Unpaid Caregiving Takes a Toll on Retirement Security

Published in RINewsToday on August 10, 2026

Unpaid family caregiving is often viewed as a labor of love. But a new national study shows that caring for a loved one can also come with a significant financial price — one that may well follow caregivers right into their retirement years.

On July 22, the Washington, D.C.-based Employee Benefit Research Institute (EBRI), a nonprofit, nonpartisan research organization that studies employee benefits, released its 42-page report, “Caregivers and Retirement: Findings From the 2026 Retirement Confidence Survey.” The report examines how unpaid caregiving affects financial security, employment, health and retirement planning.

Not surprisingly, the findings paint a very troubling picture. Caregivers are more likely than non-caregivers to report lower financial assets, debt problems, poorer health and less confidence about having enough money to live comfortably throughout retirement.

The report is part of a broader caregiving project being developed by EBRI and Greenwald Research. The goal is to provide employers with educational resources and strategies to help employee caregivers better prepare for retirement while managing the all-consuming demands of caring for a family member.

A Growing Retirement Security Issue

The 2026 Retirement Confidence Survey, now in its 36th year, found that nearly three in 10 Americans age 25 and older are unpaid caregivers.

For purposes of the study, caregivers were defined as people who provided unpaid care for an adult or child during the previous 12 months in a non-institutional setting and helped the care recipient with at least one activity of daily living or instrumental activity of daily living.

The findings were discussed during a July 22 EBRI and Greenwald Research webinar featuring Craig Copeland, EBRI’s director of wealth benefits research; Lisa Greenwald, CEO of Greenwald Research; Kerry Sette of Voya Financial; and Cynthia Hutchins of Bank of America Merrill Lynch.

Throughout the discussion, the message was quite clear: caregiving is not simply a family or health issue. It must also be viewed as a retirement security issue.

“Caregiving is often discussed as a family, health or workplace issue, but this research shows it is also an important retirement security issue,” Copeland and Greenwald said in announcing the report.

“Caregivers are doing many of the same planning activities as non-caregivers, but they are more likely to face debt, lower assets, mental health strain and lower confidence about their long-term financial future,” they noted.

The 2026 report builds on an earlier 2023 EBRI/Greenwald Research study that also examined caregivers. Comparing the two surveys, Copeland said caregivers continue to fall behind their non-caregiving counterparts.

Taking a Look at the Key Findings

Caregiving can take a toll on health. Only 36% of caregivers said their health was excellent or very good, compared with 45% of non-caregivers. Caregivers were also less likely to have household incomes of $75,000 or more — 53%, compared with 62% of non-caregivers. Women represented 61% of caregivers, compared with 47% of non-caregivers. 

Caregivers have fewer financial resources to build wealth. Thirty-four percent of caregivers reported having less than $10,000 in savings and investments, compared with 25% of non-caregivers. Debt was also more likely to be a problem: 69% of caregivers said debt was a problem, compared with 57% of non-caregivers.

Caregiving can hit the family wallet. Thirty-four percent of caregiving workers and 20% of caregiving retirees said they provide financial support to the person they care for. In addition, 20% of caregiving workers and 15% of caregiving retirees said they had taken on new or additional debt as a result of caregiving.

The emotional toll is substantial. Sixty-four percent of working caregivers and 52% of caregiving retirees said caregiving had negatively affected their mental health. Among working caregivers, the financial tasks most affected were saving for emergencies (56%) and working the hours they wanted or needed to work (54%).

The financial pressures of caregiving can make it harder for people to prepare for their own futures. Caregivers in both the lower- and upper-income groups were more likely than non-caregivers with similar incomes to lack confidence that they would have enough money to live comfortably throughout retirement.

Among households earning less than $35,000, 75% of caregivers said they were not confident they would have enough money for retirement, compared with 55% of non-caregivers. Among households earning $75,000 or more, 32% of caregivers lacked confidence, compared with 23% of non-caregivers.

Caregivers were also more likely to worry about the impact of an economic recession, rising housing costs, and having to provide care for a loved one with a health condition or disability.

When Caregiving Changes Retirement Plans

For some caregivers, the demands of providing care can even change when they leave the workforce.

The survey found that caregiving retirees were more likely than non-caregiving retirees to have retired earlier than planned. Among those who retired earlier than expected, caregivers were more likely to say they did so because they had to care for a spouse or another family member.

Caregiving retirees were also more likely to describe their current retirement lifestyle as fair rather than excellent. They were more likely to say their retirement lifestyle was not what they had envisioned and that several retirement expenses were higher than expected.

Higher-income caregivers also lagged behind non-caregivers with similar incomes in completing several important retirement-planning tasks, including calculating how much they needed to save, saving for retirement, planning for emergency expenses and estimating future health care costs.

The report points to a number of ways employers can help working caregivers, including flexible scheduling, remote-work opportunities, caregiver resources, education and benefits designed to reduce some of the financial pressures associated with caregiving.

Lisa Greenwald, CEO of Greenwald Research, says caregiving creates financial, health and social-emotional pressures at different stages of life — while people are working, preparing for retirement and after they retire.

For employers, she says, recognizing these challenges can help them provide the flexibility and support caregivers need to remain productive at work while continuing to save for retirement.

Having Their Say…

Washington insider Dan Adcock, director of government relations and policy for the National Committee to Preserve Social Security and Medicare, agrees with the report’s findings about the financial and personal pressures facing caregivers.

Unless unpaid family caregivers receive greater support through respite care or paid Home- and Community-Based Services, Adcock says, caregiving responsibilities can take a toll on their physical and emotional health.

He also points to another concern not fully captured by the EBRI survey: working-age caregivers who leave the workforce to care for a loved one can end up with lower Social Security benefits because the program’s benefit formula is based in part on a worker’s earnings history.

That is one reason Adcock supports a Social Security caregiver credit.

He urges Congress to pass the Social Security Caregiver Credit Act of 2026 (S. 4396/H.R. 8490). The legislation was introduced by Sen. Chris Murphy (D-Conn.) and Sen. Kirsten Gillibrand (D-N.Y.) in the Senate, with Rep. Brad Schneider (D-Ill.) introducing the House companion measure.

The legislation would allow qualifying unpaid caregivers to receive up to five years of deemed wages for purposes of calculating Social Security benefits. To qualify, a caregiver would generally have to provide at least 80 hours of care per month to a dependent child under age 12 or a chronically dependent relative.

The bills remain in committee. S. 4396 was referred to the Senate Finance Committee, while H.R. 8490 was referred to the House Ways and Means Committee.

The issue is particularly important here in Rhode Island, where thousands of family members provide unpaid care that helps loved ones remain in their homes.

Maureen Maigret, policy advisor with the Senior Agenda Coalition of Rhode Island (SACRI), says the EBRI findings confirm what advocates have been seeing for years.

“Caregiving takes a significant physical, emotional, and financial toll on our unpaid caregivers,” she says.

Maigret notes that Rhode Island caregivers provide thousands of hours of unpaid care that can allow people to remain at home longer, potentially delaying or avoiding more costly nursing facility care.

SACRI is pushing for policies to strengthen support for caregivers, including expanding the state’s Temporary Caregiver Insurance program, adequately funding respite services, and creating a state caregiver tax credit.

Rhode Island has already taken steps to support working family caregivers through its Temporary Caregiver Insurance program. Aging advocates, however, continue to push for expanded eligibility and additional weeks of paid leave.

Taking a Close Look at AARP’s Caregiver Study

After a media briefing last year, AARP and the National Alliance for Caregiving (NAC) published a reportCaregiving in the U.S. 2025, that warns of a looming crisis that will impact America’s 63 million caregivers, an increase of 45% over the past decade. The report, released June 24, 2025, noted that caregivers are at a “crisis point.” Nearly half reported major financial problems, one in five reported fair or poor health, and more troubling, nearly a quarter felt completely alone.

One in five caregivers report poor health; a quarter are taking on debt due to caregiving. Half report negative financial impact due to caregiving, and one in five cannot afford basic needs like food.

EBRI’s new survey adds an important retirement-focused perspective to an ongoing national conversation about unpaid caregiving.  The research shows how caregiving can affect not only today’s household decisions but a person’s long-term financial security.

And that may well be the most important takeaway from the new EBRI report.

Millions of Americans step up to the plate when a parent, spouse, child or other loved one needs help. They do it because it is what families do. But caregiving should not mean that the person providing that care has to sacrifice his or her own financial future.

Like AARP’s 2025 caregiver study, EBRI’s report examines how caregiving responsibilities are associated with retirement confidence, debt, savings, financial stress, workplace needs and long-term retirement preparation among workers and retirees.

The EBRI research, complementing AARP’s definitive caregiving research, makes it clear that unpaid caregiving carries consequences that can extend far beyond the time spent providing care. For many Americans, the price may be paid not only today, but again when they reach retirement.

A Final Note…

EBRI’s Copeland points out: “The survey results clearly show caregiving has significant impacts on both workers and retirees, not only now but in the future as well. While you may not be a caregiver currently, if you have parents or children, you are likely to be one in the future. Thus, preparing for this need, or better handling current caregiving needs, can make a huge difference in retirement preparations and current expenses. Caregiving can take a toll on all aspects of life, so anything individuals can do to plan for it or better educate themselves can foster a caregiver’s well-being, both financially and emotionally.”
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The 2026 Retirement Confidence Survey was conducted online from January 2 through January 28, 2026, among 2,544 Americans age 25 and older. It included a general population sample of 2,052 people — 1,007 workers and 1,045 retirees — plus an oversample of 492 caregivers. The final analysis included 701 caregiving workers and 305 caregiving retirees.

The 2026 survey was supported by the American College of Financial Services, American Funds/Capital Group, Bank of America, Bright Horizons, CareScout, Edward Jones, Empower, Fidelity Investments, FINRA Foundation, Jackson National, J.P. Morgan Chase & Co., Mercer, Nationwide, Principal Financial Group, Protective, Prudential/PGIM, T. Rowe Price and Voya Financial.

To watch the EBRI Webinar and for a copy of the slides, go to https://www.ebri.org/publications/webinars/past-webinars

To read AARP’s 2025 Caregiver Study, go to Caregiving in the U.S. 2025 – AARP Research Report

Art Can Jump Start the State’s Sagging Economy

Published in the Pawtucket Times, February 22, 2013

Rhode Island may be known as the nation’s littlest State. But if Governor Lincoln D. Chafee, Senate President Teresa Paiva Weed, and House Speaker Gordon D. Fox have their way, the Ocean State may be called the “State of the Arts.”

Even with the occurrence of a massive blizzard just two days before the February 11th Art Charrette, 110 art supporters (including 10 Senators), from government, the business community, academia and the nonprofit sector, did not let huge snow piles in some spots up to two feet high keep them off the streets. They traveled to Fidelity Investments headquarters in Smithfield to tell top State elected officials how art and creativity can rev up Rhode Island’s sputtering economic engine.

Fidelity Investment’s 500-acre campus off Route 7 features three buildings, including a 577,000-square-foot office building. It was the perfect place to talk seriously about art. Carol Warner, who has served as Fidelity’s Art Curator for more than 30 years, says her company has purchased over 1,200 pieces of art from 433 Rhode Island artists. The collection is showcased throughout the campus and is installed on the surrounding grounds. Warner enthused that the art “both enhances the work space and invigorates its employees,” in her comments to the gathered legislative and arts and cultural leadership attendees.

During her opening remarks Warner noted that Fidelity Investments supports local artists in Rhode Island and wherever they have a presence at nine regional campuses and 180 investment centers throughout the nation.

The Political Stars Align for Arts

Chafee, whose demonstration program put murals on four visible highway retaining walls and abutments along Interstate 95, noted that staggering statistics “underscore the plain fact that the arts are clearly one of Rhode Island’s premier [economic] assets.” He cited a New England Foundation for the Arts study, published last fall that found that 2009 direct and indirect spending by the non-profit arts sector totaled $673 million and supported nearly 8,000 jobs.

According to the Governor, just last year, a Washington, D.C.-based Americans for the Arts study found over 12,000 Rhode Island jobs were created in both the State’s private and nonprofit art sectors. The economic impact in Providence alone was greater than that of Delaware, Hawaii, South Dakota and New Hampshire…states with larger populations, he said.

“The arts and culture are also deeply intertwined with our state’s appeal as a tourism destination. They make Rhode Island a place where people want to spend time and – quite frankly – spend money,” added Chafee, whose proposed 2014 budget provides additional funding for the State’s Tourism Division.

“Rhode Island’s creative sector encompasses over 3,248 arts-related businesses and jobs that employ more than 13,000 individuals,” stated Paiva Weed, who spear headed the efforts to organize this idea gathering session. “Despite the lingering effects of the recession on most sectors of the economy, the creative sector in Rhode Island added 770 jobs and enjoyed a 16 percent growth between 2011 and 2012.”

Fox acknowledged the fact that Rhode Island needs to play to its strength in the arts, an observation that he garnered from a speaker at a recently held economic development workshop at Rhode Island College.

Don’t expect the final report generated from the Art Charrette to sit on a State bureaucrat’s dusty shelf. Fox, whose chamber initially hammers out the State’s budget, asserted that he will work closely with the Senate and Governor to review the final suggestions to ensure that arts are a key component of Rhode Island’s state’s economic turnaround.

For Executive Director Randy Rosenbaum, who has led the State’s Council for the Arts for 18 years, the gathering was a “pinch me” moment. For years his mantra has been “the arts are important for the economic vitality of Rhode Island.” With Chafee’s opening affirmation that Paiva Weed and Fox are “unified” in their belief that the arts are key to economic growth in Rhode Island, the State’s Arts Czar saw all the planets in alignment for bringing his “arts and economic vitality” mantra closer to a political reality.

RISD President John Maeda came bringing his greetings, too. Maeda, a designer, computer scientist, academic and author, took the opportunity to announce the February 14th, launching of STEM to STEAM, a new RISD-led initiative to add Art and Design to the national agenda of STEM (Science, Technology, Engineering, Math). Co-chaired by Rep. Suzanne Bonamici (D-OR) and Rep. Aaron Schock (R-IL), the bipartisan caucus focuses on furthering the incorporation of art and design into STEM education for American students. The new Congressional Caucus also includes Rep. David Cicilline (D-RI) and Jim Langevin (D-RI).

Neil Steinberg, President of Rhode Island Foundation, views arts as a “twofer” with the jobs that the sector creates and the quality of life for the people who come here and for those who stay. He notes that his group, one of the oldest and largest community foundations in the nation and the only community foundation serving the Ocean State, is committed to building the arts sector,

Break Out Session Generates Ideas

With the larger group split into three discussion groups, more than 85 suggestions were compiled by the Art Charrette organizers.

One suggestion was to create a branding campaign to establish an art identity for Rhode Island. It was recommended that state policy makers make the most of the State’s small size and high density of artists and art groups. Visual branding of arts districts along with art trails with eating establishments would promote incredible art work and great restaurants.

It was noted that the State is already known as a design State. Given the presence of RISD and other education institutions, Rhode Island is in a position to become a leader in the nation’s design community. The State might easily become a workshop for the arts and industry.

Strategically use the State’s marketing budget for arts branding and to promote the tax free purchase of one-of-a-kind art in the certified Arts Districts throughout the Ocean State.

It was suggested that all municipalities incorporate the arts in their Economic Development Comprehensive Plan. All Cities and Towns should have an arts advocate who specifically serves as the person responsible for economic development activities.

Use the State’s taxing and bonding authority to advance the arts in Rhode Island. Rhode Island has nine legislatively created arts districts. Expand this tax policy to every city and town.

Also, better data must be collected. One recommendation called for the compiling of the true economic impact that includes not just data from restaurants, but from hotels, parking, art and entertainment activities, too.

Next Steps…

For this columnist: For more than 14 years I have seen the arts revitalize Pawtucket’s stagnant economy, bringing new life to its mills and tax dollars into the City’s coffers. Yes, redeveloped mills increase property values that bring in more property tax dollars to run a cash strapped city.

It is clear from last week’s Arts Charrette, the state’s political leadership now see the arts as a key sector in bringing dollars to the State’s coffers by attracting more tourists and convention business. Leadership must now sift through the dozens of suggestions and craft a comprehensive arts policy to be funded in Rhode Island’s 2014 Budget. If lawmakers walk their talk, Rhode Island truly will become the nation’s Art State, where artists make a living with their creative talents and Rhode Island becomes the newly emerging renaissance State.

For a detailing of Art Charrette suggestions, go to http://www.youtube.com/watch?v=XMx45FXkVEs&list=UUMCPC8hUqIQQeq107tm5VAQ

Herb Weiss, LRI ’12, is a freelance writer who covers aging, health care and medical issues. He promotes the arts by serving as Pawtucket’s Economic & Cultural Affairs Officer.