Block and Foulkes address Aging, Disability, Behavioral Health at Gubernatorial Forumof Healthy

Published in RINewsToday on October 5, 2026

By Herb Weiss, contributing writer

Democratic gubernatorial candidate Helena Foulkes and independent candidate Ken Block squared off Friday, Oct. 2, at a gubernatorial candidate forum focused on issues affecting older Rhode Islanders, people with disabilities, family caregivers, and those receiving behavioral health services.

The forum, held at Rhodes on the Pawtuxet in Cranston, was sponsored by the Senior Agenda Coalition of Rhode Island, AccessPoint Rhode Island (SACRI), and the Mental Health Association of Rhode Island.

“It was an honor and a pleasure to partner with AccessPoint RI and MHARI to present this forum,” said Carol Costa, Executive Director of SACRI, emphasizing their continued dedication to the intersection of Behavioral Health, Developmental Disabilities, and Aging.

“It was a distinct honor to welcome gubernatorial candidates Helena Foulkes and Ken Block to a forum focused on issues that directly affect older adults, people living with mental health challenges, and communities across Rhode Island,” said Costa.

“We appreciate the candidates’ time and their willingness to engage thoughtfully on these interconnected priorities,” she noted. “At a moment when democracy and civic discourse matter more than ever, their participation demonstrated a meaningful commitment to respectful dialogue, public service, and the people of Rhode Island.”

Unlike many gubernatorial forums that focus heavily on taxes, housing, education, and the economy, this forum allowed the candidates to address issues that often receive less attention during political campaigns: aging in the community, long-term services and supports, nursing home care, Medicaid, family caregiving, behavioral health, and services for persons with disabilities.

Here is a video of the forum, courtesy of Pat Ford, The Coalition Radio Network. Following the video is a “transcript” of the questions and responses.

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We edited the questions and candidates’ responses for length, grammar, and clarity. We did not change the meaning of the questions or the candidates’ responses. Refer to the video here for more information.

Carol Costa announced the following at the beginning of the forum:

“Before we begin, you’re all entitled to know that Aaron Gukian committed to taking part in this forum. He accepted my invitation and we planned this program around his participation. He is not here today. I received a phone call at 3:00 PM that he would not be here. I’m not going to let that take time away from this value forum. We’ve adjusted the program, and we will move forward in a focused and streamlined way so that these candidates who have taken the time to be with this audience get the forum they deserve. But you should know he did make a commitment to this community and he did not keep it.”

Here is what Foulkes and Block told more than 80 attendees at the forum.

Opening Remarks

  • Helena Foulkes (Democrat):

I really wanted to thank the SACRI for pulling this together, the Mental Health Association of Rhode Island, and AccessPoint Rhode Island for all you do.

I want to say that I feel very strongly that the senior population in our state is an incredibly untapped resource.

The wisdom, the expertise—and we’re going to talk a lot tonight, I’m sure, about caring for many of the elder folks and others in our state who need our support. But I think we often forget how much wisdom exists and how much more we could benefit as a state by tapping into all of your expertise.

I am very excited to be looking to the senior community to help me think about things like a Senior Corps-style effort. How do we take, as I said, the wisdom and expertise and tap into your sense of volunteerism?

I’ve been crisscrossing this state for the last few years, mostly in people’s kitchens and living rooms, listening, showing up, and asking people, “What’s one thing you’d love the next governor to do for you?”

  • Ken Block (Independent):

I’m very happy to be here tonight. Helena and I have been in front of many forums this year, hosted by advocacy groups for different purposes, all providing services or looking out for the interests of different groups of people.

This group has been remarkably effective at educating me about their issues and talking with me about the challenges different groups experience as they age.

I have been on this journey with my parents as they’ve aged and passed away. My wife’s parents are now in their 80s and are experiencing a very different journey than my parents did. They’re aging in place, let’s say, challengingly.

Dealing with that remotely has been a challenge for both my wife and me. It makes me realize that while my parents and Jen’s parents have been really supported, others on the journey don’t have the level of support and family involvement we had.

That’s where groups like this, or advocacy organizations like the ones we have here representing different services that can provide the help people need, are so vitally important.

  1. As governor, what would you do to strengthen the Office of Healthy Aging (OHA) and better support healthy aging and aging in the community?
  • Helena Foulkes (Democrat):

On this topic, I absolutely am open to the idea of a cabinet-level position. I need to understand it more closely, but I would say Maryland is a place where this does exist.

I’m good friends with Wes Moore. So this is an example where, using some of my relationships and even many other governors, I’d love to understand what does great look like as we think about serving the senior population.

I also want to speak to the fact that I think we need a whole-of-government approach. Tonight, it’s really hard to give you a hard commitment on dollars given that I don’t know what the state of the budget will be.

You look at education, the Department of Labor and Training, and the Rhode Island Public Transit Authority—lots of places where seniors need access to support. And we’ve got to have, under my leadership, a government that is really focused on how we serve seniors in the state because, to Maureen’s point, it’s a huge portion of our population, higher than most other states.

I would also like to have a master plan on aging. I’m sure many of you have parts of that. I want to pull it together.

So that’s where we need a governor who will set the expectation that I want to see – a plan. I’ll have deadlines because I want to benefit from the expertise, as I mentioned, involving you. Still, I also want to make sure we have a plan where we can hold ourselves accountable to making seniors’ lives better.

  • Ken Block (Independent):

Yes. I believe OHA should be a cabinet-level position for a simple reason: a substantial portion of our population has interests that line up directly under OHA.

And as governor, I want to make sure every large group of people who live here has a voice I can hear. Having OHA as a cabinet-level position gives me the ear I need to hear their needs.

I don’t disagree with anything Helena just said, but I would like to tackle the issue a little bit differently because I don’t think the state is being responsive enough.

I hear a lot of dismay and unhappiness with how responsive the state is to the needs of advocacy groups and the nonprofits that work with it. Several areas of dysfunction seem to be particular sticking points, especially OHHS.

So I describe myself as an operational manager. I’m a specialist in understanding where an organization doesn’t work well, where the friction points are, and what changes we need to make to improve it.

And I look at Rhode Island as a—right now, Rhode Island government’s kind of a target-rich environment.

  1. What steps would you take to reduce the number of lower-acuity residents living in nursing homes?
  • Helena Foulkes (Democrat):

I want to start on a human level around this question because I think the idea that more of our senior citizens should be able to live at home and have caregiving at home is a really great aspiration.

I think one barrier is not having the home healthcare workers we need to support folks in the state.

I speak to a lot of caregivers who don’t even talk about the dignity of their own work, how challenging it is, how low-paid it is. Most of the people I speak to don’t even have healthcare insurance themselves.

So I think we need to start by understanding what the gap is to get to this target, what the gap is in terms of the number of community healthcare workers who can do these jobs, and how do we make sure more of them get trained up, paid appropriately so that we can really be providing service.

You have Donald Trump, who is now essentially targeting many of these home-care providers and healthcare workers by threatening to send immigrants out of this country.

And I’ll use the Haitian community as one example of that. An incredible community of hardworking, loving, dedicated healthcare workers who are now unsure whether they’ll be able to stay here.

  • Ken Block (Independent):

Research shows that care for nursing home residents who need lower levels of care can be provided more cost-effectively outside nursing homes.

So from the governor’s office perspective, my job would be to make sure that we can pave the way for these alternative treatment and housing solutions, that they’re available, and that we can help families who might be taking on some of the burden of caregiving by providing resources to them to make the job easier.

As you all know, the state budget is under tremendous pressure, both from within and without. Washington, D.C., is threatening us. We have a structural deficit coming into this budget year, and Helena and I have both heard requests for what I estimate to be billions of dollars in additional funding this year from the different groups we’ve spoken to.

I have no idea how we prioritize all the different needs or how we can pay for them. It’s going to be very difficult.

But what you have done here, and what other groups have done, has demonstrated beyond a doubt that your requests are worthy.

  1. What would you do to expand home – and community-based care for persons with disabilities and behavioral health conditions?
  • Helena Foulkes (Democrat):

What I’ll add to my last answer is the idea of helping families navigate the complexity of this and thinking about this concept of “no wrong door.”

The idea is that I could go to a state website and get help figuring out how my loved one gets the best level of care in the state.

It’s really hard right now.

And what I’ve always said in my career is I don’t need to be the smartest person in the room. You all know much more about this than I do.

But what I want to do is ask all of you, as it relates to something like this, what are all the stupid things we do? What barriers do we put in your way, and how can we make it much easier for families navigating the complexities of this issue?

  • Ken Block (Independent):

With developmental disabilities, you have a challenge at some point where the severity of it is such that a home-based solution can be not only very difficult, but at times could also be maybe somewhat dangerous.

So I believe that the state government, the governor’s office, our job would be to make sure that people understand whatever services are available, whatever programs of support are available.

It’s a good idea when it works and as long as we can do it safely. That would be my biggest concern: making sure everybody can be safe.

We know that moving eligible individuals out of group homes or institutional settings and into the home environment can often lead to better results.

  1. What would you do to ensure implementation of the nursing home behavioral health per diem and protect the principles of Olmsted regardless of federal challenges?
  • Helena Foulkes (Democrat):

The last couple of years, the drumbeat around healthcare has gotten really loud. People are really worried that their primary care doc is going to retire and they won’t be able to find anyone.

We have two hospitals in our state that are on life support, I would say: Roger Williams and Fatima. We made a deal to keep them alive earlier in the year, but there’s still a real risk in those hospitals.

We have the federal government, which is just ruthlessly attacking people around healthcare in this country, with 40,000 Rhode Islanders who are going to lose access to Medicaid starting in January.

It’s so cruel. It’s so inhumane.

So a big thing that I’ve been focused on, in all honesty, is: how do we make sure people don’t get kicked off of Medicaid?

I want to use the faith-based community. I want to use senior centers. I want to go into some of the high-rises where seniors are living and bring the paperwork and resources to people, because the really sneaky thing about President Donald Trump and what he did with H.R. 1 is he’s making the paperwork so complicated that people won’t get through it and will give up.

I think healthcare will be the tsunami that will hit the next governor.

  • Ken Block (Independent):

I’m really glad Rhode Island cannot mint its own currency, because it would let politicians overcommit.

One of the easiest things for someone like me sitting here facing a room with people like you, on every question that asks, “Can you fund us? Can you fund us? Can you fund us?” The simple question always has the simplest answer, and the one you want to give as a candidate is, “I’ve got you.”

In this circumstance, I can’t tell you that I’ve got you. The General Assembly can’t tell you that they’ve got you. We don’t know what is coming at us.

So what I will tell you is I fully understand the need. I understand completely how important the program is. I get it. I really do.

But what I can’t tell you right now is, because I don’t know what’s coming, to make a promise now that I don’t keep is something that I really want to avoid.

I don’t want to be the guy who said, “Yep, absolutely.” And two months after I get into office, it’s like, “Oh my God, I can’t keep any of the promises that I made.”

My answer to you, with all sincere respect, is I don’t know.

  1. What role should Eleanor Slater Hospital play in meeting the long-term care needs of older Rhode Islanders and persons with disabilities?
  • Helena Foulkes (Democrat):

From talking to folks in the community, I know this sector of healthcare has been under a lot of strain for quite some time.

Getting people together and thinking about a holistic healthcare strategy in our state is a big priority of mine.

I think we’ve been putting Band-Aids on a lot of problems, but not really stepping back and asking: how do you serve people, and what assets do we have in the state that can help us do a good job for folks?

And Eleanor Slater is one component of that.

  • Ken Block (Independent):

I’m definitely open to using any existing resources that we have to address the issue.

So the direct answer to your question is I’m open to it. Yes.

  1. What steps would you take to implement Rhode Island’s 2025–2028 State Plan for Family Caregivers, including respite services, the Temporary Caregiver Insurance Program and a family caregiver tax credit?
  • Helena Foulkes (Democrat):

I think this relates to having a really solid plan that I talked about at the beginning and, in each one of these, understanding what is required. What’s the community’s priority?

If we can’t get everything done, what do you all see as most important?

It’s an incredibly stressful extra job that caregivers take on. I’ve spoken with many, many caregivers in the same generation, who are obviously working themselves, taking care of kids, and having parents.

And then you talk about the economic stress of just not being able to take time off.

I absolutely believe we need to expand caregiver assistance and support, but I need to understand, at the end of the day, what all of this costs and make sure I’m not making promises I can’t keep.

I won’t do that.

What are your mission-critical issues, and how do we actually work to get them done?

  • Ken Block (Independent):

I watched and participated firsthand in my relative’s home healthcare.

My mom was diagnosed with early-onset Alzheimer’s at age 61. We moved them to Providence, to an independent living facility. And my dad was my mom’s caregiver, and I watched the toll that it took on him.

One day I got a phone call, and he said, “Ken, your mom just kind of slumped down.”

I was like, “Oh my God.”

And he’s like, “No, she’s okay. She just slumped down, but she can’t get up, and I can’t lift her, and I don’t want to call anybody at the facility because they’re going to kick us out.”

I raced over, lifted her onto the bed, and that was it.

I realized right at that moment that my dad’s ability to care for my mom had ended.

The emotional and physical toll on caregivers is enormous. Enormous. I’ve watched it.

My dad aged 40 years while he cared for my mom.

And one of the things that I think the state has to watch out for, especially if we’re going to begin subsidizing people to provide care at home, is: how are we going to make sure that we are not putting many more people at risk because they want to take advantage of the money without regard to what the toll is really for both the patient as well as the caregiver?

We have to make sure that we are smart about it.

  1. How would you help older Rhode Islanders and persons with disabilities pay for long-term services without having to rely on Medicaid or sell their homes?
  • Helena Foulkes (Democrat):

This is a really hard problem, and I’ve met lots of families who have been put in this situation of selling the family home to put a loved one in a nursing facility.

I believe we need to raise Medicaid rates in the state. Our state has an older, poorer population than most of New England.

And Medicare, unfortunately, is fixed. The federal government sets it. It’d be great if it went up, but we can’t plan on that.

Medicaid: we have an opportunity to raise Medicaid rates by $70 million, and this last session we could have gotten a $126 million federal match. And that would make a real difference in the healthcare system.

I’ve met so many healthcare providers who live in this state and work in Connecticut and Massachusetts every day because they can make 20 or 30% more just by crossing the border.

I will also make sure someone on my team is dedicated to getting every single dollar of federal funds that we can.

And so, the needs are quite great, but a big part of it starts around funding Medicaid the way we need to.

  • Ken Block (Independent):

Medicaid is at the root of a lot of our healthcare challenges.

And in this case, the cost of assisted living is dramatically raised because the same facilities that provide higher-end services, like full-on nursing and memory care, are under-reimbursed by Medicaid, and they make up for that shortfall by sticking it to the private people who are paying for assisted living.

Everyone has to recoup costs, and we see this repeat in many different areas throughout our healthcare system over time.

So, interestingly, the answer to your question is that we have to figure out how to raise reimbursements for both Medicaid and Medicare.

If we do that, in theory, assisted-living costs should come down.

We spend a lot of money. Many different people have told me some of the money’s being well spent, some of the money’s not being well spent, and we have to make some hard decisions and assessments.

So I don’t think we can take the Medicaid budget from $5 billion to $7 billion. We don’t have the capacity for that.

But in that $5 billion, let’s make sure every penny is spent right. And the pennies that aren’t spent right, then we have to put them towards the things that solve the most problems.

  1. Would you support Medicaid reimbursement rates that reflect the cost of care and fair compensation for direct-care workers, while helping build and sustain the long-term care and behavioral health workforce?
  • Helena Foulkes (Democrat): Yes.
  • Ken Block (Independent): Yes.
  1. Would you support using 30% of state housing bond funds for older adults and persons with disabilities, increasing accessible housing units, and publicly tracking accessible and supportive housing?
  • Helena Foulkes (Democrat): Yes.
  • Ken Block (Independent): No.
  1. Would you support a small monthly telephone fee, similar to 911 funding, to sustainably fund Rhode Island’s 988 Suicide & Crisis Lifeline and broader behavioral health crisis response system?
  • Helena Foulkes (Democrat): Yes.
  • Ken Block (Independent): No (opposed burying another fee in the utility bill. Supports program but not the proposed way to pay for it.)
  1. Would you support eliminating the Medicare Savings Program asset limit and providing an annual cost-of-living adjustment to the state’s SSI Supplemental payment?
  • Helena Foulkes (Democrat): Yes.
  • Ken Block (Independent): No answer given because he didn’t have a cost estimate.
  1. Would you support developing and providing resources for a Rhode Island Multi-Sector Plan on Aging?
  • Helena Foulkes (Democrat): Yes.
  • Ken Block (Independent): Yes.
  1. Would you support legislation creating an Office of Elder Advocate?
  • Helena Foulkes (Democrat): Yes.
  • Ken Block (Independent): Yes.
  1. What would you do to improve transparency and accountability in the delivery of human services?
  • Helena Foulkes (Democrat):

Yes, we need much more transparency across the state.

Think about bridges and roads, the lack of transparency there. And it really breeds mistrust.

One thing I feel deeply, as I’ve been listening to people over the last few years, is that people have lost faith in government. They’ve lost faith that those of us who are working in government are committed to making life better.

And I know there are so many dedicated public servants, but it is so trust-corroding when we’re hiding information.

So I support anything we can do to increase transparency and make sure people have access to the information.

What programs are working really well? What programs aren’t working?

I was also a big proponent of the Inspector General because I thought, look at the billions of dollars that we got during the Biden administration. We don’t even know where that money went.

What worked? What didn’t work? What should we keep doing? What should we stop doing?

Those are really basic questions we’re not answering today, and I’m very committed to transparency.

  • Ken Block (Independent):

Pretty much my entire adult life has been spent following the data and letting it take me wherever it leads.

I’ve been more frustrated than happy with Rhode Island state government’s ability to provide data. And I know many people have asked the state for information.

They’ve been frustrated, and sometimes people within government can’t even get the data that they need to make decisions.

So this is an area where I literally eat—this is what I do professionally.

I’d like to see a whole—this is really nerdy stuff—but I want to see a bunch of dashboards and other tools that will ultimately help us understand much better than we can now where we’re spending the money and where the data is, so we can make informed decisions.

We can’t make good decisions without the underlying information to tell us what to do.

The challenges that are in front of us are daunting, but they’re fixable. We have seen other states tackle hard problems. We can tackle hard problems.

On the transparency side of things, we have not covered ourselves in glory, and I’ll issue executive orders immediately upon becoming governor that get right at the issue of transparency and make sure that, moving forward, our government is accountable to you.

Government doesn’t serve itself. Government serves, temporarily, the people who elected it into power.

Closing Remarks

  • Helena Foulkes (Democrat):

Thank you all so much for being here, for the great questions, and for your time and energy on these topics.

I want to be a governor for everyone. One reason I did so well in the Democratic primary is that I know Rhode Islanders are ready for change. They’re hurting. Everywhere I go, people talk about how much pain there is in this state, but at the same time, how much people love it here.

I’m optimistic we can do great things together.

When I think about our state, I want it to be a place where our children and grandchildren can live a good life.

I want this to be a place where people can afford healthcare. They can send their kids to a good school. They can have bridges and roads that actually work for them.

So many basic things aren’t working, and I think people lose hope. They lose faith that government can work.

Last night I was talking to a young man, and I always say, “What do you want the next governor to do?” And he said, “I want someone who will be honest with us.”

I’ve never thought I was the smartest person in the room. I will absolutely be leveraging your expertise. You can expect to hear from me, and I’ll be an advocate and a champion for the people that you’re serving.

  • Ken Block (Independent):

Thank you for the opportunity to come here tonight, and thank you for the advocacy work that you do. Thank you for the services that you provide. Thank you for caring so much about the issues that have come out here.

Our government doesn’t work without people outside government making sure it doesn’t forget what it’s supposed to do.

You have seen in both of us tonight the hesitancy and the challenge when we talk about the funding and what’s coming at us.

We’re all feeling the pinch throughout the healthcare system. We are under tremendous stress from the physicians, the providers, all the way across.

For me, as someone looking to buy private health insurance, it’s probably close to $4,000 a month for my family of four.

That is unaffordable for the vast majority of Rhode Islanders. That’s way more than most Rhode Islanders pay on the mortgage.

So, we have what I lovingly call a mess.

And a problem of this magnitude requires a detailed thinker, somebody who’s going to pull the experts together and drive the conversation, and look to provide some structure on something that’s very unstructured right now.

And we have to find savings wherever we can, and put that money to better use.

Unpaid Caregiving Takes a Toll on Retirement Security

Published in RINewsToday on August 10, 2026

Unpaid family caregiving is often viewed as a labor of love. But a new national study shows that caring for a loved one can also come with a significant financial price — one that may well follow caregivers right into their retirement years.

On July 22, the Washington, D.C.-based Employee Benefit Research Institute (EBRI), a nonprofit, nonpartisan research organization that studies employee benefits, released its 42-page report, “Caregivers and Retirement: Findings From the 2026 Retirement Confidence Survey.” The report examines how unpaid caregiving affects financial security, employment, health and retirement planning.

Not surprisingly, the findings paint a very troubling picture. Caregivers are more likely than non-caregivers to report lower financial assets, debt problems, poorer health and less confidence about having enough money to live comfortably throughout retirement.

The report is part of a broader caregiving project being developed by EBRI and Greenwald Research. The goal is to provide employers with educational resources and strategies to help employee caregivers better prepare for retirement while managing the all-consuming demands of caring for a family member.

A Growing Retirement Security Issue

The 2026 Retirement Confidence Survey, now in its 36th year, found that nearly three in 10 Americans age 25 and older are unpaid caregivers.

For purposes of the study, caregivers were defined as people who provided unpaid care for an adult or child during the previous 12 months in a non-institutional setting and helped the care recipient with at least one activity of daily living or instrumental activity of daily living.

The findings were discussed during a July 22 EBRI and Greenwald Research webinar featuring Craig Copeland, EBRI’s director of wealth benefits research; Lisa Greenwald, CEO of Greenwald Research; Kerry Sette of Voya Financial; and Cynthia Hutchins of Bank of America Merrill Lynch.

Throughout the discussion, the message was quite clear: caregiving is not simply a family or health issue. It must also be viewed as a retirement security issue.

“Caregiving is often discussed as a family, health or workplace issue, but this research shows it is also an important retirement security issue,” Copeland and Greenwald said in announcing the report.

“Caregivers are doing many of the same planning activities as non-caregivers, but they are more likely to face debt, lower assets, mental health strain and lower confidence about their long-term financial future,” they noted.

The 2026 report builds on an earlier 2023 EBRI/Greenwald Research study that also examined caregivers. Comparing the two surveys, Copeland said caregivers continue to fall behind their non-caregiving counterparts.

Taking a Look at the Key Findings

Caregiving can take a toll on health. Only 36% of caregivers said their health was excellent or very good, compared with 45% of non-caregivers. Caregivers were also less likely to have household incomes of $75,000 or more — 53%, compared with 62% of non-caregivers. Women represented 61% of caregivers, compared with 47% of non-caregivers. 

Caregivers have fewer financial resources to build wealth. Thirty-four percent of caregivers reported having less than $10,000 in savings and investments, compared with 25% of non-caregivers. Debt was also more likely to be a problem: 69% of caregivers said debt was a problem, compared with 57% of non-caregivers.

Caregiving can hit the family wallet. Thirty-four percent of caregiving workers and 20% of caregiving retirees said they provide financial support to the person they care for. In addition, 20% of caregiving workers and 15% of caregiving retirees said they had taken on new or additional debt as a result of caregiving.

The emotional toll is substantial. Sixty-four percent of working caregivers and 52% of caregiving retirees said caregiving had negatively affected their mental health. Among working caregivers, the financial tasks most affected were saving for emergencies (56%) and working the hours they wanted or needed to work (54%).

The financial pressures of caregiving can make it harder for people to prepare for their own futures. Caregivers in both the lower- and upper-income groups were more likely than non-caregivers with similar incomes to lack confidence that they would have enough money to live comfortably throughout retirement.

Among households earning less than $35,000, 75% of caregivers said they were not confident they would have enough money for retirement, compared with 55% of non-caregivers. Among households earning $75,000 or more, 32% of caregivers lacked confidence, compared with 23% of non-caregivers.

Caregivers were also more likely to worry about the impact of an economic recession, rising housing costs, and having to provide care for a loved one with a health condition or disability.

When Caregiving Changes Retirement Plans

For some caregivers, the demands of providing care can even change when they leave the workforce.

The survey found that caregiving retirees were more likely than non-caregiving retirees to have retired earlier than planned. Among those who retired earlier than expected, caregivers were more likely to say they did so because they had to care for a spouse or another family member.

Caregiving retirees were also more likely to describe their current retirement lifestyle as fair rather than excellent. They were more likely to say their retirement lifestyle was not what they had envisioned and that several retirement expenses were higher than expected.

Higher-income caregivers also lagged behind non-caregivers with similar incomes in completing several important retirement-planning tasks, including calculating how much they needed to save, saving for retirement, planning for emergency expenses and estimating future health care costs.

The report points to a number of ways employers can help working caregivers, including flexible scheduling, remote-work opportunities, caregiver resources, education and benefits designed to reduce some of the financial pressures associated with caregiving.

Lisa Greenwald, CEO of Greenwald Research, says caregiving creates financial, health and social-emotional pressures at different stages of life — while people are working, preparing for retirement and after they retire.

For employers, she says, recognizing these challenges can help them provide the flexibility and support caregivers need to remain productive at work while continuing to save for retirement.

Having Their Say…

Washington insider Dan Adcock, director of government relations and policy for the National Committee to Preserve Social Security and Medicare, agrees with the report’s findings about the financial and personal pressures facing caregivers.

Unless unpaid family caregivers receive greater support through respite care or paid Home- and Community-Based Services, Adcock says, caregiving responsibilities can take a toll on their physical and emotional health.

He also points to another concern not fully captured by the EBRI survey: working-age caregivers who leave the workforce to care for a loved one can end up with lower Social Security benefits because the program’s benefit formula is based in part on a worker’s earnings history.

That is one reason Adcock supports a Social Security caregiver credit.

He urges Congress to pass the Social Security Caregiver Credit Act of 2026 (S. 4396/H.R. 8490). The legislation was introduced by Sen. Chris Murphy (D-Conn.) and Sen. Kirsten Gillibrand (D-N.Y.) in the Senate, with Rep. Brad Schneider (D-Ill.) introducing the House companion measure.

The legislation would allow qualifying unpaid caregivers to receive up to five years of deemed wages for purposes of calculating Social Security benefits. To qualify, a caregiver would generally have to provide at least 80 hours of care per month to a dependent child under age 12 or a chronically dependent relative.

The bills remain in committee. S. 4396 was referred to the Senate Finance Committee, while H.R. 8490 was referred to the House Ways and Means Committee.

The issue is particularly important here in Rhode Island, where thousands of family members provide unpaid care that helps loved ones remain in their homes.

Maureen Maigret, policy advisor with the Senior Agenda Coalition of Rhode Island (SACRI), says the EBRI findings confirm what advocates have been seeing for years.

“Caregiving takes a significant physical, emotional, and financial toll on our unpaid caregivers,” she says.

Maigret notes that Rhode Island caregivers provide thousands of hours of unpaid care that can allow people to remain at home longer, potentially delaying or avoiding more costly nursing facility care.

SACRI is pushing for policies to strengthen support for caregivers, including expanding the state’s Temporary Caregiver Insurance program, adequately funding respite services, and creating a state caregiver tax credit.

Rhode Island has already taken steps to support working family caregivers through its Temporary Caregiver Insurance program. Aging advocates, however, continue to push for expanded eligibility and additional weeks of paid leave.

Taking a Close Look at AARP’s Caregiver Study

After a media briefing last year, AARP and the National Alliance for Caregiving (NAC) published a report, Caregiving in the U.S. 2025, that warns of a looming crisis that will impact America’s 63 million caregivers, an increase of 45% over the past decade. The report, released June 24, 2025, noted that caregivers are at a “crisis point.” Nearly half reported major financial problems, one in five reported fair or poor health, and more troubling, nearly a quarter felt completely alone.

One in five caregivers report poor health; a quarter are taking on debt due to caregiving. Half report negative financial impact due to caregiving, and one in five cannot afford basic needs like food.

EBRI’s new survey adds an important retirement-focused perspective to an ongoing national conversation about unpaid caregiving.  The research shows how caregiving can affect not only today’s household decisions but a person’s long-term financial security.

And that may well be the most important takeaway from the new EBRI report.

Millions of Americans step up to the plate when a parent, spouse, child or other loved one needs help. They do it because it is what families do. But caregiving should not mean that the person providing that care has to sacrifice his or her own financial future.

Like AARP’s 2025 caregiver study, EBRI’s report examines how caregiving responsibilities are associated with retirement confidence, debt, savings, financial stress, workplace needs and long-term retirement preparation among workers and retirees.

The EBRI research, complementing AARP’s definitive caregiving research, makes it clear that unpaid caregiving carries consequences that can extend far beyond the time spent providing care. For many Americans, the price may be paid not only today, but again when they reach retirement.

A Final Note…

EBRI’s Copeland points out: “The survey results clearly show caregiving has significant impacts on both workers and retirees, not only now but in the future as well. While you may not be a caregiver currently, if you have parents or children, you are likely to be one in the future. Thus, preparing for this need, or better handling current caregiving needs, can make a huge difference in retirement preparations and current expenses. Caregiving can take a toll on all aspects of life, so anything individuals can do to plan for it or better educate themselves can foster a caregiver’s well-being, both financially and emotionally.”
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The 2026 Retirement Confidence Survey was conducted online from January 2 through January 28, 2026, among 2,544 Americans age 25 and older. It included a general population sample of 2,052 people — 1,007 workers and 1,045 retirees — plus an oversample of 492 caregivers. The final analysis included 701 caregiving workers and 305 caregiving retirees.

The 2026 survey was supported by the American College of Financial Services, American Funds/Capital Group, Bank of America, Bright Horizons, CareScout, Edward Jones, Empower, Fidelity Investments, FINRA Foundation, Jackson National, J.P. Morgan Chase & Co., Mercer, Nationwide, Principal Financial Group, Protective, Prudential/PGIM, T. Rowe Price and Voya Financial.

To watch the EBRI Webinar and for a copy of the slides, go to https://www.ebri.org/publications/webinars/past-webinars

To read AARP’s 2025 Caregiver Study, go to Caregiving in the U.S. 2025 – AARP Research Report

National Report: Brain Health Matters to Most, But Understanding Falls Short

Published in RINewsToday on April 27, 2026

As with the findings detailed in previous reports, the numbers in the Alzheimer’s Association’s recently released 2026 Alzheimer’s Disease Facts and Figures report are jarring.

In 2026, about 7.4 million Americans aged 65 and older, or roughly 1 in 9, are living with Alzheimer’s disease. Nearly three-quarters are 75 or older, and almost two-thirds are women.

As these numbers continue to rise, the challenges ahead grow even more daunting.  We see the graying of the U.S. population, which has resulted in the number of people living with Alzheimer’s rising sharply, says the report. By 2030, all baby boomers, those born between 1946 and 1964, will be in higher-risk age groups for developing devastating cognitive disorders.  By 2060, Americans with Alzheimer’s could reach 13.8 million.

Over the years, the Facts and Figures reports have become the nation’s primary source of statistics and analysis on Alzheimer’s and other dementias.  The report has been published every year since 2007, and this year’s edition also appears in the April 2026 issue of Alzheimer’s & Dementia®, the Association’s journal.

The 142-page report, released last week, provides updated national and state-level data. Its findings suggest that Alzheimer’s has become more common and challenging for caregivers. The report remains a guiding roadmap for state and federal officials and researchers to combat this serious cognitive disorder.  It also includes a special survey about how Americans aged 40 and older think about and manage brain health.

“The latest data show Alzheimer’s is still a growing challenge for families in Rhode Island,” said Laura Hoffman, executive director of the Alzheimer’s Association’s Connecticut and Rhode Island chapters, in a statement announcing the report’s release on April 21, 2026. “That’s why it’s critical to keep progressing research and developing treatments that can improve outcomes and support everyone facing the disease,” she says.

Hoffman stressed that the nationwide crisis demands urgent action now, given the mounting financial burden on caregivers. This year, professional care for people with Alzheimer’s and other dementias is expected to cost $409 billion. By 2050, Hoffman warns, this figure could reach nearly $1 trillion.

Caregiving is still mostly handled by family and friends, the report notes. Nearly 13 million relatives and friends provided more than 19 billion hours of unpaid care last year. The value of their efforts is estimated to be a whopping $446 billion.

The report noted that Alzheimer’s is also a growing cause of death.  Since 2000, deaths from the progressive g cognitive disorder have surged by 134%. In the same period, deaths from heart disease have risen by only 3.8%. Today, Alzheimer’s takes more lives than breast and prostate cancers combined.

Rhode Island: By the Numbers

According to the report’s Rhode Island-specific data, about 22,000 Rhode Islanders aged 65 and older are living with Alzheimer’s disease.  That’s 11.4% of this population group. Another 37,000 people serve as caregivers — many are unpaid family members or friends. So roughly 1 in every 30 Rhode Islanders is caring for someone with the cognitive condition. Together, they provide 53 million hours of unpaid care, valued at $1.5 billion.

In 2025, the State’s Medicaid costs of caring for persons with Alzheimer’s and other Dementias totaled around $ 640 million. Per-capita Medicare spending for these individuals was $33,705, according to the report.

Recently, Rhode Island’s care network relied on just 32 geriatricians and about 8,070 home health and personal care aides to support persons with Alzheimer’s and dementia. To keep up with rising demand for dementia care, Rhode Island’s workforce must expand. The state requires a 23.9% increase in home health aide roles by 2032 and an 18.8% increase in specialist geriatricians by 2050, according to the report.

When comparing national and Ocean State-specific data, Hoffman, who heads the Alzheimer’s Association’s Connecticut and Rhode Island chapters, notes that the nation’s smallest state has the same rising trend in Alzheimer’s prevalence, increasing caregiver burden, and growing strain on health systems.  “As a smaller, aging state, these trends will be felt even more. The impact on families, providers, and community resources is both visible and immediate,” she says.

Hoffman calls for more dementia care professionals across the long-term care continuum. “There is also a need for more respite care, adult day programs, and long-term options that are equipped to treat complex Alzheimer’s or dementia cases,” suggests Hoffman, to fill gaps in providing services, supports, or workforce capacity to care for Alzheimer’s and dementia patients.

With the General Assembly now in session, Hoffman is urging lawmakers to pass HB 7542 or SB 2874, which establishes a Dementia Services Coordinator position within the Department of Health. “This state agency position will support the work of the Advisory Council on Alzheimer’s Disease Research and Treatment, oversee implementation of the state Alzheimer’s plan, and serve as a liaison between state agencies, the governor, the legislature, and external stakeholders,” she says.

Understanding and Sustaining Cognitive Health

The Alzheimer’s Association’s 2026 Alzheimer’s Disease Facts and Figures report comes with a special report, Brain Health in America: Comprehending and Supporting Lifelong Cognitive Health. It is based on a survey of more than 3,800 U.S. adults aged 40 and older.

The special report’s findings show a clear disconnect: most Americans see brain health as a top priority, equal to or even more important than physical health, yet many are unsure how to protect it.

“Americans care deeply about their brain health and recognize that midlife is a critical time to take action,” said Heather M. Snyder, Ph.D., the Association’s senior vice president of Medical and Scientific Relations. “But many don’t know where to start and are looking for clear, practical guidance,” she says.

Almost all respondents said keeping their brains healthy is important, but only 9% feel well informed about it. Many know that sleep, diet, and exercise matter, but fewer people clearly understand how these habits might lower the risk of dementia.

Many respondents expressed concern about their potential declining cognitive health. More than two-thirds of those surveyed admit they worry about their brain health and the chance of developing Alzheimer’s or another dementia. Still, fewer than half of these individuals strongly link healthy lifestyle habits with lowering that risk.

The special report’s findings also reveal that interest in prevention programs is high, but barriers to participation remain. About 73% would consider joining brain health programs, such as cognitive exercises, health monitoring, nutrition advice, or physical activity. However, the program’s cost, location, motivation, and insurance coverage are major obstacles to participation.

Respondents also said they want flexible options. About 40% prefer self-guided programs at home, while 38% like blended formats that mix independent and in-person participation. Only 8% prefer fully in-person programs.

Many say midlife, ages 35 to 64, is a key time for them to act. Nearly two in five respondents think people should start focusing on brain health during these years. Almost half believe formal programs should begin then. About one-third also said brain health should be a lifelong pursuit.

Even with a strong interest, many people say they do not talk often with health care providers about brain health. Two-thirds of respondents said they would like to discuss brain health with their physician.  Most would welcome these talks during regular office visits. Most would welcome these conversations during routine office visits. Still, only a small percentage say they have actually had them.

“These outcomes show a real opportunity to better integrate brain health into routine care,” Snyder said. People are motivated to protect their brain health, but they need clear, effective guidance, she says.

Snyder sees a wider, clear message in the report: Brain health is a lifelong priority, not just a concern in older age, she says. “By connecting efforts across individuals, communities, workplaces, and health care systems, we could support cognitive health and help reduce dementia risk,” she adds.

A Final Note…

With this year’s Alzheimer’s Facts and Figures report released, Hoffman also sees a clear takeaway for Rhode Islanders: “Brain health matters at every stage of life. Take steps now—stay active, eat well, get enough sleep, remain socially engaged, and talk to your healthcare provider about memory concerns,”  she adds.

The Alzheimer’s Association is expanding efforts with community and research partners to deliver evidence-based information and programs. These projects are informed in part by the landmark U.S. POINTER study, which continues to explore how lifestyle interventions may help protect cognitive function.

If you have any questions about Alzheimer’s or any other form of dementia, contact the Alzheimer’s Association 24-7 Helpline at 1/ 800-272-3900.

For a copy of the Alzheimer’s Association’s 2026 Facts and Figures Report, go to Alzheimer’s Disease Facts and Figures

For a copy of this year’s Brain Health in America special report, go to Brain Health in America: Understanding and Supporting Lifelong Cognitive Health.

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For details about the U.S. POINTER study, to https://www.alz.org/us-pointer/study-results