Category Archives for Caregivers

Unpaid Caregiving Takes a Toll on Retirement Security

Published in RINewsToday on August 10, 2026

Unpaid family caregiving is often viewed as a labor of love. But a new national study shows that caring for a loved one can also come with a significant financial price — one that may well follow caregivers right into their retirement years.

On July 22, the Washington, D.C.-based Employee Benefit Research Institute (EBRI), a nonprofit, nonpartisan research organization that studies employee benefits, released its 42-page report, “Caregivers and Retirement: Findings From the 2026 Retirement Confidence Survey.” The report examines how unpaid caregiving affects financial security, employment, health and retirement planning.

Not surprisingly, the findings paint a very troubling picture. Caregivers are more likely than non-caregivers to report lower financial assets, debt problems, poorer health and less confidence about having enough money to live comfortably throughout retirement.

The report is part of a broader caregiving project being developed by EBRI and Greenwald Research. The goal is to provide employers with educational resources and strategies to help employee caregivers better prepare for retirement while managing the all-consuming demands of caring for a family member.

A Growing Retirement Security Issue

The 2026 Retirement Confidence Survey, now in its 36th year, found that nearly three in 10 Americans age 25 and older are unpaid caregivers.

For purposes of the study, caregivers were defined as people who provided unpaid care for an adult or child during the previous 12 months in a non-institutional setting and helped the care recipient with at least one activity of daily living or instrumental activity of daily living.

The findings were discussed during a July 22 EBRI and Greenwald Research webinar featuring Craig Copeland, EBRI’s director of wealth benefits research; Lisa Greenwald, CEO of Greenwald Research; Kerry Sette of Voya Financial; and Cynthia Hutchins of Bank of America Merrill Lynch.

Throughout the discussion, the message was quite clear: caregiving is not simply a family or health issue. It must also be viewed as a retirement security issue.

“Caregiving is often discussed as a family, health or workplace issue, but this research shows it is also an important retirement security issue,” Copeland and Greenwald said in announcing the report.

“Caregivers are doing many of the same planning activities as non-caregivers, but they are more likely to face debt, lower assets, mental health strain and lower confidence about their long-term financial future,” they noted.

The 2026 report builds on an earlier 2023 EBRI/Greenwald Research study that also examined caregivers. Comparing the two surveys, Copeland said caregivers continue to fall behind their non-caregiving counterparts.

Taking a Look at the Key Findings

Caregiving can take a toll on health. Only 36% of caregivers said their health was excellent or very good, compared with 45% of non-caregivers. Caregivers were also less likely to have household incomes of $75,000 or more — 53%, compared with 62% of non-caregivers. Women represented 61% of caregivers, compared with 47% of non-caregivers. 

Caregivers have fewer financial resources to build wealth. Thirty-four percent of caregivers reported having less than $10,000 in savings and investments, compared with 25% of non-caregivers. Debt was also more likely to be a problem: 69% of caregivers said debt was a problem, compared with 57% of non-caregivers.

Caregiving can hit the family wallet. Thirty-four percent of caregiving workers and 20% of caregiving retirees said they provide financial support to the person they care for. In addition, 20% of caregiving workers and 15% of caregiving retirees said they had taken on new or additional debt as a result of caregiving.

The emotional toll is substantial. Sixty-four percent of working caregivers and 52% of caregiving retirees said caregiving had negatively affected their mental health. Among working caregivers, the financial tasks most affected were saving for emergencies (56%) and working the hours they wanted or needed to work (54%).

The financial pressures of caregiving can make it harder for people to prepare for their own futures. Caregivers in both the lower- and upper-income groups were more likely than non-caregivers with similar incomes to lack confidence that they would have enough money to live comfortably throughout retirement.

Among households earning less than $35,000, 75% of caregivers said they were not confident they would have enough money for retirement, compared with 55% of non-caregivers. Among households earning $75,000 or more, 32% of caregivers lacked confidence, compared with 23% of non-caregivers.

Caregivers were also more likely to worry about the impact of an economic recession, rising housing costs, and having to provide care for a loved one with a health condition or disability.

When Caregiving Changes Retirement Plans

For some caregivers, the demands of providing care can even change when they leave the workforce.

The survey found that caregiving retirees were more likely than non-caregiving retirees to have retired earlier than planned. Among those who retired earlier than expected, caregivers were more likely to say they did so because they had to care for a spouse or another family member.

Caregiving retirees were also more likely to describe their current retirement lifestyle as fair rather than excellent. They were more likely to say their retirement lifestyle was not what they had envisioned and that several retirement expenses were higher than expected.

Higher-income caregivers also lagged behind non-caregivers with similar incomes in completing several important retirement-planning tasks, including calculating how much they needed to save, saving for retirement, planning for emergency expenses and estimating future health care costs.

The report points to a number of ways employers can help working caregivers, including flexible scheduling, remote-work opportunities, caregiver resources, education and benefits designed to reduce some of the financial pressures associated with caregiving.

Lisa Greenwald, CEO of Greenwald Research, says caregiving creates financial, health and social-emotional pressures at different stages of life — while people are working, preparing for retirement and after they retire.

For employers, she says, recognizing these challenges can help them provide the flexibility and support caregivers need to remain productive at work while continuing to save for retirement.

Having Their Say…

Washington insider Dan Adcock, director of government relations and policy for the National Committee to Preserve Social Security and Medicare, agrees with the report’s findings about the financial and personal pressures facing caregivers.

Unless unpaid family caregivers receive greater support through respite care or paid Home- and Community-Based Services, Adcock says, caregiving responsibilities can take a toll on their physical and emotional health.

He also points to another concern not fully captured by the EBRI survey: working-age caregivers who leave the workforce to care for a loved one can end up with lower Social Security benefits because the program’s benefit formula is based in part on a worker’s earnings history.

That is one reason Adcock supports a Social Security caregiver credit.

He urges Congress to pass the Social Security Caregiver Credit Act of 2026 (S. 4396/H.R. 8490). The legislation was introduced by Sen. Chris Murphy (D-Conn.) and Sen. Kirsten Gillibrand (D-N.Y.) in the Senate, with Rep. Brad Schneider (D-Ill.) introducing the House companion measure.

The legislation would allow qualifying unpaid caregivers to receive up to five years of deemed wages for purposes of calculating Social Security benefits. To qualify, a caregiver would generally have to provide at least 80 hours of care per month to a dependent child under age 12 or a chronically dependent relative.

The bills remain in committee. S. 4396 was referred to the Senate Finance Committee, while H.R. 8490 was referred to the House Ways and Means Committee.

The issue is particularly important here in Rhode Island, where thousands of family members provide unpaid care that helps loved ones remain in their homes.

Maureen Maigret, policy advisor with the Senior Agenda Coalition of Rhode Island (SACRI), says the EBRI findings confirm what advocates have been seeing for years.

“Caregiving takes a significant physical, emotional, and financial toll on our unpaid caregivers,” she says.

Maigret notes that Rhode Island caregivers provide thousands of hours of unpaid care that can allow people to remain at home longer, potentially delaying or avoiding more costly nursing facility care.

SACRI is pushing for policies to strengthen support for caregivers, including expanding the state’s Temporary Caregiver Insurance program, adequately funding respite services, and creating a state caregiver tax credit.

Rhode Island has already taken steps to support working family caregivers through its Temporary Caregiver Insurance program. Aging advocates, however, continue to push for expanded eligibility and additional weeks of paid leave.

Taking a Close Look at AARP’s Caregiver Study

After a media briefing last year, AARP and the National Alliance for Caregiving (NAC) published a report, Caregiving in the U.S. 2025, that warns of a looming crisis that will impact America’s 63 million caregivers, an increase of 45% over the past decade. The report, released June 24, 2025, noted that caregivers are at a “crisis point.” Nearly half reported major financial problems, one in five reported fair or poor health, and more troubling, nearly a quarter felt completely alone.

One in five caregivers report poor health; a quarter are taking on debt due to caregiving. Half report negative financial impact due to caregiving, and one in five cannot afford basic needs like food.

EBRI’s new survey adds an important retirement-focused perspective to an ongoing national conversation about unpaid caregiving.  The research shows how caregiving can affect not only today’s household decisions but a person’s long-term financial security.

And that may well be the most important takeaway from the new EBRI report.

Millions of Americans step up to the plate when a parent, spouse, child or other loved one needs help. They do it because it is what families do. But caregiving should not mean that the person providing that care has to sacrifice his or her own financial future.

Like AARP’s 2025 caregiver study, EBRI’s report examines how caregiving responsibilities are associated with retirement confidence, debt, savings, financial stress, workplace needs and long-term retirement preparation among workers and retirees.

The EBRI research, complementing AARP’s definitive caregiving research, makes it clear that unpaid caregiving carries consequences that can extend far beyond the time spent providing care. For many Americans, the price may be paid not only today, but again when they reach retirement.

A Final Note…

EBRI’s Copeland points out: “The survey results clearly show caregiving has significant impacts on both workers and retirees, not only now but in the future as well. While you may not be a caregiver currently, if you have parents or children, you are likely to be one in the future. Thus, preparing for this need, or better handling current caregiving needs, can make a huge difference in retirement preparations and current expenses. Caregiving can take a toll on all aspects of life, so anything individuals can do to plan for it or better educate themselves can foster a caregiver’s well-being, both financially and emotionally.”
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The 2026 Retirement Confidence Survey was conducted online from January 2 through January 28, 2026, among 2,544 Americans age 25 and older. It included a general population sample of 2,052 people — 1,007 workers and 1,045 retirees — plus an oversample of 492 caregivers. The final analysis included 701 caregiving workers and 305 caregiving retirees.

The 2026 survey was supported by the American College of Financial Services, American Funds/Capital Group, Bank of America, Bright Horizons, CareScout, Edward Jones, Empower, Fidelity Investments, FINRA Foundation, Jackson National, J.P. Morgan Chase & Co., Mercer, Nationwide, Principal Financial Group, Protective, Prudential/PGIM, T. Rowe Price and Voya Financial.

To watch the EBRI Webinar and for a copy of the slides, go to https://www.ebri.org/publications/webinars/past-webinars

To read AARP’s 2025 Caregiver Study, go to Caregiving in the U.S. 2025 – AARP Research Report

United Way’s 211 Brings New Resources to Rhode Island Caregivers

Published in RINewsToday on July 6, 2026

According to AARP Rhode Island, over 200,000 caregivers provide 111 million hours of care, and will have easier access to critical support through the expansion of the Caregiver Support Program offered via United Way’s 211 – the 24/7 confidential 3-digit helpline.  There is no charge for accessing the program.

Over two weeks ago, AARP and United Way Worldwide announced the program’s expansion into 10 additional states — Connecticut, Illinois, Maine, Maryland, Missouri, New Hampshire, South Carolina, and Rhode Island — along with regional support in California and Colorado.

Expansion into an additional 211 call centers brings the program to 32 states and Puerto Rico, now reaching 50% of the total U.S.population, making this resource accessible to an estimated 36 million family caregivers, says AARP.

AARP notes that the existing participating states include Alabama, Alaska, Arizona, Delaware, Iowa, Kansas, Kentucky, Michigan, Nebraska, New Jersey, New Mexico, North Carolina, Oregon, South Dakota, Wisconsin, and Wyoming, with regional service in parts of Florida, Georgia, New York, Ohio, Texas, and Utah. The program is also offered in Puerto Rico. With this expansion, the program is currently available within 32 states and Puerto Rico.

Launched in 2021, this groundbreaking resource initiative connects family caregivers to essential services for themselves and their loved ones through the 211 helpline and has already helped 2.5 million caregivers access the resources and support they need.

“Being a family caregiver is a labor of love – but it can also be a tremendous challenge,” sand Nancy LeaMond, AARP Executive Vice President and Chief Advocacy & Engagement Officer, in a statement announcing the expansion of the 211 program. “Through this expansion of 211, we’re making it easier for family caregivers to find the help they need, when and where they need it,” she said.

In a statement, AARP Rhode Island State Director Catherine Taylor said: “Through this expansion of 211, we’re making it easier for Rhode Island’s 206,000 family caregivers to find the help they need, when and where they need it.”

“Caregiving is one of the most important and challenging roles someone will ever take on,” said Cortney Nicolato, president and CEO, United Way of RI. “When you’re a caregiver, there is real courage in picking up the phone and saying, ‘I need help.’ Half of the equation is asking, the other half is getting the right guidance. And that’s what this partnership is all about,” she said.

The confidential 211 helpline program is the answer: available 24/7, offered in 180 languages, and accessible to anyone seeking assistance, whether or not they are a caregiver. Often without pay, training, or support, 63 million caregivers who care for their loved ones (parents, spouses, and friends) need access to trusted help.

Through this specialized Caregiver Support Program, caregivers residing in the participating locations can simply dial 211 to connect with trained Community Resource Specialists and receive tailored AARP resources that cover a wide range of topics, along with direct connections to local services, including:

  • Local referrals for transportation, food delivery, home safety, respite care, veterans’ benefits, and more
  • Support to address the caregiver’s own basic needs, like housing, employment, or emotional support

By the Numbers

According to United Way of Rhode Island’s 2023–2024 Community Impact Report, released online in January 2025, the nonprofit’s 211 information and referral service handled more than 190,000 contacts (phone calls, emails, texts, and walk-in visits) during the reporting period, connecting Rhode Islanders with info on food assistance, housing, health care, utility assistance, mental health services, and other critical resources.

The report notes that the free, confidential service operates 24 hours a day, seven days a week, with staff able to assist callers in more than 200 languages and dialects.  After business hours, 211 also answers calls for The Point.

Approximately 75% of 211 staff are bilingual and bicultural. United Way also reported that 211 operates three walk-in resource rooms and a mobile outreach RV that provides services at 15 community locations and participates in more than 250 outreach events annually.

Meanwhile, the report found that 211 handled 6,342 Medicare-related contacts, 4,371 Medicaid-related contacts, 647 Medicare enrollment requests, and 689 Medicaid application requests during the year.

Reaching Out for Help 

If you need assistance, you can always call 211 to reach out to a local specialist. Simply dial 211 from your cell phone or landline to speak with a live, highly trained service professional.

If you are looking for a 211 service in another community, or prefer to text, chat online, or search an online database, go to Your Local 211 | United Way 211

For more information about the Caregiver Support Program, visit www.aarp.org/211care. To connect with a 211 specialist, simply dial 2-1-1 or visit www.211

New AARP Report: Unpaid Care Skyrockets to over $1 Trillion

Published in RINewsToday on April 6, 2025

AARP’s latest report reveals a staggering surge in the economic value of unpaid family caregiving, now exceeding $1 trillion. Since 2006, AARP’s Public Policy Institute has tracked this value through its Valuing the Invaluable reports. Last week, at a virtual media briefing, the organization released its seventh report, Valuing the Invaluable 2026: Family Caregivers’ Contribution Reaches $1 Trillion,  delivering a strong message: in 2024, family caregivers provided nearly 50 billion hours of mostly uncompensated care—valued at a whopping $1.01 trillion. Sixteen years earlier, AARP estimated the value of uncompensated care was just $350 billion.

 Building on the previous data, the 9-page report, released on March 26, 2026, by AARP’s Public Policy Institute, emphasizes throughout that caregiving impacts not just families, but also the economy, labor market, and healthcare system.

 It estimates that 59 million caregivers contributed a total of 49.5 billion hours of care each year, valued at $20.41 per hour. Using the Caregiving in the US 2025 data set (which uses new statistical methods that incorporate the range of tasks and support that family caregivers provide), this amounts to about $1.01 trillion annually. For comparison, family caregivers’ economic contribution surpasses the combined federal, state, and local Medicare spending in 2024 ($931.7 billion) and nearly doubles out-of-pocket health care spending ($556.6 billion).

 To further accentuate the magnitude, the report calculates that the nearly 49.5 billion hours of uncompensated care provided annually equal the labor of about 24 million full-time workers—that’s 17% of the nation’s full-time workforce.

According to the AARP report, American adults spend as much time on caregiving duties as on everyday activities, such as housecleaning and preparing meals, and almost twice as much time as they spend on religious activities and volunteering combined.

This unpaid care—delivered by caregivers to older adults, neighbors, and friends—enables millions to remain independent in their homes and communities. The report warns that, without this assistance, millions of Americans would be forced to rely on assisted living or costly nursing facility care, resulting in significantly higher costs for public programs such as Medicaid. However, it also recognizes that this support comes at a steep personal cost to caregivers, often undermining their health, emotional state, financial security, and general well-being.

 Beyond national implications, AARP’s caregivers report also provides state-by-state estimates of the number of caregivers, total hours provided, economic value, and the average hourly value of care.

These state figures, for example, show that the estimated value of caregiving ranges from $14.12 per hour in Louisiana to $27.05 per hour in Washington, reflecting regional differences. In Rhode Island, approximately 155,000 family caregivers provide 111 million hours of unpaid care, valued at $2.8 billion, or about $25.07 per hour.

Continuing this deeper look, the AARP report finds that family caregivers now provide more care than ever, averaging 27 hours per week. More than half—57%—deliver high-intensity care: tasks such as bathing, dressing, wound care, and administering injections.

 Presser Announces New Caregiver Report’s Release

 To explore the report’s findings in greater depth, AARP convened a 40-minute panel moderated by Ilse Zuniga, Director of External Relations. This discussion brought together Dr. Myesha Minter-Jordan (AARP CEO), Nancy LeaMond (Executive Vice President and Chief Engagement Officer), Paula Cunningham (AARP Michigan State Director), Rita B. Choula (Senior Director at AARP’s Public Policy Institute and lead author), and Megan O’Reilly (Government Affairs Department).

During the panel, Dr. Myechia Minter-Jordan, AARP’s CEO and physician, addressed the 30 journalists present, stating that family caregivers are underwriting a service that millions depend on daily.

 She emphasized that, with family caregiving now exceeding $1 trillion annually, employers, healthcare providers, and policymakers must do more to recognize and support caregivers as they fill essential gaps in the healthcare system.

Dr. Jordan said caregiver stories are powerful and often painful, stressing that AARP is working to magnify these voices and advocate for concrete policies that recognize caregivers’ economic contributions.

 “Given that most Americans will either be a caregiver or need one at some point in their lives, we need to do better,” Dr. Jordan told the journalists.

 “AARP is supporting bold solutions to assist America’s caregivers, says Dr. Jordan. “These include a national paid family and medical leave policy, as well as greater respite services and resources, such as those offered in states through partnerships with United Way and AARP’s 211 Caregiver Support Hotline.”

She concluded that the released report should be a wake-up call and an opportunity for action, hoping that it will drive real, long-lasting change.

Nancy LeaMond, AARP Executive Vice President and Chief Advocacy and Engagement Officer, noted, “Caregiving is not simply a family issue; it’s a labor force, economic, and healthcare issue that compels action. Behind every data point is a person—a daughter, husband, grandchild, or neighbor.”  

According to LeaMond, AARP has been working relentlessly to raise caregiving as a national priority and to push for common-sense, bipartisan solutions that can save caregivers time and money.

LeaMond added that the organization has worked to raise the visibility of caregiving, making it a national priority at both the state and federal levels. She noted, “Oklahoma became the first state in 2023 to pass a comprehensive state-wide caregiver tax credit to put money back in the pockets of family caregivers,” with Nebraska following the next year.

Additionally, she stated that 12 other states have considered enacting statewide caregiver tax credit legislation during the 2026 legislative session.

LeaMond further reported that on Capitol Hill, AARP has been advancing legislation such as the Credit for Caring Act, which offers a $5,000 federal tax credit to offset caregiving expenses, and the Lowering Costs for Caregivers Act, which allows family caregivers to use Health Savings Accounts or Flexible Savings Accounts for care expenses for parents.

Paula Cunningham added a personal dimension, relating stories to illustrate the intense, unceasing nature of caregiving. She narrated stories of caregivers forced to draw from their savings or reduce work commitments, such as Deb Conja, an attorney from Okemos, Michigan, who left her job to care for her mother.

She also shared the experience of a Detroit military veteran who, after two tours of service, described caregiving for her mother as the hardest job she’s ever had—an indication of the intensity of these responsibilities.

“Navigating through who to call and when to call, and what kind of services are available is another layer of stress that we’re trying to help reduce,” says Cunningham. She noted that AARP Michigan is calling for funding for a Caregiving Resource Center to provide one-stop online shopping and connect 1.6 million Michigan caregivers across the state with the support services they need.  

 AARP Michigan is also pushing to expand access to funding for home- and community-based services that are necessary for caregivers to stay in the workplace, says Cunningham.

 Finally, during the Q&A, Megan O’Reilly from AARP’s government affairs department responded to Politico journalist Robert King about whether a federal crackdown on fraud in personal care services could undermine governmental efforts to support family caregivers. “Fraud is a crime, and those who commit fraud should be held accountable. But we have to make sure that we’re protecting the care and the need for the essential care and services that our communities and loved ones need to remain at home…,” she said.  

 In response to a question, Rita B. Choula, the AARP report’s lead author, provided extra insights as to how the economic value of care was calculated for the latest report.  

Today, caregiving encompasses much more than just taking someone to a provider’s office, paying bills, or even mowing the lawn, says Choula, noting that the economic value of care must account for the complexity of the care provided.  “Individuals are now doing things in the home that medical providers and professionals were trained to do,” she notes, explaining that these new duties have resulted in using a higher hourly wage to calculate the cost of unpaid care.  

AARP provides resources to help families navigate the myriad of caregiving challenges by connecting them to reliable resources in every state. AARP’s state-by-state Family Caregiver Resource Guides help family caregivers access key programs, services, and agencies right in their community. Additionally, through its partnership with United Way Worldwide, caregivers can access local support services in 28 states by calling 211, including help finding in-home care, respite care, transportation, and other essential services.

A Final Note…

Urgent policy action must be taken by Congress and state legislatures to provide the concrete financial support needed to deliver real financial relief and structural support for America’s caregivers through measures such as tax credits and paid family leave. It is the right thing to do!