Tag Archives for Lt. Gov. Sabina Matos

RI’s New Budget Considered a Win for Older Adults

Published in RINewstoday on June 15, 2026

As the 2026 legislative session wraps up, lawmakers approved a $15.2 billion state budget for Fiscal Year 2027. The budget blueprint (H 7127 Aaa) aims to provide economic relief, improve education and health care, and advance government reforms without raising broad-based taxes or fees.

According to House Communications Director Larry Berman, the House floor debate began at 3:35 p.m. on Friday, June 5, and lasted 3 hours and 45 minutes.  House lawmakers offered 16 amendments, and 10 were approved (none of these targeted aging programs and services). At 7:20 p.m., the budget passed on a vote of 65 to 10, with 64 Democrats and one independent voting in favor, while all 10 Republicans opposed it.

Greg Pare, Senate Communications Director notes: “On Tuesday, June 9, 2026, the upper chamber debated the House proposal for two hours and 17 minutes, beginning at 4:20 p.m. and concluding at 6:37 p.m. Senators considered 12 amendments, but none were approved. The Fiscal Year 2027 budget passed 32-6 without changes. Senators Samuel W. Bell (D-Dist. 5, Providence) and Leonidas “Lou” Raptakis (D-Dist. 33, East Greenwich and West Greenwich) joined the four Republican Senators in opposing passage of the budget proposal.”

Three days later, Gov. Dan McKee signed the 393-page Rhode Island General Assembly Fiscal year 2027 budget proposal at 10:30 a.m. at Children’s Friend in Providence.

While much of the attention surrounding the Fiscal Year 2027 budget focused on programs and services, lawmakers also approved several significant policy changes and revenue measures. Chief among them is a new tax on annual income exceeding $1 million. The phased-in surtax is expected to generate approximately $142 million annually when fully implemented, providing additional revenue to help support state services and offset potential reductions in federal funding.

The state’s budget also creates an independent Office of Inspector General to strengthen government accountability and oversight. In addition, the Rhode Island General Assembly approved increased funding for hospitals, behavioral health and home-care providers, child welfare programs, public transit, and higher education, while authorizing an audit of the Rhode Island Department of Transportation.

Investing in Rhode Island’s Aging Programs and Services

Although these initiatives will affect Rhode Islanders across all age groups, the budget also contains provisions that directly impact older adults, caregivers, and aging-service providers throughout the Ocean State.

The Fiscal Year 2027 budget expands eligibility for exempting Social Security income from state taxation by removing the age threshold. Under current law, taxpayers who have reached full Social Security retirement age (67 or older) and have incomes below $107,000 for individuals and $133,750 for joint filers are exempt from paying state income tax on their Social Security benefits. With the passage of the budget, the age requirement has been eliminated.

The state budget also increases funding by $200,000, bringing total funding for senior services grants to $1.8 million.

Meals on Wheels, which provides nutrition services to older adults, was also on lawmakers’ radar. The budget increases funding for the program by $50,000, bringing total state support to $730,000.

The Rhode Island General Assembly’s approved budget allocates $4.1 million to fund the “Eat Well, Be Well” program for Supplemental Nutrition Assistance Program (SNAP) recipients. This funding will help older Rhode Islanders struggling with the high cost of groceries.

Under the program, eligible SNAP households will receive an incentive of 50 cents for every dollar spent on fruits and vegetables, with the benefit loaded onto their electronic benefits transfer (EBT) cards, up to a maximum amount to be determined by the Rhode Island Department of Human Services.

The budget also increases funding for the Rhode Island Community Food Bank by $1 million, bringing total state support to $2.95 million to address food insecurity among families, including older adults.

In response to a significant increase in complaints regarding care, the budget provides additional funding to the state’s Office of Healthy Aging to support the Long-Term Care Ombudsman Program, administered by the Alliance for Better Long-Term Care.

The budget allocates funding for full cost-of-living increases in nursing home reimbursement rates, with 80 percent of the increase directed toward direct-care staff compensation. Gov. McKee’s proposed budget had limited the increase to 2.5 percent.

As for the state’s nursing facility minimum staffing requirements, the budget includes $200,000 to implement the Nursing Home Staffing and Quality Care Act. The provision requires the Rhode Island Department of Health to enforce staffing requirements at all nursing homes. The funding will support contracted services to collect and analyze data and calculate penalties for noncompliant facilities.

The state budget also includes $3.1 million to begin a phased opening of new beds at the Rhode Island Veterans Home. The funding is expected to increase capacity by 16 beds in each of the next two years, bringing the facility to its maximum capacity of 192 residents.

Assisted living facilities will see increased Medicaid reimbursement rates for caring for residents with dementia and those with higher personal-care needs. Advocates say the increase will help facilities accept and care for these residents while reducing premature nursing home placements.

The Fiscal Year 2027 budget also doubles the amount of assets that Medicaid home-care recipients may retain, helping older adults cope with rising housing costs and other basic needs.

Several provisions within the budget are intended to address the growing shortage of primary care providers, including assisting providers with medical school costs and seed funding for a new medical school at the University of Rhode Island (both of which were components of the Senate’s package of priority health care bills).

In addition, the budget fully funds rate increases for home- and community-based services recommended by an Office of Health Insurance study. The governor’s budget proposal had funded only half of the recommended increases. SACRI says the additional funding should improve worker compensation and help prevent waiting lists for services.

A nursing home behavioral health per diem add-on included in the budget provides additional resources for facilities caring for residents with both nursing and behavioral health needs, helping to avoid unnecessary transfers to acute-care settings.

Finally, an additional $13.5 million was included in the Fiscal Year 2027 budget to help the Rhode Island Public Transit Authority maintain services and avoid service reductions.

The Aftermath: Lawmakers and Aging Groups Debate Budget Proposals’ Impact

“I am proud of this budget, which addresses the concerns and struggles of everyday Rhode Islanders, including our older residents, who need access to health care, who need to be able to pay their bills, and who need to know that their government is honest and effective,” said Christopher R. Blazejewski.  “This budget is the result of months of listening, prioritizing, and identifying ways to fix what isn’t working, he stated.

“It provides relief today while being fiscally responsible and putting our state in a better position in the years to come,” notes Blazejewski.

“This budget reflects many of the Senate’s priorities, including funding health care initiatives and supporting seniors and Rhode Islanders in need,” said Senate President Valarie J. Lawson (D-Dist. 14, East Providence). “This is a responsible, balanced budget that provides relief for Rhode Islanders, including our older residents, while investing in and strengthening programs that support seniors, she says, noting that it complements other legislation the Senate passed this year to support older adults. She sponsored legislation to protect against the growing national threat of deed theft, a scam by which thieves defraud seniors of their real estate.

“These budget decisions reflect real progress for Rhode Islanders who rely on long-term services and community supports,” said Executive Director Carol Anne Costa. “We are encouraged to see the state make investments that strengthen care, support the workforce, and help older adults remain in the settings that best meet their needs.”

According to Costa, “SACRI fully intends to return in the next session to pursue the Medicare Saving Program’s asset test removal, the creation of the Office of the Elder Advocate, and secure a tax credit for caregivers. “These efforts do not come with huge price tags and in fact, infuse money back into the RI economy,” says Costa.

Costa emphasizes that Rhode Island’s aging population and adults with disabilities deserve nothing less, as the organization continues to be the voice for progress on their behalf.

“As the cost of food continues to skyrocket, our seniors, those with long-term care, and other Rhode Islanders living on a fixed income are being further squeezed. This budget helps ensure they can still get the healthy meals they need through targeted investments in SNAP and organizations like Meals on Wheels and the RI Community Food Bank. This budget brings us closer to ensuring food security for all Rhode Islanders,” says Lt. Gov. Sabrina Mattos, says  Lt. Gov. Sabina Matos, chair of the state’s Long-Term Care Coordinating Council.

“We appreciate the legislature’s commitment to strengthening Rhode Island’s long-term services and supports through this year’s budget,” says Mag Morelli, president of LeadingAge Connecticut & Rhode Island. “The investments in assisted living, community-based services, and nursing home care recognize the growing needs of older adults.

By supporting Medicaid reimbursement rates that more closely reflect the cost of care, this budget helps providers deliver essential services while promoting stability, access, and choice for aging Rhode Islanders.”

Hopes Dashed: Budget Fails Rhode Island’s Caregivers

Meredith L. Sheehan, Director of Public Policy, Alzheimer’s Association, Rhode Island Chapter: “More than 22,000 Rhode Islanders live with Alzheimer’s disease, and 37,000 serve as caregivers. We applaud budget investments in senior centers, the Long-Term Care Ombudsman Program, and assisted living providers, but are disappointed funding was not included for a Dementia Services Coordinator, a dedicated position needed to develop a coordinated statewide response to dementia.”

“I am encouraged by the 2027 budget’s funding that strengthens our support for people with Alzheimer’s disease and related dementia (ADRD) and their caregivers, including increased Medicaid reimbursement for specialized assisted living and for nursing home care,” says Chris Gadbois, DNP, RN, chair of RI’s Council on ADRD.

“People’s ability to remain safely in their homes will be supported by increased rates for home and community-based services and an increase in the asset limits,” notes Gadbois.

However, like Sheehan, Gadbois expressed disappointment that funding for a state Dementia Service Coordinator within the Rhode Island Department of Health was not advanced in the past budget proposal, adding, “We will continue to collaborate with state leadership for this critical position, as well as reintroduce legislation to ensure healthcare providers’ and facilities’ competency in caring for individuals with dementia.”

“The Office of Healthy Aging appreciates Governor McKee’s continued commitment to older Rhode Islanders and to the systems of support that help people age with dignity, connection, and independence. We remain focused on working with state and community partners to strengthen access to services and supports for older adults, caregivers, and families across Rhode Island,” says Maria E. Cimini, MSW, Director, RI Office of Healthy Aging.

Lori Light, the state’s long-term care ombudsman, welcomes FY 2027 budget investments in aging-in-place programs. “It strengthens our advocacy for nursing home and assisted living residents,” Light said. She urges continued funding to expand ombudsman services, allowing the agency to handle increasingly complex complaints and ensure all residents receive timely support.

To view all provisions of  H 7127Aaa, the state’s enacted 2027 Fiscal Year Budget proposal, go HERE – https://webserver.rilegislature.gov/BillText26/HouseText26/H7127Aaa.pdf

Challenging Ageist Language in Rhode Island

Rep. Carson’s Bill Challenges Ageist Language in Rhode Island Statutes

Published on March 2, 2026

During the 93rd Legislative Session, a law enacted in Massachusetts caught the attention of Lauren H. Carson (D-Dist. 75, Newport), who chairs the House Study Commission on Services for Older Rhode Islanders (HSCORI). Carson was convinced of the need to confront ageism in the state’s statutes. She understood the importance of how Rhode Island lawmakers talk about aging.

On Jan. 9, 2025, Massachusetts Gov. Maura Healey signed Senate Bill S. 3006, “An Act Renaming the Executive Office of Elder Affairs to the Executive Office of Aging and Independence,” into law. Sponsored by Joan B. Lovely (D–Second Essex), the measure formally changed the name of the Executive Office of Elder Affairs to the Executive Office of Aging & Independence to better reflect the agency’s mission of supporting older adults in maintaining independence and dignity.

Beyond the name change, the law sought to modernize statutory language and reduce the stigma often associated with aging. It replaced outdated terms such as “elder,” “elderly person(s),” and “handicapped” throughout state law with more respectful and person-centered language, including “older adult(s)” and “adult with a disability.”

Carson believed that Massachusetts’ move to systematically remove ageist language from state law was a public policy Rhode Island could follow.

A Rhode Island Response

More than a year later, on Feb. 5, 2026, Carson introduced similar legislation, H. 7496, aimed at reviewing state statutes to identify negative or outdated references to older Rhode Islanders — including terms such as “elders” and “elderly person(s)” — while strengthening advocacy for older adults.  At press time, Sen. Victoria Gu (D-Dist. 38, Westerly, Charlestown, South Kingston) plans to introduce the Senate version of this bill.

Carson’s special legislative commission is identifying ways to improve services and maximize resources available to older Rhode Islanders in the face of an expected surge in that population over the next 15 years. Over the more than two years the commission has been meeting, Carson has noted that, with life expectancy having increased over the decades, people over 60 are not all living lifestyles that could be described as “elderly,” and they certainly do not appreciate being labeled as such.

The legislative proposal, referred to the House State Government & Elections Committee, would initiate a review of state laws for references to “elders” and “elderly person(s)” and enable the drafting of legislation next year to replace those terms with the phrase “older adults.”

“Words matter. When we apply labels to people, we are telling them and everyone else how we think of them, what we expect of them. Many people over 60, 65 or 70 are still working like any other adults. They are contributing to their communities, they are active, and they simply are not what we think of when we hear the word ‘elderly.’ They don’t want to be called ‘senior citizens,’” Carson said in a statement announcing the introduction of H. 7496. “Being older than middle age doesn’t mean you are elderly. Our language should better reflect that this is a huge swath of our population that includes a wide range of ages, abilities and lifestyles. They aren’t all elderly.”

Her legislation also specifies that references to “handicapped” and “disabled” in the parts of the General Laws relating to older adults be replaced with the term “adult person(s) with disabilities.”

Carson’s bill, which also includes changes designed to give older Rhode Islanders a seat at the table in state planning and to better empower a panel on long-term care, stems from the work of the commission she chairs to study services provided to older Rhode Islanders.

The legislative proposal makes two additional changes to address issues identified during the commission’s work.

It adds a representative from a statewide aging advocacy organization as a member of the State Planning Council and specifies that the new member must be at least 60 years old. The purpose of the change is to sharpen the state’s focus on issues affecting older Rhode Islanders by ensuring their interests are represented in state planning, helping to prepare and direct resources appropriately as the state’s 60-plus population grows. Currently, more than 240,000 Rhode Islanders are age 60 or older. That number is expected to increase to nearly 265,000 by 2040.

The legislation also makes it easier for the Long-Term Care Coordinating Council to reach a quorum. With 33 members — many of whom are busy leaders of state agencies, organizations or businesses — the panel at times struggles to meet quorum requirements. The bill would allow 12 members to constitute a quorum. The change is supported by Lt. Gov. Sabina Matos, who chairs the council.

Talking About Ageism, Language and Older Adults

At a two-hour HSCORI public meeting held Sept. 18, 2024, at the Pilgrim Senior Center in Warwick, Dr. Philip Clark, director of University of Rhode Island’ Program of Gerontology and Jim Connell, executive director of Age-Friendly Rhode Island, spoke about the negative impact of ageism and the importance of reframing aging using more positive language. It was one of three such meetings held “on the road” in different communities — Newport, Warwick and South Kingstown — to increase public visibility and engagement.

During his 34-minute presentation, Clark argued that language shapes perception and policy, and that the pervasive use of ageist language and stereotypes has detrimental health and social consequences for older adults. Ageism is a significant public health problem, he said, citing research by Dr. Becca Levy of Yale University indicating that negative self-perceptions of aging can shorten one’s lifespan by as much as seven years.

“How we talk about aging matters and particularly ageism language and “older adults.” And the operative word here is older adults. That is the term in the field of gerontology that has become standard language,” says Clark.  He  advocated using the term “older adults” instead of labels such as “seniors” or “the elderly,” which often carry negative connotations.

“Ageism is the last of the ‘ism’s’ to be recognized and confronted as discriminatory.  Even older adults themselves fall victim to ageist attitudes and believes,” says Clark.  He identified veiled ageism — including patronizing language such as “dear” or “sweetie” and infantilizing humor — that reinforces negative stereotypes about aging.

Clark stressed the vast diversity within the older population, repeating the mantra, “If you’ve seen one older person, you have seen one older person.” He warned against policies that treat this diverse group as a monolith.

“Older adults are more unique than any other age group,” Clark said, noting that they have had a lifetime to become who they are. Their needs, abilities and desires vary widely, and policy must reflect this diversity rather than relying on one-size-fits-all solutions.

“We must analyze the meaning of words and the wording of meanings,” Clark added, urging policymakers to critically examine language and underlying assumptions in policies and programs to ensure they are grounded in accurate data and reflect values of independence and dignity rather than ageist bias.

During Q&A, Commissioner Maria Cimini, Director of the state’s Office of Healthy Aging, asked Clark how best to balance inclusive language with recognition of each older adult’s unique identity. “When I go into different communities, like the Center for Southeast Asians, they specifically use the word ‘elder,’” she said. “Not ‘older adult.’”

Clark responded, “If you’re in a community where ‘elder’ carries a sense of respect, appreciation, and value, you obviously don’t want to impose your white, middle-class values on that group.”

“We use catastrophic language. It makes the problem seem unsolvable and it makes it very hard for us to be successful in our advocacy,” said Commissioner Catherine Taylor, state director of AARP Rhode Island, reinforcing Clark’s testimony by explaining how negative framing can undermine efforts to secure legislative support for aging-related issues.

“So, to use the right language is really important to the success of our work in getting things through,” adds Taylor.

Following Clark’s presentation, Connell argued that the common negative narrative of aging is incomplete and fails to account for the many older adults who are active, working and seeking new opportunities.

According to Connell, 71% of Americans aged 65 and older say the best time of their lives is right now or still ahead of them. He also cited a recent Harris Poll indicating that 83% of U.S. adults 65 and older feel it is more important to feel useful than youthful in retirement.

Connell introduced the concept of “middle essence” to describe the period from ages 60 to 80, highlighting it as a time for new careers, enrichment and purpose. He emphasized the power of personal narratives and lived experience to counter the societal view of aging as a period of frailty and decline.

Personal stories are a powerful tool for dismantling the dominant negative narrative of aging, Connell said. He characterized the growing older population not as a problem to be solved, but as a “longevity boom” full of potential for personal growth, continued work and community contribution — one that requires intentional, age-friendly planning.

Connell noted that society has gained 30 years of life expectancy since the mid-20th century and said this “longevity boom” must be factored into planning. He warned that “othering” — assuming all members of a group are the same — is the “absolute enemy” of effective planning for an aging population.

Connell concluded by saying: “So this Commission and indeed all of us were well positioned to have the power to change the aging narrative and he use of ageist language in our state. It’s important that lived experience be woven into everything we do.  Please keep telling your stories. It’s really, really important.”

Meanwhile, at the same public commission meeting, House Speaker K. Joseph Shekarchi (D-Dist. 23, Warwick) reported on several recent accomplishments, including passage of accessory dwelling unit (ADU) legislation, a law allowing cameras in nursing home rooms, an increased tax exemption for Social Security income and a state-level cap on insulin costs. He also highlighted a $120 million housing bond question that appeared on the November ballot, calling it a critical opportunity to fund affordable housing for older adults.

Shekarchi further noted the creation of a Senate commission to explore establishing a new medical school in Rhode Island as a long-term strategy to address the state’s primary care physician shortage. He also referenced Gov. McKee’s Healthcare Systems Planning Cabinet as another effort to address systemic issues, including primary care access and long-term care planning.

To watch HSCORI’s Sept. 9, 2024 public meeting, go to  https://capitoltvri.cablecast.tv/show/10590.

___

Rhode Island’s 5-year plan to support persons with Alzheimer’s, related disorders

Published in RINewsToday on February 19, 2024

Last week, state and federal leaders, and the Alzheimer’s Association of Rhode Island, gathered at the East Providence-based PACE Rhode Island to announce the release of  the latest Rhode Island Alzheimer’s Disease and Related Disorders (ADRD) 2024-2029 State Plan. This 25-page strategic plan, details 36 recommendations to improve the quality of life and accessibility of care for Rhode Islanders with ADRD by the end of this decade.

The 5-year plan provides Rhode Island a “Rhode map” to channel its resources to provide care for a growing number of persons with ADRD. In 2020, an estimated 24,000 adults in Rhode Island ages 65 and older were living with ADRD (being cared for by over 36,000 unpaid caregivers). This makes Rhode Island the state with the third highest percentage of Alzheimer’s disease in New England. And this number is expected to increase by nearly 13% over the next few years, with state officials calling it a growing public health crisis.

The State Plan was developed by the RI Advisory Council on Alzheimer’s Disease and Related Disorders and statewide partners consisting of researchers, advocates, clinicians, and caregivers. This public process resulted in identifying dozens of strategies to empower all individuals impacted by dementia to achieve their best quality of life.  (Editor’s note: Weiss serves on the Rhode Island ADRD Advisory Council).

To ensure that the State Plan was community-led and inclusive, the Rhode Island Department of Health (RIDOH) hosted an in-person strategic planning session at PACE-Rhode Island in July of 2023 with nearly 50 attendees representing community-based organizations, people with lived experience, health system partners, academia, and social service agencies.

The released State Plan also calls for the creation of accessible neighborhoods with walkable sidewalks, greater access to healthy food options, and safer public spaces for people living with dementia.  It highlights the importance of convening a workgroup focused on elevating and addressing issues of health equity in dementia care.  It even recommends working closely with Rhode Island cities and towns that have a high prevalence of ADRD to develop action plans that promote age and dementia friendly resources and information that identify local supports for people with dementia and their caregivers.  

From the Plan: Goals for the next 26 years in staffing call for adding 15 more gerontologists and 2,069 aides by 2050 – or on average: .58 gerontologists and 80 aides per year. (Editor’s Note)

The announcement and launch

Lt. Gov. Sabina Matos and RIDOH, joined by Gov. Dan McKee, Sen. Jack Reed, Office of Healthy Aging Director Maria Cimini, and the Alzheimer’s Association of RI, along with Kate Michaud of Congressmen Gabe Amo’s Office, gathered on Feb. 15 at PACE Rhode Island, to launch the release of Rhode Island’s road map to coordinate resources to combat the growing incidence of ADRD cropping up throughout Rhode Island communities.

“This State Plan brings together every part of our government to support Rhode Islanders whose lives are affected by ADRD,” said Lt Gov. Sabina Matos, kicking off the 30-minute press conference. “Under this plan, we’re connecting federal, state, and local government resources to build strong communities where people with dementia can thrive. I’m grateful to be able to serve alongside the community leaders and experts on our state’s Advisory Council on ADRD in coordinating these efforts and carrying on the work started by Gov. McKee,” she said.

“The Plan is our state’s promise that you will never face these things alone – because Team Rhode Island is behind you,” pledged Matos.

“Rhode Islanders and their loved ones affected by Alzheimer’s or related disorders are at the heart of this new state plan,” said Gov. McKee, who as Lt. Governor finalized and distributed the previous five-year ADRD STATE Plan in 2019. 

“Giving them the necessary resources and information to enhance their health and well-being is critical,” said the Governor, stressing that a cure is possible. “We all can play a role, and one of the most important roles people can get involved in is through clinical trials,” he says.

Gov. McKee recognized the efforts of Matos, the ADRD Advisory Council, and the researchers, advocates, and caregivers across our state for crafting, he said, “a very comprehensive plan that promotes inclusion and support.”

Under McKee’s previous five-year plan and its update, the state has accomplished the main goals of dedicating a full-time employee (funded with federal dollars) to coordinate ADRD strategy and promoting ADRD research opportunities in Rhode Island, and including brain health in the state’s other chronic disease management activities. 

Sen. Jack Reed, who serves on the largest and most powerful committee in the Senate responsible for crafting bills that fund the federal government and its operations, left Capitol Hill to travel back to the Ocean State for the press conference, to assure the attendees that he will continue pushing Congress to invest in finding a cure for ADRD. 

Last year, Reed noted that Congress increased the NIH budget to $47.5 billion, and set aside $3.7 billion specifically for Alzheimer’s disease reach. “I’m working hard to raise that total by at least $100 million this year,” he said.

Reed stressed that it is “critical for state officials to continue to focus on effective ways to improve the quality of life for those impacted by dementia and deliver caregiver support.”  But, when it comes to brain health studies, Rhode Island-based researchers are on the “leading edge of the fight against Alzheimer’s.” 

Sandra Powell, Deputy Director at the Rhode Island Department of Health called launching of the State Plan a “big deal” stressing this work is so critical.

According to Powell, the State Plan takes a comprehensive approach focusing on lifestyle modifications, supporting healthcare professional engagement to increase early detection and diagnosis, building a workforce to deliver person-centered dementia care, and using data to drive decision-making and to tackle health disparities. 

Since receiving funding in 2020 from the Centers for Disease Control and Prevention, “we’ve done a lot to connect with partners and advocates to leverage resources for persons with dementia,” says Powell.

“Although most Rhode Islanders and Americans likely know somebody who is living with Alzheimer’s, if people think it’s not their concern, consider these facts. 1 in 3 senior citizens will die as a result of Alzheimer’s or a related dementia. Alzheimer’s disease costs the government more than $350 billion per year for care and more, and by 2050, this disease is expected to cost the government alone 1 trillion dollars,” said Donna McGowan, Executive Director of the Alzheimer’s Association of RI. “So, think again if you believe it’s none of your business. This killer is all of our business!” she says.

“With the great progress and improvement, the plan has seen, our focus remains on creating the infrastructure and accountability necessary to build ADRD-capable programs and services,” says McGowan. With the U.S. Food and Drug Administration approving drugs, like Leqembi, that are proven to effectively slow down the progression of the devastating disease for those living with early onset Alzheimer’s, she calls on Medicare to cover most of the costs. “At the moment, the $26,000 cost copayment for the drug makes access largely prohibitive,” she notes.

“It is high time that the discrimination against those living with Alzheimer’s stops,” says McGowan, stressing the Medicare covers most of the costs for drugs and treatment of major disease, specifically cancer, diabetes, HIV/AIDS, heart disease and COVID.

According to Joseph Wendelken, RIDOH’s public information officer, funding from the CDC, for a five-year implementation grant, $500,000 for each year of the grant cycle from Sept. 30, 2023, to Sept. 29, 2028, has been secured to support the development and implementation of the State Plan. And state funds allocated to key partners such as the Office of Healthy Aging, will help to advance the work of the plan,” he says.

Sen. Sheldon Whitehouse, attending the Munich Security Conference, and Congressmen Seth Magaziner and Gabe Amo, at the Capitol expecting a vote, couldn’t attend the press conference. The federal delegation sent its support for the newly released Alzheimer’s State Plan.

A Final Note…some ideas left in the “parking lot”, but can be included in other plans

“The new 5-year State Alzheimer’s Disease and related Disorders Plan builds nicely on the prior Plan from 2019,” observes Maureen Maigret, Policy Advisor for the Senior Agenda Coalition, who also serves on the state’s ADRD Advisory Council. “The five-year plan continues to be based on a strong public health approach emphasizing education about brain health, information on available resources, early detection, training of the healthcare workforce across care settings on the care and service needs of persons dealing with dementia, caregiver supports and includes a strong focus on equity,” she says.

According to Maigret, a former Director of the former state’s Department of Elderly Affairs, it includes some new areas of focus for community involvement and attention to ‘age-friendly’ issues. “The next step — developing the Action Steps needed for Plan implementation is critical as it requires collaboration among many parties,” she says.

“The fact that we have a federal grant and dedicated staff should ensure the Plan will be a working document and guide development of needed actions moving forward. There are also a number of concrete ideas and suggestions contained in a “parking lot” that merit consideration,” says Maigret.

As to the phrase “contained in a parking lot,” Maigret noted that ideas were generated by participants in the Strategic Discussion that took place in July 2023. Some of the input that was provided did not fit into the existing plan objectives and strategies and was placed in a “parking lot,” she says.

“Many of the “parking lot” suggestions could be addressed in other State Plans such as the Rhode Island State Plan on Aging or the Rhode Island State Plan on Caregiving. As the current strategies are achieved, these ideas may be considered for inclusion in the plan, with input from stakeholders,” says Maigret.

The 2024-2029 ADRD State Plan is available for all Rhode Islanders to read online by going to https://health.ri.gov/publications/stateplans/2024-2029Alzheimers-disease-and-related-disorders.pdf, or read or downloaded, below.

This is the second in-depth policy report developed and released by Lt. Gov. Matos’s policy councils, following the 2023 release of Meeting the Housing Needs of Rhode Island’s Older Adults and Individuals with Chronic Disabilities and Illnesses from the Long Term Care Coordinating Council.

If you or someone you know needs supported related to ADRD, call 1 800-272-3900. The Alzheimer’s Association website (www.alz.org) offers a wide range of dementia and aging related resources that connect individuals  facing dementia with local programs and services.

Herb Weiss, LRI-12, serves on the state’s ADRD Advisory Council and is a Pawtucket-based writer who has covered aging, health care and medical issues for over 43 years. To purchase his books, Taking Charge: Collected Stories on Aging Boldly and a sequel, compiling weekly published articles, go to herbweiss.com.