here.

Our government doesn’t work without people outside government making sure it doesn’t forget what it’s supposed to do.

You have seen in both of us tonight the hesitancy and the challenge when we talk about the funding and what’s coming at us.

We’re all feeling the pinch throughout the healthcare system. We are under tremendous stress from the physicians, the providers, all the way across.

For me, as someone looking to buy private health insurance, it’s probably close to $4,000 a month for my family of four.

That is unaffordable for the vast majority of Rhode Islanders. That’s way more than most Rhode Islanders pay on the mortgage.

So, we have what I lovingly call a mess.

And a problem of this magnitude requires a detailed thinker, somebody who’s going to pull the experts together and drive the conversation, and look to provide some structure on something that’s very unstructured right now.

And we have to find savings wherever we can, and put that money to better use.

National report says Alzheimer’s Disease expected to skyrocket

Published in RINewsToday on May 5, 2025

The 2025 Alzheimer’s Disease Facts and Figures report, released last week by the Chicago-based Alzheimer’s Association, highlights a dramatic rise in the number of Americans affected by the disease—signaling an urgent call to action for policymakers.

According to the report, the total annual costs of caring for people living with Alzheimer’s and other dementias (excluding unpaid care) is projected to be $384 billion in 2025.  The projected costs are expected to increase to $1 trillion (in today’s dollars) by mid-century.  Additionally, nearly 12 million family members and friends provide 19.2 billion hours of unpaid care, valued at an additional $413 billion. And deaths due to Alzheimer’s disease more than doubled between 2000 and 2022.

Taking a Comprehensive Look at Alzheimer’s

Published annually in Alzheimer’s & Dementia: The Journal of the Alzheimer’s Association, the report has, since 2007, served as the leading source of comprehensive national data on Alzheimer’s disease and related dementias. It offers critical insights into the impact, prevalence, and challenges of Alzheimer’s, shaping national conversations and guiding policy and research efforts.

The new survey findings are included in an accompanying special report, American Perspectives on Early Detection of Alzheimer’s Disease in the Era of Treatment. The nationwide survey of more than 1,700 Americans aged 45 and older examined awareness and attitudes about Alzheimer’s disease, early detection and diagnosis, tests used to help diagnose Alzheimer’s, and treatments that can slow progression of the disease.

Their survey finds that people want to know if they have Alzheimer’s, and they want to know before it impacts their daily life. They want a simple test so they can access care earlier, including treatments that can slow the progression of the disease,” said Elizabeth Edgerly, Ph.D., senior director, Community Programs and Services, Alzheimer’s Association in a statement announcing the release of the report. “Their interest in early diagnosis and treatment highlights how important it is that we keep advancing toward diagnostic testing that is simple to administer and widely available. We also heard loud and clear that Americans want disease-modifying treatments that can make a real difference after an Alzheimer’s diagnosis,” she says.

If diagnosed with Alzheimer’s disease, 83% would be willing to participate in a clinical trial for treatment to help slow or cure the disease, note the findings. And 48% cited the ability to participate in clinical trials as a reason for wanting Alzheimer’s testing.

The study findings suggest that Americans are optimistic about new treatments to slow or prevent Alzheimer’s disease.  Eighty-one percent believe that new treatments to stop the progression of Alzheimer’s will emerge in the next decade. And 66% believe that new treatments to prevent the disease will be available soon.

Meanwhile, this year’s findings suggest that Americans are concerned about Alzheimer’s testing and how it could affect future care. Forty-four percent 44% worry that insurance will not cover future care and treatment following testing and 41% stay they are concerned about test accuracy.  Other concerns expressed by the respondents include the cost of testing, and losing confidence in abilities or not being allowed to do certain activities (such as driving).

There Are Not Enough Dementia Care Specialists

In the coming years, the 2025 Facts and Figures report warns policy makers of a shortage of dementia care specialists (including neurologists, geriatricians and geriatric psychiatrists) and direct care workers.  Fifty-five percent of primary care physicians caring for people living with Alzheimer’s report that there are not enough dementia care specialists in their communities.

Researchers estimate that 34% to 59% of those aged 65 years and older reside in areas with potential dementia specialist shortfalls. The report estimates that more than 18,000 geriatricians will be needed to care for the approximately 12.7 million individuals aged 65 and older projected to have Alzheimer’s dementia in 2050 — more than double the number of geriatricians who were practicing in 2021.

While it is reported that between 2014 and 2023, the number of direct care workers increased from 3.5 million to 5 million due to growing demand for long-term care, researchers estimate that over 861,000 additional direct care workers will be needed by 2032 — more new workers than in any other single occupation in the United States.

Between 2022 and 2032, the report warns that double-digit percentage increases in the number of needed home health and personal care aides will be needed in every state except Maine to meet the increasing demand. Despite recent increases, projections fall short of true workforce demand.

But they remain optimistic that the next decade will bring new Alzheimer’s treatments to slow, prevent and even cure the devastating disorder.  Four in five Americans (81%) believe new treatments to stop the progression of Alzheimer’s will emerge in the next decade, and 66% believe new treatments to prevent Alzheimer’s will be available soon.

Taking a Close Look at Rhode Island Statistics

According to the 2025 Rhode Island Alzheimer’s Statistics, 22,000 people are living with Alzheimer’s, representing 11.2% of the population aged 65 or older.  There are 37,000 unpaid caregivers providing $52 million in care (valued at $1.4 billion), notes the report’s findings. The statewide deaths from Alzheimer’s disease is 475.  Alzheimer’s Disease as a cause of death ranks 5th.

The Rhode Island Fact Sheet notes that the number of Rhode Islanders in Hospice (2017) with a primary diagnosis is 1,657 or 25 percent.  In 2018, the number of emergency visits per 1,000 people with dementia was 1,606.

And the state’s Medicaid costs of caring for people with Alzheimer’s in 2025 was $ 613 million.  The per capita Medicare spending on people with dementia in 2024 dollars is estimated to be $ 31,741.

Jerry Larkin, MD, Director of the Rhode Island Department of Health commented, “This report shows the need for continued public health efforts to support the growing number of people with Alzheimer’s disease and other dementias in Rhode Island and their caregivers.  The Rhode Island Department of Health is committed to supporting social service agencies to address cognitive decline among their patients and community members; improving diagnosis and treatment of Alzheimer’s within primary care; and providing resources and educational tools, such as the RI Brain Health Guide for families to navigate systems to manage this disease.”

On WJAR’s Health Check 10 website, on April 29, 2025, Barbara Morse got the scoop in announcing the release of the latest Alzheimer’s Facts and Figures Report. For the first time, more than 7.2 million people in the U.S. are living with Alzheimer’s, notes Alzheimer’s expert Dr. Ted Huey, the director of the Memory and Aging Program at Butler Hospital in Providence. “That number is expected to double to nearly 14 million by 2040, with an estimated one million new cases each year by 2060,” he says.

Dr. Huey told Morse, “We have the first new disease modified medications in forever.  Really, the first ones that remove one of the key proteins that causes Alzheimer’s disease.”

Despite advances in treating Alzheimer’s, federal funding for research is being cut, which could hinder progress. “It would be a shame to cut it now because I think we’re really at a good place and we’re making some real advances,” says Huey.

“The survey showing that more Americans want to know if they have Alzheimer’s and that they are interested in taking a medication to slow the disease emphasizes the need for our important work. We need to educate more people about the 10 Signs of Alzheimer’s, when to take their memory concerns to a doctor and our support programs. This is an exciting time for treatment and we want people to know we are here for them,” says Donna McGowan, Executive Director of the Rhode Island chapter of the Alzheimer’s Association. 

“Our survey makes it clear — most Americans want to take action if they experience cognitive problems,” said Alzheimer’s Association Edgerly. “With the rising prevalence of Alzheimer’s, it’s more important than ever that researchers, clinicians, health systems, public health officials and other stakeholders work together to ensure all Americans have access to timely and appropriate Alzheimer’s diagnosis, care and treatment,” she says.

The Alzheimer’s Association is a worldwide voluntary health organization dedicated to Alzheimer’s care, support and research. Its mission is to lead the way to end Alzheimer’s and all other dementia — by accelerating global research, driving risk reduction and early detection, and maximizing quality care and support. For more info, visit alz.org or call 800.272.3900.
29, 2025

To download the 2025 Alzheimer’s Disease Facts and Figures report, go to https://www.alz.org/getmedia/ef8f48f9-ad36-48ea-87f9-b74034635c1e/alzheimers-facts-and-figures.pdf.

Fifth Time a Charm for Direct Care Worker Raises?

Published in Woonsocket Call on November 6, 2016

When the Rhode Island General Assembly wraps up its session many times the stars are not in political alignment for passage of a particular legislative proposal or budget amendment, even if many lawmakers considered these to be worthy of passage. Sen. Louis P. DiPalma understands this very well.

During the past four legislative sessions he has unsuccessfully pushed to increase pay for direct care workers serving persons with intellectual and developmental disabilities by boosting the state’s budget funding for these workers.
DiPalma, a Middletown resident who as a senator has represented Little Compton, Middletown and Tiverton for over 8 years, has come back for a fifth time, hopefully the last, to see his efforts succeed in providing a living wage to these providers, enhancing the quality of life of their lives.

A Call for a ’15 in 5’ Pay Increase

At a news conference held on Friday, Oct. 28, at Warwick-based West Bay Residential Services, DiPalma along with fellow Senators, announced their support for his proposal: ’15 in 5’ pay increase for workers serving persons with intellectual and developmental disabilities. The Democratic senator envisions annual, incremental increases in compensation to reach $15 an hour in five years, and tying the pay rate to inflation thereafter.

A 2015 survey by the Community Provider Network of Rhode Island paints a picture of Rhode Island’s direct care workers. The majority of these individuals are women of households. Many receive state assistance from programs geared towards low-income workers, such as SNAP benefits, WIC, heating assistance, day care assistance, and housing aid. More than 40 percent of the workers hold more than one job to financially survive.

At the 53-minute press conference, DiPalma urged Rhode Island Governor Gina Raimondo to include his funding proposal in her 2017 budget submission. He also plans to submit legislation in the 2017 session to address the compensation system for these direct care workers, providing annual increases so that the pay rate of direct care workers reaches $15 in five years, and tying future wage increases beyond five years to inflation.

“The minimum wage has increased by 30 percent since 2012, but the rate paid to these essential direct care providers has remained stagnant,” charged DiPalma, at the press event. “The pay is now barely more than minimum wage, which is having a detrimental effect on staff retention, training costs, and, as a result, quality of care [for persons with intellectual and developmental disabilities],” he says.

DiPalma noted that the need for this pay increase is obvious. “The facts and data show that our direct care workers love their jobs and want to stay in the field. They genuinely care about the population they serve. Yet, 62 percent of respondents to a recent survey indicated that low salary was a factor that may make them leave their jobs. We need to act to address this urgent situation,” he said.

According to DiPalma, the average annual staff turnover rate in the private provider network is approximately 33 percent. “This is three times as high as the approximately 11 percent staff turnover rate for comparable positions with the state-run providers through the Rhode Island Community Living and Supports (RICLAS) at the Department of Behavioral Healthcare, Developmental Disabilities and Hospitals, according to providers and RICLAS,” he says.

The average private-sector direct care worker makes $10.82 per hour, or about $22,500 a year, says DiPalma, noting that entry level provider positions at state RICLAS pay $17.15 per hour. When considering longevity, the average wage for all RICLAS direct care workers is approximately $42,278. RICLAS workers also receive state employee benefits.

Jumping on the Band Wagon

Two days before DiPalma’s press conference, Secretary of Health and Human Services Elizabeth Roberts penned her endorsement of his wage increase proposal. In her Oct. 26 correspondence, she strongly endorsed his efforts to implement multiyear wage increases to Rhode Island’s direct service providers. “These workers are critically important to realizing the goals set forth in our clients’ person-centered plans,” she adds, noting that these workers provide services necessary for ensuring that persons with disabilities are integrated in Rhode Island communities.

At the press conference, S came to give DiPalma his blessings. “Increasing wages to private direct care workers addresses an important part of the wage inequity problem, and helps improve outcomes for the individuals they serve. At the same time, we need to continue to review the methodology for compensating all those direct care workers who serve our children, homebound elderly, and individuals with disabilities through other types of provider agencies,” says Da Ponte.

Like other speakers at the press conference, Donna Martin, executive director of Community Provider Network of Rhode Island, called initial salaries for direct service workers “woefully inadequate” for the work they perform. “They are working nights and holidays leaving their families behind to support individuals under their care.,” says Martin. “These individuals serve as mentor, friend, confident and even some serve in the role of family to their clients,” she adds.

Adds speaker Anthony Antosh, Director of the Paul V. Sherlock Center on Disabilities: “The field of developmental disabilities has dramatically changed in the past two decades as have the responsibilities and expectations for direct support staff. The outcomes achieved by adults who have a developmental disability are directly connected to the quality and stability of direct support staff. Developing a career ladder built on quality training and fair wages will go a long way towards stabilizing the direct support workforce and improving quality of services.”

Marie Carroll, a direct service provider employed by ARC of Blackstone valley, a
Pawtucket-based agency employing over 200 employees, sat in the audience to support DiPalma in his efforts to increase funding for direct care workers. She sees Rhode Island’s lower wages pulling her colleagues into Massachusetts for higher incomes.
Carroll hopes to see the Rhode Island General Assembly in the upcoming session value the work she and 3,500 direct care workers provide. “People who care for the state’s disabled should not be paid poverty wages. You can’t expect people to work in an emotional and sometimes physically demanding job for $11 per hour,” she said, stressing that low wages keep these workers from taking adequate care of their own families.

Boosting Wage Payments in Next Year’s Budget

At press time, DiPalma’s wage increase proposal has received a seal of approval from President of the Senate M. Teresa Paiva Weed and Senate Finance Committee Chairman Da Ponte. Roberts, as Secretary of Health & Human Services, who oversees the state’s disability programs and services, gives her enthusiastic support for boosting funding of direct services workers in the upcoming 2018 budget. But, press secretary Larry Berman says that House Speaker Nicholas A. Mattiello is studying DiPalma’s proposal and has not yet taken a position on this issue.

Even with early political support of DiPalma’s ’15 in 5’ Pay Increase proposal, its ultimate passage lies with either Governor Raimondo boosting direct car worker wages in her FY 2018 budget proposal or in the state’s final budget crafted by the House with the sign off of the Senate. For DiPalma and those working with persons with intellectual and developmental disabilities, the Governor, House Speaker and President of the Senate must be on the same page to move DiPalma’s proposal forward. Hopefully, the “fifth time is the charm.”