New Report Says Alzheimer’s Disease Is Now Major Public Health Issue

Published in the Woonsocket Call on March 25, 2018

For the second consecutive year, total payments to care for individuals with Alzheimer’s or other dementias will surpass $277 billion, which includes an increase of nearly $20 billion from last year, according to data reported in the Alzheimer’s Association 2018 Alzheimer’s Disease Facts and Figures report recently released last Tuesday.

According to the Alzheimer’s Association, the annual report, first released in 2007, is a compilation of state and national specific statistics and information detailing the impact of Alzheimer’s disease and related dementias on individuals, families, state and federal government and the nation’s health care system.

“This year’s report illuminates the growing cost and impact of Alzheimer’s on the nation’s health care system, and also points to the growing financial, physical and emotional toll on families facing this disease,” said Keith Fargo, Ph.D., director of scientific programs and outreach for the Alzheimer’s Association, in a statement. “Soaring prevalence, rising mortality rates and lack of an effective treatment all lead to enormous costs to society. Alzheimer’s is a burden that’s only going to get worse. We must continue to attack Alzheimer’s through a multidimensional approach that advances research while also improving support for people with the disease and their caregivers,” he said.

Adds Fargo, “Discoveries in science mean fewer people are dying at an early age from heart disease, cancer and other diseases,” said Fargo. “Similar scientific breakthroughs are needed for Alzheimer’s disease, and will only be achieved by making it a national health care priority and increasing funding for research that can one day lead to early detection, better treatments and ultimately a cure.”

2018 Alzheimer’s Facts and Figures

New findings from the 88-page report on March 20, 2017 reveal the growing burden on 16.3 million caregivers providing 18.4 billion hours of care valued at over $ 232 billion to 5.7 million people with the devastating mental disorder. By 2050, the report projects that the number of persons with Alzheimer’s and other dementias will rise to nearly 14 million, with the total cost of care skyrocketing to more than $1.1 trillion.

Between 2000 and 2015 deaths from health disease nationwide decreased by 11 percent but deaths from Alzheimer’s disease have increased by 123 percent, says the new data in the report, noting that one out of three seniors dies with Alzheimer’s or another dementia. It even kills more than breast cancer and prostate cancer combined. In Rhode Island in 2015, the number of deaths from Alzheimer’s disease was 453, making the devastating brain disorder the 5th leading cause of death in the state.

In 2017, 53,000 Rhode Island caregivers provided an estimated 61 million hours of unpaid physical and emotional care and financial support – a contribution to the nation valued at $768 million dollars. The difficulties associated with providing this level of care are estimated to have resulted in $45 million in additional healthcare costs for Alzheimer’s and other dementia caregivers in 2017.

State Updates Battle Plan Against Alzheimer’s Disease

“The Alzheimer’s Association’s most recent report about Alzheimer’s Disease in Rhode Island illustrates the need to take swift action in updating our State Plan to ensure Rhode Island is prepared to provide the necessary resources to families, caregivers and patients who are struggling with the disease,” says Lt. Governor McKee,

McKee adds that the updated State Plan will be a blueprint for how Rhode Island will continue to address the growing Alzheimer’s crisis. “It will create the infrastructure necessary to build programs and services for the growing number of Rhode Islanders with the disease. The updated Plan will also outline steps the state must take to improve services for people with Alzheimer’s and their families. After the update is complete, my Alzheimer’s Executive Board will seek legislative and regulatory changes to carry out the recommendations of the Plan and ensure that it is more than just a document,” he says.

“One of the many types of caregivers benefiting from AARP’s caregiving advocacy in Rhode Island are family members who care for those with Alzheimer’s,” said AARP Rhode Island State Director Kathleen Connell. “They are among the army of 10 million wives, husbands, sons and daughters nationwide. The majority are women and according to researchers, especially when it comes to dementia and Alzheimer’s care. Approximately 40 percent of those caregivers say they have no other options or choices, and a third say they provide care 24/7.

“The latest report indicates what we already know,” Connell added. “This will continue to be rising challenge in Rhode Island as our population ages. The disease will place more stress on our Medicaid-funded nursing home capacity, which should make this a concern for taxpayers. There is a strong case for increasing research funding so that someday we may reverse the tide.

“Our Web site, http://www.aarp.org, provides abundant resources for these dedicated caregivers. AARP in states across the nation, including Rhode Island, have worked to pass legislation that provides paid respite for caregivers who have jobs as well as caregiving obligations. We have supported the Alzheimer’s Association here in Rhode Island for many years and, last year, a small team of AARP volunteers participated in the Alzheimer’s Walk. Joined by others, they are gearing up for this year’s walk.”

Increased Research Funding Needed Now

Donna McGowan, Alzheimer’s Association, RI Chapter Executive Director, says that the 2018 Alzheimer’s Disease Facts and Figures report should send a very clear message that Alzheimer’s disease is an issue that policy makers cannot ignore. “This is an urgent public health crisis that must be addressed. Early detection and diagnosis of the disease leads to better planning, avoiding preventable hospitalizations, and over all a better quality of life for the patient and the caregiver,” says McGowan.

McGowan warns that the health care system is not ready to handle the increased cost and number of individuals expected to develop Alzheimer’s disease in the coming years. “With a vigorous National Plan in place to address the Alzheimer’s crisis, and annual budget guidance for Congress, it is essential that the federal government continue its commitment to the fight against Alzheimer’s by increasing funding for Alzheimer’s research,” adds McGowan.

Rhode Island Congressman David Cicilline sees the need for increased funding for direct services for those afflicted with Alzheimer’s disease. He voted for H.R.1625, the omnibus spending bill that increases funding for the National Institute of Health’s Alzheimer’s research by $414 million. And two years ago, Cicilline worked to pass H.R.1559, “The HOPE for Alzheimer’s Act,” which President Obama signed into law to expand Medicare coverage for Alzheimer’s treatment.

If Cicilline succeeds to get the Republican-controlled Congress to have a vote on H.Res.160, his bill to reestablish the House Select Committee on Aging, it will allow House lawmakers to hear expert testimony and make new policy recommendations to improve the delivery of care to those afflicted with Alzheimer’s and to assist caregivers, too.

For details, go to http://www.alz.org/facts.

Zarlengo Earns AARP Rhode Island’s Most Prestigious Volunteer Award

Published in Pawtucket Times on December 18, 2017

“To Serve and Not be Served” – Dr. Ethel Percy Andrus

AARP Rhode Island recognizes its own, Phil Zarlengo, for his decades of serving the state’s and the nation’s seniors. Over 130 family and fellow AARP Rhode Island members gathered at the Warwick Country Club at a luncheon ceremony to recognize his remarkable service to America’s largest aging advocacy group.

AARP top national officials (Joan R. Ruff, Chair of the AARP National Board of Directors, Kelly Clark, AARP Eastern Region Vice-president and Megan Hookley, AARP Vice President, Volunteerism & Services), came bringing their greetings.

Last week, Zarlengo, 71, a resident of Jamestown for over 30 years, became the 16th recipient AARP Rhode Island Ethel Percy Andrus Award for Community Service — the nonprofit group’s most prestigious and visible state volunteer award for community service.

Every year, Andrus Award recipients across the nation are chosen for their ability to enhance the lives of AARP members and prospective members, improve the community in or for which the work was performed, and inspire others to volunteer.

An Easy Pick

Zarlengo, a native of Chicopee, Massachusetts, was nominated for the Rhode Island Chapter’s prestigious award by Alan Neville, a retired executive in the financial services sector who now serves as AARP Rhode Island state president. “It was a very easy to pick Zarlengo,,” says Neville, acknowledging that “working with him has been a great privilege for me.”

“He is dedicated to public service and I consider him to be an authentic leader,” says Neville.

“As I have gotten to know him, I have come to appreciate the depth and breadth of Phil’s knowledge and experience,” says Neville, echoing many at the December 10 award ceremony who observed that the former teacher and school administrator’s volunteer efforts extend far beyond AARP to countless other regional and national groups and span decades of giving back to his community.

Zarlengo’s professional and educational credentials are impressive. He has a bachelor’s degree in Social Science from UMASS Amherst, an MA in History from Brown University, a doctorate in Management & Evaluation from the University of Connecticut and a Public Affairs Certificate from Tufts University.

Zarlengo Brings a lot to the Plate

A quick glance at his bio reveals his love for education. Zarlengo was Executive Director of Brown University’s National Education Research Lab, where he developed new models for teacher and school program evaluations disseminated across the nation. As an administrator in the Rhode Island Department of Education and the Providence School Department he monitored state and local programs for special population children. Currently, he is CEO of his own management consulting firm that evaluates and helps improve innovative school programs for low achieving students in urban schools, and is a member of the ACE Charter School Board of Directors.

Zarlengo’s award “acts as a symbol to the public that we can all work together for positive social change,” AARP Rhode Island State Director Kathleen Connell told the attending. “AARP has long valued the spirit of volunteerism and the important contributions volunteers make to their communities, neighbors, and the programs they serve,” she said.

Connell considered Zarlengo a guiding light to AARP Rhode Island when he was asked to assist in organizing the first AARP Rhode Island state office in Providence. She had reached out to her former boss after working with him at Brown to serve as the aging advocacy group’s first volunteer state president.

“His advice on elderly and elderly issues was invaluable and his commitment extraordinary,” Connell says, stressing that Zarlengo “helped to put our office on the map early on, and in recognition of his work he moved swiftly on to his position on the National Board.”

Zarlengo eventually put his energies at the national level by serving on AARP National Board and Board Chair before stepping down in 2012. During his 14 years of volunteer service, he has been an energetic defender of Social Security and Medicare and a strong voice in improving healthcare quality and access for all. Since he left his national position three years ago, he still remains active in AARP in many roles, including AARP’s designee on the U.S. Federal Emergency Management Agency, with a focus on helping older Americans prepare for natural disasters. He works closely with AARP Rhode Island’s legislative committee, bringing his understanding of complex national aging policy issues to the General Assembly when they are considering legislation impacting older Rhode Islanders.

“Nonetheless, he never left our fold, offering counsel and assistance whenever asked – and often when we didn’t ask. That’s Phil’s style and everyone who has ever worked with him here has benefited from his vision, wisdom and his warm enthusiasm,” says Connell.

Top AARP Volunteer Comes to Rhode Island

The award was presented by Joan Ruff, current AARP National Board Chair, who has worked as a executive, human resources consultant and attorney. “You have left more than a legacy of service for those of us who have followed in your footsteps,” she said, before presenting the award.

“Your instinct to emphasize the value of state offices and engines for positive social change and to focus on what we now call engaging locally was spot on. You made the case that the more engaged our membership is with AARP the more likely they are to get involved, to renew their commitment and to tell friends and family members about the value of the work we do,” noted Ruff.

“To Zarlengo’s surprise, Huff also conveyed a letter from AARP CEO Jo Ann Jenkins, which read in part, “Having previously served as AARP Rhode Island’s State President, as a national board member for six years and as AARP Board Chair for two years, you know as well as anyone the high level of commitment and dedication this honor represents.

“As a former state president, you were always thinking about how to make the states and national office work more closely together and how to make AARP a stronger presence in local communities across the country.

“You were instrumental in pushing for the integration of the states into AARP’s strategy development and in making AARP more of a local presence across the country. As president of AARP Foundation at the time, I was energized by your support for The Drive to End Hunger and our efforts in financial services,” Jenkins wrote.

“When AARP decided to bring Experience Corps into the AARP family of programs, you saw the benefit of serving all generations to help strengthen our communities. And, as AARP’s representative to the Federal Emergency Management Agency (FEMA), you spearheaded AARP’s relief efforts in communities hit by natural disasters, leaving a legacy we continue to build on today.

Accolades, Accolades, Accolades

Dr. Reid Appleby, 38, ophthalmologist in East Greenwich who has known Zarlengo for over 48 years, calls him “a wonderful man who is dedicated to society and a friend to everyone he ever met.” It is very appropriate that he receive this prestigious award at this point in his life, says Appleby.

“It’s incredibly important to recognize his work,” says Senator Dawn Euer, representing Newport and Jamestown, noting that she had heard stories about his impact on the state’s aging policy. “It’s valuable for organizations like AARP to recognize their volunteers working to address aging issues that have an impact on the state and nation,” she said, noting that her legislative district has the highest concentration of AARP members in the Ocean State.

Senator Louis P. Dipalma, representing Little Compton, Middletown, Newport, Tiverton, was not surprised that Zarlengo was receiving AARP’s most prestigious award because “his record is impressive.”

According to Dipalma, you need more people like Zarlengo with their extensive knowledge of Social Security and Medicare with such trying times at the federal level with a GOP Congress looking to cut these programs.

When accepting his recognition, an overwhelmed Zarlengo stated that he was not ready to hang up his spurs and there was still much work to do with Congress targeting Social Security and Medicare for cuts. “ AARP has given me the opportunity to grow, to contribute, to learn and to enjoy – at a very exciting time – when the older population is rapidly increasing – you know today nationally we have surpassed the 50 million mark of seniors age 65 and over and we’re well on our way to reaching 83 million by 2080.”

AARP’ Zarlengo and tens of thousands of committed AARP volunteers throughout the nation will be there “to serve and not be served.”

Zarlengo resides in Jamestown with his wife Charlotte. They are parents of, Nancy Gilbert (who resides in Wellesley, Mass., with her husband Michael) and are grandparents of Jeffrey, Elizabeth and Abigail.

Aging Groups: House GOP Tax Rewrite a Turkey

Published in the Woonsocket Call on November 19, 2017

Thanksgiving approaches the GOP-Controlled House has passed H.R. 1, “Tax Cuts and Jobs Act,” its tax reform legislation, on November 16, by a partisan vote of 227 to 206, with 13 Republicans siding with the Democrats. The House tax bill would dramatically reduce corporate and individual income taxes and would increase the deficit by $ 1.7 trillion over 10 years — — possibly offset by $ $338 billion saved by repealing the Affordable Care Act’s (ACA) individual mandate.

On Thursday, after four days of debate, members of the Senate Finance Committee voted 14 to 12 along party lines to approve their version of the tax package. Now the full Senate is expected to consider the bill after Thanksgiving hoping to quickly get it to President Donald Trump’s desk for his signature.

Medicare and ACA Takes a Hit

Matt Shepard, of the Center for Medicare Advocacy, warns that the GOP’s attempt to overhaul to nation’s tax code is an immediate threat to the Medicare program and healthcare coverage to millions of Americans covered by ACA.

According to Shepard, the nonpartisan Congressional Budget Office projects that the huge cost for the Republican tax plan would result in immediate, automatic and ongoing cuss to Medicare — $25 billion in 2018 alone.

After the GOP’s failed attempts to repeal the ACA, the Senate now uses a provision in its tax rewrite plan to finally repeal the ACA’s individual mandate to purchase insurance coverage in order to help pay for tax cuts, he says. If the GOP tax reform legislation becomes law, 13 million more people will be without health coverage and increasing premiums will disproportionately affect people age 50 who are not yet eligible for Medicare.

“These new dangers are on top of an already bad bill. Congress is engaged in a rushed effort to push through a massive tax cut for corporations and the wealthy, presenting a clear and present danger to health coverage, other vital programs, and families throughout the nation,” says Shepard.

“After adding $1.5 trillion to the federal debt, policymakers will use the higher debt – created by the tax cuts – to argue that deep cuts to Medicare, Medicaid, Social Security, and other bedrock programs are necessary,” predicts Shepard.

Responding to the House passage of its tax reform bill, just days ago, in a statement AARP Executive Vice President and Chief Advocacy & Engagement Officer Nancy LeaMond expressed disappointment in passage, warning that the legislation is harmful to millions of Americans age 65 and over.

Older Tax Payers Get Financial Hit with GOP Tax Code Fix

“AARP estimates H.R. 1 will raise taxes on 1.2 million seniors next year alone. Millions more older Americans will see tax increases in the future, or at best, no tax relief at all,” says LeaMond.

As Congress continues its debate to hammer out tax reform, LeaMond calls on lawmakers to retain the medical expense deduction at the 7.5% income threshold for older tax filers. “Nearly three-quarters of tax filers who claim the medical expense deduction are age 50 or older and live with a chronic health condition or illness. Seventy percent of filers who claim this deduction have income below $75,000.,” she says, urging that Congress also retain the standard deduction for older taxpayers, which helps reduce tax liability and can help seniors avoid a tax increase.

AARP also urges Congress to assist working family caregivers in a new tax code that creates a new, non-refundable tax credit to offset the often high out-of-pocket costs associated with caring for a loved one.

Finally, LeaMond calls on Congress to reject adding a provision in the tax bill that will lead to higher premium costs in the individual insurance market, as well as 13 million Americans losing their health coverage, including 2 million Americans who would lose employer-sponsored coverage.

In a statement, Max Richtman, President and CEO, National Committee to Preserve Social Security and Medicare, calls the House passed tax rewrite, “Robin Hood-in-Reverse tax legislation.” Now, the House Republicans have sent out a “crystal-clear message “that the elderly, disabled, poor, and working class are no longer part of the GOP’s vision for America,” he says.

Blooming Deficit Might Trigger Raid Social Security

“This craven giveaway to the wealthy and big corporations at the expense of everyone else flies in the face of public opinion, basic decency, and good old common sense, says Richtman, “By ballooning the deficit, Republicans have teed up a raid on Social Security, Medicare, and Medicaid to make up the difference,” he warns.

“The repeal of the medical expense deduction will punish seniors paying out of pocket for treatment of chronic and serious diseases – or long-term care., says Richtman.

With Senate Republicans gearing up their efforts to pass their version of the House’s “Tax Cuts and Jobs Act,” Richtman calls on Senators “to show courage and to do what House Republicans refused to [do]: stop the tax juggernaut before it does irreparable harm to our nation.”

If the GOP tax reform legislation is passed by Congress and signed into law by President Trump, we will quickly find out by Christmas if it a financial gift to America’s middle class or a lump of coal in their stockings. Aging groups already know this answer.