AARP Brings Main Stream America into Social Security Debate

Published July 27, 2012, Pawtucket Times

            With Congressional and the Presidential elections looming, just a few months away, aging baby boomers and seniors might well consider the recently released Social Security Trustees’ annual report as “a canary in a mine.”  Like a dead canary that warns  miners that a deadly gas is seeping underground, the 242 page report details the fragile health of the nation’s Medicare and Social Security Trust Fund, giving early warning to drastically cut retirement benefits if the President and Congress takes no action. 

             While thousands of media outlets across the nation reported on the impending bankruptcy of these programs, the Social Security Trustees called for immediate  action.  Meanwhile, the upcoming November elections keeps Congressional Democrats and Republications along with the Obama Administration from working to find a viable bipartisan fix.   Fear of turning away older voters has truly derailed needed policy reforms for this year.  

             The Trustee’s reaffirm that the Social Security program can pay full benefits until 2033, however, they warned that probably only three-quarters of promised benefits could be paid out beyond that time.  If this observation is correct it will become more difficult for aging baby boomers to plan their retirement. 

Fixing Social Security Ranked High

            Fixing Social Security is a high priority for the nation’s growing older population and will most likely be a key domestic policy issue to be discussed by Congressional candidates looking for votes to put them into office in Washington, DC next November.  Congressional and Presidential candidates be warned… According to an AARP survey, released in January 2012, of respondents age 50 and over, Social Security and Medicare ranked three out of 13 issues, with job growth and rising health care costs being number one and two respectively. 

            AARP Rhode Island, the OceanState’s largest aging advocacy group, has geared up its “You’ve Earned a Say,” initiative to gather grassroots feedback from “Outside the Beltway” to bring to Congressional lawmakers as they continue their debates as to how to bolster the solvency of the nation’s Social Security and Medicare programs.  AARP hopes that this initiative will create a national conversation to ensure that every worker, who has contributed into Medicare and Social Security, has a direct say in the future reforms of these programs.

             According to AARP Rhode Island State Director Kathleen S. Connell, AARP’s “You’ve Earned a Say” initiative was created to bring balanced information to people — both the pros and the cons — about the policy options being debated during the upcoming Presidential and Congressional elections for both programs. 

            “You’ve Earned a Say’ is giving the American people a strong and visible voice in the Social Security and Medicare discussion,” says Connell. “We are reaching out to our 130,000 Rhode Island members and nationally to nearly 40 million members.  Television commercials are now playing in Rhode Island, raising the awareness of viewers to AARP’s initiative and its website, www.earnedasay.org.  The website provides both factual and straightforward information as to policies that are being considered and enables a person to share their ideas with Congress and those running against Congressional incumbents, as how to strengthen these programs.

            According to Connell, one million people have participated in the “You’ve Earned a Say” grassroots initiative nationwide that kicked off in early Spring.  Their opinions have been shared online.  Meanwhile, tens of thousands have participated in more than 1,400 community meetings throughout the nation, she said, noting that more than a dozen have been held in the Rhode Island.

No More Political Spins, Jargon

            Americans are just plain tired of the political spins, jargon and rhetoric surrounding fixing the Social Security and Medicare programs, says Connell, even the backroom deals to change these programs in smoke filled rooms.  Over the years policy debates in Washington, DC have focused too much on budgetary line items and numbers and not on the immediate concerns, and real needs, of older Americans, she says.  

          But there is a central theme that comes from AARP’s dialogue with mainstream America.  That is most people feel that Washington is out of touch and not listening “They’re not listening to the concerns of people or talking about the real health and retirement income needs of older Americans. They’re not talking about what’s fair or about the effects of proposed changes on real people, quips Connell.

 A Bleak Retirement…

            Connell says that in Rhode Island 200,202 residents depend on Social Security benefits to help pay the bills every month, and 181,264 count on Medicare to help them afford health care, including guaranteed coverage for doctors, hospitals and prescription drugs.  

            Yes, policy decisions impact people’s lives.  If the President and Congress next year don’t find a bipartisan solution with input from those outside the Washington, D.C., a significantnumber of older Rhode Islanders might just well find their retirement year’s bleak at best.

            AARP’s  “You’ve Earned a Say” grassroots initiative may be just the way to finally educate older American voters, those who might just begin to put intense pressure on both the Democrats and Republicans alike, to make a long-term policy fixes.  Band aide solutions will haunt the upcoming generations who will financially suffer in their twilight years.  Shame on Congress if this occurs.

           Herb Weiss is a Pawtucket-based freelance writer who covers aging, health care and medical care issues.  The article was published in the July 27th issue of the Pawtucket Times. He can be reached at hweissri@aol.com.

Caregivers Must Not Forget Their Own Needs

Published June 8, 2012, Pawtucket Times

           It seems that every where I turn these days, friends, and business colleagues, are being thrust into care giving roles for older family members or spouses.  In today’s hectic world, aging baby boomers and seniors who are now taking on this late-life role can find this new task very demanding and stressful.

            According to the National Alliance for Caregiving and AARP, most aging baby boomers will become informal caregivers at some time during their lives. During any given year, there are more than 65 million Americans (29% of the nation’s population) who provide unpaid care for a chronically ill, disabled, or older family member or relative during any given year.  The caregiver spends an average of 20 hours per week providing care for their loved ones.

            Statistics paint a very detailed picture of the typical family caregiver.  She is a 49-year old, married female who is employed and cares for her 69-year old widowed mother who does not live with her.  Over 66 percent of the nation’s caregivers are women.  More than 37 percent have children or grandchildren 18-years or younger living with them.

The Importance of Taking Care of Yourself

            Connie Goldman, award winning radio producer and reporter whose books have given her readers insights, inspiration, and motivation for personal growth in their mid-life and beyond, sees continuing need for support and services for middle-aged caregivers. 

            Goldman, who authored The Gifts of Caregiving – Stories of Hardship, Hope and Healing, believes the secret of being a successful caregiver is to first take good care of yourself.  Although her book was first published over a decade ago the personal stories that family caregiver have shared continue to offer comfort, insights, and inspiration. Many will benefit from reading the compilation of 30 stories of caregivers who tell their  personal stories of taking care of an ill, disabled or aging loved one.  Goldman notes all of these remarkable people cope with adversity in ways that leave us wondering: “Could I measure up to the challenge?” Most importantly, each of their stories reveals how the hardships of caregiving can be turned into a journey of hope and self-discovery,” she says.

           In her timeless book, Goldman’s interviews include: Dana Reeve (wife of the late actor Christopher Reeve), former First Lady Rosalynn Carter, Pulitzer Prize-winning author Studs Terkel, and others whose lives were forever changed by their care giving experience. There are also personal experiences told by many whose names you won’t recognize, yet their stories offer personal insights that can nurture and nourish   caregivers of any age.

            “Taking on the commitment as a family caregiver opens the door to frustration, irritation, indecision, fear, guilt and stress,” says Goldman, so the caregiver must take care of themselves first. Goldman notes that a mantra she often suggest to post on your mirror, refrigerator, or anywhere else to remind yourself  that you must “Take care of yourself so you can take care of others.”  It is well known that caregivers often lose sleep, don’t eat properly, don’t take breaks, and don’t believe they matter as much as the person who they’re providing care for, she adds.  “Caregivers very often put themselves and their needs last on the list. To be the best caregiver you can be you must care for yourself”.

             According to Goldman, you can be a better, more efficient caregiver if you get enough sleep, eat regular meals, and make a plan to get relief for some period of each day. “I know caregivers are often reluctant to ask a friend to fill in at home while you go to have your hair set, or meet a friend for lunch, or go for a walk in the park. Yet an hour or two away can nourish a caregiver for the next 24 hours,” she says.

             Goldman suggests that caregivers can care for themselves by attending regular support groups, sharing with a friend three things that went right during a day (when everything seems going wrong), or taking a hot bath, reading a magazine, spending a bit of  time in your garden, taking a short nap, or eating a chocolate bar!   It’s often the little things that count in surviving each day and the challenges of being an aging baby boomer caregiver or taking on the caregiver role at any age.  

 Taping into Resources…

             It is difficult for many caregivers navigate the long-term care system to find the most appropriate programs and services to keep their loved ones at home.  According to the Rhode Island Department of Human Services, Division of Elderly Affairs, the National Family Caregivers Association (NFCA) might just provide that crucial information for caregivers.  The Kensington, Maryland-based clearing house (at www.nfcacares.org) offers information on a variety of topics including, stress and family caregiving, caregiver advocacy, care management techniques, support groups, communication with health care professionals, reaching out for help, and other issues.  For more information about the books written by Connie Goldman, go to www.congoldman.org your local bookstore or Amazon.com

            Herb Weiss is a Pawtucket-based freelance writer who covers aging, health care and medical issues.  His Commentaries appear in two daily newspapers, The Pawtucket Times and Woonsocket Call.

The Best of…AARP Report Sheds Light on the Needs of Older Disabled Persons

Published May 26, 2012, Pawtucket Times   

           AARP, a Washington, DC-based aging advocacy group, generates a new report to provide direction to the nation’s policy makers as to how to keep America’s age 50 and over disabled population independent and in  control of their daily lives. 

           According to the latest AARP study, lack of affordable services, a fragmented delivery system and the caregiver’s limited knowledge of the delivery system, are barriers that keep age 50 and over Americans with disabilities from living active and independent lives. 

           The AARP report, “Beyond 50 2003: A Report to the Nation on Independent Living and Disability,” incorporates data obtained from the first ever national survey of Americans age 50+ with disabilities, documenting the gap between what they say, need, and what is available to them. 

           “Long-term independence for persons with disabilities is an increasingly achievable social goal, AARP Policy and Strategy Director John Rother says in a written statement released with this report.  “But it will require time and the collective creativity of the public and private sectors,” he added. 

           “Meanwhile, even minor changes can lead – at least in the short-term – to important life-style improvements for those with disabilities today,“ Rother said.  On the other hand, long-term improvements will require fundamental policy changes.

           “As the influx of Boomers enters their 50’s and 60’s, they will bring their attitudes of competitive consumerism to health care delivery, and will demand greater choice and control of available services,” explained Rother.   “The good news is that there is time to prepare for those demands, he said.  “Along with improvements in medicine and health, we are seeing some declines in disability.  New technologies are also extending Americans’ years of independence.”

           According to the AARP report, 46 percent of the over 50 respondents with disabilities (including nearly 60 percent of those between the ages of 50 and 64) believe that having more control over decisions about services and the help they need would bring a major improvement in the quality of their lives.   However, they report that their greatest fear is loss of independence and mobility.

           The AARP report, the third in a series of comprehensive studies on the status of Americans over age 50, found that 51percent of older persons with disabilities are managing independently; 49 percent are not receiving any regular help with daily activities, such as cooking, bathing and shopping.  More than half of those with disabilities (53 percent) tell researchers that they were unable to do something they needed or wanted to do in the past month – quite often basic tasks such as household chores or exercise.

           Most (88 percent) of the assistance the older disabled persons reported receiving is volunteer assistance from family or other informal caregivers.  Sixty one percent strongly prefer this type of assistance with everyday tasks, while only one out of three uses any community-based service. 

            The AARP report found that independence, for older disabled persons, can be easily enhanced by using assistive equipment (such as walkers and wheelchairs) and new technologies that are now more widely available.  However, caregiver assistance with daily activities will take more time and resources.   The researchers estimate that as many as three million persons over age 50 with disabilities (almost 25 percent) need more assistance than they receive now with daily activities. 

           Furthermore, the report said that persons 50 and older with disabilities place inadequate health insurance on the top of their list of issues that are not being adequately addressed. Specifically, Medicare coverage still does not pay for prescription drugs and assistive equipment is not covered by some health insurance.

           Adds Rhode Island AARP Director Kathleen Connell, many of the issues addressed in the newly released AARP report are not just about today’s persons with disabilities, but about all of us, who if we live long lives (and longevity is increasing) are likely to face disability.

           “This is about long-term independence and not long term care, which refers not just to what we need during the most vulnerable and frailest stages of our disability, as ‘long term care’ suggests, but to what we want during what, in most cases, is a longer, more functional stage of disability,” Connell tells All About Seniors.

           While minor fixes would make a difference, other improvements will require longer-term fundamental changes and more public dollars.  Based on the “Beyond 50” findings, AARP has outlined a number of policy changes for making critical long-term improvements:

  • Older persons with disabilities must be insured against the high costs of accessing long-term supportive services.  Ways must be found to share the risk of these unpredictable costs more widely among public and private sources. 
  • Public funding for long-term supportive services needs to be reoriented toward more options for home and community-based care. The nation also must provide more options for “consumer-direction” in publicly funded programs.
  •  Communities need to be made more physically accessible for more people with disabilities.
  •  Information and services need to be more navigable for those who are trying to learn more about available long-term services and whether or not they are eligible.
  •  America’s health care system must adjust its focus to enhance functioning and health-related quality of life, not just provide acute and curative care.

             The “Beyond 50” report found that people with disabilities 50 and older give their community poor grades (between C+ and B- in their efforts of making it possible for them to live independently. In many communities, the researchers say, that public transportation is oftentimes rated poorly.

          The researchers say that the troubling findings reveal that the nation is ill-prepared to meet the calls of age 50 and over persons with disabilities for more control and independence in the lives.    

           AARP’s report is a wake up call for state and national policy makers who will be charged with making sound policy decisions for a grayingAmericawith disabilities.  If policy makers heed the recommendations of AARP’s report, systemic changes may well give dignity to millions of older persons with disabilities who only want to remain independent and control of their daily lives.  Just like the rest of us.

           Herb Weiss is a Pawtucket-based writer covering aging, health care and medical issues.  The article was published in May 2003 in the Pawtucket Times.  His articles also appear in state and national publications. He can be reached at hweissri@aol.com.