Tag Archives for AARP

AARP Report: Unpaid Caregiving Valued at $ 600 Billion

Published in RINewsToday on March 13, 2023

Family caregivers put in over $36 Billion hours in unpaid care taking care of loved ones, a responsibility that takes a heavy toll on them financially, physically, emotionally, and mentally.

But now, a new AARP report reveals that the family caregiver unpaid work is estimated to be valued at more than $600 Billion. This is a $130 Billion increase in unpaid contributions from family caregivers since the last report in the series was released in 2019. The economic impact of $600 Billion is more than all out-of-pocket spending on health care in the U.S. in 2021, notes the AARP report.

The 32-page 2023 update, Valuing the Invaluable, highlights trends in family caregiving, explores the growing scope and complexity of family caregiving, and discusses actions needed to be taken to address the financial, social, and emotional challenges of caring for parents, spouses, and other loved ones. 

AARP continues to put the spotlight on this important aging policy issue as the graying of the nation’s population continues. According to the group, by 2034, adults aged 65 and older will outnumber children under the age of 18 for the first time ever.

The share of available family caregivers is projected to continue shrinking, relative to the number of older adults who will potentially require long-term care. In addition, family caregivers will continue to face the dual demands of employment and caregiving responsibilities, which often includes bringing up children while taking caring of older parents simultaneously.

“Family caregivers are the backbone of long-term care in this country,” said Susan Reinhard, senior vice president, AARP Public Policy Institute, and a lead author of the report. In a March 8, 2023 statement announcing its release, Reinhard said, “The care they provide is invaluable to those receiving it. But this is not just a family issue: it impacts communities, employers, and our health and long-term care systems. We must treat family caregivers as the valuable resource that they are by providing them the support they need to care for loved ones while also caring for themselves.”

AARP, the nation’s largest aging advocacy group representing over 38 million members, says it plans to push this year to turn the National Strategy to Support Family Caregivers into action that provides meaningful, tangible outcomes and support for family caregivers. The National Strategy, delivered to Congress last September, stemmed from the RAISE Family Caregivers Act, which was championed by AARP. The National Strategy highlights nearly 350 actions that the federal government will take and more than 150 that can be adopted by stakeholders and other levels of government to give family caregivers the necessary help they need.

Taking a Closer Look at Home

AARP’s latest report in the Valuing the Invaluable series also provides us data for the Ocean State as to the value of unpaid caregiving provided here. The unpaid care provided by the 121,000 Rhode Island caregivers is valued at $2.1 Billion. This amount was calculated at an $18.95 hourly value to the estimated 113 million hours of unpaid care that family caregivers provided in 2021 – a $300 million increase in unpaid contributions since the last report was released in 2019.

“Family caregivers play a vital role in Rhode Island’s health care system, whether they care for someone at home, coordinate home health care, or help care for someone who lives in a nursing home,” said Catherine Taylor, AARP Rhode Island State Director. “We want to make sure all family caregivers have the financial, emotional and social support they need, because the care they provide is invaluable both to those receiving it and to their community,” she says.

At the Rhode Island State Capitol, AARP Rhode Island says it will continue its fight for assisting family caregivers and the loved ones they care for. During the 2021 Rhode Island General Assembly Session, AARP Rhode Island, along with other aging advocacy groups, successfully lobbied to enhance the Temporary Caregiver Insurance program by increasing the number of weeks a worker can take annually to care for a loved one from 4 to 6 weeks.

During the current legislation session, AARP Rhode Island calls for state lawmakers to support family caregivers who work because caring for a loved one shouldn’t mean losing pay—or even their job. House Bill 5781/Senate Bill 139 will increase the number of weeks that one can take annually to 12. These bills would also expand the definition of family in Rhode Island’s existing paid family leave law to include siblings, grandchildren and other care recipients to fit the reality of Rhode Island’s diverse and multigenerational families.

“Too often our unpaid caregivers are not acknowledged. We need to show the many thousands of unpaid caregivers in Rhode Island we value their contributions with sound policies, programs and laws that support them,” says Maureen Maigret, Policy Advisor for Senior Agenda Coalition of RI.

Maigret also calls for expanding the state Temporary Caregiver Insurance law from six to twelve weeks as most states that have such programs allow, and for including siblings, grandchildren and care recipients – important steps in making Rhode Island a more family-friendly state. “I have personally been a caregiver for a number of family members and know how challenging it can be to navigate our long-term care system,” Maigret says.

“Another important step to support our caregivers is to provide state funding to strengthen The POINT, the state Aging and Disability Resource Center, so that caregivers have a single place they can go to get timely, reliable information and person-centered counseling about the services, supports and benefits available to them as caregivers,” says Maigret. “Too often caregivers are not aware of programs such as subsidized respite and adult day or benefits available to care recipients. That is why the Senior Agenda Coalition of RI is asking the legislature to add $.5 Million to the state budget as The POINT currently receives no state funds and relies entirely on insufficient federal dollars,” she adds.

“It is also important that caregivers be viewed as part of a person’s healthcare team. Healthcare providers, especially those in primary care, need to ask patients if they are getting care from a family member or if they themselves are a caregiver,” says Maigret, noting that this action will provide an opportunity for providers to offer information and guidance about available services and supports.

Resources for Caregivers

“We know that everyone’s path to aging is different and it’s our paid and unpaid caregivers that provide critical supports to our loved ones,” said Office of Healthy Aging Director Maria Cimini. “At the Office of Healthy Aging, we are committed to supporting our caregivers in a variety of ways encouraging self-care through respite programs, informational workshops, and our senior companion volunteer program,” says Cimini.  She suggests that family caregivers go to https://oha.ri.gov/resources/oha-resource-center to download OHA’s 2023 Pocket Manual, detailing resources available programs and services that the state agency provides to family caregivers.

Dementia and Alzheimer’s care

“Dementia caregiving is challenging emotionally, physically, and financially. The care that family members provide is priceless, really. We want people to know they are not alone and that the Alzheimer’s Association, Rhode Island chapter has both in person/virtual support groups and community based educational programs for people who are caring for a person living with a diagnosis of Alzheimer’s disease or a related dementia throughout the state,” says Donna McGowan, Executive Director, Alzheimer’s Association Rhode Island Chapter, noting that there are 24 thousand people living with Alzheimer’s in Rhode Island and 39,000 caregivers, many unpaid family members.

“The Alzheimer’s Association believes that understanding how the diagnosis will affect the entire family is truly important to know what resources the family may/will need and how to pay for care must be considered starting right from when a diagnosis is made,” says McGowan.

McGowan says that the Alzheimer’s Association’s  24/7 Helpline clinicians guide callers to financial assistance programs that may help pay for respite or a needed break. For details, go to https://www.alz.org/ri

Chris Gadbois, DNP, RN, PHNA-BC, PMH-BC, Chief Executive Officer of the East Providence-based CareLink, says AARP’s report highlights the critical need for support for caregivers in Rhode Island. “At CareLink, we see firsthand the impact on the health and well-being of caregivers and are working hard to provide programs to provide resources. Our Administration on Community Living grant funded program to support individuals with dementia and their care partners is just one example of services that can help people to remain safely in their homes,” she says. 

The program, delivered by a trained Occupational Therapist, during five ninety-minute home visits, includes techniques to reduce challenging behaviors, promote functioning, improve caregiver communication, home environment safety, and tips focused on caregiver self-care, including problem solving and teaching stress management techniques. For more details, go to https://carelinkri.org/member-services/therapeutic-services-for-dementia/.

AARP provides a comprehensive listing of resources and information on family caregiving.  Go to aarp.org/caregiving.

For a 2023 copy of Valuing the Invaluable, go to https://www.aarp.org/content/dam/aarp/ppi/2023/3/valuing-the-invaluable-2023-update.doi.10.26419-2Fppi.00082.006.pdf.

Resources and information on family caregiving are available at aarp.org/caregiving.

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My most popular reads as an “age beat” journalist in 2022

Published in RINewsToday on January 2, 2023

 As an ‘age beat’ journalist for over 43 years, I have freelanced more than 867 stories covering aging, health care and medical issues. These authored and coauthored pieces have appeared in national, state, trade and association publications and even statewide news blogs. In 2022, my articles appeared weekly in 52 issues of RINewsToday.com. Here are the top five articles read on this state-wide blog last year.

“Aging in Place in Your Rhode Island Community,” published in the May 2, 2022 issue of RINewsToday. 

According to this article, the aging of the nation’s population continues with seniors choosing to live out their remaining years, aging in place in their communities. The article discusses the findings of a study of adults age 50 and older conducted by the AP-NORC Center for Public Research and the SCAN Foundation. This study confirms that a majority of older respondents would like to age in place and are confident they can access needed health care services that will allow them to stay at home for as long as possible.  

In this article, Mary Lou Moran, Director, Pawtucket Division of Senior Services at the Leon Mathieu Senior Center, who noted, “the coordination, accessibility, and connection to services and programs is critical to the successful delivery of services and is where much work needs to be done.  

 Moran stressed the importance of senior centers located in communities throughout the state that delivered needed information and assistance to seniors on accessing the needed services to age in place. Social isolation, access to transportation, food and housing insecurity, economic stability, and connectivity to services, are obstacles to enabling a person to stay in the community in their homes, says Moran.

 Maureen Maigret, policy consultant and Chair of the Aging in Community Subcommittee of the Long-Term Care Coordinating Council, also described state programs that assist seniors age in place in Rhode Island.

 Finally, the article gave a history of the National Village to Village Movement and its impact on Rhode Island.  It noted that The Village Common of Rhode Island (TVC), with programs in Providence, Barrington, Edgewood/Cranston, and Westerly, provides supports to keep seniors at home through the efforts of almost 200 trained and vetted volunteers.

TVC supports include transportation, running errands, home visits and telephone assurance, minor home repairs and light yard work, assistance with technology, and a virtual caregiver support program. A robust weekly calendar offers virtual events, and a monthly newsletter keeps members and guests informed.

 To read this article, go to https://rinewstoday.com/aging-in-place-in-your-rhode-island-community-herb-weiss/

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“Calls for Rhode Island to Become more “Age Friendly,” published in the Jan. 24, 2002  2022 issue of RINewsToday. 

This article gave a background of a United Nation’s initiative to create “age friendly” communities.  Over two years ago, a proposal was endorsed by the 73rd World Health Assembly. It was presented to the U.N. General Assembly Dec. 14, 2020, (Resolution 75/131), leading to the proclamation of a U.N. Decade of Healthy Aging (2021-2030).

The four-page Resolution expressed concern that, despite the predictability of population aging and its accelerating pace, the world is not sufficiently prepared to respond to the rights and needs of older people. It acknowledges that the aging of the population impacts our health systems but also many other aspects of society, including labor and financial markets and the demand for goods and services, such as education, housing, long-term care, social protection and information. It thus requires a total whole-of-society approach to make “age friendly” changes.

Maureen Maigret, policy consultant and chair of the Aging in Community Subcommittee of Rhode Island’s Long-Term Care Coordinating Council, noted that many Rhode Island communities are involved to 1 degree or another in what we consider age-friendly activities. “The initiative is usually led by the local senior center and in some instances volunteer programs such as RSVP and AARP and The Village Common of RI,” she says.

 According to Maigret, over the last five years the state’s Long-Term Care Coordinating Council Aging (LTCCC) in Community Subcommittee has adopted and continues to work to support WHO’s decadelong initiative, adding the domains of Food & Nutrition and Economic Security and Supports to Remain at Home.

Newport was the first community to join the AARP age-friendly network; Cranston, Providence and Westerly following. The state’s Office of Healthy Aging has adopted its State Plan on Aging, calling for Rhode Island to become an age-friendly state, says Maigret.

 Maigret called on Rhode Island’s cities and towns review their community’s Comprehensive Plans to see how age-friendliness is addressed. “This is what Newport did. 

To read this article, go to https://rinewstoday.com/calls-for-rhode-island-to-become-more-age-friendly-herb-weiss/

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“Bill would (Re)create a RI Department of Healthy Aging,” published in the March 21, 2022 issue of RINewsToday. 

This article described a legislative proposal on Smith Hill to transform the state’s Office of Healthy Aging (OHA) into a department making it far more visible and effective as an advocate for the state’s growing senior population.  H. 7616, introduced by Rep. Lauren H. Carson (D-District 75, Newport), would expand the office in the Department of Human Services (DHS) into a full-fledged state department, expand its director’s authority, and appoint local senior centers as hubs for service delivery, with authority to bill Medicaid for transportation services.

The RI Department of Elderly Affairs (DEA) was created by law in 1977 and remained a department until 2011, when the legislature changed it to a division within the Department of Human Services (DHS). In 2019, the department was re-named the Office of Healthy Aging (OHA), shifting narratives and perceptions associated with growing older. At press time, the Office of Healthy Aging remains a division under the Department of Human Services. 

  “Restoring the OHA to a department status will strengthen its position at the budget table and elevate the importance of programs supporting older residents of our state. We hope that will make a difference,” says Bernard J. Beaudreau, Executive Director of the Senior Agenda Coalition of Rhode Island.

 .“The legislation proposed by Rep. Carson elevates the conversation about the importance of age-friendly policies that enable Rhode Islanders to choose how we live as we age,” said AARP Rhode Island State Director Catherine Taylor. “AARP Rhode Island looks forward to being part of this conversation and continuing to advocate fiercely at both the state and local levels for enhanced home and community-based supportive services, accessible and affordable housing and transportation options, and full inclusion of people of all ages and abilities in community life,” she said. 

According to Maureen Maigret, policy consultant and chair of the Aging in Community Sub-committee of Rhode Island’s Long-Term Care Coordinating Council, H 7616 is a very significant bill that will help to stimulate a long due discussion as to how the state should fund senior programs and services in light of the state’s growing age 65 and older population. This age group is projected to represent at least one in five of  the state’s residents by 2040.

 To read this article, go to 
https://rinewstoday.com/bill-would-recreate-a-ri-department-of-healthy-aging-herb-weiss/

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 “RI Candidates for Governor Spotlight Senior Issues at Forum,” published in the August 8, 2022 issue of RINewsToday. 

This article reported on a 143-minute Rhode Island Gubernatorial form where five Democratic and one Republican gave two minute responses to seven questions previously given to them by the Senior Agenda Coalitionof Rhode Island (SACRI).   These questions were intended to how these candidates if elected Governor would fix Rhode Island’s fragmented long-term care continuum and provider payment systems.

According to Bernard J. Beaudreau, Executive Director of the Providence-based SACRI about 300 seniors and aging advocates came to personally see the Gubernatorial candidates outline their position on aging issues. Multiple platforms on Facebook and YouTube were promoted by a variety of senior advocacy groups that resulted in the over 300 virtual audience. Some held “watch parties” at one or more of the 12 senior centers, with approximately 135 people participating from throughout the state.

 Maureen Maigret, chair of the Long-Term Care Coordinating Council’s Aging in Community Subcommittee and SACRI Board Member reported that all candidates supported: “making the Office of Healthy Aging a full cabinet/department with review of sufficiency of resources; expansion of Medicare Savings Program which I have been advocating for at least 5 years and adding a state COLA to SSI payments; requiring better data on minority older adult inclusion; addressing community living, housing and transportation needs of older persons and developing and implementing a comprehensive, interdepartmental strategic Plan on Aging.

 To read this article, go to 
https://rinewstoday.com/ri-candidates-for-governor-spotlight-senior-issues-at-forum-herb-weiss/

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“Larson Pushes to Get Social Security Reform Proposal for House Vote, published in the  June 13, issue of RINewsToday. 

This article reported that the House Ways and Means Committee was preparing for a full mark-up on H.R. 5723, Social Security 2100: A Sacred Trust, authored by Committee Chairman John B. Larson (D-CT) this summer.  

 Larson says that over 200 House Democrats [no Republican has yet to support the proposal], are cosponsoring H.R. 5723. Forty-two national organizations (aging, union, veterans, disability, and consumer health organizations) are calling for passage of H.R. 5723, including the Leadership Council on Aging Organizations and the Strengthen Social Security Coalition representing hundreds of national and state aging organizations.

 According to a legislative fact sheet, H.R. 5723 both expands the program’s benefits and financially strengthens its. Here are a few provisions:

 Specifically, it would give a benefit bump for current and new Social Security beneficiaries by providing an increase for all beneficiaries (receiving retirement, disability, or dependent benefits).

The proposal would also protect Social Security beneficiaries against inflation by adopting a Consumer Price Index for the Elderly (CPI-E), to better reflect the costs incurred by seniors who spend a greater portion of their income on health care and other necessities.

This legislative proposal protects low-income workers by providing a new minimum benefit set at 25% above the poverty line and would be tied to wage levels to ensure that minimum benefits does not fall behind.

 It is expected that Larson will reintroduce this legislative proposal next Congress.  To read this article, go to https://herbweiss.blog/2022/06/13/larson-pushes-to-get-social-security-reform-proposal-for-house-vote/

Seniors say they hesitate to mix healthcare and matters of faith

Published in RINewsToday on December 26, 2022

When it comes to matters of one’s personal beliefs, most seniors choose to keep their health care and their spiritual or religious lives separate, a new University of Michigan poll finds. But they do see a role for their health care providers in assisting them to cope with illness by looking for meaning or hope.

The National Poll on Healthy Aging (NPHA) is based at the U-M Institute for Healthcare Policy and Innovation (IHPI) and supported by AARP and Michigan Medicine, U-M’s academic medical center.

For this new NPHA report, the poll team worked with Adam Marks, M.D., M.P.H., a hospice and palliative care physician at Michigan Medicine, and L.J. Brazier, M.Div., a chaplain at Michigan Medicine’s Department of Spiritual Care.

The poll report is based on findings from a nationally representative survey conducted by NORC at the University of Chicago for IHPI and administered online and via phone in July 2022 among 2,163 adults, aged 50 to 80. The sample was subsequently weighted to reflect the U.S. population. 

Religious and Spiritual Beliefs and Health Care Decisions

According to new data from the National Poll on Healthy Aging (NPHA), released on Dec. 12, 84% of people between the ages of 50 and 80 say that they have religious and/or spiritual beliefs that are somewhat, or very important to them, including 71% who cited religious beliefs and 80% who cited spiritual beliefs.  About 40% of these older adults say those beliefs have gotten more important to them as they grow older. 

NPHA’s poll findings indicate that women were more likely than men (63% vs. 46%) to report that religious or spiritual believes were important, as those living in the South and Midwest (61% and 59%) compared to those in the West and Northeast (51% and 43%).

In addition, the researchers found that older adults with lower levels of education were also more likely to report religious and spiritual believes as being very important (61% high school or less, 56% some college, 47% bachelor’s degree or higher), as were those with annual household incomes less than $100,000 compared to those with $100,000 or more (59% vs. 43%).

Among older adults with religious or spiritual beliefs that are important to them, 19% say their beliefs have influenced their health care decisions, and 28% say they want health care providers to ask them about their beliefs, note the researchers.

Meanwhile, 77% of all older adults, regardless of beliefs, say health care providers should keep their own personal beliefs separate from how they deliver care.

“While 45% of older adults say their religious beliefs are very important to them, and 50% say that about their spiritual beliefs, even this group largely wants to keep this aspect of their lives separate from their health care,” says Marks, an associate professor of geriatric and palliative medicine, in a Dec. 12 statement announcing the poll’s findings.

“But a sizable majority of all older adults – whether or not they say belief is important to them – reported that they’d turn to health care workers to help them find deeper meaning in their illness, and 78% believe health care workers will help them find hope when they’re having a health-related challenge,” he adds.

According to Brazier, many health care systems have a way to record the religious affiliation of patients in their electronic medical records, and that medical students and others training for health professions are told to ask their patients about any beliefs that might affect their future care.  Having this information available can help providers ensure that patients with strongly held beliefs or specific religious affiliations receive everything from appropriate hospital food to visits with chaplains of a specific faith tradition when they’re having a health crisis or nearing the end of life. 

But for those who do not follow a faith tradition or have strongly held beliefs, having that information available to health providers can also be helpful, says Brazier.

“Being a religious or spiritual person, or not following a faith tradition or spiritual practices, is a highly personal matter,” notes poll director Jeffrey Kullgren, M.D., M.P.H., M.S., an associate professor of internal medicine at Michigan Medicine and physician and researcher at the VA Ann Arbor Healthcare System. “So perhaps it’s not surprising that only about a quarter of all people in this age range say they’ve talked about their beliefs with a health care provider, though this rose to about one-third of those who say their religious or spiritual beliefs are very important to them.”  In all, 70% of those who say their beliefs are somewhat or very important to them reported feeling comfortable discussing their beliefs with their health care providers, he says.

Researchers say that even if patients don’t want to discuss their beliefs with their health providers at a typical appointment, it’s important for providers to know if patients with significant health needs, or those experiencing a health crisis, are connected to a faith community that can help provide support. 

In all, 65% of the older adults whose religious or spiritual beliefs are important to them said they belong to a community of people who share their beliefs. 

My Say…

Kathryne Fassbender, Founder and Executive Director of the Hem of Christ: A Dementia Care Ministry, notes that she has never met anyone in her 15 years of work in the field of aging who has wanted to keep their health care and spiritual/religious life separate as the NPHA study states. “What I have found is hesitancy to bring up faith with health care professionals both in physical and mental health care,” she says.

“As Catholics, our health care is woven into how we live our faith, and we wish to have the care we receive be in line with the teachings of the Church. In all honesty, it is increasingly difficult to find doctors who will respect that wish, which opens up a much broader topic of discussion,” she notes. “This hesitancy is across generations, so even care partners for older adults are not always as forthcoming with information regarding faith and health for fear of losing a current healthcare team,” Fassbender observes.

“While the number of doctors who would dismiss someone as a patient because of one’s wishes to keep with the teachings of the Catholic faith in the care they receive is small, the fear is there and it does happen,” says Fassbender, noting that the current medical and social landscape magnifies this fear. “The hostility toward religion and in particular the Catholic Church has a greater impact than I think we understand sometimes,” she warns.

Fassbender says that while it can be helpful to know the personal beliefs of our care providers, it is more important that the doctor, nurse, and therapist, respect our faith. “I know some great care providers who are deeply atheist, yet when they work with their clients of deep faith, they don’t allow their personal beliefs to influence care in any way. They instead assist their client in living out their faith traditions,” she says, stressing that this is what we all seek.

“While I may question some of the findings of this research, I see the findings as a call for care providers to increase seeking to help people of all ages, and all beliefs to live their purpose until their final breath,” says Fassbender.

Fassbender adds: “We must never dismiss one’s faith, regardless of their physical or neuro-cognitive abilities, and most certainly one’s age. I see this study as an invitation to crack open this conversation and allow the hostility, misunderstandings, and fears regarding faith and health to be overcome by the pursuit of care for the human person, fully who they are, what they seek, and how they wish to live life until the final breath.”  

The Hem of Christ started when the time was taken to pause and hear that still, small voice. After years of witnessing how a person’s faith can be diminished simply because of a dementia diagnosis or because someone put their life on hold to care for a loved one, Kate decided that it was time to formalize the small ministry work she had been doing for almost a decade.  Kate answered the call to formalize and set a path for others to walk down, reaching for the hem of Christ. 

NPHA Poll Puts Spotlight on Health Care and Aging Issues

The National Poll on Healthy Aging (NPHA) is a recurring, nationally representative household survey. By understanding the perspectives of older adults, the NPHA provides information to the public, health care providers, policymakers, and aging advocates on issues related to health, health care and health policy affecting U.S. adults ages 50 to 80 and their families.

Launched in spring 2017, the NPHA grew out of a strong interest in aging-related issues among members of the U-M Institute for Healthcare Policy and Innovation (IHPI) bringing together more than 600 faculty members  who study health, health care and the impacts of health policy. In addition to IHPI, the poll receives support from AARP and Michigan Medicine, AARP and U-M’s academic medical center.

The NPHA results can put a spotlight on future research needs and to create an informed national dialogue on poll issues examined.