National Family Caregivers Month: State-by-State Roadmap on Assisting Caregivers

Published in RINewsToday on November 3, 2025

Over three months ago, AARP and the National Alliance for Caregiving (NAC) released Caregiving in the US. 2025, warning of a major crisis facing America’s 63 million caregivers. The 133-page report, released on July 23, noted a 45% increase in the number of caregivers over the past decade and concluded that caregivers are at a “crisis point.”

The first Caregiving in the US report, released in 1997 by AARP and NAC, is widely regarded as one of the most authoritative data sources on family caregiving in America. Subsequent editions followed in 2004, 2009, 2015, 2020, and now 2025—each providing updated information on caregiver demographics and the evolving realities of caregiving in America.

A First-of-its-Kind State-by-State Data Analysis

Building on the national Caregiving in the US 2025 report, AARP and NAC recently unveiled a first-of-its-kind state-by-state caregiving data analysis. The 248-page report reveals how much local factors—down to your community or ZIP code—shape the caregiving experience, exposing deep financial and emotional challenges confronting millions of family caregivers.

Researchers found that state policy choices make a measurable difference: states offering stronger supports such as paid leave, respite care, and health system integration report far better outcomes for caregivers.

Rhode Island was among 19 states without sufficient sample sizes to support detailed analysis beyond prevalence and the estimated number of caregivers. For these states, only those metrics were included.

According to AARP and NAC, the report identifies a consistent pattern: states with the highest caregiving prevalence often have the fewest supports. Geography, policy, and community resources together determine whether families can manage care—or collapse under its weight.

The takeaway: where you live often determines whether you get relief or reach a breaking point.

With 63 million family caregivers nationwide—nearly one in four adults—the report underscores the urgent need for coordinated policy solutions at both the federal and state levels.

“Caregivers are the invisible backbone of our broken long-term care system and economy, and too many are paying the price out of their own pockets—risking financial security by taking on debt, using up savings, and leaving bills unpaid,” said Nancy LeaMond, AARP’s Executive Vice President and Chief Advocacy & Engagement Officer, in an Oct. 28 statement announcing the report. “This new data offers the clearest picture yet of America’s caregivers and a roadmap for the change they urgently need.”

AARP is urging Congress and state legislatures to adopt commonsense policies that help caregivers save time and money—and get the support they need.

“These state-by-state disparities expose how policy choices determine whether families thrive or collapse under caregiving responsibilities,” said Jason Resendez, President and CEO of NAC. “When financial strain hits 59% of family caregivers in Georgia compared to just 34% in Minnesota—meaning where you live can double your risk of economic hardship—it’s clear that patchwork state solutions aren’t enough.”

Rhode Island Specifics

Ahead of National Family Caregivers Month, AARP Rhode Island released its state-level caregiving data. The findings show that 23%—approximately 206,000 Rhode Island adults—provide largely unpaid care to parents, older spouses, and other loved ones. The data underscores the urgent need for legislative action to better support these caregivers.

“When a loved one needs help, family members, friends, and neighbors step up—that’s what we do,” said Catherine Taylor, AARP Rhode Island State Director. “But too often, caregivers carry this responsibility alone, putting their finances, health, and jobs at risk. As our state ages, the demand for care will only grow. With this new data and ahead of the 2026 legislative session, AARP Rhode Island is urging policymakers at every level to act now.”

AARP Rhode Island estimates that family caregivers provide $2.1 billion in unpaid care each year, enabling loved ones to remain at home and in their communities—where they want to be. Caregivers routinely handle a wide range of tasks, from bathing and meal preparation to managing medications and medical procedures, often without formal training.

Key Rhode Island caregiving statistics:

·         99% assist with instrumental activities of daily living (meal prep, administering medicine, managing finances)

·         65% assist with personal care (bathing, dressing, feeding)

·         55% perform medical or nursing tasks

·         40% provide high-intensity caregiving (many hours and complex care)

·         19% deliver at least 40 hours of care per week

The personal toll is significant:

·         80% of caregivers use their own money to meet their loved ones’ needs—averaging $7,200 annually, or 25% of their income

·         44% report financial setbacks, including debt, depleted savings, or difficulty affording food and medicine

·         70% juggle full or part-time jobs, with many reducing hours or leaving the workforce—jeopardizing their long-term financial security

A Call to Action

A dysfunctional Congress and state legislatures must directly confront the skyrocketing number of caregivers in America.

AARP and NAC along with the Alzheimer’s Association are calling on policymakers to strengthen financial supports—starting with federal legislation such as the Credit for Caring Act, which would provide a tax credit of up to $5,000 for working caregivers, and the Lowering Costs for Caregivers Act, which would expand flexible spending and health savings account uses.

States can also act by ensuring Medicaid home- and community-based care options are accessible, allowing caregivers to earn compensation, integrating caregiver recognition and training into the health care system, and adopting best practices from top-performing states.

In Rhode Island, advocacy groups including AARP, the Senior Agenda Coalition of RI (SACRI), and the Alzheimer’s Association Rhode Island Chapter have made significant progress. Rhode Island’s Temporary Caregiver Insurance (TCI) program—now offering eight weeks of paid leave at 75% wage replacement—helps family caregivers maintain income stability while providing care.

“In continuing our ongoing advocacy on behalf of caregivers, during the 2026 Rhode Island General Assembly session SACRI will prioritize legislation introduced last year — the creation of a state caregiver tax credit and advocate for the inclusion of respite services for adults under the Medicaid program,” notes Maureen MaigretSACRI Policy Advisor.

Maigret points out that a 2021 AARP study found the average caregiver spends $7,242 out of pocket each year caring for a loved one. “It’s a huge financial burden for many caregivers, especially as the cost of living continues to rise and 40% of caregivers report household incomes of $50,000 or less,” she says, referencing the 2021 Rhode Island Behavioral Risk Factor Survey. “A recent state survey also found that short-term respite is one of the most commonly requested services that caregivers say would help support their needs.”

“Supporting caregivers is not just compassionate—it’s smart policy. In 2024, Rhode Island spent $614 million in Medicaid costs related to dementia. By strengthening caregiver supports—like respite services, dementia-specific training, and care navigation—we can help families keep loved ones at home safely for longer and avoid more costly levels of care,” says Donna McGowan, Executive Director, Alzheimer’s Association Rhode Island Chapter.

“Thoughtful policy and targeted funding is not only the right thing to do—it’s a wise investment in the health and future of our state,” notes McGowan.

To get a copy of Caregiving in the US 2025 go to https://www.aarp.org/pri/topics/ltss/family-caregiving/caregiving-in-the-us-2025/

To get a copy of Caregiving in the US 2025: Caring Across the States, go to https://www.aarp.org/pri/topics/ltss/family-caregiving/caregiving-in-the-us-2025-caring-across-states/

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To access free caregiver tools and local resource guides, visit:

·         AARP Rhode Island “Guide for Caring for Older Adults in Rhode Island helps family caregivers access key programs, services, and agencies right in their community.

·         AARP’s online Caregiving Hub has tools and information available in English and Spanish.

·         AARP and United Way Worldwide’ s 211 program connects Rhode Island family caregivers to essential local services for themselves and their loved ones via the 211 helpline.

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Pawtucket Announces New Initiative to Create an Age-Friendly Community

Published in RINewsToday on October 6, 2025

Over a year ago, Mayor Donald R. Grebien officially signed a resolution, marking the beginning of an important process. The signing ceremony, held on September 16, 2024, in the City Council Chambers, was attended by local leaders, community advocates, state officials, and members of the Pawtucket Senior Citizens Council.

The resolution to join the nation’s Age-Friendly network was approved by the City Council after being in development for more than six years. It highlights Pawtucket’s commitment to creating an inclusive and supportive environment for residents of all ages, from the very young to the elderly.

The Age-Friendly network helps participating communities engage with older adults and their caregivers through surveys and assessments. Based on the feedback received, communities develop action plans to enhance livability for all ages by adopting features such as safe, walkable streets, better housing and transportation options, access to key services, and opportunities for civic and community participation.

The initiative is built around the World Health Organization’s (WHO) report, Global Age-Friendly communities: A Guide in 2017, offering municipalities an action plan, identifying eight “domains for living”  to create more welcoming communities for older adults.  These domains are implemented and assessed in three phases over five years, with continuous cycles of improvement thereafter. The domains are:

1.    Outdoor spaces and buildings

2.    Transportation

3.    Housing

4.    Social participation

5.    Respect and social inclusion

6.    Civic participation and employment

7.    Communication and information

8.    Community support and health services

AARP launched its U.S. Age-Friendly Network in 2012. By 2014, New York City became the first U.S. city to join the WHO Age-Friendly Cities network. By 2017, Rhode Island became the first U.S. state to officially adopt the Age-Friendly Communities framework. In 2025, AARP will commemorate the 1,000th U.S. municipality joining the Age-Friendly Network, marking a significant milestone in the movement to make communities more welcoming for older adults.”

Pawtucket’s effort involves a large-scale collaboration between the Mayor’s Office, the Leon Mathieu Senior Center, other city departments, Age-Friendly Rhode Island, the Local Initiative Support Corporation (LISC), and various local organizations. Together, they will oversee data collection and the creation of an Age-Friendly blueprint for action.

Pawtucket Becomes Official 

Last week, Mayor Grebien, along with members of the City’s Age-Friendly Task Force and AARP Rhode Island, formally announced Pawtucket’s efforts to join over 1,000 communities in the AARP Network of Age-Friendly States and Communities. Globally, over 1,500 cities and towns across more than 51 countries have joined the WHO Age‑Friendly network, illustrating the reach of this movement.

With the kickoff of the press conference, Pawtucket joined other Rhode Island cities—Newport, Cranston, Providence, Westerly, and Bristol—in this growing initiative.

Mary Lou Moran, Director of the Leon Mathieu Senior Center and Pawtucket Senior Services, served as master of ceremonies. She welcomed over 90 attendees and introduced the initiative, “Age-Friendly Pawtucket: Honoring the Past, Shaping the Future,” along with a panel of speakers.

“This is an exciting day as the city commits to addressing aging across the lifespan and ensuring we provide appropriate services, support systems, and opportunities for families and caregivers,” said Moran.

A key component of the press conference was the launch of a community needs assessment and survey, designed to gather direct input from residents to help guide the development of the action plan. Moran encouraged attendees, especially older residents, to participate in the survey. “We need your input to help us build a community that promotes health and wellness for all ages,” she said.

Catherine Taylor, State Director of AARP Rhode Island, explained the core philosophy behind the Age-Friendly movement: “If you make a city great for an 8-year-old and an 80-year-old, you make it great for everyone. That’s the age-friendly lens Pawtucket is using.”

AARP Rhode Island President Elizabeth Howlett, former Lieutenant Governor of Rhode Island, emphasized the importance of volunteerism and the role of community members in the survey process.

James Connell, Executive Director of Age-Friendly Rhode Island, noted that the aging population in Pawtucket and across Rhode Island was a major driver for embracing this initiative. “Rhode Island is one of the few states where there are more people age 65 and older than under 20,” he said. “This is something to celebrate. It’s an opportunity to assess needs, meet challenges, and create goals and visions for healthy aging.”

Beth Roberge, President of the Pawtucket Senior Citizens Council, shared a personal perspective on aging while advocating for the initiative: “Life doesn’t end when you reach a certain age. It’s just another stepping stone.”

Jeanne Cola, LISC’s Executive Director, called for Pawtucket’s older residents to participate in the survey, stressing that the data collected would drive the city’s planning and policies, rather than relying on assumptions. “Let your voice be heard. If you don’t participate, you don’t get what you want,” she said.

Mayor Grebien closed the event with a light-hearted remark: “Now that I’ve turned 58, I truly understand the importance of the Age-Friendly Initiative.” He expressed excitement about the opportunities that would emerge from this effort.

Comments from the Crowd

“The support shown at the kick-off event by AARP leadership, Mayor Grebien, and so many organizations across the City was just amazing,” said Maureen Maigret, policy advisor for the Senior Agenda Coalition of Rhode Island (SACRI). “Now, the work begins as the Task Force reviews the survey data to identify which areas to target for initial efforts.”

As a Pawtucket native, Maigret was thrilled to see the city’s Age-Friendly designation come to fruition. She had previously served as a consultant for Newport 4 All Ages, Rhode Island’s first Age-Friendly Community.

“I was so energized by the turnout at the Age-Friendly designation event in Pawtucket,” said Carol Anne Costa, Executive Director of SARI. “And kudos to Mary Lou and her team. The day demonstrated the power of community. Advocacy depends on citizens speaking and acting in their own best interests. Pawtucket’s work shows that older adults are ready to make Rhode Island a state that promotes healthy aging.”

Age-Friendly Pawtucket Task Force Members

·         Pawtucket Senior Citizens Council

·         Pawtucket Commission on Arts & Culture

·         Blackstone Valley Community Action Program

·         Blackstone Health, Inc.

·         Blackstone Valley Prevention Coalition

·         Gateway Healthcare/Brown University Health

Resources:

1.    Step-by-Step Toolkit for Creating an Age-Friendly Community
Start the process of becoming an age-friendly community by following this guide:
Age-Friendly Toolkit [shared.outlook.inky.com]

2.    Understanding AARP’s Age-Friendly Process
Learn more about AARP’s approach to creating age-friendly communities:
AARP Age-Friendly Communities [shared.outlook.inky.com]

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Walktober with AARP: Neighborhood Walks and Walk Audits across Providence

Published in RINewsToday on September 29, 2025

As part of AARP Rhode Island’s ongoing Livable Communities initiatives, the state’s largest aging organization will launch a series of “Walktober” events next month in collaboration with America Walks, local elected officials, municipal departments, planners, outreach specialists, volunteers, and community groups. The effort will feature neighborhood walks and walk audits across Providence. Accessibility is a priority, ensuring that people using mobility aids are included.

According to AARP Rhode Island, walking through neighborhoods allows volunteers to document and report infrastructure issues such as missing or uneven sidewalks, unsafe crosswalks, inadequate lighting, and the lack of benches, shade, and green space. These findings will help shape proposals for community improvements. The goal is to raise public awareness and highlight the importance of well-designed, well-maintained, and inclusive sidewalks, curb cuts, bump outs, and pedestrian-friendly spaces that contribute to a thriving community.

AARP Rhode Island notes that Walktober is a collaboration between the nonprofit and America Walks has organized nearly a dozen free, engaging community events aimed at helping residents appreciate walking as an enjoyable and healthy alternative to other means of getting around.

They Walk Their Talk

Taking part in Walktober is internationally known “multidisciplinary walking artist” and mobility justice activist Jonathon Stalls, who founded Walk2Connect (now Walk America) in 2012 after completing a 3,030-mile walk across the nation in 2010. Stalls will join America Walks board member Garrett Brumfield, a disability rights advocate and popular “sit-down” comedian, at the kickoff event scheduled for Wednesday, October 8. The event begins with a free “connection walk” at 5:00 p.m., followed by a free public walk, talk, book signing, and reception at the Providence Public Library.

Stalls, a respected author, wrote WALK: Slow Down, Wake Up, and Connect at 1–3 Miles Per Hour. The 240-page book, published by North Atlantic Books, is a collection of essays exploring the benefits of walking—for both individuals and communities—and how walking can be transformational. Attendees will receive a free copy.

Over the years, Stalls has documented his long walks, including a 200-mile trek from Providence to New York to explore how built environments affect communities, especially marginalized residents who cannot or do not drive. Walking, he argues, reveals how public spaces can become safer and more inclusive for all. At national and international conferences, Stalls advocates for transportation systems that prioritize pedestrians and calls for incorporating mobility justice into urban planning.

Joining him is Garrett Brumfield, a Roanoke, Virginia resident and disability rights advocate living with cerebral palsy. He calls for improved public transportation, mobility infrastructure, and community planning that make cities accessible to all—older adults, wheelchair users, and families with strollers alike.

On LinkedIn, Brumfield explains:“It is my mission to use my story and my experiences of living with Cerebral Palsy to help others overcome whatever obstacles stand in their way. Whether your obstacle is big or small, permanent or temporary, I believe you have the power to overcome it. The steps may be small, and the journey may be long, but I guarantee it’ll be worth it. I’m overcoming mine—how will you overcome yours?”

Also known as a sit-down comedian, Brumfield uses humor to break down barriers and promote empathy and awareness around disability issues. His performances challenge stereotypes and encourage new perspectives about what people with disabilities can do.

Brumfield serves on the board of Walk America, based in Seattle, Washington, which advocates for walkability, accessibility, and disability rights nationwide. He completed his Walking College Fellowship through America Walks in 2017 and has since become a mentor in the program, while collaborating on initiatives to improve walkability and “rollability” across the country.

Walking Audits in Providence Neighborhoods

As part of Walktober, AARP Rhode Island has scheduled additional walks and audits throughout October. On October 9, a Broadway Walk/Roll Audit will take place, along with other events including a Comedy Walk & Roll with Brumfield and a Glow Stick Walk/Roll Dance Party.

Other Walktober walks are being hosted by Village Common Walking GroupProvidence Preservation Society and Ocean State Center for Independent Living.

Through AARP’s 2025 Community Challenge grants, Providence’s Age-Friendly PVD initiative is funding four walk audits in neighborhoods with high concentrations of older adults to identify pedestrian safety challenges.

“AARP Rhode Island is pleased to work with so many community partners and with America Walks to promote access and safety for walkers and rollers of all ages and abilities,” said AARP Rhode Island State Director Catherine Taylor. “Walktober is truly a celebration, and we hope, at times, an inspiration as well as a wake-up call, as walk audits throughout the city reveal barriers and unsafe conditions that need to be addressed.

Added Taylor, “Walking is great exercise, and as walking groups become more and more popular, they serve as an opportunity for socialization that is very important to many people as they age.”

Here is How It Works…

According to AARP Rhode Island, walk audits involve participants walking through neighborhoods and noting infrastructure issues: missing or uneven sidewalks, unsafe crosswalks, poor lighting, or lack of benches and shade. Participants then document and report their findings so changes can be proposed and considered.

The events are meant to be inclusive, with accessibility a top priority. Walk audits not only identify safety concerns but also raise public awareness and encourage cities to take action.

Get Involved

·         For kickoff event and registration details and locations of walk audits visit register: www.aarp.org/RIWalktoberwhere you also will find an interactive Walktober Map.

·         To learn how to assess and report on the safety and walkability of a street, intersection, or neighborhood, visit the AARP Walk Audit Tool Kit at https://www.aarp.org/livable-communities/getting-around/aarp-walk-audit-tool-kit.html