National Family Caregivers Month: State-by-State Roadmap on Assisting Caregivers

Published in RINewsToday on November 3, 2025

Over three months ago, AARP and the National Alliance for Caregiving (NAC) released Caregiving in the US. 2025, warning of a major crisis facing America’s 63 million caregivers. The 133-page report, released on July 23, noted a 45% increase in the number of caregivers over the past decade and concluded that caregivers are at a “crisis point.”

The first Caregiving in the US report, released in 1997 by AARP and NAC, is widely regarded as one of the most authoritative data sources on family caregiving in America. Subsequent editions followed in 2004, 2009, 2015, 2020, and now 2025—each providing updated information on caregiver demographics and the evolving realities of caregiving in America.

A First-of-its-Kind State-by-State Data Analysis

Building on the national Caregiving in the US 2025 report, AARP and NAC recently unveiled a first-of-its-kind state-by-state caregiving data analysis. The 248-page report reveals how much local factors—down to your community or ZIP code—shape the caregiving experience, exposing deep financial and emotional challenges confronting millions of family caregivers.

Researchers found that state policy choices make a measurable difference: states offering stronger supports such as paid leave, respite care, and health system integration report far better outcomes for caregivers.

Rhode Island was among 19 states without sufficient sample sizes to support detailed analysis beyond prevalence and the estimated number of caregivers. For these states, only those metrics were included.

According to AARP and NAC, the report identifies a consistent pattern: states with the highest caregiving prevalence often have the fewest supports. Geography, policy, and community resources together determine whether families can manage care—or collapse under its weight.

The takeaway: where you live often determines whether you get relief or reach a breaking point.

With 63 million family caregivers nationwide—nearly one in four adults—the report underscores the urgent need for coordinated policy solutions at both the federal and state levels.

“Caregivers are the invisible backbone of our broken long-term care system and economy, and too many are paying the price out of their own pockets—risking financial security by taking on debt, using up savings, and leaving bills unpaid,” said Nancy LeaMond, AARP’s Executive Vice President and Chief Advocacy & Engagement Officer, in an Oct. 28 statement announcing the report. “This new data offers the clearest picture yet of America’s caregivers and a roadmap for the change they urgently need.”

AARP is urging Congress and state legislatures to adopt commonsense policies that help caregivers save time and money—and get the support they need.

“These state-by-state disparities expose how policy choices determine whether families thrive or collapse under caregiving responsibilities,” said Jason Resendez, President and CEO of NAC. “When financial strain hits 59% of family caregivers in Georgia compared to just 34% in Minnesota—meaning where you live can double your risk of economic hardship—it’s clear that patchwork state solutions aren’t enough.”

Rhode Island Specifics

Ahead of National Family Caregivers Month, AARP Rhode Island released its state-level caregiving data. The findings show that 23%—approximately 206,000 Rhode Island adults—provide largely unpaid care to parents, older spouses, and other loved ones. The data underscores the urgent need for legislative action to better support these caregivers.

“When a loved one needs help, family members, friends, and neighbors step up—that’s what we do,” said Catherine Taylor, AARP Rhode Island State Director. “But too often, caregivers carry this responsibility alone, putting their finances, health, and jobs at risk. As our state ages, the demand for care will only grow. With this new data and ahead of the 2026 legislative session, AARP Rhode Island is urging policymakers at every level to act now.”

AARP Rhode Island estimates that family caregivers provide $2.1 billion in unpaid care each year, enabling loved ones to remain at home and in their communities—where they want to be. Caregivers routinely handle a wide range of tasks, from bathing and meal preparation to managing medications and medical procedures, often without formal training.

Key Rhode Island caregiving statistics:

·         99% assist with instrumental activities of daily living (meal prep, administering medicine, managing finances)

·         65% assist with personal care (bathing, dressing, feeding)

·         55% perform medical or nursing tasks

·         40% provide high-intensity caregiving (many hours and complex care)

·         19% deliver at least 40 hours of care per week

The personal toll is significant:

·         80% of caregivers use their own money to meet their loved ones’ needs—averaging $7,200 annually, or 25% of their income

·         44% report financial setbacks, including debt, depleted savings, or difficulty affording food and medicine

·         70% juggle full or part-time jobs, with many reducing hours or leaving the workforce—jeopardizing their long-term financial security

A Call to Action

A dysfunctional Congress and state legislatures must directly confront the skyrocketing number of caregivers in America.

AARP and NAC along with the Alzheimer’s Association are calling on policymakers to strengthen financial supports—starting with federal legislation such as the Credit for Caring Act, which would provide a tax credit of up to $5,000 for working caregivers, and the Lowering Costs for Caregivers Act, which would expand flexible spending and health savings account uses.

States can also act by ensuring Medicaid home- and community-based care options are accessible, allowing caregivers to earn compensation, integrating caregiver recognition and training into the health care system, and adopting best practices from top-performing states.

In Rhode Island, advocacy groups including AARP, the Senior Agenda Coalition of RI (SACRI), and the Alzheimer’s Association Rhode Island Chapter have made significant progress. Rhode Island’s Temporary Caregiver Insurance (TCI) program—now offering eight weeks of paid leave at 75% wage replacement—helps family caregivers maintain income stability while providing care.

“In continuing our ongoing advocacy on behalf of caregivers, during the 2026 Rhode Island General Assembly session SACRI will prioritize legislation introduced last year — the creation of a state caregiver tax credit and advocate for the inclusion of respite services for adults under the Medicaid program,” notes Maureen MaigretSACRI Policy Advisor.

Maigret points out that a 2021 AARP study found the average caregiver spends $7,242 out of pocket each year caring for a loved one. “It’s a huge financial burden for many caregivers, especially as the cost of living continues to rise and 40% of caregivers report household incomes of $50,000 or less,” she says, referencing the 2021 Rhode Island Behavioral Risk Factor Survey. “A recent state survey also found that short-term respite is one of the most commonly requested services that caregivers say would help support their needs.”

“Supporting caregivers is not just compassionate—it’s smart policy. In 2024, Rhode Island spent $614 million in Medicaid costs related to dementia. By strengthening caregiver supports—like respite services, dementia-specific training, and care navigation—we can help families keep loved ones at home safely for longer and avoid more costly levels of care,” says Donna McGowan, Executive Director, Alzheimer’s Association Rhode Island Chapter.

“Thoughtful policy and targeted funding is not only the right thing to do—it’s a wise investment in the health and future of our state,” notes McGowan.

To get a copy of Caregiving in the US 2025 go to https://www.aarp.org/pri/topics/ltss/family-caregiving/caregiving-in-the-us-2025/

To get a copy of Caregiving in the US 2025: Caring Across the States, go to https://www.aarp.org/pri/topics/ltss/family-caregiving/caregiving-in-the-us-2025-caring-across-states/

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To access free caregiver tools and local resource guides, visit:

·         AARP Rhode Island “Guide for Caring for Older Adults in Rhode Island helps family caregivers access key programs, services, and agencies right in their community.

·         AARP’s online Caregiving Hub has tools and information available in English and Spanish.

·         AARP and United Way Worldwide’ s 211 program connects Rhode Island family caregivers to essential local services for themselves and their loved ones via the 211 helpline.

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A Physician’s Guide to Living Life Fully, Not Just Longer, with Dr. Ed Iannuccilli

Published in RINewsToday on October 12, 2025

Over two weeks ago, over 300 advocates, providers, and older adults gathered at the Senior Agenda Coalition of Rhode Island’s (SACRI) 16th Annual Conference and Expo, “Navigating Choppy Waters – Shelter from the Storm,” held at Rhode on the Pawtuxets in Cranston.

The Sept. 25 event featured a thought-provoking keynote address by Dr. Ed Iannuccilli, state legislative updates, unveiling a new award to recognize two advocates, along with a panel discussion exploring critical topics facing older adults.

“This conference, by all measure, was a tremendous success,” said Carol Anne Costa, Executive Director of the Senior Agenda Coalition of RI, noting that the new venue, the topics, the engagement of the audience was reflected in the energy in the room.

“We are collecting survey responses an the feedback has been overwhelmingly positive,” says Costa noting that people are craving the opportunities to reconnect in person and in conversation. “If our vision for this conference helped to achieve that, it’s a win,” she said. 

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Simple Tips on Aging Gracefully

 Dr. Ed Iannuccilli, a highly respected retired board-certified internist and gastroenterologist and the author of six published books, delivered an impassioned 31-minute keynote shifting the tone from legislation and program updates.  He offered common-sense advice on aging gracefully and called for changes in the state’s health care system to restore compassion and personal connection.

Looking back to the early days of his medical practice, Iannuccilli—who practiced medicine for over 30 years—recalled a conversation with a lively, healthy 80-year-old woman.

“In the innocence of my youth, I said admiringly, ‘At 80, you’re in marvelous condition. You don’t need to worry—age is just a number.’”

“She looked at me, twirled her ring, straightened her smock, squinted, pursed her lips, and said, ‘Young man, I have the number. Don’t you ever tell anyone that again,’” he said.

“And I never did,” he added. “It was an early lesson. As Oscar Wilde said, ‘With age comes wisdom, but sometimes wisdom comes with winters.’ Well, I have the winters now. I have the number. And I’m pleased to say that no one has dared call it just a number again,” said the Bristol resident.

As for reducing the stress of growing old, Iannuccilli shared: “I try to do happy things, avoid too much news, meet friends, and accept loss and mistakes with a spiritual shovel. No one’s judging anymore—history is history.”

He advised, “Don’t make living a long life your goal; living fully, is. If you’re at an age milestone—don’t panic. Laugh more. Call a friend. As Mark Twain said, ‘Don’t complain about growing old; it’s a privilege denied to many.’”

Iannuccilli said he stays curious, reads, writes, and keeps his mind active. “I even take piano lessons. I don’t need to go on a space mission; I’m already on a planet full of adventure,” he joked.

 He also emphasized that longevity and good health are tied to human connection. “Be a helper. Call a friend. Drive someone to a doctor’s appointment. Volunteer at a pantry. Fred Rogers’ mother was right—‘Look for the helpers.’ Better yet—be one,” urged Iannuccilli.

Navigating a Broken Health Care System

“We use words like quality, efficiency, deliverables, and outcomes—but what people want is access and comfort,” Iannuccilli observed. But, fewer long-term physician-patient relationships, financial barriers at every turn, and isolation among older adults all reflect systemic changes in today’s healthcare system, says Iannuccili.

According to Iannuccili, costs for care, medication, nursing homes, and even vaccines are rising. Too many seniors live alone and disconnected.

“When someone is sick, they want to be comforted. They want someone who listens and helps them navigate an increasingly impersonal system,” he says. 

Today it’s [often] a long phone queue, a chatbot, or a portal that needs a password and two-step verification,” he said. “You wait on hold and think, ‘This is my health I’m calling about, not my cable bill.’ We’ve lost the personal touch.”

“Be patient with emerging artificial intelligence,” Iannuccilli added. “With proper tuning, it can increase efficiency, help pair patients with the right provider, contain costs, and even promote equity. But nothing—nothing—will ever replace personal care.”

Patients are now called consumers, he said, a term he dislikes. “You’re not a consumer—you’re a patient. The word comes from the Latin patiens—one who suffers. It deserves respect.”

Recognizing Rhode Island’s Health Care Assets

Iannuccilli called for Rhode Islanders to stop focusing on negatives, like the bridge, and instead recognize their access to high-quality health care facilities.

“Within 20 miles you can reach some of the nation’s best hospitals—Rhode Island Hospital, Women & Infants, Hasbro Children’s, Butler, Bradley, Kent, South County, Newport, Miriam, Roger Williams, and Fatima,” he said.

According to Iannuccilli, the state’s health care system—from Brown University to URI—is “extraordinary,” featuring world-class nursing programs, physician assistant schools, and a top pharmacy school.

He believes Rhode Island can become a national model for universal access to health care.

“If we can assume our trash will be collected, our children educated, and our homes protected by firefighters, why can’t we assume access to health care for everyone?” he asked. “We have the talent. We have the infrastructure. What we need is the will.”

With a growing shortage of primary care physicians, Iannuccilli called for the creation of a medical school at the University of Rhode Island dedicated solely to training primary care physicians.

He concluded by issuing a call to action: “Let’s make Rhode Island the envy of the nation—a state where health care works for everyone, where education, research, and delivery come together. We can do better. We must do better. And guess what? We don’t have a choice.”

SACRI Recognition

At the conference, Costa recognized the advocacy of Ray Gagne Jr. for his advocacy work as Senior Organizer at RI Organizing Project and Sister Norma Fleming, RSM, for her direct work with adults with disabilities at ReFocus, Inc. by presenting them with the inaugural Marjorie Waters Award for Service. Honoring the legacy of Marjorie Waters—a Rhode Island College graduate, former Director of Information Technology for a Tribal Nation, Six Sigma Process Excellence Coach in the finance industry, and Executive Director of Providence’s Westminster Senior Center—the award celebrates her dedication as a lifelong community activist.

Legislative Greetings, and a Look to the Future

House Speaker K. Joseph Shekarchi (D-Dist. 23, Warwick) brought greetings from the House, emphasizing his strong commitment to supporting the state’s growing older population.

“As long as I’m Speaker of this House and I’m in Rhode Island government, you will have a friend in state government,” he pledged to the attending advocates and older adults.

The Warwick lawmaker shared how his 99-year-old father, who is battling Alzheimer’s and has mobility issues, has given him a personal understanding of older Rhode Islanders’ desire to remain at home—insight that has shaped his aging policy agenda.

Shekarchi highlighted several recent legislative successes, including the expansion of the Medicare Savings Program after 14 years of advocacy, which will save low-income beneficiaries over $2,000 annually. He also cited the state’s Accessory Dwelling Unit (ADU) Law, which allows in-law apartments or “granny flats” (in the colloquial), to help residents age in place in their homes.

Senate President Rep. Lauren Carson (D-Dist. 75, Newport), also detailed her legislative work on behalf of older Rhode Islanders. As Chair of the House Study Commission on Aging, she announced her intention to introduce legislation to make the commission permanent to help guide the state’s aging policy.

Another planned bill for next year would replace the term “senior citizen” with “older Rhode Islander” in state law to promote a more positive view of aging.

Maria Cimini, Director of the State’s Office of Healthy Aging, stressed that the guiding principle of her office’s work was to ensure older Rhode Islanders had the “choice to age as they wished” with dignity and independence.

She pointed out a significant demographic shift, noting that Rhode Island now had more people over 65 than under 18. “We are all aging. My goal is to be sure that Rhode Island is a great place to grow up and grow old,” she says.

A panel discussion followed the keynote, covering practical aspects of end-of-life planning, including legal documents such as wills and trusts, funeral pre-planning, financial planning for dependents with disabilities, suicide prevention, and the role of the long-term care ombudsman.

To watch SACRI’s Sept. 25th program, go to https://capitoltvri.cablecast.tv/show/11543?site=1