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Writer Herb Weiss attains archive status: a legacy of 45 years of advocacy on aging

Published on April 2, 2025

The substantial body of work compiled by Herb Weiss—a 72-page list detailing 1,111 articles on aging, plus three books published over 45 years—now has a permanent home at Rhode Island College’s (RIC) Special Collections, housed in the James P. Adams Library. The archive, titled the Herbert P. Weiss Papers, 1980 to 2025, is a significant addition to RIC’s archives.

This newly established collection spans Weiss’s career as a writer, editor, and journalist, documenting his contributions to the field of aging, senior life, healthcare, and public policy. The collection includes a range of publications that

Weiss contributed to as a writer, editor, or editorial board member. These publications—magazines, newspapers, newsletters, and trade journals—cover topics such as aging, senior life, healthcare, and federal and state policy issues.

In addition to his articles, the collection features various degrees, certificates, and awards Weiss has earned throughout his education and career.

Weiss’s journalistic career began long before he was a staff writer intern (a three-month position) for the Providence Journal. He has since written columns and digital news commentaries on aging for outlets such as the Pawtucket Times, Woonsocket Call, Senior Digest, Senior Living (now Prime Time), and RINewsToday. Weiss holds a Master of Arts in Studies in Aging and a Specialist Certificate in Aging from North Texas State University (now the University of North Texas). He also spent years covering health and long-term care policy as an accredited House Gallery Reporter in Washington, D.C., for various publications.

Weiss has contributed his expertise to the editorial boards of McKnight’s LTC News and The Brown University LTC Quality Letter. His “Age Beat” column, which has been a staple for local readers in Rhode Island, reflects his dedication to covering generational issues with depth and insight.
Weiss has published three volumes of his column compilations: Taking Charge: Collected Stories on Aging Boldly (2016), Taking Charge: Vol. 2 – More Stories on Aging Boldly (2021), and his recently released third volume, Taking Charge: Vol. 3 – Even More Stories on Aging Boldly.

Service to the Community and Advocacy

In addition to his journalistic work, Weiss has served as Pawtucket’s arts and cultural “ambassador” and as the deputy director of the Leon Mathieu Senior Center. He has been appointed to the Rhode Island Advisory Commission on Aging by five different governors and, in 2021, was tapped by Rhode Island Senate President Dominick J. Ruggerio to serve on the Advisory Council on Alzheimer’s Disease Research and Treatment.

Weiss’s impact extends beyond his writing: one local restaurant even named a lobster salad (delicious) and a hamburger (dangerous) in his honor. Recently, a small café also named a decadent breakfast sandwich after him, called “The Herb Weiss Breakfast Sandwich.”

Weiss hopes that the archive will provide researchers, students, and journalists with valuable historical context on aging policy and community issues from the past four decades. His work, particularly in understanding aging-related public policy, will be a helpful resource for professionals in aging services, healthcare, social work, and gerontology.

The Value of the Collection at RIC

Housed in RIC’s Special Collections, the Weiss archive is poised to benefit generations of students, researchers, and professionals. The collection not only preserves the history of aging policy in Rhode Island and in Congress but also serves as a vital resource for anyone involved in or studying aging-related topics.

The value of this collection lies not only in the breadth of its coverage but also in its unique perspective—Weiss has chronicled aging issues from a journalistic standpoint, grounded in personal experience. His columns explore complex issues like healthcare, caregiving, and retirement, offering readers practical advice as well as a deeper understanding of the challenges faced by older adults.

The Herbert P. Weiss Papers collection offers insights into the evolution of aging policies and practices, highlighting both local Rhode Island issues and broader national trends, especially pulling the findings from AARP reports, studies and polls For students and professionals in fields such as nursing, healthcare administration, gerontology, and social work, the collection provides a solid foundation of knowledge. It will also inform the work of aging professionals, enabling them to better advocate for older adults and their families.

What They’re Saying About the Herbert P. Weiss Papers collection at Rhode Island College

Numerous aging network professionals, providers and elected officials have praised the significance of the Herbert P. Weiss Papers at RIC. Some have recognized Weiss for his tireless work on aging issues, others have lauded the collection’s contribution to expanding access to vital research on aging. One even commented on the collection’s role in tackling pressing issues such as Medicare reform and family caregiving. Others noted that this collection would become an invaluable resource for students, faculty, and policymakers alike.

Let us take a look at their comments…

“I am so pleased to have the opportunity to praise the action of Rhode Island College in establishing the collection of the works of Herb Weiss’s reports on aging in Rhode Island over the years. The reports have recognized the evolution of the enormous challenges faced by our large aging population and inspired the people who worked tirelessly to address them.

I met Herb when he worked for the Pawtucket Times and the City of Pawtucket. Back then, we both served as members of the Governor’s Commission on Aging. The committee members were younger then and were mostly leaders in agencies, service providers and dedicated professionals. I came to recognize the young reporter (Herb) and his deep commitment to solving the daunting challenges we faced.

Herb has never let up on his efforts and his writings are full of insights and useful information presented in multiple articles and reports which are all factual and frequently memorable. He has gained readers among leaders, researchers and others of all ages. His writings are a great resource for the public, and the state’s Office of Elderly Affairs.

Herb is a true champion for all as we age.”
Kathleen Connell, Past Secretary of State of Rhode Island, Past Director of AARP Rhode Island

“Herb Weiss’s collection at Rhode Island College is a treasure trove of invaluable insights that have not only shaped the conversation on aging, but also influenced key policies at both the state and national levels. His tireless dedication to addressing the challenges of an aging population is reflected in his extensive body of work. The establishment of the Herbert P. Weiss Papers at RIC will serve as a lasting resource for future generations of students, researchers, and policymakers, ensuring that Herb’s contributions to aging policy remain accessible for years to come. It is an honor to have his remarkable legacy preserved in such a meaningful way.”

Robin Covington, Coalition Director – Rhode Island Coalition for Elder Justice

“What an honor to hold the Herb Weiss collections at Rhode Island College and so well deserved! I especially enjoy Taking Charge: Stories on Aging Boldly where Herb Weiss offers practical tools to live a happy, fulfilled life and interviews experts and everyday people who share their keen observations about growing older.”

Patricia Raskin, Broadcaster “Positive Living and Aging”PBS and Cumulus Afffiliates and Southcoast Health Podcasts

“Herb is a respected leader and trusted authority in the aging field, as evidenced by his appointments by the last five governors to provide crucial guidance to the Advisory Commission on Aging. We are excited that his remarkable collection will be showcased at Rhode Island College’s James P. Adam’s Library, increasing visibility of his work and expanding access to his writings, which have made a significant contribution over the past 45 years in support of the nation’s aging population.”

Meghan Grady, Executive Director of Meals on Wheels of RI, Inc. and Chair of the Advisory Commission on Aging.

”It’s fantastic to have the collective works of Herb Weiss’s many insightful insights on aging organized in one place for all to benefit from his years of experience in aging.”

Sarah Lenz Lock, SVP Policy & Brain Health, AARP

“Herb Weiss has an incredible dedication to shining a light on so many issues involving aging. This collection will be an invaluable resource in further understanding the myriad of important topics that he has addressed in his decades of insightful writing.”

Larry Berman, Director of Communications, Rhode Island House of Representatives

A wealth of Herb Weiss’ keen observations and insights with respect to all things healthy aging, is now housed at Rhode Island College, to the benefit of students, researchers, and professionals in aging work. This treasure trove will be a tremendous asset to those seeking context or to understand the broad range of issues facing older Rhode Islanders and their caregivers. The Weiss collection will also inform the work of countless aging work professionals and provide a solid foundation for students pursuing their education in nursing, gerontology, healthcare administration, as well as social work.

James B. Connell, Age-Friendly RI

“Herb Weiss’s reporting on aging has helped shape our state’s long-term care services. As Lieutenant Governor, I have often relied on his writing to both stay informed on the issues of the day and to learn about the history of aging policy in Rhode Island which he has covered over his long career. The Herbert P. Weiss Collection at RIC James P. Adams Library will ensure that generations to come are able to access his reporting, and I am glad to see the importance of his work recognized in this way.”

RI Lieutenant Governor Sabina Matos

“Herb Weiss has long been a guiding voice in the conversation around aging, capturing both the personal journey and the broader policy landscape with clarity and depth. His work distills complex research into accessible articles that educate the public, influence policymakers, and support older adults, their families, and caregivers. His collection of articles, now housed in the “Herbert P. Weiss Papers collection at Rhode Island College’s (RIC) James P. Adams Library, tackle pressing issues such as Social Security and Medicare reform, affordable housing, and the challenges of family caregiving. His tenacity and commitment to truth make his articles an invaluable resource for anyone seeking to understand aging in America today. More than just a policy discussion, the collection is a roadmap for navigating the later years of life with knowledge and confidence.

Whether you’re an advocate, a professional in elder care, or simply planning for your own future, RIC’s archives of his work offers essential insights into the evolving landscape of aging—one well-researched story at a time.”

John E. Gage, MBA, NHA, President & CEO, Rhode Island Health Care Association

“Herb Weiss has dedicated his career to illuminating the complexities of aging and retirement, providing invaluable insight and advocacy for older adults. Through his thoughtful journalism and deep expertise, he has shaped public understanding and influenced policy discussions, ensuring that aging issues remain at the forefront. His work has had a profound impact, empowering individuals and communities with the knowledge needed to navigate later life with dignity and confidence. It has been an honor and privilege to have now published three volumes of his collected works.”
Steven R. Porter, Publisher, Stillwater River Publications, West Warwick, RI

“Herb Weiss’s 3 book compendium is a one of a kind collection, illustrating the complex social, economic, and political dynamics that surround and influence elder care in our country. This is a vital resource for all professionals who have anything to do with elders and their families. Herb’s sensitivity to these matters emerges from his various roles as a professional himself – a noted author, a devotee to culture and art, a background as a former Nursing Facility Administrator and an opinion writer on all legislative issues related to elders at local and national levels. This recognition of him at Rhode Island College brings honor indeed to the institution.”

Teresa Chopoorian, EdD, MSN, FNAP, Vice President and Administrator , Mansion Nursing and Rehabilitation Center; Fellow, National Academy of Practice , Nursing

“Herb Weiss has worked tirelessly over many years to keep Rhode Island’s aging population informed about the issues that matter most and highlight policy areas and proposals that otherwise might not receive wider attention. Congratulations to Herb and Rhode Island College for creating this valuable resource.”

Dominick J. Ruggerio, President of the Senate

“Herb Weiss has helped countless people better understand aging, caregiving, and the politics of long term care through his clear and accessible writing. His books and articles have educated and inspired readers across Rhode Island and beyond. As a RI College alum, it is great to know that the Herbert Weiss Papers collection will be available at Adams Library for the students, professionals, and the community for years to come!”

Deb Burton, Ms., Executive Director & Gerontologist, RI Elder Info.

“Herb Weiss for many years has been a tireless, committed researcher and writer regarding the issues that face our increasingly older population. I always read his work with interest and believe his writings will be a valuable resource for students, faculty, politicians, and others who earnestly seek to address the needs of those of us who are elders in the community.”

Dr. Nancy Carriuolo, Rhode Island College president 2008-2016

“As a journalist Herb has always adhered to the most critical qualities of objectivity, integrity and just plain good understandable writing, coupled with his keen sense for a story that needs to be told,” states Bill Benson, former Acting Assistant Secretary for Aging at the U.S. Administration on Aging who leadership position in the US Senate and House of Representatives. Rhode Island College is to be commended for providing a permanent home for Herb’s collection, says Benson. “These are worrisome times with journalism under assault.” Hopefully those reviewing the Herbert P. Weiss collection in the future who care about aging in America will find inspiration and a model for quality writing on these important matters, he said.

Bill Benson, Former Acting Assistant Secretary for Aging at the U.S. Administration on Aging who spent 8 years working in both the U.S. Senate and House of Representatives

“We appreciate Herb Weiss’s donation and believe that it will be beneficial to RIC students and the broader Rhode Island community interested in the topics of healthcare, policy, and aging.Thank you!”

Veronica L. Denison, Assistant Professor, Digital Archivist and Special Collections Librarian, James P. Adams Library, Rhode Island College

“Herb has chronicled over 45 years of aging in America and locally. No one individual has been so attentive and dedicated to older adult reporting on emerging healthcare concerns, social security and financial matters, caregiving, socialization, volunteering, nutrition, etc. This collection provides enormous historical access for social & healthcare workers, geriatric case managers, policy makers, and elected officials. Readers should want to immerse themselves in these insightful and instructive stories. Well done, Herb!”

Vincent Marzullo, former Federal Director/Corp. for National & Community Service (RI); past volunteer President, AARP RI; Board member/Senior Agenda Coalition of RI.

“We are thrilled and honored to hold the Herb Weiss collections at Rhode Island College. No one has made more contributions to the field of aging and long term care through their journalism and writing than Herb. Herb has studied and tracked policies, issues, trends, legislation, and best practices in long term care for years and provided invaluable research, commentary, analysis, and a historical perspective. Most important, he has engaged with the community, policy makers, providers, and older adults themselves and has fully immersed himself in the field.

Having his collection at Rhode Island College will provide an invaluable asset and resource to faculty, students, researchers and those shaping policies on services and supports to older adults. As the population is rapidly growing older, his work has become increasingly more relevant and important today and in the future.”

Marianne Raimondo, MS, MSW, LICSW, Ph.D., Dean, School of Business, Rhode Island College

“Until now, Herb Weiss has been a virtual walking archive of information about retirement issues and policy debates about aging in America. Now, thanks to RIC’s Adams Library, anyone, including Weiss, will literally be able to walk in (or dip in online) and access one of the rarest continuous files of media coverage on this vital topic over most of the past half century. Uniquely researched and written from the perspective of a single journalist and public policy professional, the Herbert P. Weiss Papers should stand as an historical treasury for researchers and students in the years to come.”

Paul Kleyman, Cofounder, Journalists Network on Generations/Editor, GBONewss.org.

“It is an honor to be asked for a quote on Herb Weiss’ work for your archiving his writings. As the former Chief of Staff of the House Aging Committee and since then a spokesman at the White House and after, I’ve had the privilege of working with Herb Weiss for decades. Herb Weiss is the best and most knowledgeable aging issues writer in the country. He has informed not only Rhode Island but the Nation on problems and solutions for the elderly. His work will finally be archived and protected as the national treasure that it is. His historical record is invaluable and an incomparable resource for researchers, writers, and students.”

Robert S. Weiner, Former Chief of Staff, U.S. House Aging Committee under Chairman Claude Pepper, spokesman in the Clinton and Bush White Houses, and spokesman/senior staff for Cong. Claude Pepper, Charles Rangel, John Conyers, Ed Koch, Sen. Ted Kennedy, and Four-Star Gen./Drug Czar Barry McCaffrey – Winner, National Press Club President’s Award for recruiting young journalists as co-bylined oped writers (1000+ articles to date (www.weinerpublic.com/opeds).
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“Herb Weiss has set the highest standard for writing on important aging policy issues. He does more than write. He provokes people to take action. He is the best journalist advocate I know.”
Bob Blancato, Executive Director, National Association of Nutrition and Aging Services Programs, DC

“Herb Weiss is an indispensable conduit for real-time news that gives us what is increasingly disappearing: honesty, transparency, fact-based And an amalgam of big-picture and personal stories about aging and the human condition—a real treasure!”

Fernando Torres-Gil, M.S.W., Ph.D., Director, UCLA Center for Policy Research on Aging; Professor, Social Welfare and Public Policy, UCLA Luskin School of Public Affairs

“Herb’s contributions have been a guiding light in the field of aging, illuminating critical issues with compassion, clarity, and a relentless pursuit of the truth. This collection is a well-deserved tribute to his decades of impactful journalism and advocacy.”
John O’Connor, Editorial Director, McKnight’s

“For over 45 years Herb Weiss’s reporting has kept us informed about important issues touching the lives of our older population – from critical national and local policy proposals to tips for aging boldly. This collection honors his many years of journalistic excellence in reporting on aging.”
Maureen Maigret, Policy Advisor, Senior Agenda Coalition of RI

“The City of Pawtucket is proud to recognize the establishment of the Herbert P. Weiss Papers collection at RIC’s James P. Adams Library, preserving his invaluable contributions to the fields of aging, health care, and medical issues. Herb’s work has profoundly impacted our community, and this collection ensures that his legacy will continue to inform and inspire future generations.”
Mayor Donald Grebien, Mayor of Pawtucket, RI

“Herb Weiss tackles important seniors’ topics from a Rhode Island perspective, at once localizing and nationalizing them. Our organization has been happy to help share Herb’s work with a national audience over these past decades. His columns go beyond routine reporting on Social Security, Medicare, Aging, and a host of other issues we care about. Herb brings nuance, balance, and detail where it can otherwise be lacking in other media. This new collection of his works will be a valuable resource to everyone in our field.”

Max Richtman, President and CEO, National Committee to Preserve Social Security & Medicare

“Herb Weiss has been an articulate and passionate writer on so many issues related to aging and older adults in Rhode Island. His writings trace the enduring achievements and challenges of growing older, and this collection is a testament to his myriad contributions to enriching our perspectives on older adults.”

Phillip G. Clark, ScD, Professor and Director, Program in Gerontology
University of Rhode Island

From Herb Weiss: A Personal Reflection

As Weiss reflects on his decades of work, he acknowledges the unique role his writing has played in shaping public discourse on aging. Through his columns, he strives to offer practical advice and provoke action on aging issues, all while highlighting the personal and emotional aspects of growing older. His hope is that this archive will inspire and inform future generations, just as his columns have done for decades.

In conclusion, The Herbert P. Weiss Papers is a treasure trove of information that not only showcases a significant body of work in aging journalism but also offers a lasting resource for anyone seeking to understand the complexities of aging, caregiving, and public policy. The archive’s permanent home at RIC’s James P. Adams Library ensures that Weiss’s contributions will continue to inspire and educate students, researchers, and professionals long into the future. By preserving his comprehensive documentation of the aging landscape, RIC will allow future generations to benefit from his detailed insights and policy analysis. For anyone involved in aging-related work—whether in research, policy, or direct services—the collection will serve as a valuable touchstone for understanding the evolution of aging issues over the past four and a half decades.

This collection is an invaluable asset to the community, providing essential insights and supporting the work of those involved in aging services.

Publisher’s Note: Herb Weiss’s column on aging issues is featured every Monday in RINewsToday. We are thrilled to have Herb’s expertise with us, almost from the very beginning of our publication, 10 years ago. As we come to understand issues around aging in one of the state’s with the oldest populations, institutional history helps us know where we’ve been, what has been tried, what’s worked, what hasn’t – something all too often missing in today’s dynamic of politics and public policy.

We are grateful for Herb’s contributions to RINewsToday’s readers – and Congratulations to Herb on his collection being established at Rhode Island College! – Nancy Thomas, founder and publisher, RINewsToday.

– https://www.riamco.org/render?eadid=US-RPRC-mss-0149

Chair Casey leaves mark on national aging policy. Leadership changes in DC and RI 

Published in RINewsToday on December 16, 2024

Last week, U.S. Sen. Bob Casey (D-PA), Chairman of the U.S. Senate Special Committee on Aging, held his last hearing, entitled “Empowering People with Disabilities to Live, Work, Learn, and Thrive, in SD 106.  This hearing was his swan song as Chairman of the Senate Aging Committee. 

The 3-term Democratic Senator, first elected in 2006, lost his reelection bid for a fourth term to Republican Dave McCormick, a West Point graduate, combat veteran and Bronze star recipient, and a national security expert, and former hedge fund manager.  A recount of votes confirmed that Casey lost by 16,000 votes (3,398,628 to 3,382,423) and he conceded the race on Nov. 21st.

With the dust settling after the Nov. 5th presidential election, Republicans will take control of the legislative agenda of the upper chamber, with a 53-47 majority, and control the house.

According to a Senate Aging Committee, during the upcoming 119th Congress Sen. Tim Scott (R-SC), a former Ranking Member, is expected to replace Casey as chairman on Jan. 3rd, 2025. Former Ranking Member Mike Braun (R-Ind) will leave the Senate after becoming Governor-elect of Indiana. 

An advocate for America’s seniors

During the 118th, the Senate Aging Committee under the helm of Casey held 18 full hearings, five field hearings, and one joint full hearing.  His final hearing, lasting one hour and 46 minutes, highlighted his long record as a champion for people with disabilities, and laid out his vision for how Congress must continue to work to empower them. 

“From the beginning of my time in the Senate, I heard a constant refrain from disability advocates that their needs were not being met—they faced barriers to save for their future, they were being paid well below a living wage, and they could not afford or access the care they needed,” says Casey in his opening statement. “Those refrains, including from some of the people we heard from at today’s hearing, are what inspired me to make people with disabilities a focus of my Senate career and time as Aging Committee Chairman,” he said.

During his 18 years in the Senate, Casey has been one of the foremost champions in Washington for people with disabilities. He created the Stephen Beck Jr. Achieving a Better Life Experience Act (ABLE) program, which has helped hundreds of thousands of families save for long-term care for their disabled loved ones with a tax-advantage savings account. The Associated Press hailed this legislation as “the most important new law for [those with disabilities] in 25 years.  He also made federal websites more accessible for people with disabilities, and propelled the fight for access to home care to the forefront of the national conversation. 

In addition, the Pennsylvania Senator led efforts to improve care in nursing homes by expanding and strengthening oversight over poor-performing facilities while ensuring that nursing homes and long-term care facilities have the resources they need to provide high-quality care to residents. His work has led the Centers for Medicare and Medicaid Services (CMS) to publicly release information about nursing facilities with a documented pattern of poor care, ensuring older adults and their families have the information they 

At the Dec. 12th hearing, Chairman Casey also released a series of issue briefs documenting his record chairing the Aging Committee on making government technology accessible, expanding access to home care, improving nursing homes, lowering prescription drug costs, and ensuring economic security for older adults:

“We have made a lot of progress, from creating the ABLE program to making government technology more accessible,” Casey continued. “But as we heard today, there is still a lot more to do—from expanding access to home care to finally phasing out the subminimum wage,” he added.

Kudos to Casey’s advocacy for America’s disabled Seniors

At the hearing, witnesses from Pennsylvania and national organizations testified about the impact of Casey’s work impacting the disability community in the Commonwealth and around the country.

I want to thank Senator Casey for your leadership. None of the successes I outlined would have been possible without your steadfast championship, advocacy and partnership. It is daunting to think about facing the challenges ahead, particularly the threats to Medicaid, without you at the helm, but we have been emboldened to reimagine what is possible because of your leadership,” says Witness Ai-Jen Poo, President of the National Domestic Workers Alliance and Executive Director of Caring Across Generations.

Witness Neil McDevitt, Mayor of North Wales, Pennsylvania, noted: “Senator Casey, you have been a steadfast ally of North Wales Borough, the Commonwealth of Pennsylvania, and millions of disabled and Deaf Americans. We owe you a debt that can never be repaid.”

“Things are actually changing. We are not yet where we need to be when it comes to disability access and acceptance, but we are getting there. It brings me great joy when I hear of disabled people in my community getting good paying jobs and not being relegated to sheltered workshops for less than minimum wage,” adds Erin Willman, CEO of White Cane Coffee in Warren, Pennsylvania. 

Witness Lydia Brown, Director of Policy, National Disability Institute, told the attending Senators:“Ten years ago, Sen. Casey’s leadership in introducing and passing The ABLE Act changed the game. People whose disabilities began before age 26 can now access a savings vehicle that can conserve up to $100,000 total without their savings counting against them in determining eligibility for SSI and Medicaid. Money in an ABLE account can be used for a wide range of qualified disability expenses, including otherwise unaffordable assistive technology and health care, as well as educational and employment related costs. For many disabled people on Medicaid, an ABLE account is also their only available means to save for retirement.”

A fond farewell 

“Bob Casey served honorably as the chair of the Senate Special Committee on Aging.  He held a wide range of hearings intended to develop a record that could be used to help shape future legislation,” says Max Richtman, President & CEO, National Committee to Preserve Social Security and Medicare who also is a  former staff director of the Senate Special Committee on Aging. Casey had held numerous hearings on issues facing older adults that helped build support for components of the Older Americans Act reauthorization – which just passed the Senate and may be included in the end-of-year package, noted Richtman. 

“Senator Casey also held hearings on disabled older adults, including one with former Social Security Commissioner Martin O’Malley to discuss what the Social Security Administration (SSA) is doing to make the application process easier,” added Richtman, noting that other hearings were held on scammers preying on the elderly – designed to help older adults and their families know what to look for — and protect against.  

“We can only hope that when Republicans assume control of the Senate in January, this committee will continue the serious work of looking after the interests of seniors, who have contributed so much to our society and yet are among our most vulnerable citizens,” says Richtman.

“Leadership Council of Aging Organizations (LCAO) thanks Senator Bob Casey for his leadership and dedication to improving the lives of older Americans through his work on the Senate Aging Committee,” said Debra Whitman, LCAO Chair. “We look forward to collaborating with incoming Chairman Rick Scott to continue addressing the needs and enhancing the well-being of our nation’s growing aging population,” she says.

“As Chairman of the Senate Special Committee on Aging, Senator Bob Casey was a critical champion for seniors. He fought to strengthen Social Security and Medicare, stop elder abuse, and improve conditions in nursing homes. Casey will be greatly missed in the Senate by everyone who cares about senior issues. We urge the next chairman of this invaluable committee to continue his legacy.” Says Nancy Altman, President of Social Security Works.

“It is wonderful to have a Senate Aging Committee and Senator Casey’s terrific advocacy but inexcusable for the House not to restore its counterpart, which Chairman Claude Pepper proved is indispensable,” said Robert Weiner, former Chief of Staff of the House Select Committee on Aging and later a senior White House spokesman.

Announcing job transitions and retirement – in Rhode Island

Two well-known aging advocates have announced their departures.

The Alliance for Better Long-Term Care announces the retirement of Kathleen “Kathy” Heren. She dedicated 26 years to serving Rhode Island’s seniors.  For the past 15 years, Heren has served as the Rhode Island State Long Term Care Ombudsman, tirelessly advocating for the rights and well-being of residents in long-term care facilities across the state. She is known for her “fierce dedication, wisdom, and compassion have made her an unwavering champion for those in need.”

After serving as Executive Director of LeadingAgeRI for over 16 years, James P. Nyberg is leaving the nonprofit to become Senior Advisor at the Boston-based Public Consulting Group.   He will provide his expertise to the company on home and community-based services.

During his tenure, he significantly advanced aging services by advocating for quality, affordable care and fostering partnerships with state and national stakeholders. His leadership has driven innovative initiatives addressing the needs of older Rhode Islanders while supporting workforce development and professional growth among member organizations.

Nyberg ably served as Chair of the state’s Advisory Commission on Aging for over six years.

Expanding Medicare on political agendas: In-home Health Care critically important

Published in RINewsToday on October 14, 2024

This week Vice President Kamala Harris unveiled a “Medicare at Home” proposal on ABC’s The View that would expands Medicare to assist older Americans to age in place at home by covering some of the cost of in-home care. The proposal targets adults who are part of the ‘sandwich generation,’ estimated to be 105 million Americans who are raising children along with taking care of their elderly parents.

The Medicare benefit to assist caregivers would propose to have cost-saving benefits for the federal government by allowing seniors to stay at home rather than being sent to costly nursing homes. It would also reduce hospitalizations, too.

Harris told about her personal experience as a caregiver, providing care to her mother, Shyamala Gopalan, a biomedical scientist, who died of cancer in 2009 at the age of 70. Caring for a parent can translate into “trying to cook what they want to eat, what they can eat,” she said. “It’s even trying to think of something funny to make them laugh or smile,” she added.

“We’re talking about declining skills” of older people, “but their dignity, their pride, has not declined,” Harris added.

“There are so many people in our country who are right in the middle. They’re taking care of their kids and they’re taking care of their aging parents, and it’s just almost impossible to do it all, especially if they work,” Harris said.  “…we’re finding that so many are having to leave their job, which means losing a source of income, not to mention the emotional stress,” she said, explaining why there is a need to expand Medicare to cover more in-home care services.

Harris’ Issues on her website – Protect and Strengthen Social Security and Medicare

“Vice President Harris will protect Social Security and Medicare against relentless attacks from Donald Trump and his extreme allies. She will strengthen Social Security and Medicare for the long haul by making millionaires and billionaires pay their fair share in taxes. She will always fight to ensure that Americans can count on getting the benefits they earned”.

The Costs

The Brookings Institution recently estimated that a “very conservatively designed” program would cost $40 billion a year. They noted that “controlling demand in such a program is nearly impossible – for reference, Medicaid, which covers far fewer adults than Medicare, actually spent $207 billion on long-term services and supports in 2021”.

In addition, “Home health is such a hotbed of fraud,” said Theo Merkel, a health policy expert at the Paragon Health Institute and the Manhattan Institute. “If the proposal is adopted, taxpayers could end up paying for everyone who stays at home with their Medicare-eligible family member as a government paid Service Employees International Union member.”

The Cato Institute, a libertarian think tank headquartered in Washington, D.C., charges that Harris’ new Medicare home care benefit is “uncompassionate, fiscally reckless, and a corrupt attempt to buy the votes of Medicare enrollees and their middle-aged children in an election year.”

Examining the Differences…

According to Matthew E. Shepard, Communications Director for the Center for Medicare Advocacy, the new Harris proposal is quite different from the existing home care benefits that Medicare’s 65.5 million enrollees receive. ”The new proposal focuses on Long Term Services and Supports, something of a term of art in the health care world. While details are scarce, it would provide, we believe, ongoing affordable home care aide service without a need for skilled care or that strict definition of homebound,” said Shepard.  The proposal’s funding would come from increased savings in Medicare Part D as the list of negotiable drugs grows  [a historic provision of the Inflation Reduction Act which is lowering the cost of senior’s medication]  savings currently estimated at $6 billion in 2026, and which will only grow as more drugs are added, he noted.

“We are going to save Medicare that money, because we’re not going to be paying these high prices [for drugs] and that those resources are then put to use in a way that helps a family,” Harris said.

The Trump proposal

The Trump/Vance campaign quickly issued a statement taking credit for already making a commitment to America’s seniors receiving at-home care, saying that Harris’ Medicare expansion policy was just following his lead. Former President Trump released his home care platform last summer, according to an Oct. 8th statement. “Specifically, President Trump will prioritize home care benefits by shifting resources back to at-home senior care, overturning disincentives that lead to care worker shortages, and supporting paid family caregivers through tax credits and reduced red tape,” noted the statement.

One of Trump’s 20 point platforms is “Fight for and protect social security and Medicare with no cuts, including no changes to the retirement age”. In the accompanying 16-page document, which, supports Medicare it says, “President Trump has made absolutely clear that he will not cut one penny from Medicare or Social Security. American citizens work hard their whole lives, contributing to Social Security and Medicare. These programs are promises to our Seniors, ensuring they can live their golden years with dignity. Republicans will protect these vital programs and ensure Economic Stability. We will work with our great Seniors, in order to allow them to be active and healthy. We commit to safeguarding the future for our Seniors and all American families. We will strengthen Medicare. Republicans will protect Medicare’s finances from being financially crushed by the Democrat plan to add tens of millions of new illegal immigrants to the rolls of Medicare. We vow to strengthen Medicare for future generations.”

 Dementia caregiving already set to quadruple in 2025

AARP notes on their website that one expansion of caregiver coverage, “a program for dementia patients and their caregivers that launched this year will quadruple in 2025, serving more of the country. The program, called Guiding an Improved Dementia Experience (GUIDE), provides a 24/7 support line, a care navigator to find medical services and community-based assistance, caregiver training and up to $2,500 a year for at-home, overnight or adult day care respite services. Patients and their caregivers typically won’t have copayments”.

Praise for expanding Medicare benefits

“We have long championed the expansion of federal support for long-term care,“ says Max Richtman, President and CEO, National Committee to Preserve Social Security and Medicare (NCPSSM), noting that Harris’ proposal gives that cause an enormous boost.

“Expanded Medicare coverage for home health care also would provide relief to millions of ‘sandwich generation’ Americans, who are struggling to provide care for their elderly relatives while also raising children.  Those ‘sandwich generation’ members are not Medicare beneficiaries, but would most definitely benefit from Harris’ long-term care plan,” says Richtman in an Oct. 8 statement.

According to Richtman, the plan also would add hearing and vision coverage to traditional Medicare. “Proper hearing and vision care are essential to healthy aging — but too many beneficiaries forgo it due to cost and lack of coverage. It is long past time that those coverages be added,” he added.  

Co-Director David Lipschutz says that the Center for Medicare Advocacy (CMA) strongly supports the proposed enhancement of Medicare coverage for on-going home care. “Access to services and supports in the home for those who are unable to independently perform activities of daily living would provide immeasurable help to millions of beneficiaries and their families and is an important step forward for the Medicare program,” says CMA’s Lipschutz. To maximize access to care for people who need it, expansion of home care coverage in Medicare should be combined with enforcing the benefit that exists now, he suggests. 

“Recognizing that most older persons and those with disabilities prefer to remain at home when they need help with daily living tasks, the Senior Agenda Coalition has worked for years to increase access to home and community-based care at the state level as these services are one of the biggest gaps in Medicare,” says Maureen Maigret, Policy Advisor for Senior Agenda Coalition of RI.  To include them in Medicare will lift a financial burden on both recipients and family caregivers as home care costing at least $35/hour that  can be out of reach for far too many who need these services to stay at home,” she says.

“We have not seen many details about the plan, but it would be important to make sure that Medicare provider reimbursement levels are sufficient to allow direct care staff to earn livable wages in order to have workforce sufficient to meet the demand,” note Maigret. “This new Medicare home care benefit should also be a boon for states as it can prevent persons from spending down their resources to a level where they become eligible for state Medicaid and need costly nursing home care,” she says.  

In a new paper for O’Neill Institute for Georgetown Law, McCourt Professor Judith Feder and Nicole Jorwic explore how adding a home care benefit can help beneficiaries and family caregivers. “While this new benefit would not reach the full population in need of long-term care, paired with investments in Medicaid, it’s a good strong start-and given our nation’s resources, clearly within our means,” say the authors. 

“A support system that relies on unpaid family members and underpaid workers is simply not sustainable for the future,” warn the authors.

“Our failure to make Medicare “whole” by addressing Long Term Services and Support needs is not about a shortage of resources, it’s about a shortage of political will. It’s time the nation stepped up,” they say.

Pay attention to Caregiver voters

AARP is nonpartisan and does not take a position on campaign proposals, though AARP has previously said financial relief is needed to help individuals age in place at home and support family caregivers, says Sarah Lovenheim, AARP’s vice president, external relations.

According to AARP’s “She’s the Difference” survey released last month, 96% of woman aged 50 and over say they are highly motivated to vote in the upcoming elections, making them one of the most driven and key voting groups.

“Any political candidate would be wise to pay attention to the concerns and needs of caregivers today. Voters over age 50, who disproportionately make up America’s 48 million plus caregivers, could make or break elections up and down the ballots,” says Nancy LeaMond, AARP’s executive vice president and chief advocacy and engagement officer. “From recent battleground polls, we know that roughly one-third of swing voters over age 50 identify as family caregivers,” she notes.

“Supporting family caregivers is an urgent need – not only for families struggling to get by but for our country’s future,” warns LeaMond.

Regardless of who wins the election, a Medicare at home proposal cannot happen without Congressional support. As the presidential campaign winds down, older voters must make it extremely clear to lawmakers seeking their vote how they feel about expanding Medicare benefits.