Tag Archives for Congress

Bipartisan efforts strengthens the Dementia public health infrastructure

Published in RINewsToday on December 2, 2024

In the waning days of the Biden administration, Congress has moved one step closer to assisting states to continue to effectively implement dementia interventions.  Following passage of H. R. 7218 on Sept. 17th, by voice vote on Nov. 21st, the U.S. Senate passed S. 3775, also without objection. At press time, the bipartisan legislation now heads to President Biden’s desk to be signed into law.

Once signed, the new law re-authorizes the Building Our Largest Dementia (BOLD) Infrastructure for Alzheimer’s Act (P.L.115-406) enacted in 2018, empowering public health departments across the country to implement effective dementia interventions in their communities.

In a March 2024 fact sheet, the Alzheimer’s Impact Movement (AIM) calls for Alzheimer’s and other dementias to be considered an urgent public health issue, noting that nearly 7 million seniors across the nation are currently living with Alzheimer’s.

While partisan bickering has reduced the number of bills passed during the 118th Congress, Democratic and Republican lawmakers seek solutions for containing the skyrocketing costs of care, finding a cure for debilitating brain disorders, and supporting caregivers. 

The nation spends more than $360 billion per year, including $231 billion in costs to Medicare and Medicaid. Barring any major breakthroughs to prevent, slow down, or cure Alzheimer’s, the number of Americans with Alzheimer’s is expected to double by 2060, costing the nation more than $1.1 trillion per year, says AIM’s Fact Sheet.

Congress continues funding of Dementia effective interventions

In the Senate, S. 3775 was spearheaded by Sens. Susan Collins (R-ME) Catherine Cortez Masto (D-NV), Tim Kaine (D-VA), and Shelley Moore Capito (R-WV), and cosponsored by Sens. Jack Reed and Sheldon Whitehouse.  It’s companion measure, H.R. 7218, was introduced in the House by Reps. Brett Guthrie (R-KY), Chairman of the Health Subcommittee of the House Energy & Commerce Committee, along with Chris Smith (R-NJ), Paul Tonko (D-NY), and Maxine Waters (D-CA).

With its enactment in 2018, P.L. 115-406 accelerated a multi-pronged public health approach to reduce risk, detect early symptoms, advance care, improve data, and ultimately change the trajectory of this devastating disease.

Headed by the Centers for Disease and Prevention (CDC), the reauthorization would authorize $33 million per year, in line with current appropriations, over the next five years to support:

1.  Alzheimer’s Disease and Related Dementias Public Health Centers of Excellence dedicated to promoting effective Alzheimer’s disease and caregiving interventions, as well as educating the public on Alzheimer’s disease, cognitive decline, and brain health. 

2.  Public Health Cooperative Agreements with the CDC that are awarded to State Health Departments to help them meet local needs in promoting brain health, reducing risk of cognitive decline, improving care for those with Alzheimer’s, and other key public health activities. 

3.  Data Grants to improve the analysis and timely reporting of data on Alzheimer’s, cognitive decline, caregiving, and health disparities at the state and national levels.

Since the original Bold Infrastructure for Alzheimer’s Act passed, the CDC has made 66 awards to 45 state, local and tribal public health departments to help them implement effective dementia interventions such as reducing risk, increasing early detection and diagnosis, and supporting the needs of caregivers.

“Alzheimer’s disease is one of the greatest and most under-recognized public health threats of our time. Nearly seven million Americans—including 29,600 Mainers—are living with the disease, and that number is soaring as our overall population grows older and lives longer,” said Maine Sen. Collins, a founder and Senate co-chair of the Congressional Task Force on Alzheimer’s Disease in a statement announcing the passage of the legislation.  

“The passage of this bipartisan legislation is a tremendous victory for families and communities nationwide. By reauthorizing the BOLD Infrastructure for Alzheimer’s Act, we are reaffirming our commitments to providing the tools needed to fight this devastating disease, and to not let Alzheimer’s be one of the defining diseases of our children’s generation as it has ours,” says Collins.

“Since the original BOLD Infrastructure for Alzheimer’s Act passed, public health departments have been able to improve brain health across the life course in their communities,” said Robert Egge, Alzheimer’s Association chief public policy officer and AIM president. “The BOLD Reauthorization Act will help public health departments implement effective strategies that promote brain health, address dementia, and support individuals living with dementia and their caregivers,” said Egge. “We urge the President to support the Alzheimer’s community and swiftly sign this bipartisan bill into law,” he says.

Rhode Island response

“Getting this bill across the finish line is a win for the 25,000 Rhode Islanders living with Alzheimer’s, their adult children who work tirelessly as unpaid family caregivers, and for the health and economic needs of the next generation too.  We must continue the progress we’ve made against Alzheimer’s.  We’ve got to find better treatments for Alzheimer’s and related dementias. The federal government must do its part to reduce risk, detect early symptoms, and advance care while lifting the burden on unpaid caregivers,” said RI Sen. Reed.

Since the original BOLD Infrastructure for Alzheimer’s Act passed in 2018, Reed noted that the Rhode Island Department of Health (RIDOH) has been awarded $3.8 million in BOLD Infrastructure for Alzheimer’s Act grants from the CDC. RIDOH has used the federal BOLD grant funds to help to implement effective Alzheimer’s interventions, including boosting early detection and diagnosis, reducing risk, and preventing avoidable hospitalizations, he says.

Victoria O’Connor, program manager at the RIDOH’s Alzheimer’s Disease and Related Disorders (ADRD), who chairs the state’s Advisory Council on ADRD, agrees with Sen. Reed’s assessment about the positive impact of this federal grant on state-wide public health interventions for those caring for persons with dementia.

“The RIDOH Alzheimer’s Disease and Related Disorders Program leads a statewide Advisory Council, convening critical partners, subject matter experts, and people with lived experience to advise implementation of the BOLD funded workplan as well as oversee the Rhode Island State Plan on Alzheimer’s Disease and Related Disorders 2024-2029. This collaborative approach has led to successful implementation of public health interventions statewide that aim to empower all individuals impacted by dementia to achieve their best quality of life.” says O’Connor.

Other congressional actions to combat Alzheimer’s  

Earlier this year, Sen. Reed helped pass the National Alzheimer’s Project Act (NAPA) Reauthorization Act and the Alzheimer’s Accountability and Investment Act (AAIA).  Sen. Whitehouse was also a cosponsor of the National Alzheimer’s Project Act (NAPA) Reauthorization Act.  Both bills were signed into law by President Biden. 

The NAPA Reauthorization Act (P.L.,118-93) reauthorizes NAPA through 2035, considered a roadmap to coordinate federal efforts in responding to Alzheimer’s and other forms of dementia.  Since NAPA was first passed in 2011, Alzheimer’s research funding has increased seven-fold.  Today, funding for research into Alzheimer’s and other dementias totals over $3.8 billion.

The Alzheimer’s Accountability and Investment Act (P.L. 118-93) would require the Director of the National Institutes of Health (NIH) to submit an annual budget to Congress estimating the funding necessary to fully implement NAPA’s research goals.  This will help ensure Congress can make a well-informed decision to determine necessary Alzheimer’s research funding levels.

We have made tremendous progress in recent years to boost funding for Alzheimer’s research, which holds great promise to end this disease that has had a devastating effect on millions of Americans and their families,” said Sen. Collins, who authored NAPA and AAIA.

“These two bills will maintain our momentum and make sure that we do not take our foot off the pedal just as our investments in basic research are beginning to translate into potential new treatments. We must not let Alzheimer’s to be one of the defining diseases of our children’s generation as it has ours,” she says.

And as a member of the Appropriations subcommittee that oversees funding for the National Institutes of Health (NIH), Sen. Reed helped provide a $275 million increase for Alzheimer’s disease research in the fiscal year 2025 Senate Labor, Health and Human Services, Education, and related Agencies Appropriations bill.  In 2019, NIH awarded Brown University researchers, along with Boston-based Hebrew SeniorLife (HSL), over $53 million in federal research funds  to lead a nationwide effort to improve health care and quality of life for people living with Alzheimer’s disease and related dementias, as well as their caregivers.

Congressman Magaziner takes baton on bringing back House Aging Committee

Published in RINewsToday on March 4, 2024

Over 30 years ago, the US House Democratic leadership’s belt-tightening efforts to save $1.5 million resulted in the termination of the House Permanent Select Committee on Aging. Congressman Seth Magaziner (RI-2) has picked up the baton from former Congressman David Cicilline who sought to bring back the House Aging Committee during the 114th-117th Congresses.

At press time, Magaziner’s H. Res. 1029, introduced Feb. 23, 2024, has been referred to the House Committee on Rules for mark-up, and if passed, will be considered by the full House.

“Older Americans deserve a seat at the table, particularly when it comes to important issues such as protecting Social Security and Medicare,” said Magaziner in a statement announcing his legislative efforts to pass H. Res. 1029. “I am proud to introduce legislation to re-establish a House Permanent Select Committee on Aging, which will advocate for America’s aging population and ensure seniors’ voices are heard when it comes to federal policymaking,” he says.

Every day 12,000 Americans turn 60. By 2030, nearly 75 million people in the U.S. — or 20% of the country — will be age 65 or older. As our country’s aging population grows, the need for support and services provided under programs like Social Security, SSI, Medicare, Medicaid and the Older Americans Act increases.

“Ensuring that seniors can thrive in our communities should always be a priority for the House of Representatives,” said Congressman Gabe Amo (RI-1)  one of 15 original cosponsors of H. Res. 1029, who initially called for bringing back the House Aging Committee during his campaign to win former Cicillini’s vacant seat.

“That is why it is essential that there is a dedicated committee for lawmakers to focus on the issues that impact seniors’ quality of life. From preserving and expanding Social Security and Medicare to reducing the cost of prescription drugs to keeping seniors in safe and stable housing, there are so many issues to address under the leadership of a Special Committee on Aging. Seniors in Rhode Island and across the country deserve nothing less,” says Amo.

The House can readily create an ad hoc (temporary) select committee by approving a simple resolution that contains language establishing the committee—giving a purpose, defining membership, and detailing other aspects, says EveryCRSReport. Salaries and expenses of standing committees, special and select, are authorized through the Legislative Branch Appropriations bill.

Putting a spotlight on aging issues

H. Res. 1029 simply amends the Rules of the House to establishes a Permanent House Select Committee on Aging, noting that this panel shall not have legislative jurisdiction, but it’s authorized to conduct a continuing comprehensive study and review of the aging issues, such as income maintenance, poverty, housing, health (including medical research), welfare, employment, education, recreation, and long-term care.

The 213-word resolution would have authorized the House Aging Committee to study the use of all practicable means and methods of encouraging the development of public and private programs and policies which will assist seniors in taking a full part in national life and which will encourage the utilization of the knowledge, skills, special aptitudes, and abilities of seniors to contribute to a better quality of life for all Americans.

Finally, the House Resolution would also allow the House Aging Committee to develop policies that would encourage the coordination of both governmental and private programs designed to deal with problems of aging and to review any recommendations made by the President or by the White House Conference on aging in relation to programs or policies affecting seniors.’

Aging organizations, advocates call for passage of H. Res. 1029

According to Max Richtman, President and CEO of the Washington D.C.-based National Committee to Preserve Social Security and Medicare (NCPSSM), jurisdiction over many programs affecting seniors is shared by multiple standing committees, which can make it difficult for them to fully explore solutions that do not fit squarely into a single committee’s expertise. Such issues include a variety of intergenerational concerns that merit attention, such as the growing demands on family caregivers and our intractable retirement security crisis. “An inter-disciplinary approach to these issues can best be advanced by a Select Committee with broad jurisdiction,” he says. 

“Re-establishing a Select Committee on Aging in the House would also complement the strong bipartisan work of its counterpart in the Senate,” says Richtman. “In recent years, the Senate Special Committee on Aging has effectively promoted member understanding on a range of issues,” he says, noting that these issues include concerns of grandparents raising grandchildren, elder abuse and fraud, the effects of the COVID-19 pandemic on older Americans and their families, the importance of financial literacy in planning for retirement, and the costs associated with isolation and loneliness. 

“Historically, the House Select Committee on Aging served as a unique venue that allowed open, bipartisan debate from various ideological and philosophical perspectives to promote consensus that, in turn, helped facilitate the critical work of the standing committees. We believe that issues affecting seniors would be best advanced by the re-establishment of such a Committee in the House,” adds Richtman. 

NCPSSM will endorse H. Res. 1029 and plans to promote it to House lawmakers. If the Democrats take control of the House next November, the organization will approach the Democratic House Speaker when he is crafting rules to operate and request that the rules include reestablishing the HSCoA. 

Nancy Altman, President of the Washington, DC-based Social Security Works, strongly supports Magaziner’ efforts to bring back the HSCoA. “Social Security is a critical issue for older Americans. “There’s so much misinformation out there about Social Security, and as a result many people aren’t confident they’ll get the benefits they’ve earned. More accurate information coming from Congress would help,” she says.

According to Altman, the Social Security Subcommittee of the House Ways and Means Committee does incredibly important work, but Ways and Means has such a broad jurisdiction that Social Security and other aging related issues don’t always get the attention they deserve. “A House Aging Committee could shine an important spotlight, informing the public, the media, and fellow members,” she notes.

Altman offers suggestions to the Rhode Island Congressman to increase the chances for passage of H. Res. 1029. “If he doesn’t already have Republican co-sponsors, he should try to get some since they’re more likely to convince Speaker Mike Johnson to create the committee,” she says. 

In addition to working for passage of H. Res. 1029, this Congress, Altman recommends that Magaziner start working now to line up Democrats to push for the reestablishing the House Select Committee on Aging at the beginning of the next Congress, where there is likely to be Democratic control. 

Robert S. Weiner, now President, Robert Weiner Associates News, was House Aging Committee Chief of Staff under Chairman Claude Pepper, from 1976 to 1980, when the Florida lawmaker headed the HSCoA, as a force to be reckoned with in his advocacy of America’s seniors.

“I saw first-hand the power of that committee when we met with Presideent Jimmy Carter and he endorsed the HSCoA’s efforts to abolish mandatory retirement,” says Weiner, noting that the bill passed 359-2 in the House and 89-10 in the Senate, and signed into law by the President.

According to Weiner, the Carter Center recently invited him to pen an article this fall, for their “last print edition of the “Carter-Mondale Newsletter,” entitled “Carter, Pepper Strike Blow Against Age Discrimination.”

“We also held high-powered hearings on nursing home abuses, cancer insurance fraud, the need for expanded home health care (which ultimately became law), elder abuse, and pensions,” adds Weiner. As to Social Security, the Pepper-O’Neill-Reagan deal guaranteed the solvency of Social Security through 2034.

As to legislative strategy, Weiner suggests that Magaziner get 100 plus sponsors – Democrats and Republicans – by bringing a copy of the resolution to the House floor and getting cosponsoring significantly efficiently and quickly by first-hand recruiting action. He might even ask to address the House for a one-minute speech about the importance of passing H. Res. 1029.

“Both parties are nuts if they don’t help seniors by having a dedicated House Select Committee on Aging,” asserts Weiner.

“This is a significant opportunity for the Congress to take a comprehensive view as to how we as a country wish to better support the aging of America.  Older adults suffered the most during the COVID pandemic — more than 90% of the deaths were individuals over 60.  Many older adults are still suffering from loneliness and social isolation.  Such a bipartisan effort led by Congressmen Magaziner and Amo would be historic,” stated Vincent Marzullo, who served 31 years as a career federal civil rights and social justice administrator at the National Service Agency, and a well-known aging advocate.  He serves on Magaziner’s he RI-02 Seniors Advisory Committee.

The clock is ticking. With the upcoming presidential elections taking place in about 246 days, Magaziner must quickly work to get House Republicans cosponsors to get House Speaker Mike Johnson to allow a vote in the House Rules Committee. Without support of his caucus, he is likely to say no.

Magaziner must convince Congressmen Brian Fitzpatrick (R-PA) and Josh Gottheimer (D-NJ), co-chairs of the “Problem Solvers Caucus,” consisting of essentially an equal number of 63 Republican and Democratic lawmakers, to push for passage of H. Res. 1029.  This may be the only way to pass a resolution to reestablish HSCoA in a Republican-controlled House.

Speaker Pelosi: Bring Larson’s Social Security proposal to a floor vote 

Published in RINewsToday on September 12, 2022

On the 87th Anniversary of Social Security, the Washington, DC based Social Security Works (SSW) hosted a “Social Security Town Hall Meeting” to get the word out about the importance of passing the Social Security 2100: A Sacred Trust. 

The virtual town hall meeting brought together House lawmakers, aging advocates and beneficiaries to send a strong message to House Democratic leadership to support the markup of Congressman John Larson’s (D-CT) social security proposal to expand and strengthen Social Security and send it to the House floor for a vote.

The town hall participants, including host Nancy Altman, President of Social Security Works, Larson, chair of the Social Security Subcommittee of the House Ways and Means, Congresswoman Pramila Jayapal, Chair of the Congressional Progressive Caucus, Peter Morley, Patient Advocate and co-founder of Health Care Awareness month, and John Blair, who chairs the Community Advisory Board, SPACE in Action, strongly supported quick action and passage of the legislative proposal. Additionally, several members of Congress also pre-recorded videos which were played at the end of the town hall meeting.

Town hall participants used the Aug. 15th virtual town meeting to highlight polls that show Democratic and Republican voters strongly support Democratic proposals to expand Social Security, and to call on House leader Nancy Pelosi to schedule a vote on Larson’s legislative proposal prior to the upcoming mid-term elections.  

Throughout the hour-long internet discussion, they also condemned the recent attacks on Social Security from Senate Republicans. Specifically, Sen Ron Johnson has called for Social Security spending to be considered “discretionary spending” and subject to routine budget negotiations, even though the program is self-funded by workers. Sen. Rick Scott (R-FL), chairing the GOP’s committee to re-take the Senate, also has proposed a plan where Social Security would have to be renewed by Congress every five years. And finally, Sen. Mitt Romney (R-Utah) is pushing for passage of the TRUST Act, which could fast-track legislation to cut Social Security benefits. 

“Social Security has provided our nation with the most comprehensive retirement, disability, and survivors benefits for 87 years,” said Larson. “Democrats are fighting to expand and protect it, yet my Republican colleagues have plans to cut benefits and even end the program as a whole,” he noted.

Larson noted that Congress had not acted in 50 years to enhance benefits. “The American people have made clear they want to protect the program they pay into with each and every paycheck so they can retire with dignity,” he said. “With the COVID-19 pandemic still impacting our country and Republicans revealing their plans to end benefits, there is a fierce urgency to protect and enhance Social Security now. Alongside commemorating 87 years of this program, Congress must pass Social Security 2100: A Sacred Trust to make much needed benefit improvements and ensure this program can serve our nation for years to come. Congress must vote!” he said. 

Congresswomen Rep. Pramila Jayapal (D-WA), chair of the Congressional Caucus Progressive, representing 100 lawmakers made an urgent call for the protection and expansion of Social Security. “It’s not an entitlement program,” she said, stressing that it is an earned benefit.

“The work we have to do to make sure that this earned benefit pays out the dividends that keep up with the requirement and needs of our Social Security benefit is what H. R. 2100 is all about,” she said, pushing Larson’s Social Security legislative proposal.  

Like Larson, Jayapal calls Social Security the most successful antipoverty program in this country.  “It has lifted more than 20 million Americans out of poverty, including one million children and more 16 million older Americans.  It provides a lifeline to over 16 disabled persons.,” she says.

Julian Blair, Chair of the Advisory Board, SPACEs in Action, called for Congress to get behind expanding and protecting Social Security. “Expanding Social Security …will allow us seniors, and many other people who depend on Social Security, to live with a little dignity—a right all of us have earned and should expect to receive from our country,” she said.

 Peter Morley, Patient Advocate & co-founder of Health Care Awareness Month, who is permanently disabled,” urged that Congress overhaul the and expedite the process for patients applying to SSDI and SSI. “They should not have to wait for years. It’s a tragedy and a shame on our country,” he said.

Urgency to Act Now

Four days before SSW’s virtual town meeting, Max Richtman, President and CEO of the National Committee to Preserve Social Security and Medicare (NCPSSM) gave his thoughts as to the need to expand and strengthen Social Security in an opinion piece, “Let’s Honor Social Security’s 87th Anniversary by Strengthening and Expanding it,” published on the digital site, The Hill.

When President Franklin D. Roosevelt signed the Social Security Act of 1935 into law 87 years ago, he didn’t “intend for it to remain frozen in place” but would need to be expanded with the nation’s changing demographics,” says NCPSSM’s Richtman.

“In fact, during the first 40 years of Social Security, Congress expanded the program no less than 15 times – mostly to broaden coverage and increase benefits.  In 1950, Social Security was expanded to cover domestic and agricultural workers.

In 1956, Congress added monthly disability benefits, which is why millions of workers with disabilities collect Social Security today. The 1972 amendments provided annual cost-of-living adjustments  (COLAs) to help beneficiaries keep up with inflation,” states Richtman. 

“Sadly, benefits have not been significantly improved since then. Instead, lawmakers have prioritized keeping the program’s trust fund solvent amidst waves of retiring baby boomers. In 1983, Congress increased the payroll tax and raised the retirement age gradually from 65 to 67, which was, in effect, a benefit cut. It was ‘hard medicine’ that affects retirees four decades later. At the time, Congress had little choice because it waited so long to act that Social Security was just months away from being unable to pay full benefits,” added Richtman in his opinion piece.

Like Larson and Jayapal, Richtman also called for strengthening Social Security and in his opinion, piece, urging passage of the Social Security 2100 Act, that expands Social Security benefits and extends the life of the trust fund. At press time, this legislative proposal has 208 cosponsors in the House. The legislative proposal has not one Republican supporting it and some moderate Democrats still haven’t endorsed it.

Richtman also expressed strong concern about the Republican proposals to cut and privatize Social Security if they take over leadership of the House and Senate Chambers. “When Congress returns from summer recess, Democrats have a limited window to enact the Social Security 2100 Act before the midterm elections and subsequent lame duck session, observes Richtman.

According to Richtman, under Larson’s legislative proposal, all beneficiaries would receive a 2 percent increase in boost in benefits — with special increases for widows and widowers, lower-income workers, and retirees over 85 years of age. Future COLAs would be based on a new inflation formula – the Consumer Price Index for the Elderly –  that more accurately reflects seniors’ spending patterns. 

Richtman says that Larson’s Social Security proposal would increase the flow of tax revenues into Social Security. Currently, he noted that high earners do not contribute to Social Security on wages exceeding $147,000. Under this proposal, wages above $400,000 also would be subject to payroll taxes. 

Overwhelming support for the Social Security’s proposal for passage

With the midterm elections just 57 days away, Congress must move quickly to bring Larson’s Social Security 2200 Act to the House floor for a vote.  Even with President Biden and 208 Democratic House lawmakers calling for a House vote on Social Security 2100 Act, it has been reported that Wendell Primus, House Leader Nancy Pelosi’s senior staffer on domestic policy issues, has advised his boss to pull the Social Security proposal from markup, reportedly over cost concerns, effectively derailing Larson’s efforts to get a House vote on his legislative proposal.

Almost 40 aging groups have joined 208 House lawmakers in advocating for expanding and protecting Social Security benefits received by over 70 million Americans.  Primus must rethink his position opposing House consideration.  If the GOP retains control of the House and Senate chambers, Democrats will not be able for years to improve the financial health and expand Social Security benefits. The GOP will control the House and Senate’s legislative agenda. Congressional Democrats and aging advocacy groups would be put in the defensive position to keep the program that we know so well in existence.

For details about the Social Security 2100 Act, go to https://larson.house.gov/sites/evo-subsites/larson.house.gov/files/Social%20Security%202100%20-%20Fact%20Sheet%20117th.pdf

To watch the livestream event, “Social Security Town Hall Meeting,” go to https://www.youtube.com/watch?v=xycabwQSurI

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