Tag Archives for Rhode Island General Assembly

National Report: Brain Health Matters to Most, But Understanding Falls Short

Published in RINewsToday on April 27, 2026

As with the findings detailed in previous reports, the numbers in the Alzheimer’s Association’s recently released 2026 Alzheimer’s Disease Facts and Figures report are jarring.

In 2026, about 7.4 million Americans aged 65 and older, or roughly 1 in 9, are living with Alzheimer’s disease. Nearly three-quarters are 75 or older, and almost two-thirds are women.

As these numbers continue to rise, the challenges ahead grow even more daunting.  We see the graying of the U.S. population, which has resulted in the number of people living with Alzheimer’s rising sharply, says the report. By 2030, all baby boomers, those born between 1946 and 1964, will be in higher-risk age groups for developing devastating cognitive disorders.  By 2060, Americans with Alzheimer’s could reach 13.8 million.

Over the years, the Facts and Figures reports have become the nation’s primary source of statistics and analysis on Alzheimer’s and other dementias.  The report has been published every year since 2007, and this year’s edition also appears in the April 2026 issue of Alzheimer’s & Dementia®, the Association’s journal.

The 142-page report, released last week, provides updated national and state-level data. Its findings suggest that Alzheimer’s has become more common and challenging for caregivers. The report remains a guiding roadmap for state and federal officials and researchers to combat this serious cognitive disorder.  It also includes a special survey about how Americans aged 40 and older think about and manage brain health.

“The latest data show Alzheimer’s is still a growing challenge for families in Rhode Island,” said Laura Hoffman, executive director of the Alzheimer’s Association’s Connecticut and Rhode Island chapters, in a statement announcing the report’s release on April 21, 2026. “That’s why it’s critical to keep progressing research and developing treatments that can improve outcomes and support everyone facing the disease,” she says.

Hoffman stressed that the nationwide crisis demands urgent action now, given the mounting financial burden on caregivers. This year, professional care for people with Alzheimer’s and other dementias is expected to cost $409 billion. By 2050, Hoffman warns, this figure could reach nearly $1 trillion.

Caregiving is still mostly handled by family and friends, the report notes. Nearly 13 million relatives and friends provided more than 19 billion hours of unpaid care last year. The value of their efforts is estimated to be a whopping $446 billion.

The report noted that Alzheimer’s is also a growing cause of death.  Since 2000, deaths from the progressive g cognitive disorder have surged by 134%. In the same period, deaths from heart disease have risen by only 3.8%. Today, Alzheimer’s takes more lives than breast and prostate cancers combined.

Rhode Island: By the Numbers

According to the report’s Rhode Island-specific data, about 22,000 Rhode Islanders aged 65 and older are living with Alzheimer’s disease.  That’s 11.4% of this population group. Another 37,000 people serve as caregivers — many are unpaid family members or friends. So roughly 1 in every 30 Rhode Islanders is caring for someone with the cognitive condition. Together, they provide 53 million hours of unpaid care, valued at $1.5 billion.

In 2025, the State’s Medicaid costs of caring for persons with Alzheimer’s and other Dementias totaled around $ 640 million. Per-capita Medicare spending for these individuals was $33,705, according to the report.

Recently, Rhode Island’s care network relied on just 32 geriatricians and about 8,070 home health and personal care aides to support persons with Alzheimer’s and dementia. To keep up with rising demand for dementia care, Rhode Island’s workforce must expand. The state requires a 23.9% increase in home health aide roles by 2032 and an 18.8% increase in specialist geriatricians by 2050, according to the report.

When comparing national and Ocean State-specific data, Hoffman, who heads the Alzheimer’s Association’s Connecticut and Rhode Island chapters, notes that the nation’s smallest state has the same rising trend in Alzheimer’s prevalence, increasing caregiver burden, and growing strain on health systems.  “As a smaller, aging state, these trends will be felt even more. The impact on families, providers, and community resources is both visible and immediate,” she says.

Hoffman calls for more dementia care professionals across the long-term care continuum. “There is also a need for more respite care, adult day programs, and long-term options that are equipped to treat complex Alzheimer’s or dementia cases,” suggests Hoffman, to fill gaps in providing services, supports, or workforce capacity to care for Alzheimer’s and dementia patients.

With the General Assembly now in session, Hoffman is urging lawmakers to pass HB 7542 or SB 2874, which establishes a Dementia Services Coordinator position within the Department of Health. “This state agency position will support the work of the Advisory Council on Alzheimer’s Disease Research and Treatment, oversee implementation of the state Alzheimer’s plan, and serve as a liaison between state agencies, the governor, the legislature, and external stakeholders,” she says.

Understanding and Sustaining Cognitive Health

The Alzheimer’s Association’s 2026 Alzheimer’s Disease Facts and Figures report comes with a special report, Brain Health in America: Comprehending and Supporting Lifelong Cognitive Health. It is based on a survey of more than 3,800 U.S. adults aged 40 and older.

The special report’s findings show a clear disconnect: most Americans see brain health as a top priority, equal to or even more important than physical health, yet many are unsure how to protect it.

“Americans care deeply about their brain health and recognize that midlife is a critical time to take action,” said Heather M. Snyder, Ph.D., the Association’s senior vice president of Medical and Scientific Relations. “But many don’t know where to start and are looking for clear, practical guidance,” she says.

Almost all respondents said keeping their brains healthy is important, but only 9% feel well informed about it. Many know that sleep, diet, and exercise matter, but fewer people clearly understand how these habits might lower the risk of dementia.

Many respondents expressed concern about their potential declining cognitive health. More than two-thirds of those surveyed admit they worry about their brain health and the chance of developing Alzheimer’s or another dementia. Still, fewer than half of these individuals strongly link healthy lifestyle habits with lowering that risk.

The special report’s findings also reveal that interest in prevention programs is high, but barriers to participation remain. About 73% would consider joining brain health programs, such as cognitive exercises, health monitoring, nutrition advice, or physical activity. However, the program’s cost, location, motivation, and insurance coverage are major obstacles to participation.

Respondents also said they want flexible options. About 40% prefer self-guided programs at home, while 38% like blended formats that mix independent and in-person participation. Only 8% prefer fully in-person programs.

Many say midlife, ages 35 to 64, is a key time for them to act. Nearly two in five respondents think people should start focusing on brain health during these years. Almost half believe formal programs should begin then. About one-third also said brain health should be a lifelong pursuit.

Even with a strong interest, many people say they do not talk often with health care providers about brain health. Two-thirds of respondents said they would like to discuss brain health with their physician.  Most would welcome these talks during regular office visits. Most would welcome these conversations during routine office visits. Still, only a small percentage say they have actually had them.

“These outcomes show a real opportunity to better integrate brain health into routine care,” Snyder said. People are motivated to protect their brain health, but they need clear, effective guidance, she says.

Snyder sees a wider, clear message in the report: Brain health is a lifelong priority, not just a concern in older age, she says. “By connecting efforts across individuals, communities, workplaces, and health care systems, we could support cognitive health and help reduce dementia risk,” she adds.

A Final Note…

With this year’s Alzheimer’s Facts and Figures report released, Hoffman also sees a clear takeaway for Rhode Islanders: “Brain health matters at every stage of life. Take steps now—stay active, eat well, get enough sleep, remain socially engaged, and talk to your healthcare provider about memory concerns,”  she adds.

The Alzheimer’s Association is expanding efforts with community and research partners to deliver evidence-based information and programs. These projects are informed in part by the landmark U.S. POINTER study, which continues to explore how lifestyle interventions may help protect cognitive function.

If you have any questions about Alzheimer’s or any other form of dementia, contact the Alzheimer’s Association 24-7 Helpline at 1/ 800-272-3900.

For a copy of the Alzheimer’s Association’s 2026 Facts and Figures Report, go to Alzheimer’s Disease Facts and Figures

For a copy of this year’s Brain Health in America special report, go to Brain Health in America: Understanding and Supporting Lifelong Cognitive Health.

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For details about the U.S. POINTER study, to https://www.alz.org/us-pointer/study-results

Senior Agenda Coalition of RI Unveils 2026 Legislative Agenda at Annual Briefing

Published in RINewsToday on March 16, 2026

At its 10th annual Legislative Leader’s Forum, the Senior Agenda Coalition of Rhode Island (SACRI) unveiled its 2026 legislative agenda. More than 160 participants, including older adults, advocates, and state and federal officials, gathered at Gaige Hall at Rhode Island College for the event.

The event, “Voices of Advocacy — Anchors of Hope,” addressed the challenges facing Rhode Island’s growing older population and the policy changes needed to improve affordability, health care access, housing, and community supports.

The briefing opened with remarks by Rhode Island College President Jack R. Warner, SACRI Board Chair, Kathleen McKeon, and Executive Director Carol Anne Costa, who served as host. 

Costa began with a thank you to Rep. Joseph Solomon and Senator Mark McKeeney (who were present) for introducing the bill creating the Office of the Elder Advocate.  SACRI Policy Advisor Maureen Maigret outlined an Affordable Policy Agenda. Other speakers included representatives from the Rhode Island Coalition for Elder Justice, Economic Progress Institute, and Rhode Island Organizing Project.

A number of top elected officials followed, including U.S. Sens. Jack Reed and Sheldon Whitehouse, Congressman Seth Magaziner, Gov. Dan McKee, State Treasurer James Diossa, House Speaker K. Joseph Shekarchi, and Senate Majority Leader Frank Ciccone, who discussed previous and current legislative efforts affecting older Rhode Islanders.

Rhode Island’s Aging Demographics

“One in five Rhode Islanders is 65 or older,” Maigret said, adding the state is also among the top five for residents 85 and older.

The share of residents 65 and older rose from 16% in 2016 to 19% today. Maigret reminded officials that older residents are a powerful voting bloc. In 2024, over one-third of ballots were cast by older voters.

Nearly 73% of households led by those 65 and older own their homes, while 28% rent. Housing costs burden 31% of older homeowners and 52% of renters, who spend over 30% of their income on housing.

Around 4% of older Rhode Islanders live in nursing facilities, and about 485 aged 55+ are unhoused including 164 persons aged 65+.

Older adults drive Rhode Island’s economy: 40% of the workforce is 55+, about 40,000 provide unpaid family care, and approximately 45,000 volunteer formally in their communities.

Residents aged 50 and older contribute $27 billion annually to Rhode Island’s GDP. Social Security brings $3.9 billion into the state each year, with every $1 in benefits generating about $2 in economic output.

Despite these contributions, financial insecurity persists. Older adult poverty has increased and now exceeds 11%, and nearly a quarter of older households live on less than $25,000 a year.

A healthy single older homeowner without a mortgage needs nearly $29,000 annually to cover basic expenses, exceeding what about a quarter of older households have.

SACRI’s Legislative Priorities

Maigret said affordability is the central challenge facing older residents especially those with modest incomes, and SACRI has organized its agenda around four “building blocks”: health care, economic security, housing, and community supports.

Eliminating the $9,950 asset limit for the Medicare Savings Program is a top priority. SACRI recommends removing this limit entirely to allow more low-income residents to qualify for help with Medicare costs.

 “In 2025 the legislature raised the income eligibility to about $27,000, this year we want to take the next step,” Maigret said. “And the next step is to eliminate the very restrictive asset test.”

Maigret also urged lawmakers to fully fund provider rate increases as recommended by the Office of the Health Insurance Commissioner, specifying that these funds are needed to close workforce shortages in home care.

These increases address shortages of home care workers. The coalition also urges nursing home cost-of-living adjustments to the federal 3.1% recommendation, ensuring increases reach frontline workers.

Additional SACRI recommendations include increasing funding for the Long-Term Care Ombudsman Program to expand oversight and supporting an all-payer Primary Care Investment Target to increase access to primary care.

To address Rhode Island’s housing shortage, SACRI recommends a housing bond of at least $120 million, with a requirement that at least 30% be allocated to populations including older adults, persons with disabilities and the homeless. SACRI further urges that new residential developments be required to include more accessible units than the current 8% rate.

Maigret called for stronger support for caregivers and community services. Proposed policies include a caregiver tax credit up to $1,000, increasing the Medicaid home care asset limit, funding homemaker services, awarding a state grant to the Village Common of Rhode Island to aid aging in place, and establishing an Office of the Elder Advocate.

Other Policy Concerns

Nina Harrison, policy director at the Economic Progress Institute, argued that Rhode Island’s tax system places a heavier burden on lower-income residents.

“The lowest-income earners in the state pay a higher portion of their wages in taxes than the top income earners,” Harrison said. She supports creating a new tax bracket for annual income above $640,000, which she said could generate about $203 million annually for public services.

Ray Gagné of the Rhode Island Organizing Project called for restoring recent service cuts at the Rhode Island Public Transit Authority and creating a stable, long-term funding source for the system.

Lawmakers Respond

House Speaker Shekarchi shared a personal story about caring, along with his siblings, for their 100-year-old father with Alzheimer’s disease, stressing the importance of allowing older adults to age in place.

“Everything is a compromise. Everything is a negotiation,” Shekarchi said of the legislative process. He highlighted recent state investments, including $18 million to keep Roger Williams and Fatima hospitals operating, $12 million added last year to nursing home funding to address workforce shortages, and more than $40 million to increase reimbursement rates for primary care physicians.

Shekarchi also pointed to legislation allowing Accessory Dwelling Units (ADUs) as a step toward addressing the state’s housing shortage.

“That’s a big benefit,” he said.

Senate Majority Leader Ciccone said lawmakers are considering 17 bills to make health care more affordable and accessible. “Throughout this session, we will evaluate the financial burdens facing Rhode Islanders and the programs they rely on,” Ciccone said.

Gov. McKee argued that his “affordability for all” plan would benefit all Rhode Islanders, with key provisions for seniors, including the complete elimination of the state tax on Social Security and policies to control rising utility costs.

The Governor outlined several proposals in his budget, including increasing funding for senior centers by $200,000 for a total of $1.8 million and phasing out the state tax on Social Security income over three years, beginning with lower-income residents.

His budget also includes $9.5 million to assist nearly 10,000 residents whose HealthSource RI insurance premiums have increased sharply.

State Treasurer Diossa gave an overview of agency programs spanning the age spectrum, from baby bonds to retirement planning. He noted that his Secure Choice retirement program addresses the needs of the 40% of private-sector workers who lack access to retirement benefits.

At the federal level, Sens. Reed and Whitehouse warned that changes to federal policies could threaten Social Security, Medicare, and Medicaid.

U.S. Rep. Seth Magaziner also called for federal action to lower costs, including expanding Medicare drug price negotiations and creating tax incentives to increase the housing supply. He also announced plans to pursue bipartisan legislation to establish a permanent House Select Committee on Aging. “Seniors deserve a dedicated forum in Congress focused on the challenges they face,” Magaziner said.

SACRI’s Costa ended the Forum with a call to collective action, urging attendees to leverage their influence for unified advocacy on behalf of older adults and people with disabilities in Rhode Island.

Let’s make our voices heard and ensure Rhode Island’s leaders are held accountable for advancing these critical priorities. Together, we can drive lasting change and truly roar for progress.

Two Attendees’ Perspectives

Mary Lou Moran, director of Pawtucket’s Division of Senior Services/Leon Mathieu Senior Center, said the briefing successfully brought together leaders from across government to focus on the needs of older residents.

“The continued work to eliminate the Medicare Savings Program asset limit, create an Office of the Elder Advocate, and expand funding for programs such as the Long-Term Care Ombudsman and Medicaid home care was all highlighted,” Moran said.

Moran emphasized legislative and federal efforts to support older adults and expressed optimism that the initiatives discussed will drive progress in the next session.

“The Governor’s FY 2027 State budget is fully committed, has little new revenue & substantial federal cuts in the Affordable Care Act, Medicaid, Housing Voucher & food subsidies will leave an unresolved budget hole,” says North Kingston Resident David R Kaloupek. Kaloupek, 87, asks: “How will the Rhode Island General Assembly narrow its spending targets for the state’s most vulnerable, frail older adults, nursing home residents, home care beneficiaries, and unhoused older Rhode Islanders?  When the dust settles after the upcoming legislative sessions conclude, we’ll see who will be helped and who will be abandoned.”

A final note…  The coming together of aging advocates and Gov. McKee, the House Speaker, and Senate Majority Leader might just create the political will to support key parts of SACRI’s legislative agenda, such as eliminating the Medicare Savings Plan asset limit, the state tax on Social Security, or creating an Office of Elder Advocate, which could significantly boost the chances of those proposals becoming law. The agreement between aging advocates and state lawmakers on several fronts suggested a strong potential for legislative progress on senior issues in the upcoming session.

SACRI’s 2026 Legislative Leaders’ Forum was sponsored by: Age-Friendly Rhode Island, Delta Dental, United Healthcare, Neighborhood Health Plan, SEIU Local 580 and Capitol TV.

https://capitoltvri.cablecast.tv/show/11856

2025: A Year on the “Age Beat” in Rhode Island

Published in RINewsToday on December 29, 2025

Throughout 2025, this “Age Beat” columnist published a weekly commentary covering an extensive list of aging, healthcare, and medical issues. During this year, this columnist followed Congressional debates inside the Beltway involving Medicare, Medicaid, reauthorization of the Older Americans Act, and Social Security, reporting on how these federal policy proposals would affect older Rhode Islanders.  During the latest legislative session of the Rhode Island General Assembly, policy debates on Smith Hill were also covered in my weekly commentaries, examining how the proposed bills or enacted laws would impact state programs and services serving Rhode Island’s growing older population.

After reviewing the latest U.S. Census Data, it becomes very clear that the state’s aging population continues to grow.  For more than twenty-five years, I have tracked and continue to follow the graying of Rhode Island’s population.  Through more than 50 articles published in 2025 in Blackstone Valley Call & times and its sister publications, RINewstoday, Senior Digest and other statewide outlets, these stories have decoded complicated public policy debates, and demographic trends to shed light as to how they affect the daily lives of older adults, their caregivers, and nonprofit organizations that serve them.   

Some might interpret my weekly reporting as a way that specifically looks at older adults as one group of people.  However, others might see them on how aging impacts our own family members and our neighbors, and how we all deal with real-life challenges as we get older.

 Themes from Past Year’s Coverage

 Over the past year, several themes have become clear:  the economics of growing older and financially surviving retirement; staying safe from increasing sophisticated scams, public health issues surrounding loneliness and food insecurity; limited public transportation, finding a primary care physician, and managing multiple chronic illnesses.  Many of these commentaries also looked closely at state and federal policies that led to cuts in Medicare and Medicaid; the pressure points placed on Rhode Island’s safety net; and the ongoing policy questions the Rhode Island General Assembly is asking about how to help older adults stay independent at home—not just to live  longer, but live better.

You learn very quickly that national policy debates don’t go the same way here,, if you’ve lived in the Ocean State for a while.  A change in federal requirements of the Supplemental Nutrition Assistance Program (SNAP) or changing eligibility requirements and cuts to Medicaid funding are not distant Washington stories reported by the Washington Post or New York Times especially if they affect food, meal deliveries and health care provided in Providence, Pawtucket, Woonsocket, or Westerly. A change in Medicare drug pricing is not an abstract concept if it determines whether your older neighbor can fill a lifesaving prescription—or whether your spouse’s non-drug compliance stretches pills just to make them last.

 Many of these articles were tied to timely triggers—AARP reports detailing findings of national surveys and polls, a Senate Aging Committee or Congressional hearing putting a spotlight on an aging issue, a proposed legislative proposal being considered by Congress or the Rhode Island General Assembly. But the reporting doesn’t just give a concise summary of a policy issue. The point of these commentaries is to shed light on the issues by asking: “So what does this mean for older Rhode Islanders?” Where are the funding gaps?”  “Who is being left out?  “What can be done now while larger reforms slowly grind their way forward, only to be enacted years later?”

 Many of the commentaries published this year focused on out-of- pocket costs that increase with one’s aging —especially skyrocketing medical expenses. Even when Medicare covers a significant portion of one’s care, many older adults still face overwhelming costs, from premiums and co-pays to dental and vision needs, to uncovered services and especially costly prescription drugs and nursing home care.  The reporting also examined pending questions about Medicare’s financial future, including whether the program will be able to pay beneficiaries full benefits beyond 2033, or face potential benefit cuts.  Even the Washington, DC-based National Committee to Preserve Social Security and Medicare’s call for expanding the retirement program, along with raising the cap to enable Social Security to pay its bills made it into these commentaries.

 Another common theme in this year’s published commentaries is the recognition that aging affects not only our bodies and wallets, but also our emotions and relationships as well. The past year’s reporting on the role of loneliness and isolation serves as a reminder of how harmful they can be, especially when they lead to worse health outcomes.  In these writings, the goal is not to romanticize “community” but to show how social connection and networks in a “community” can be a good way to improve one’s health.

 The commentaries on loneliness do not regard the negative emotional response as a personal deficiency but rather as a significant policy concern influenced by the persistent scarcity of affordable housing, inadequate public transportation, mobility limitations, the loss of spouses and friends, and communities designed around the use of cars rather than their pedestrian walkability or accessibility.  How we view this matters because it is the framing that shifts the discussion away from “Why don’t older adults get out more?” to “What community barriers make connections harder to make—and what public supports are needed to make community connections possible?”

 Taking a New Look at Being Age-Friendly

The commentary on “age-friendly” thinking shows how Rhode Island’s 39 cities and towns can change their programs, services, and public spaces to keep older adults engaged in their community instead of primarily isolated. The announcement that the City of Pawtucket had joined Newport, Cranston, Providence, Westerly, and Bristol to become one of Rhode Island’s Age-Friendly Network Communities is an example.  We hope to report on more communities doing the same.

Over the past year, coverage of food insecurity, and a profile on the Meals on Wheels of Rhode Island, have helped to answer bigger policy questions:  What happens when demand goes up but and payments don’t? How do people get on waiting lists?  “What does “service disruption” mean for someone living at home? And how much does it cost—both in money and in people, when these programs have to be cut back?

One of the most important things we’ve reported on this year is consumer protection, especially when it comes to scams that target older people, because they are often the ones that more easily fall for scams because they have savings and are concerned about them, aren’t as familiar with digital manipulation, or have cognitive impairment.  There are many reasons why this topic is important right now, especially with new technology being used to spread scams.  And the Rhode Island General Assembly has been quick to act.  One commentary informed readers that Rhode Island has passed a new law to crack down on Crypto ATM fraud, making it the 12th state to do so.

 The best reporting on scams doesn’t just explain the tricks and why people fall for them – it also keeps the reader updated as to how scams keep changing.  Plus, it gives you practical tips as to how to avoid them, like pausing before you respond, double-checking what you’re told, and turning to someone you trust if something feels off, verifying, and seeking trusted help before acting. I wrote about these tips in great detail.

These consumer protection commentaries didn’t blame the victims, rather by framing scams as a systemic program caused by new technology and weak verification standards. And it makes this point clear.  Scams are not just seen as financial crimes; they can also cause shame, isolation, and stress that can harm your health.

 Caregiving is also another common topic in this year’s published commentaries. Aging advocates will tell you that caregivers are the hidden backbone of providing care to those in need.  They will tell you that family members, friends, and neighbors help out in ways that would otherwise need paid services or institutional care.  An AARP report says that about 121,000 in Rhode Islanders provided unpaid care to others in 2021 – estimated to be valued monetarily at over $2.1 billion.

 These commentaries on caregiving don’t talk about it in terms of sentiment, but in terms of policy, taking a look at time costs, impact on jobs, burnout, and the lack of enough respite support. The reporting also helps to shed light on common caregiver stress, and that needing help is not a personal failure but a normal result of  demographics and underfunded state programs and services.

When National Policy Hits Close to Home

In Rhode Island, where community-based services are important  to “aging in place,” the weekly coverage has helped readers to understand the whole long-term care continuum—from home care to day care to senior centers to assisted living to nursing home care, if needed.

 At best, access to health care is uneven; transportation is a barrier to many; affordable, accessible housing is limited; and the Medicaid-funded workforce that helps people stay at home is overworked and underpaid.  Older adults are dealing with rising costs for food, utilities, and rent or home upkeep, as well as the effects of inflation.

 Although many of this year’s commentaries put the spotlight on policy issues that need to be fixed, they also provide state policy makers ideas to solve these issues.  These are advocacy groups age-friendly planning; stronger protections for consumers; smarter use of technology; and increased state funding that treats community-based supports as cost-effective interventions rather than optional add-ons.