Caregivers Find it Difficult to Shop at Retail Stores

Published in the Woonsocket Call on September 22, 2019

Survey findings from a recently released national study, by the Washington, DC-based AARP and NORC at the University of Chicago, will send a strong message to America’s businesses.

With the graying of America, retail stores must change the way they do business in order to attract customers who provide unpaid family caregiving to their loved ones.

The study, “Family Caregiver Retail Preferences and Challenges,” and its survey findings were presented at the AARP Executive Summit, The Price of Caring, on September 10 in Washington, D.C. The summit’s mission was to highlight public- and private-sector solutions to support Americans who care for an older or ill loved one.

In-store Shopping is a Struggle

While juggling a multitude of caregiving tasks, caregivers say a lack of accommodations for their frail family members is a problem for shopping at retail stores. The study’s findings reveal that in-store shopping is a struggle for one-third of the nation’s 40 million unpaid family caregivers. Many leave their loved ones at home or choose to shop online, despite strongly preferring the in-store experience.

A whopping 93 percent of caregivers surveyed say they shop for the person they care for. Among these caregivers, most report shopping monthly for groceries (87 percent), basic household items (65 percent), toiletries (61 percent), prescription drugs (58 percent) and other health products (52 percent for persons they regularly care for.

“Americans who take care of loved ones are often strapped for time, and many face logistical challenges doing something as simple as going to the grocery store,” said Nancy LeaMond, AARP executive vice president and chief advocacy & engagement officer, in a September 10th statement announcing the study’s findings. “Retailers can score big with caregivers if they make it easier for them to bring their loved ones along when they shop,” says LeaMond.

The AARP survey findings detail simple but important changes retailers should consider to enhance the shopping experience of caregivers. Businesses can provide dedicated parking spots and ample comfortable reserved seating for older shoppers to rest, wider aisles that easily accommodate both wheelchairs and shopping carts, longer store hours, and train their staff to specifically work with caregivers.

The Pros and Cons of In-Store and On-Line Shopping

The survey findings in the 26-page study reveal that 82 percent of the caregiver respondents prefer to shop in-store because of the ability to touch the products and they don’t have to wait for a product’s delivery or pay for shipping charges. But 84 percent say they shop online for ease and convenience, despite preferring an in-store experience. Forty three percent of the respondents say a major reason they leave their loved one at home when shopping is because the store environment is too difficult for the recipients of their care.

More than 56 percent of the caregiver respondents say that when shopping on behalf of their loved ones they spend at least $50 per month. Forty one percent note they spend more than $250 or more a month when shopping for a loved one.

Businesses Must Listen to the Shopping Needs of Caregivers

We listen to a lot of caregivers and it seems clear that, regardless of the challenge, the help they want most is for somehow to find a convenient, time-efficient and accommodating means of getting what they need, when they need it,” said Rhode Island AARP State Director Kathleen Connell. “In retailing, convenience is a huge competitive advantage these days. But there are aspects of convenience that – for caregivers – go beyond finding what you need on Amazon and having it delivered the next day or two,” says Connell.

“Some caregiver needs are in the ASAP category and they head for brick and mortar retail establishments. Shopping for food and clothes, picking up a prescription or medical supplies, even simple things such as picking up dry cleaning feel like ‘emergencies’ because time is so. Imagine this in the context of being with someone in a walker or wheelchair,” notes Connell.

Connell urges retailers to take this report to heart. “There is an incredible amount of goodwill to be earned if you think about caregivers, as well as those in their care, and give them the consideration that makes their tasks a little easier.”

The AARP survey was conducted by NORC at the University of Chicago and is based on a nationally representative survey of 1,127 Americans who provide unpaid care for an adult age 18 or older. The survey was funded by AARP and used AmeriSpeak®, the probability-based panel of NORC at the University of Chicago. Interviews were conducted between Aug. 1-19, 2019, online and using landlines and cell phones. The overall margin of sampling error is +/- 4.1 percentage points at the 95% confidence level, including the design effect. The margin of sampling error may be higher for subgroups.

To read the full report, visit: http://www.aarp.org/caregivershopping.

For more details about AARP’s Caregiver Shopping study, contact Laura Skufca, AARP Research, Lskufca@aarp.org.

Pawtucket City Hall to Host Major Exhibit of Renown 90-Year-Old Sculptor

Published in the Woonsocket Call on September 16, 2019

The City of Pawtucket’s Arts and Culture Commission hosts a major exhibit of the work of 90-year-old internationally acclaimed Artist, Mihail Simeonov, running from September 19-December 31, 2019. An opening reception to meet Mihai will be held at Pawtucket City Hall, Thursday, September 19, 2019, from 4:30 p.m. to 6:30 p.m., 137 Roosevelt Avenue, Pawtucket, RI 02860.

Home to a thriving arts community, the City of Pawtucket is delighted to present this first-time major exhibition by an internationally-acclaimed sculptor and resident, says Mayor Donald R. Grebien. “As a city committed to art, design and innovation, we are delighted to be able to share the work of such an important artist. Bridging cultures, aesthetic worlds and ideas, Mihail’s work is both visually stunning and deeply rooted in history. He is remarkable for his continued innovation and relevance in contemporary art,” says the Mayor.

“As we celebrate the arts in the City of Pawtucket throughout September, we are honored to have Pawtucket-resident Mihail showcase his visionary artwork at a major exhibit in the City Hall Art Gallery”, states Miram Plitt, Chair of the City’s Arts and Culture Commission. “We invite anyone with an interest in art and those who rally to protect the world’s wild life to attend our opening reception to celebrate the life-time creativity and vision of Mihail whose extraordinary works of art can be seen at the United Nations,” says Plitt.

Cast the Sleeping Elephant

Although the 90-year-old Pawtucket resident has practicing his craft for over 75 years, with major public monuments in Bulgaria and Tunisia, he is best known for his life-size bull elephant bronze sculpture at the United Nations (UN).

In 1980, after several years of planning and work on a breakthrough idea, Mihail travelled to Kenya where, with the help of the country’s Ministry of Wildlife, he took a cast of a live bull elephant bull in the wild. The elephant survived the 72-minute process completely unharmed. From that live cast, Mihail created the Cast the Sleeping Elephant bronze, an over-life size sculpture. The sculpture was officially inaugurated by Secretary General Kofi Annan and installed at the United Nation’s headquarters in New York City in 1998, where it continues to serve as a symbol of man’s dedication to preserving all living creatures.

Mihail says his bronze elephant is a symbol of the importance to protect all wildlife and it is aptly placed at the United Nations, the home of all nations.

The Travels of Mihail

Mihail was born in Bulgaria in 1929, where for seven years he studied philosophy and majored in monumental sculpture at the academy of Fine Arts in Sofia. When one of his commissioned monuments provoked the wrath of Bulgaria’s communist government, Mihail went into exile in Tunisia. In Tunis, enchanted by an exuberance of Mediterranean colors and intense light, the artist embarked on a new aesthetic journey.

After several in Tunis, where many of his large-scale monuments continue to stand, Mihail and his wife, Lilda, emigrated to the United States in the early 1970’s, settling in a loft in New York City. Mihail was granted entry because of his status as an “exceptional artist.”

For over 10 years, Mihail also worked out of a boathouse art studio in Lloyd Harbor, where he was an artist in residence at Friends College. Later relocating to Millbrook, New York and then to Orient, Long Island. Mihail and Lida raised their daughter, Iana, a filmmaker who now lives in San Francisco with her cinematographer husband.

Around 2003, Mihail was looking for a new home and location for his art studio. An article in the Travel Section of the New York Times, picked up at random in an empty train car that featured the historic Pawtucket mills prompted him to write a letter to Mayor James E. Doyle. Mihail thought he might like to move there. Three days after writing this letter he was contacted by Herb Weiss, the City’s Economic & Cultural Affairs Officer. Two years later he would become a Pawtucket resident with Lida, living in one of the city’s mills.

Extraordinary Impact on Contemporary Art

According to Iana Simeonov, Mihail’s daughter and a former art dealer and critic, the Pawtucket exhibition showcases several distinct but related bodies of Mihail’s work in a range of media, including bronze, painting and drawing. The works illustrate how the 90-year-old artist continues to evolve artistically, elaborating on themes which have compelled and fascinated him since the 1960’s.

“Mihail’s 75 years as artist have not only been prolific, but extraordinary in terms of their contribution to the history and vitality of contemporary art,” adds Simeonov, “Mihail’s work has been the subject of dozens of solo exhibitions from New York to Chicago, Stockholm, Basel, Geneva to Milan.

“Mihail’s work is held in over 100 private and museum collections around the world, and his large-scale public monuments continue to stand in public squares and prominent spaces in the US, Europe, and Africa. His artistic legacy and personal story are uniquely compelling and, at age 90 he continues to innovate with materials and is as freshly obsessed with making art as the day he entered the academy,” she adds.

Mihail has not looked back since he relocated to his Pawtucket mill. “I like Pawtucket for its history and old charm and it’s only minutes away from Providence,” he says, noting that his artwork now reflects the industrial character of the City.

Mihail acknowledges that he has never had an exhibit at City Hall. “It’s highly unusual,” he says, admitting that he feels “grateful and happy.”

Putting the Brakes on Skyrocketing Prescription Drug Costs

Published in the Woonsocket Call on August 25, 2019

A few days ago, AARP Rhode Island released new state specific data detailing the impact of high prescription drug prices for Ocean State residents, specifically those living with cancer, prediabetes or diabetes, and heart disease. The Washington-based AARP unveiled the infographic at the National Academy for State Health Policy (NASHP) annual conference as part of AARP’s nationwide Stop Rx Greed campaign to lower drug prices for all Americans.

“While prescription drug prices continue skyrocketing, Americans are being forced to choose between filling life-saving medications or paying rent and buying food,” said AARP State Director Kathleen Connell in an August 21 statement announcing the release of the drug cost data. “So far in 2019, 29 states have passed 46 new laws to rein in drug prices. It’s critical that state and federal lawmakers continue this momentum to stop Rx greed.” says Connell.

Across the nation, 28 percent of consumers ages 19 to 64, say they are being forced to choose between filling costly life-saving prescriptions and paying their rent, buying food and affording other critical essentials, according to AARP research. In 2016, 25 percent of Rhode Islanders stopped taking a prescription drug prescribed by their health care provider due to cost.

The AARP Rhode Island-specific Infographic zeros in on three commonly used prescriptions to treat cancer, diabetes and heart disease to detail the spiraling increases in drug costs.

Between 2012 and 2017, the retail price of Revlimid, used to treat cancer, increased from $147,413 per year to $247,496 per year. In Rhode Island, 112,403 people are living with cancer.

Lantus, a form of insulin used to treat diabetes, increased from $2,907 per year to $4,702 per year. There are 82,318 people with diabetes in Rhode Island.

Finally, Aggrenox, a heart disease medication, increased from $3,030 per year to $5,930 per year. In Rhode Island, 31, 756 people have heart disease.

Specialty Drug Prices Continue 12-Year Surge

The AARP-state specific infographic released this month follows on the heels of an earlier AARP Public Policy Institute report released in June, reporting that the prices of widely used specialty prescription drugs grew more than three times faster than general inflation in 2017.

The researchers found that the average annual price for a single specialty drug used on a chronic basis is now nearly $79,000, compared to $27,824 in 2006.

Specialty drugs often require special administration and handling and are used to treat conditions that often affect older populations, including cancer, rheumatoid arthritis, and multiple sclerosis.

According to the findings of the AARP report, the average annual cost for a single specialty drug was almost $20,000 more than the median U.S. household income ($60,336), more than three times the median income for beneficiaries ($26,200, and over four-and-a-half times higher than the average Social Security retirement benefit ($26,200).

The report also found that the average annual p rice for one specialty medication would have been $29,843 in 2017 – almost $50,000 lower – if the retail price changes for these products had been limited to general inflation between 2006 and 2017.

“Prescription drugs are not affordable when their prices exceed the patient’s entire income,” said Debra Whitman, AARP’s Executive Vice President and Chief Public Policy Officer. Unfortunately, drug prices seem to be in a never-ending race to the top, leaving more and more people unable to afford the medications they need,” she says.

The researchers also noted that revlimid, used to treat cancer, had the highest annual price surge of the 30 top selling specialty drugs at 21.4 percent, going from $203,928 in 2016 to $247,497 in 2017. Revatio, a pulmonary hypertension medication, had the single highest retail price increase (48 percent) among the 97 most widely used specialty drugs.

“Specialty drugs account for the majority of the prescription drugs that were approved by the FDA in recent years,” said Leigh Purvis, Director of Research at AARP Policy Institute. “Given the remarkably high prices associated with such products, it is imperative that policymakers finally enact meaningful changes that target drug manufacturers’ pricing behavior,” she said.

Putting the Brakes to Skyrocketing Drug Costs

Last March, AARP launched its ‘Stop Rx Greed Campaign’ to find Federal and State solutions to slash skyrocketing drug prices. The goal of AARP’s sustained campaign is to help drive down drug prices for all Americans by advocating for a variety of legislative, executive, and regulatory actions at both the federal and state level.

“Americans are paying the highest prescription drug prices in the world,” said Executive Vice President and Chief Advocacy & Engagement Officer Nancy LeaMond, in a statement kicking off this advocacy initiative. “It’s time for pharmaceutical companies to stop deflecting blame and acknowledge that the root cause is the price they set for their products,” she says.

The Stop Rx Greed campaign will include national television, radio and digital ads, editorial content, emails to members, social media posts, ongoing advocacy and grassroots activity in D.C. and the states, and a petition calling on Congress and the Administration to take action now.

As part of the campaign, AARP is actively supporting a number of policy solutions at the national and state level to help lower drug prices. The aging advocacy group supports allowing Medicare to negotiate for lower prescription drug prices and states to negotiate lower prices with drug companies. AARP also calls for giving state Attorneys General authority to crack down on outrageous price increases and clamping down on pay-for-delay and other loopholes that keep
lower cost generic drugs off the market. Finally, AARP endorses capping prescription drug out-of-pocket costs and preserving state pharmacy assistance programs.

Congress is now considering legislation to put the brakes on rising pharmaceutical calls. As the 2020 election approaches the GOP-controlled Senate must work across the aisle with Senate Democrats to craft and pass bipartisan legislation to lower drug costs. It’s time for Senate Majority Leader Mitch McConnell, who vows to block any Democratic priories coming out of the Democratic-controlled Houses to the Senate, to put Senate companion bills on the floor for a vote. It’s time for the Kentucky Senator to put the needs of older Americans first, rather than political wins.

For more details about AARP’s Stop Rx Greed initiative, go to http://www.aarp.org/politics-society/advocacy/prescription-drugs/.