Congressman Magaziner takes baton on bringing back House Aging Committee

Published in RINewsToday on March 4, 2024

Over 30 years ago, the US House Democratic leadership’s belt-tightening efforts to save $1.5 million resulted in the termination of the House Permanent Select Committee on Aging. Congressman Seth Magaziner (RI-2) has picked up the baton from former Congressman David Cicilline who sought to bring back the House Aging Committee during the 114th-117th Congresses.

At press time, Magaziner’s H. Res. 1029, introduced Feb. 23, 2024, has been referred to the House Committee on Rules for mark-up, and if passed, will be considered by the full House.

“Older Americans deserve a seat at the table, particularly when it comes to important issues such as protecting Social Security and Medicare,” said Magaziner in a statement announcing his legislative efforts to pass H. Res. 1029. “I am proud to introduce legislation to re-establish a House Permanent Select Committee on Aging, which will advocate for America’s aging population and ensure seniors’ voices are heard when it comes to federal policymaking,” he says.

Every day 12,000 Americans turn 60. By 2030, nearly 75 million people in the U.S. — or 20% of the country — will be age 65 or older. As our country’s aging population grows, the need for support and services provided under programs like Social Security, SSI, Medicare, Medicaid and the Older Americans Act increases.

“Ensuring that seniors can thrive in our communities should always be a priority for the House of Representatives,” said Congressman Gabe Amo (RI-1)  one of 15 original cosponsors of H. Res. 1029, who initially called for bringing back the House Aging Committee during his campaign to win former Cicillini’s vacant seat.

“That is why it is essential that there is a dedicated committee for lawmakers to focus on the issues that impact seniors’ quality of life. From preserving and expanding Social Security and Medicare to reducing the cost of prescription drugs to keeping seniors in safe and stable housing, there are so many issues to address under the leadership of a Special Committee on Aging. Seniors in Rhode Island and across the country deserve nothing less,” says Amo.

The House can readily create an ad hoc (temporary) select committee by approving a simple resolution that contains language establishing the committee—giving a purpose, defining membership, and detailing other aspects, says EveryCRSReport. Salaries and expenses of standing committees, special and select, are authorized through the Legislative Branch Appropriations bill.

Putting a spotlight on aging issues

H. Res. 1029 simply amends the Rules of the House to establishes a Permanent House Select Committee on Aging, noting that this panel shall not have legislative jurisdiction, but it’s authorized to conduct a continuing comprehensive study and review of the aging issues, such as income maintenance, poverty, housing, health (including medical research), welfare, employment, education, recreation, and long-term care.

The 213-word resolution would have authorized the House Aging Committee to study the use of all practicable means and methods of encouraging the development of public and private programs and policies which will assist seniors in taking a full part in national life and which will encourage the utilization of the knowledge, skills, special aptitudes, and abilities of seniors to contribute to a better quality of life for all Americans.

Finally, the House Resolution would also allow the House Aging Committee to develop policies that would encourage the coordination of both governmental and private programs designed to deal with problems of aging and to review any recommendations made by the President or by the White House Conference on aging in relation to programs or policies affecting seniors.’

Aging organizations, advocates call for passage of H. Res. 1029

According to Max Richtman, President and CEO of the Washington D.C.-based National Committee to Preserve Social Security and Medicare (NCPSSM), jurisdiction over many programs affecting seniors is shared by multiple standing committees, which can make it difficult for them to fully explore solutions that do not fit squarely into a single committee’s expertise. Such issues include a variety of intergenerational concerns that merit attention, such as the growing demands on family caregivers and our intractable retirement security crisis. “An inter-disciplinary approach to these issues can best be advanced by a Select Committee with broad jurisdiction,” he says. 

“Re-establishing a Select Committee on Aging in the House would also complement the strong bipartisan work of its counterpart in the Senate,” says Richtman. “In recent years, the Senate Special Committee on Aging has effectively promoted member understanding on a range of issues,” he says, noting that these issues include concerns of grandparents raising grandchildren, elder abuse and fraud, the effects of the COVID-19 pandemic on older Americans and their families, the importance of financial literacy in planning for retirement, and the costs associated with isolation and loneliness. 

“Historically, the House Select Committee on Aging served as a unique venue that allowed open, bipartisan debate from various ideological and philosophical perspectives to promote consensus that, in turn, helped facilitate the critical work of the standing committees. We believe that issues affecting seniors would be best advanced by the re-establishment of such a Committee in the House,” adds Richtman. 

NCPSSM will endorse H. Res. 1029 and plans to promote it to House lawmakers. If the Democrats take control of the House next November, the organization will approach the Democratic House Speaker when he is crafting rules to operate and request that the rules include reestablishing the HSCoA. 

Nancy Altman, President of the Washington, DC-based Social Security Works, strongly supports Magaziner’ efforts to bring back the HSCoA. “Social Security is a critical issue for older Americans. “There’s so much misinformation out there about Social Security, and as a result many people aren’t confident they’ll get the benefits they’ve earned. More accurate information coming from Congress would help,” she says.

According to Altman, the Social Security Subcommittee of the House Ways and Means Committee does incredibly important work, but Ways and Means has such a broad jurisdiction that Social Security and other aging related issues don’t always get the attention they deserve. “A House Aging Committee could shine an important spotlight, informing the public, the media, and fellow members,” she notes.

Altman offers suggestions to the Rhode Island Congressman to increase the chances for passage of H. Res. 1029. “If he doesn’t already have Republican co-sponsors, he should try to get some since they’re more likely to convince Speaker Mike Johnson to create the committee,” she says. 

In addition to working for passage of H. Res. 1029, this Congress, Altman recommends that Magaziner start working now to line up Democrats to push for the reestablishing the House Select Committee on Aging at the beginning of the next Congress, where there is likely to be Democratic control. 

Robert S. Weiner, now President, Robert Weiner Associates News, was House Aging Committee Chief of Staff under Chairman Claude Pepper, from 1976 to 1980, when the Florida lawmaker headed the HSCoA, as a force to be reckoned with in his advocacy of America’s seniors.

“I saw first-hand the power of that committee when we met with Presideent Jimmy Carter and he endorsed the HSCoA’s efforts to abolish mandatory retirement,” says Weiner, noting that the bill passed 359-2 in the House and 89-10 in the Senate, and signed into law by the President.

According to Weiner, the Carter Center recently invited him to pen an article this fall, for their “last print edition of the “Carter-Mondale Newsletter,” entitled “Carter, Pepper Strike Blow Against Age Discrimination.”

“We also held high-powered hearings on nursing home abuses, cancer insurance fraud, the need for expanded home health care (which ultimately became law), elder abuse, and pensions,” adds Weiner. As to Social Security, the Pepper-O’Neill-Reagan deal guaranteed the solvency of Social Security through 2034.

As to legislative strategy, Weiner suggests that Magaziner get 100 plus sponsors – Democrats and Republicans – by bringing a copy of the resolution to the House floor and getting cosponsoring significantly efficiently and quickly by first-hand recruiting action. He might even ask to address the House for a one-minute speech about the importance of passing H. Res. 1029.

“Both parties are nuts if they don’t help seniors by having a dedicated House Select Committee on Aging,” asserts Weiner.

“This is a significant opportunity for the Congress to take a comprehensive view as to how we as a country wish to better support the aging of America.  Older adults suffered the most during the COVID pandemic — more than 90% of the deaths were individuals over 60.  Many older adults are still suffering from loneliness and social isolation.  Such a bipartisan effort led by Congressmen Magaziner and Amo would be historic,” stated Vincent Marzullo, who served 31 years as a career federal civil rights and social justice administrator at the National Service Agency, and a well-known aging advocate.  He serves on Magaziner’s he RI-02 Seniors Advisory Committee.

The clock is ticking. With the upcoming presidential elections taking place in about 246 days, Magaziner must quickly work to get House Republicans cosponsors to get House Speaker Mike Johnson to allow a vote in the House Rules Committee. Without support of his caucus, he is likely to say no.

Magaziner must convince Congressmen Brian Fitzpatrick (R-PA) and Josh Gottheimer (D-NJ), co-chairs of the “Problem Solvers Caucus,” consisting of essentially an equal number of 63 Republican and Democratic lawmakers, to push for passage of H. Res. 1029.  This may be the only way to pass a resolution to reestablish HSCoA in a Republican-controlled House.

Speaker Pelosi: Bring Larson’s Social Security proposal to a floor vote 

Published in RINewsToday on September 12, 2022

On the 87th Anniversary of Social Security, the Washington, DC based Social Security Works (SSW) hosted a “Social Security Town Hall Meeting” to get the word out about the importance of passing the Social Security 2100: A Sacred Trust. 

The virtual town hall meeting brought together House lawmakers, aging advocates and beneficiaries to send a strong message to House Democratic leadership to support the markup of Congressman John Larson’s (D-CT) social security proposal to expand and strengthen Social Security and send it to the House floor for a vote.

The town hall participants, including host Nancy Altman, President of Social Security Works, Larson, chair of the Social Security Subcommittee of the House Ways and Means, Congresswoman Pramila Jayapal, Chair of the Congressional Progressive Caucus, Peter Morley, Patient Advocate and co-founder of Health Care Awareness month, and John Blair, who chairs the Community Advisory Board, SPACE in Action, strongly supported quick action and passage of the legislative proposal. Additionally, several members of Congress also pre-recorded videos which were played at the end of the town hall meeting.

Town hall participants used the Aug. 15th virtual town meeting to highlight polls that show Democratic and Republican voters strongly support Democratic proposals to expand Social Security, and to call on House leader Nancy Pelosi to schedule a vote on Larson’s legislative proposal prior to the upcoming mid-term elections.  

Throughout the hour-long internet discussion, they also condemned the recent attacks on Social Security from Senate Republicans. Specifically, Sen Ron Johnson has called for Social Security spending to be considered “discretionary spending” and subject to routine budget negotiations, even though the program is self-funded by workers. Sen. Rick Scott (R-FL), chairing the GOP’s committee to re-take the Senate, also has proposed a plan where Social Security would have to be renewed by Congress every five years. And finally, Sen. Mitt Romney (R-Utah) is pushing for passage of the TRUST Act, which could fast-track legislation to cut Social Security benefits. 

“Social Security has provided our nation with the most comprehensive retirement, disability, and survivors benefits for 87 years,” said Larson. “Democrats are fighting to expand and protect it, yet my Republican colleagues have plans to cut benefits and even end the program as a whole,” he noted.

Larson noted that Congress had not acted in 50 years to enhance benefits. “The American people have made clear they want to protect the program they pay into with each and every paycheck so they can retire with dignity,” he said. “With the COVID-19 pandemic still impacting our country and Republicans revealing their plans to end benefits, there is a fierce urgency to protect and enhance Social Security now. Alongside commemorating 87 years of this program, Congress must pass Social Security 2100: A Sacred Trust to make much needed benefit improvements and ensure this program can serve our nation for years to come. Congress must vote!” he said. 

Congresswomen Rep. Pramila Jayapal (D-WA), chair of the Congressional Caucus Progressive, representing 100 lawmakers made an urgent call for the protection and expansion of Social Security. “It’s not an entitlement program,” she said, stressing that it is an earned benefit.

“The work we have to do to make sure that this earned benefit pays out the dividends that keep up with the requirement and needs of our Social Security benefit is what H. R. 2100 is all about,” she said, pushing Larson’s Social Security legislative proposal.  

Like Larson, Jayapal calls Social Security the most successful antipoverty program in this country.  “It has lifted more than 20 million Americans out of poverty, including one million children and more 16 million older Americans.  It provides a lifeline to over 16 disabled persons.,” she says.

Julian Blair, Chair of the Advisory Board, SPACEs in Action, called for Congress to get behind expanding and protecting Social Security. “Expanding Social Security …will allow us seniors, and many other people who depend on Social Security, to live with a little dignity—a right all of us have earned and should expect to receive from our country,” she said.

 Peter Morley, Patient Advocate & co-founder of Health Care Awareness Month, who is permanently disabled,” urged that Congress overhaul the and expedite the process for patients applying to SSDI and SSI. “They should not have to wait for years. It’s a tragedy and a shame on our country,” he said.

Urgency to Act Now

Four days before SSW’s virtual town meeting, Max Richtman, President and CEO of the National Committee to Preserve Social Security and Medicare (NCPSSM) gave his thoughts as to the need to expand and strengthen Social Security in an opinion piece, “Let’s Honor Social Security’s 87th Anniversary by Strengthening and Expanding it,” published on the digital site, The Hill.

When President Franklin D. Roosevelt signed the Social Security Act of 1935 into law 87 years ago, he didn’t “intend for it to remain frozen in place” but would need to be expanded with the nation’s changing demographics,” says NCPSSM’s Richtman.

“In fact, during the first 40 years of Social Security, Congress expanded the program no less than 15 times – mostly to broaden coverage and increase benefits.  In 1950, Social Security was expanded to cover domestic and agricultural workers.

In 1956, Congress added monthly disability benefits, which is why millions of workers with disabilities collect Social Security today. The 1972 amendments provided annual cost-of-living adjustments  (COLAs) to help beneficiaries keep up with inflation,” states Richtman. 

“Sadly, benefits have not been significantly improved since then. Instead, lawmakers have prioritized keeping the program’s trust fund solvent amidst waves of retiring baby boomers. In 1983, Congress increased the payroll tax and raised the retirement age gradually from 65 to 67, which was, in effect, a benefit cut. It was ‘hard medicine’ that affects retirees four decades later. At the time, Congress had little choice because it waited so long to act that Social Security was just months away from being unable to pay full benefits,” added Richtman in his opinion piece.

Like Larson and Jayapal, Richtman also called for strengthening Social Security and in his opinion, piece, urging passage of the Social Security 2100 Act, that expands Social Security benefits and extends the life of the trust fund. At press time, this legislative proposal has 208 cosponsors in the House. The legislative proposal has not one Republican supporting it and some moderate Democrats still haven’t endorsed it.

Richtman also expressed strong concern about the Republican proposals to cut and privatize Social Security if they take over leadership of the House and Senate Chambers. “When Congress returns from summer recess, Democrats have a limited window to enact the Social Security 2100 Act before the midterm elections and subsequent lame duck session, observes Richtman.

According to Richtman, under Larson’s legislative proposal, all beneficiaries would receive a 2 percent increase in boost in benefits — with special increases for widows and widowers, lower-income workers, and retirees over 85 years of age. Future COLAs would be based on a new inflation formula – the Consumer Price Index for the Elderly –  that more accurately reflects seniors’ spending patterns. 

Richtman says that Larson’s Social Security proposal would increase the flow of tax revenues into Social Security. Currently, he noted that high earners do not contribute to Social Security on wages exceeding $147,000. Under this proposal, wages above $400,000 also would be subject to payroll taxes. 

Overwhelming support for the Social Security’s proposal for passage

With the midterm elections just 57 days away, Congress must move quickly to bring Larson’s Social Security 2200 Act to the House floor for a vote.  Even with President Biden and 208 Democratic House lawmakers calling for a House vote on Social Security 2100 Act, it has been reported that Wendell Primus, House Leader Nancy Pelosi’s senior staffer on domestic policy issues, has advised his boss to pull the Social Security proposal from markup, reportedly over cost concerns, effectively derailing Larson’s efforts to get a House vote on his legislative proposal.

Almost 40 aging groups have joined 208 House lawmakers in advocating for expanding and protecting Social Security benefits received by over 70 million Americans.  Primus must rethink his position opposing House consideration.  If the GOP retains control of the House and Senate chambers, Democrats will not be able for years to improve the financial health and expand Social Security benefits. The GOP will control the House and Senate’s legislative agenda. Congressional Democrats and aging advocacy groups would be put in the defensive position to keep the program that we know so well in existence.

For details about the Social Security 2100 Act, go to https://larson.house.gov/sites/evo-subsites/larson.house.gov/files/Social%20Security%202100%20-%20Fact%20Sheet%20117th.pdf

To watch the livestream event, “Social Security Town Hall Meeting,” go to https://www.youtube.com/watch?v=xycabwQSurI

_____

Controversial move by CMS limits coverage for new Alzheimer’s drug, Aduhelm 

Published in RINewsToday on April 25, 2022

Earlier this month, amid the pleas of the Alzheimer’s Association, the National Committee to Protect Social Security and Medicare, and other aging advocacy groups, the Centers for Medicare & Medicaid Services (CMS) made its final decision to limit their Medicare coverage of the controversial Alzheimer’s drug, ADUHELM® , for only those Medicare recipients participating in clinical studies overseen by the National Institutes of Health (NIH) or in other approved clinical trials.

When releasing its decision on April 7, CMS noted from the onset, the federal agency “ran a transparent, evidence-based process that incorporated more than 10,000 stakeholder comments and more than 250 peer-reviewed documents into the determination” to make its decision.

Calls for More Rigorous Studies

According to CMS, over 6 million older Americans are believed to have Alzheimer’s, and this prevalence is expected to rise to 14 million by 2060, barring effective interventions. CMS stated that effective treatments are needed, and because of the early, but promising, evidence and the immense burden of this devastating disease on the Medicare population, the agency is finalizing Medicare coverage, calling for rigorous studies approved by the U.S. Federal Drug Administration (FDA) and NIH to help answer whether this class of drugs improves health outcomes for patients.

“Science, evidence, and stakeholder input led our team of career civil servants and clinicians through this national coverage determination process. There is potential for promise with this treatment; however, there is not currently enough evidence of demonstrating improving health outcomes to say that it is reasonable and necessary for people with Medicare, which is key consideration for CMS when making national coverage determination, said Dr. Lee Fleisher, CMS Chief Medical Officer and Director of the Center for Clinical Standards and Quality, in a statement announcing CMS’s regulatory payment decision.

“In arriving at this final decision, we looked at the unique circumstances around this class of treatments and made a decision that weighed the potential for patient benefit against the significance of serious unknown factors that could lead to harm,” added Fleisher. “If a drug in this class shows evidence of clinical benefit through the traditional FDA approval process, then CMS will provide broad access and ensure the results from the rigorous trials are generalizable for people with Medicare participating in a CMS-approved study, such as a registry,” she said, noting that this decision was made to provide CMS flexibility to respond quickly to providing coverage for any new drugs in this class showing a clinical benefit. 

Biogen, a biotechnology company that manufacturers ADUHELM®m , was quick to give its opinion about CMS’s final decision about coverage of this drug. The Cambridge, Massachusetts based company charged that “this unprecedented decision effectively denies all Medicare beneficiaries access to ADUHELM®m , the first and only FDA approved therapy in a new class of Alzheimer’s drugs. It may also limit coverage for any future approved treatment in the class. These coverage restrictions, including the distinction between accelerated approval and traditional approval, have never been applied to FDA-approved medicines for other disease areas.”

When additional data from this new class of treatments become available, Biogen urged CMS to reconsider its final decision for all FDA-approved amyloid-beta targeting therapies. The company says that it is carefully considering its options and will provide updates as the company further evaluates the business impact of this decision.

Creating Unnecessary Barriers to Care 

Calling the CMS decision wrong, the Chicago-based Alzheimer’s Association expressed deep disappointment, charging that it has essentially ignored the needs of people living with Alzheimer’s disease. “CMS has created unnecessary barriers for individuals with Alzheimer’s disease. Patients with Alzheimer’s, a fatal disease, should have FDA approved treatments covered by Medicare just as those facing other diseases do,” said Harry Johns, Alzheimer’s Association chief executive officer. 

Notably, CMS has said in its decision the only way for patients to access the first approved FDA treatment targeting amyloid in those living with Alzheimer’s is to enroll in a clinical trial. While we note CMS has expanded where those clinical trials may take place, in reality this remains an unnecessary and never before imposed barrier to access an FDA-approved treatment, says Johns.

“People living with MCI, Alzheimer’s disease and other dementia deserve the same access to therapies given to those living with other conditions like cancer, heart disease and HIV/AIDS. They deserve the opportunity to assess if an FDA-approved treatment is right for them,” said Joanne Pike, Dr.P.H., Alzheimer’s Association president. “Drugs that treat people in the early stages of Alzheimer’s could mean more time for individuals to actively participate in daily life, have sustained independence and hold on to memories longer,” she said.

According to the Alzheimer’s Association, CMS has incorporated one of its recommendations into the final rule. “Importantly, CMS has decided to utilize a registry for future treatments granted full FDA approval. The Alzheimer’s Association registry will play an important role in collecting and analyzing real-world data. This registry will monitor and report clinical and safety endpoints for patients treated with FDA-approved AD therapies, including accompanying diagnostics, to track the long-term outcomes associated with these therapies in real-world settings. Similar successful registries in heart disease and cancer have enabled researchers, clinicians, health systems and payers to track the long-term performance of therapies using a large, real-world evidence dataset,” the advocacy group says. 

The Alzheimer’s Association also expressed strong concern about the immediate impact CMS’s decision will have on Alzheimer’s and dementia research and innovation. “The agency’s decision to essentially reject the Accelerated Approval Pathway for monoclonal antibodies targeting amyloid for the treatment of Alzheimer’s disease is broad overreach. Accelerated approval is a pathway created by Congress and utilized by FDA to allow for earlier approval of drugs that treat serious conditions, and that fill an unmet medical need. Alzheimer’s is a deadly disease with no survivors,” stated the advocacy group.

“The decision by CMS is a step backward for families facing Alzheimer’s disease,” said Maria C. Carrillo, Ph.D., Alzheimer’s Association chief science officer. “Years of increased research funding has led to more progress and innovation than ever before, but today’s decision may halt this progress as developers question if there is a pathway forward to coverage,” she said.

Calls for Reducing Cost of Medicare Part B Premiums

Max Richtman, President and CEO of the National Committee to Preserve Social Security and Medicare, calls on CMS to “swiftly reduce the hefty 2022 Medicare Part B premium increase ($21.60 per month), now that the agency has made its final decision to limit coverage of the controversial Alzheimer’s drug, ADUHELM®m, to patients in clinical trials.” 

“The spike in Medicare Part B premiums was partly based on the drug’s exorbitant cost (originally priced at $56,000 per year) and the potential expense of wider coverage,” says Richtman, noting that the agency is still “reviewing” Part B premiums, under previous direction from HHS Secretary Xavier Becerra. “Medicare beneficiaries struggling to pay their bills need relief from this year’s premium increase as soon as possible, warns Richtman. .

“The Aduhelm controversy highlights the urgent need for Medicare to be able to negotiate drug prices with Big Pharma. If the price of Aduhelm had been negotiated, it is unlikely that it would have impacted Medicare premiums so dramatically in the first place,”  adds Richtman, 

For a fact sheet on Medicare coverage policy for monoclonal antibodies directed against amyloid for the treatment of Alzheimer’s disease, visit https://www.cms.gov/newsroom/fact-sheets/medicare-coverage-policy-monoclonal-antibodies-directed-against-amyloid-treatment-alzheimers-disease.

To read the final NCD CED decision memorandum, visit https://www.cms.gov/medicare-coverage-database/view/ncacal-decision-memo.aspx?proposed=N&ncaid=305.