House Lawmakers Must Not View Aging as a Partisan Issue

Published in RINewsToday on March 30, 2026

The Leadership Council of Aging Organizations (LCAO), representing 69 national groups dedicated to the well-being of seniors, is urging Congress to support H. Res. 1013, a bipartisan resolution introduced by Reps. Seth Magaziner (D-RI) and Maria Elvira Salazar (R-FL), which would reestablish the Permanent House Select Committee on Aging (HSCoA). Reestablishing this  committee strengthens House congressional oversight, crucial for meeting the needs of a growing older population.

The original HSCoA served as the House’s investigative panel to spotlight aging issues until 1993, when it was dismantled at the end of the 102nd Congress as part of a budget reduction that cut $1.5 million in funding. From 1974 to 1993, the committee fostered bipartisan collaboration to address a myriad of issues affecting older Americans, expanding its membership from 35 to 65 as its political influence grew.  While the House allowed its committee to expire over 30 years ago, the U.S. Senate continues to operate a Special Committee on Aging.

Today’s aging policy challenges now demand bipartisan solutions and comprehensive, coordinated action. The reestablishment of the HSCoA is a necessary, nonpartisan step to addressing these urgent policy needs.

Working Closely with Standing Committees

“Jurisdiction over many programs affecting seniors is spread across multiple standing committees, making it difficult to fully address problems that do not fit neatly into one category,” said Max Richtman, president of the National Committee to Preserve Social Security and Medicare and chair of LCAO. “The nation faces intergenerational challenges, including increasing strain on family caregivers and a persistent retirement security crisis, which demand forward-looking solutions. A select committee with broad jurisdiction is uniquely positioned to address these issues.”

In a March 16 LCAO endorsement letter, Richtman emphasized that a reestablished committee would be active and engaged—holding field hearings, convening teleconferences, and incorporating community perspectives directly into policymaking.

Support from LCAO’s member organizations underscores that the passage of H. Res. 1013 is a national priority, not a narrow concern. As Richtman noted, the nation’s largest aging coalition is calling for the immediate reinstatement of the House Aging Committee.

Reestablishing the committee would also restore balance to Congress’s approach to aging policy, notes LCAO’s endorsement letter. In recent years, the Senate’s Special Committee on Aging has played a vital bipartisan role in highlighting issues such as elder abuse, scams and fraud, high prescription drug costs, the impact of COVID-19, financial pressures on retirees, and the growing crisis of social isolation. The House lacks a comparable legislative panel—an absence that becomes more significant as the population continues to age.

Without a dedicated body to examine the full scope of aging policy, critical issues risk fragmentation, oversight gaps, and delays. In the past, HSCoA hearings provided a forum for bipartisan debate and dialogue, helping bridge philosophical political divides and enabling standing committees to advance informed legislative solutions.

On January 21, 2026, lawmakers introduced H. Res. 1013 and referred it to the House Rules Committee. As of this writing, the resolution remains in committee, awaiting hearings, markup, or a floor vote.

“It is too hard to be a senior in the United States, and Congress has a responsibility to do more for today’s growing population of older Americans and future generations,” said Rep. Magaziner, the bill’s primary sponsor. “Reestablishing the Select Committee on Aging would create a dedicated forum to address these challenges and help ensure Americans can retire with dignity.”

“America’s seniors built this country, and they deserve more than gratitude—they deserve action,” added Rep. Salazar, an original cosponsor. “From rising health care costs to housing and long-term care, their challenges are too important to be buried in bureaucracy. This committee would provide focus, coordination, and accountability, and deliver meaningful solutions so seniors can live with security and purpose.”

As a cosponsor, Rep. Gabe Amo (D-RI) supports bringing back the HSCoA.  “With rising costs, threats to Medicare, Medicaid, and Social Security, and scams targeting older Rhode Islanders, it is essential that we deliver real solutions for America’s seniors,” says Amo.

As Co-Chair of the Stop Scams Caucus, Rep. Amo introduced the STOP Scams Against Seniors Act to ensure investigators have the resources needed to protect seniors from losing their life savings and to help them retire with dignity. “I supported reestablishing this committee in the 118th Congress, and I remain committed to elevating the voices of seniors in the legislative process,” he says.

Can a Bipartisan Proposal Pass in a Divided House?

“AARP supports exploring the restoration of a House Aging Committee to help encourage bipartisan dialogue and elevate issues important to older adults,” said Debra Whitman, AARP’s chief public policy officer.

AARP Board Member Bob Blancato, former staff director of the House Subcommittee on Human Services, highlighted the strategic importance of AARP’s backing. “AARP’s support gives bipartisan weight to the resolution and can motivate lawmakers across the aisle to consider it,” he said.

Blancato called restoring the committee a “sound policy decision,” noting that the growth of the older population makes action urgent. “The sheer increase in the number of older adults since 1993 is reason enough,” he said, pointing out that the oldest baby boomers are now turning 80. “President Donald Trump, the oldest sitting president in U.S. history, turns 80 on June 14, 2026,” he added.

He also noted that a single vote in 1993 eliminated HSCoA and several other committees as part of an effort led by House Democratic leadership to reduce government spending. Blancato suggested the resolution could pass in today’s Republican-controlled House if lawmakers see it as politically advantageous, adding that Rep. Salazar, a Republican, could play a key role in building support.

Still, Blancato acknowledged uncertainty about how effective a modern version of the committee might be. “It’s a dicey question—it depends on the issues they take on,” he said. However, he emphasized that a reestablished committee could play a crucial role by holding hearings on Social Security reform proposals from both parties.

Rep. Magaziner’s effort to secure a Republican cosponsor reflects the kind of thoughtful, collaborative leadership our country needs—especially as America’s older adult population continues to grow at an unprecedented rate, says aging advocate Vincent Marzullo, a former federal civil rights and social justice administrator. “By working across party lines, he is helping to refocus national attention on a myriad of pressing challenges facing older Americans,” he says.

“Rep. Magaziner’s bipartisan initiative also underscores a shared commitment to dignity, respect, and opportunity for seniors, adds Marzullo, who serves on the Congressman’s senior advisory council, calling a bipartisan approach a constructive path to addressing the needs of aging communities nationwide.

Robert Weiner, former chief of staff of the HSCoA under the late Chairman Claude Pepper (D-FL), now director of an ongoing op-ed writing group recruiting young journalists, which won the National Press Club President’s Award, noted that similar resolutions have been introduced in six previous congressional sessions. He said bipartisan support—including from Rep. Salazar, a member of the House Problem Solvers Caucus—could improve the resolution’s chances for passage.

However, Weiner argued that attracting Republican cosponsors should not be difficult. “Historically, Republicans have received strong support from older voters,” he said. “Bipartisan sponsorship should help overcome partisan resistance,” he believes.

Given that Rep. Salazar is a Republican member of the bipartisan Problem Solvers Caucus, Weiner agrees that it is now time to urge the Problem Solvers Caucus to endorse and become cosponsors of H. Res. 1013. “The Aging Committee has always been bipartisan, with House leaders including not only Pepper and  Ed Roybal (D-CA)as chairs, but supportive ranking minority members, including then House members — later Senators — Charles Grassley (R-IA), William Cohen (R-ME), and John Heinz (R-PA),” notes Weiner. He added that the passage could depend on political timing. “It can and should be a shared victory,” Weiner said. “If not this year, then next year.”

A Call for Support

It is time for the Tallahassee, Florida–based Claude Pepper Foundation to step forward and formally endorse H. Res. 1013. The Foundation’s mission—to advance the ideas, values, and public policy legacy of the late Sen. Pepper, ensuring they remain part of contemporary American discourse—aligns directly with the purpose of this bipartisan resolution.

At its core, the Foundation educates federal and state policymakers and advocates for initiatives that enhance the quality of life for all Americans. H. Res. 1013 embodies that commitment. Endorsing this measure would not only honor Sen. Pepper’s legacy but also reinforce the Foundation’s leadership in shaping policies that address the needs of a growing aging population.

The bipartisan Problem Solvers Caucus, established in January 2017 as an outgrowth of the No Labels organization, was created to foster cooperation across party lines on key policy issues. Nearly evenly divided between Democrats and Republicans, the caucus has demonstrated that consensus-driven policymaking is both possible and necessary.

During the 119th Congress, the Problem Solvers Caucus endorsed 12 legislative proposals. Notably, however, none directly addressed aging programs or services. As an original cosponsor of H. Res. 1013, Rep. Salazar is well-positioned to urge the caucus’s co-chairs—Representatives Brian K. Fitzpatrick (R-PA) and Tom Suozzi (D-NY)—along with their colleagues, to make this resolution their 13th endorsed proposal.

Addressing the needs of older Americans should never be viewed as a partisan issue. Reestablishing the House Select Committee on Aging is a practical, bipartisan step that lawmakers from both parties can and should strongly support.

Restoring the committee is essential—not only to revive a once-vital congressional institution, but also to ensure that today’s Congress is now equipped to meet the evolving needs of the nation’s rapidly aging population.

LCAO member organizations endorsing H. Res. 1013 include AARP, Justice in Aging, CWI Works, Inc., Alzheimer’s Association, Village to Village Network, Gerontological Society of America, Network of Jewish Human Service Agencies, Meals on Wheels America, International Association for Indigenous Aging, APWU, Retirees Department, Service Employees International Union (SEIU), PHI, LeadingAge, Aging Life Care Association, National Adult Day Services Association (NADSA), Post Acute and Long Term Care Medical Association, National Academy of Elder Law Attorneys (NAELA), National Committee to Preserve Social Security and Medicare (NCPSSM), National Council on Aging, USAging, Mairead Painter, CT State Long Term Care Ombudsman,  National Adult Protective Services; and National Association of Nutrition and Aging Services Programs (NANASP), among others.

Read the full resolution here https://www.congress.gov/bill/119th-congress/house-resolution/1013/text

Rep. Magaziner’s one-minute floor statement calling for the passage of H. Res. 1013 – see it here: https://youtube.com/watch?v=IygZGcwnFPg&si=MLAAdY6QctiXd1TF

To read LCAO’s endorsement of H. Res. 1013, go to https://www.lcao.org/wp-content/uploads/2026/03/LCAO-Chairs-Letter-Endorsing-H.-Res.-1013.pdf.

Bipartisan support needed to re-establish House Aging Committee

Published in RINewsToday on May 6, 2024

It was almost like attending a 34th high school reunion.  After over three decades, an on-line meeting on April 25th, would bring five former senior staffers of the House Select Committee on Aging (HSCoA) and House Rules Committee back together to provide firsthand accounts to Maia Leeds, legislative assistant for Josh Gottheimer (D-NJ), as to why the New Jersey Congressman, co-chair of the bipartisan House Problem Solvers Caucus, should call on the caucus to endorse H. Res. 1029, re-establishing the House Select Committee on Aging. 

Washington, DC-based groups, including the National Committee to Preserve Social Security and Medicare (NCPSSM), Social Security Works and the Alliance for Retired Americans, including this writer, along with key staff of Congressman Seth Magaziner (D-RI), the primary sponsor of the resolution, participated in the discussion of how the Rhode Island Congressman could attract more cosponsors, especially House Republican lawmakers.   

Throughout the half-hour meeting, Leeds and others stressed the importance of recruiting Republican lawmakers, calling for bipartisan support of H. Res. 1029. According to “Votes in Congress” published in the New York Times on Oct. 13, 1974, even with the Democrats controlling the House in 1974, the HSCoA was established by a huge bipartisan vote of 299 to 74.  In 1993, House Democratic belt-tightening efforts to save $ 1.5 million funding the operations of HSCoA would force it to close its door.

The House Aging Committee was not charged with drafting legislation. Its mission was to conduct investigations and hold hearings to put the spotlight on aging issues that would ultimately lead standing committees with aging jurisdiction to craft legislation to address these issues. 

From the 114th Congress, until he retired during the 117th Congress, in each Congressional session, former Congressman David Cicilline had introduced a resolution to bring back the HSCoA. The resolution failed to gain traction and get support from either House Republic Leader Paul Ryan or House Democratic Leader Nancy Pelosi. Magaziner would ultimately pick up the baton and introduce H. Res. 1029, on Feb. 23, 2024. This resolution was referred to the House Committee on Rules for mark-up, and if passed will be considered by the full House. At press time, there are only 26 Democratic cosponsors, with no Republican cosponsors.

Simply Put…

Magaziner’s 213-word resolution simply amends the Rules of the House to establish a HSCoA, without legislative jurisdiction, to conduct a continuing comprehensive study and review an array of aging issues, including income maintenance, poverty, housing, health (including medical research), welfare, employment, education, and long-term care.

H. Res. 1029 also calls for the reestablished HSCoA to study ways that would encourage the development of public and private sector programs and policies that would keep older Americans active in their community.   

The resolution would also allow the HSCoA to develop policies that would encourage the coordination of both government and private programs designed to deal with problems of aging -and to review any recommendations made by the President or White House Conference on Aging in relations to programs and policies impacting seniors.

According to EveryCRS Report, the House can easily establish an ad hoc (temporary) select committee just by approving a simple resolution with no Senate or Presidential approval. It contains language establishing the committee, detailing a purpose, defining membership. Salaries and expenses of standing committees, special and select, are authorized through the Legislative Branch Appropriations bill.

Magaziner, currently out on parental leave, couldn’t make the online meeting, but Chief of Staff Clayton Schroers, and Kyra Whitelaw, Legislative Assistant, came to monitor the gathering to gain insight from former staffers of HSCoA’s impact on the development of aging policy.

According to Magaziner, his staff are working hard to speak to other congressional offices about the benefits of the proposed committee and who will continue to work to raise the profile of this resolution to encourage other members to become cosponsors. “I was grateful for the opportunity to present to the Leadership Council on Aging, a national coalition of national nonprofit organizations that works on policy issues related to the well-being of America’s seniors,” says Magaziner, noting that his resolution has the support of the NCPSSM and Meals on Wheels America.”

As Magaziner works to increase the number of cosponsors for H. Res. 1029, he says: “The support of advocates is important to encouraging Congressional representatives to cosponsor this resolution.”

“I’m ready to work with anyone, from either party, to deliver results for Rhode Island—and that includes finding common ground on important legislation like H. Res. 1029,” says Magaziner. “I believe there’s still room for bipartisanship, and ensuring we address issues for seniors across the country should be an area where we can all agree. I will continue to urge my Republican colleagues to work together with Democrats to move our country forward,” he says.

Former Congressional staffers call for passage of H. Res. 1029

“A House Aging Committee would centralize Congress’s consideration of older American issues and could be of assistance to authorizing committees with legislative jurisdiction over agencies and programs important to seniors,” says Max Richtman, NCPSSM’s President and CEO, explaining why NCPSSM will directly encourage House members to cosponsor H. Res. 1029.  

According to Richtman, a 16-year veteran of Capitol Hill, the pros outweigh the cons on supporting Magaziner’s resolution. A House Aging Committee would centralize Congress’s consideration of older American issues and could be of assistance to authorizing committees with legislative jurisdiction over agencies and programs important to seniors. However, it would take staff and clerk hire (money) away from the authorizing committees.

Like Magaziner, Richtman observes that bipartisan support for programs and agencies important to senior has a mixed record. “There is some bipartisan agreement on the Older Americans Act (OAA). But even on OAA, bipartisan action can vary widely, says Richtman, especially when Republicans want to make across the board cuts to non-defense discretionary spending, including OAA, Supplemental Nutrition Assistance Program and Low-Income Home Energy Assistance  Program. “And there appears to be no bipartisan agreement on Social Security, Medicare and Medicaid,” he says.

Richtman, a former Staff Director of the Senate Special Committee on Aging, says that the upper chamber sees the value of the Senate Aging Committee, noting that he believes that it has operated in a bipartisan manner. 

Bob Blancato, former Executive Director of the 1995 White House Conference on Aging and former Staff Director, Subcommittee on Housing & Consumer Interests, from 1978-93, has joined the efforts to pass H. Res. 1029. “I just wanted to add another voice in favor of this resolution,” says Blancato, President of Matz, Blancato and Associates.

According to Blancato, who served as Staff Director of the Subcommittee on Human Services from 1977 to 1991, important policies were addressed over those years.  Several amendments to the Older Americans Act were adopting, including creating a separate program for home delivered meals. He remembers his subcommittee held the first hearing ever on the issue of grandparent visitation rights.  

Although some standing committee chairs felt THE aging committee made them work harder because of issues raised in their legislative jurisdictions, there were many examples of both “working together,” says Blancato. He recalls the House Education and Labor Committee working close with his subcommittee on legislation, including the Older Americans Act and the Age Discrimination in Employment Act.

Blancato sees the need to bringing back the HSCoA. Since it was abolished over 30 years ago, there are many issues that need to be addressed with the graying of the nation’s population, he says.  

“A good gauge to see if House lawmakers consider aging policy to be a bipartisan issue is if the Older Americans Act gets renewed on a bipartisan vote this year,” notes Blancato, stressing that “this will be a good test.”

Elaina K. Goldstein, JD, MPA remembers the day when the HSCoA ceased to exist. “It was heartbreaking to have to pack up the incredible work done by the HSCoA and I am thrilled to be involved with its resurrection,” says the former Legal Counsel for the Subcommittee on Retirement and Employment. “It would be incredible if H. Res. 1029 passes, to once again see its staff work hand in hand with the Committees of jurisdiction to get important issues into the light so they could be remedied to make life better for seniors,” she says.   

As a former HSCoA staffer, Goldstein disagrees with those seeing conflict between the Select Committee and Standing Committees. “Quite the opposite,” she said, noting that Subcommittees did not have and will not have any legislative jurisdiction.,” she noted.  

According to Goldstein, many of the Employee Retirement Income Security Act of 1974 (ERISA) health concerns and subsequent hearings held by HSCoA were uncovered by the Senate Finance Committee staff who felt they could not move forward politically in their Committee but felt the House Aging Committee could get the issue out in the open and then they could follow up. “As I said, these issues were ultimately addressed in the passage of the Health Insurance Portability and accountability Act of 1996,” she noted.

As to gaining Republican cosponsors, Goldstein sees aging policy losing some of its bi-partisan appeal with the debates over Social Security and Medicare. “It seems that Republican lawmakers feel the issues of Social Security and Medicare are Democratic issues,” she says, noting that there are so many others. “If the Committee would also take on the issues and concerns of people with disabilities —which they do in the Senate Aging committee —many issues that impact the aging are issues for the disabled as well,” she says, stressing this could well increase bi-partisan appeal.

Robert Weiner, President of Robert Weiner Associates News, saw the negative impact of the HSCoA being abolished. As Staff Director of the Health and Long-Term Care Subcommittee from 1975-76 and the former Claude Pepper’s  (D-FL) Chief of Staff (1976-80) when he chaired the full committee, Weiner knew how shortchanged seniors would be when the committee was abolished. “I always have wanted that decision reconsidered.,” he said.

“Reform”, instead of facts on Social Security have unfortunately now become the political value system norm, and age discrimination has crept back more and more, from hiring and firing in everything  whether private sector or politics. The Aging Committee and its members were and could again be a wedge of power representing older Americans of both parties,” says Weiner, who was a close confident of Pepper until he died in 1989.

Looking back, “We got legislation passed abolishing age-based mandatory retirement, as well as Medicare expansion of home health care, standards for cancer insurance, a major Social Security protection deal co-authored by Pepper, and many other laws by initial press during our investigations and then working closely with the standing committees on the bills,” says Weiner.

Some say that Cicilline’s efforts to pass the resolution to reestablish the HSCoA stalled because of the standing committee’s fear of loss of power in the legislative process. “This is anything but new. We did, and any new committee must, cooperate with, meet with, and support the standing committees’ efforts.  Pepper always made friends and cooperated. We worked closely with chairs and leaders from Gus Hawkins (D-CA) to Gladys Spellman (D-MD)  to Dan Rostenkoswski (D-Ill) to House Speaker Tip O’Neill (D-Mass) and Republican leader Bob Michel (R-Ill),” remembered Weiner.

The key to getting Magaziner’s resolution passed is for the Congressman to actively work to expand the co-sponsorships by taking co-sponsorship sign-up sheets and have conversations around the House floor and cloakrooms and thereby get to well over 100,” says Weiner. 

 A Final Note:

At the on-line meeting, former Senior Staff of HSCoA and Washington, DC-based aging groups, and Rhode Island senior advocates, praised Congressman Josh Gottheimer’s co-sponsorship of H. Res. 1029. Increasing the number of co-sponsors to over 100, especially recruiting GOP lawmakers, might just give the resolution traction this Congress.  Hopefully, Congressman Brian K. Fitzpatrick (R-PA) and the moderate Democratic and Republican members of his caucus will see the value of following Gottheimer’s lead. Yes, aging should be considered a bipartisan issue, just like it was in 1974 when both Democrats and Republicans rallied to establish HSCoA.  

Without support of the House Republican leadership, Richtman warns that it is unlikely that H. Res. 1029 will be considered during the 118th Congress.  However, efforts to drive up the number of cosponsors – especially if it can attract some Republican support – might enable the resolution to be considered if there is a more pro-senior majority in the House of Representatives,” he says.

It’s now time for House Speaker Mike Johnson (R-LA) to step to the plate and support H. Res. 1029, and consider aging to be a bipartisan issue.  The switching of legislative control in the Senate over 47 years and the contentious debates over Social Security and Medicare, has had little impact on the operations of the Senate Special Committee on Aging. The bipartisan panel has continued to investigate and put the spotlight on critical aging issues, working with Senate standing committees to draft legislation to enhance the life and well-being of America’s seniors.  It’s now time for the House to bring back the HSCoA.  

Herb Weiss, LRI’12, is a Pawtucket-based writer who has covered aging, health care and medical issues for over 44 years. To purchase his books, Taking Charge: Collected Stories on Aging Boldly, and a sequel, compiling weekly articles published in this commentary, go to herbweiss.com.

 Participants of April 25 online meeting:

House Staffers: Chief of Staff Clayton Schroers and Kyra Whitelaw, Legislative Assistant, Office of Congressman Seth Magaziner; Maia Leeds, legislative Assistant, for Josh Gottheimer, Office of Congressman Josh Gottheimer.

Senior House Staffers: Bill Benson, former Assistant Secretary for Aging, US Dept. of Health and Human Services and former Staff Director of the Subcommittee on Housing & Consumer Interests, House Permanent Select Committee on Aging, from 1987-90;  Bob Blancato, former Executive Director of the 1995 White House Conference on Aging and former Staff Director, Subcommittee on Housing & Consumer Interests, from 1978-93; Elaina K. Goldstein, JD, MPA,  former Legal Counsel for the Subcommittee on Retirement Income and Employment; Robert S. Weiner, former Staff Director, Subcommittee on Health and Long-Term Care from 1975-77, Chief of Staff of the full Aging Committee from 1976-80); Thomas J. Spulak, former Staff Director, House Rules Committee (under Congressman Pepper), 1982-89 and Chair, the Claude Pepper Foundation.

National Aging Organizations: Nancy Altman, President, Social Security Works, Dan Adcock, Government Relations and Policy Director of the NCPSSM; and David Simon, Legislative Representative for the Alliance for Retired Americans.

Rhode Island: Vincent Marzullo, former Director of the Corporation for National Community Service, Board member of the Senior Agenda of RI, and member of Magaziner’s Senior Advisory Council; Robert Robillard, President of RI Senior Center Directors Association; and writer Herb Weiss.

Senate bipartisan proposal boon to nation’s family caregivers

Published on October 30, 2023

Many family caregivers will tell you that coping with the stress of providing care to loved ones, is made more difficult when they are forced to navigate the confusing federal bureaucracy to identify key financial and health care programs for support. Last week, S 3109, the Alleviating Barriers for Caregivers (ABC) Act, was thrown into the legislative hopper to make it easier for more than 48 million family caregivers to obtain this information. The Senate caregiver proposal was referred to the Senate Finance Committee and no House companion measure has been introduced at press time. 

On Oct. 24, the bipartisan Senate proposal was introduced by Senators Edward Markey (D-MA) and Shelley Moore Capito (R-WV) and is co-sponsored by Senators Kyrsten Sinema, (I-AZ), Susan Collins (R-ME), Bob Casey (D-PA), and Thom Tillis (R-NC). The proposal would require the Administrator of the Centers for Medicare & Medicaid Services and the Commissioner of Social Security to review and simplify the processes, procedures, forms, and communications for family caregivers to assist individuals in establishing eligibility for, enrolling in, and maintaining and utilizing coverage and benefits under the Medicare, Medicaid, CHIP, and Social Security programs respectively, and for other purposes. The agencies must conduct a review and seek input from family caregivers prior to taking actions that would improve their experiences coordinating care for their loved ones.

Currently, more than 48 million family caregivers in the U.S. help take care of loved ones. According to AARP and the National Alliance for Caregiving in the U.S. report, caregivers provide support ranging from selecting the best providers; coordinating multiple health and long-term care providers; navigating the care system; advocating with providers, community services, and government agencies; and managing medications, complex medical tasks, meals, finances, and more.

According to AARP, most caregivers say additional information and support for managing these needs is essential. One in four family caregivers (25%) report they want help figuring out forms, paperwork, and eligibility for services and 26% say that it is difficult to coordinate care across various providers and services. While most (61%) work full- or part-time, and some also care for children, family caregivers spend almost 24 hours a week caring for a loved one on average, says the Washington, DC-based advocacy group.

Personal caregiving experiences leads to calls for caregiver assistance 

Being family caregivers, both Senators Markey and Capito, primary sponsors of S 3109, like many caregivers, encountered red tape when they attempted to find needed federal caregiving programs and services to care for their parents.

“When my mother suffered from Alzheimer’s, my father was her caregiver in our home in Malden,” remembers Senator Markey. “Caregivers serve on the frontlines of our nation’s health care system by giving our families and friends the care and support they need to remain in their homes and communities with their loved ones. However, our aging and disabled community members can’t get the care they need if their caregivers – the backbone of their treatment – are struggling to navigate complex, burdensome, and stressful processes each and every day while also still managing day-to-day family and professional responsibilities. 

“As a caregiver for my parents during their struggle with Alzheimer’s disease, I know personally the level of responsibility put on family caregivers and the burdens, which can be created by federal process and procedure,” said Senator Capito. “Caregivers in West Virginia and across our country put family first and balance multiple priorities at once, which is why we must do all we can to alleviate roadblocks that could delay and even prohibit them from receiving the support they need,” she said. 

Calls for upper Chamber to pass caregiver proposal

At press time, 32 national aging and health care strongly support passage of S 3109.

“Family caregivers are the backbone of our nation’s long-term care system, and they are overwhelmed with their responsibilities and time spent managing their loved one’s care,” said Executive Vice President and Chief Advocacy and Engagement Officer Nancy LeaMond. “The Alleviating Barriers for Caregivers Act could help save family caregivers valuable time and reduce their stress by making it easier to navigate resources, eligibility, benefits, and health systems when providing care, she says.  

“Our concern is that these federal caregiver programs are so complicated, they become virtually inaccessible, discouraging family and friends from providing caregiving services. The ABC Act is the first step to holding CMS and SSA accountable for eliminating these barriers to caregiving so people with intellectual and developmental disabilities can live their lives in the community,” said Robin Troutman, Deputy Director at National Association of Councils on Developmental Disabilities.

“The Rosalynn Carter Institute for Caregivers (RCI) supports the Alleviating Barriers for Caregivers Act. Far too often family caregivers are faced with burdensome administrative obstacles in accessing the resources and supports to which they’re due. As system fragmentation is a significant component of caregiver strain, we commend this important first step to better streamline, simplify, and coordinate access across federal programs, said Dr. Jennifer Olsen, CEO of the Rosalynn Carter Institute for Caregivers.

“Being a caregiver to someone living with Alzheimer’s is already an incredibly difficult and emotionally draining job. When you layer on top of it the daunting task of navigating our country’s complex healthcare coverage system, it can become downright overwhelming for even the smartest person. This bill is an important step toward making it easier for caregivers to fully advocate on behalf of their loved ones to ensure they have access to the diagnostic, pharmaceutical, and treatment services they need, said George Vradenburg, Chair and Co-founder of UsAgainstAlzheimer’s.

Congress must come together to support caregivers

Family caregivers across the national  provide 36 billion hours of unpaid care, valued at an estimated $600 billion annually. In the Ocean State, 121,000 family caregivers provide 113 million hours of unpaid care valued to be 2.1 billion. These caregivers need assistance from Congress to access resources to provide care to their loved ones. 

There is 372 days left until the 2024 president elections. AARP research tells us that a majority of voters, 78%, are either a current, past, or future family caregiver. Over 70% of voters across the political spectrum say they would be more likely to support a candidate who backed proposals to support family caregivers, such as a tax credit, paid family leave, and more support and respite services.

Hopefully, more Senators will see the value of S. 3109 and quickly become cosigners. It’s time the newly elected House Speaker Mike Johnson (R-LA) and his caucus put the need of their caregiver constituents first, over their political priorities, and support passage of a House companion measure. The House Problem Solvers Caucus can be instrumental in pushing for the introduction and passage. Time will tell.

For more information about caregiving, go to www.aarp.org/caregiving.

For a copy of the 2022 National Strategy to Support Family Caregivers, go to https://acl.gov/sites/default/files/RAISE_SGRG/NatlStrategyToSupportFamilyCaregivers.pdf