Tag Archives for Alzheimer’s Association

Senate Aging Committee Seeks Renewal of Older Americans Act 

Published in RINewsToday on November 10, 2025

 With over 359 days until the mid-term elections, the U.S. Senate Select Committee on Aging held a hearing last week to emphasize the need for reauthorizing the Older Americans Act (OAA), a crucial piece of federal legislation that expired the previous year. The hearing highlighted the key role OAA plays in assisting Americans living with age-related diseases, such as Alzheimer’s and Parkinson’s, as well as their caregivers.

Last reauthorized in 2020, the OAA expired during the 118th Congress. S. 4776, introduced by Senator Bill Cassidy, M.D. (R-LA), chair of the Senate Health, Education, Labor, and Pensions (HELP) Committee, and Senator Bernie Sanders (I-VT), the committee’s ranking member, passed the Senate by unanimous consent last year. However, the House failed to pass a companion measure due to unrelated political disagreements.

Senate Bipartisan Bill Introduced to Reauthorize the OAA

On June 18, 2025, Chairman Cassidy, alongside nine co-sponsors, reintroduced the OAA Reauthorization Act of 2025 (S. 2120). This 91-page bill would authorize new funding a strengthen services for older Americans. The bipartisan bill was referred to the Senate HELP Committee the day it was introduced, where hearings, markups, and a committee vote are expected. If approved, it will move to the full Senate. As of press time, a companion bill had not yet been introduced in the House.

 Chairman Cassidy’s co-sponsors include Senators Bernie Sanders, Kirsten Gillibrand (D-NY), Rick Scott (R-FL), chair of the Senate Special Committee on Aging, Lisa Murkowski (R-AK), Tim Kaine (D-VA), Ben Ray Luján (D-NM), Ed Markey (D-MA), Markwayne Mullin (R-OK), and Susan Collins (R-ME).

 Although S. 2120 closely mirrors last year’s S. 4776, there are notable differences. Specifically, it would reauthorize OAA programs through FY 2030 and increase funding by 18% over the next four years. It also includes measures to promote innovation, strengthen the Long-Term Care Ombudsman Program, and expand the National Family Caregiver Support Program. Additionally, the bill aims to improve services for Tribal elders and older adults with disabilities, ensuring these populations remain active and supported in their communities.

 S. 2120 would also address elder abuse by establishing a clearinghouse for best practices, focusing on legal and protective services to strengthen state ombudsman programs, adult protective services, and related legal supports.

 Senate Aging Committee Hearing Highlights Call for S. 2120 Passage

 On November 5, 2025, Chairman Rick Scott (R-FL) and Ranking Member Kirsten Gillibrand (D-NY) of the Senate Aging Committee held a full committee hearing titled “Renewing Our Commitment: How the Older Americans Act Uplifts Families Living with Aging-Related Diseases.” The hearing, which took place in SD-216 at 3:30 p.m., focused on how OAA-funded programs provide critical support to millions of Americans with Alzheimer’s and Parkinson’s disease. The goal of the hearing was to push for the passage of S. 2120 with bipartisan support.

In his opening statement, Chairman Scott emphasized the importance of reauthorizing the OAA to ensure that programs and services keep pace with a rapidly growing aging population—one increasingly affected by Alzheimer’s and Parkinson’s diseases, placing greater demands on caregivers.

“More than 7 million older Americans are living with Alzheimer’s disease, and nearly 1 million are affected by Parkinson’s,” said Scott. “Behind these numbers are caregivers—a husband, a wife, a son, or a daughter—providing unpaid, around-the-clock care.”

“Every service made possible by this law [OAA] represents compassion made real,” he added.

Ranking Member Gillibrand opening statement pointed out that most people are unaware of the OAA’s existence, despite the fact that one in six older adults benefit from its programs. “In 2024, the OAA generated 3.39 times its investment in community value and taxpayer savings. Through efficient service delivery, older adults avoided 1.9 million days of long-term hospital stays and institutional care,” she said.

“It’s not the time to take our foot off the gas,” Gillibrand continued. “Even though there have been minimal interruptions in service delivery since the Act’s authorization expired last year, it is vital that we pass a reauthorization this fall to modernize the statute and reflect the evolving needs of older adults.”

The three witnesses at this Senate Aging Committee hearing shared how OAA-funded services—such as adult day centers, home-delivered meals, caregiver support, and specialized exercise programs—helped them to maintain their health, and independence. They pointed out that these community-based services not only provided caregivers with the critical support, more important they were cost-effective alternatives to more costly nursing home care.

Key Testimonies Highlight the Impact of OAA Programs

Erick Montealegre, a volunteer community educator for the Alzheimer’s Association and a caregiver for his father, who was diagnosed with mild cognitive impairment, told the panel that adult day care centers and home-delivered meals—funded by the OAA—had made a “world of difference” in his father’s quality of life, providing essential respite care for his family.

Montealegre highlighted the importance of these programs being culturally and linguistically appropriate. His 84-year-old father, who had lost the ability to speak English and reverted to speaking his native Spanish, benefitted greatly from services that met his language needs.

“This hearing is especially meaningful to me because it’s taking place in November, National Family Caregivers Month,” Montealegre noted. In conclusion, he said, “Reauthorizing and strengthening the Older Americans Act is an investment in our families, our dignity, and our community.”

Steve Sappington, who has lived with Parkinson’s disease for the past ten years, explained that an OAA-supported exercise program, Rock Steady Boxing, has significantly slowed the progression of his symptoms. Recounting his experiences in living with Parkinson’s, he noted that he went eight years without having to increase his Parkinson’s medication after starting the boxing program. His neurologist called it a “miracle” and said he had never seen anything like it before.

“Programs like ours are possible because of the foundation laid by the OAA,” Sappington said. “Local OAA-funded services—such as transportation, congregate and home-delivered meals, caregiver support, adult day services, and other vital programs—make it possible for older adults like me to stay active and connected.” He urged Congress to reauthorize the OAA to ensure continued support for these essential services.

However, Sappington also pointed out that many older adults remain unaware of the services available to them, emphasizing the need for culturally competent outreach, particularly to low-income, rural, and minority communities.

 Duana Patton, Chief Executive Director of the Ohio District Five Area Agency on Aging and Board President of USAging, emphasized that Area Agencies on Aging (AAAs) serve as the “front door” to a network of local, community-based services. She argued that the OAA represents a cost-effective investment for the federal government, as its programs help older adults remain in their communities, which is far less expensive than placement in costly nursing homes.

 “The longer older adults can successfully age at home, the better it is financially for families and the federal government,” Patton explained. Having worked in the AAA field for over 31 years, she cited the example of “Ms. Gray,” a client who, after receiving in-home personal care and meals funded by the OAA, no longer required hospital readmissions due to the significant improvements in her health.

The witnesses stressed that the OAA needs to be promptly reauthorized, strengthened, and modernized to provide local agencies with the flexibility required to meet the evolving needs of their communities.

 A Final Note…

“We hope the Senate’s OAA reauthorization bill (S. 2120) can move forward soon, either under Unanimous Consent or attached to another legislative vehicle,” says Amy Gotwals, Chief of Public Policy and External Affairs at USAging. “While the House has yet to announce a specific plan, USAging, along with other aging organizations, is advocating for a bipartisan, bicameral bill that will pass before the end of the year.”

Gotwals notes that, although the reauthorization is important, it is not immediately necessary to ensure continued funding for the OAA. “President Trump’s budget, along with both the Senate and House FY 2026 bills, protect all but one OAA program—the Title V Senior Community Service Employment Program. If there’s a year-long Continuing Resolution, all programs will be protected,” she adds.

 “The shutdown remains our biggest challenge right now,” Gotwals concludes.

National Family Caregivers Month: State-by-State Roadmap on Assisting Caregivers

Published in RINewsToday on November 3, 2025

Over three months ago, AARP and the National Alliance for Caregiving (NAC) released Caregiving in the US. 2025, warning of a major crisis facing America’s 63 million caregivers. The 133-page report, released on July 23, noted a 45% increase in the number of caregivers over the past decade and concluded that caregivers are at a “crisis point.”

The first Caregiving in the US report, released in 1997 by AARP and NAC, is widely regarded as one of the most authoritative data sources on family caregiving in America. Subsequent editions followed in 2004, 2009, 2015, 2020, and now 2025—each providing updated information on caregiver demographics and the evolving realities of caregiving in America.

A First-of-its-Kind State-by-State Data Analysis

Building on the national Caregiving in the US 2025 report, AARP and NAC recently unveiled a first-of-its-kind state-by-state caregiving data analysis. The 248-page report reveals how much local factors—down to your community or ZIP code—shape the caregiving experience, exposing deep financial and emotional challenges confronting millions of family caregivers.

Researchers found that state policy choices make a measurable difference: states offering stronger supports such as paid leave, respite care, and health system integration report far better outcomes for caregivers.

Rhode Island was among 19 states without sufficient sample sizes to support detailed analysis beyond prevalence and the estimated number of caregivers. For these states, only those metrics were included.

According to AARP and NAC, the report identifies a consistent pattern: states with the highest caregiving prevalence often have the fewest supports. Geography, policy, and community resources together determine whether families can manage care—or collapse under its weight.

The takeaway: where you live often determines whether you get relief or reach a breaking point.

With 63 million family caregivers nationwide—nearly one in four adults—the report underscores the urgent need for coordinated policy solutions at both the federal and state levels.

“Caregivers are the invisible backbone of our broken long-term care system and economy, and too many are paying the price out of their own pockets—risking financial security by taking on debt, using up savings, and leaving bills unpaid,” said Nancy LeaMond, AARP’s Executive Vice President and Chief Advocacy & Engagement Officer, in an Oct. 28 statement announcing the report. “This new data offers the clearest picture yet of America’s caregivers and a roadmap for the change they urgently need.”

AARP is urging Congress and state legislatures to adopt commonsense policies that help caregivers save time and money—and get the support they need.

“These state-by-state disparities expose how policy choices determine whether families thrive or collapse under caregiving responsibilities,” said Jason Resendez, President and CEO of NAC. “When financial strain hits 59% of family caregivers in Georgia compared to just 34% in Minnesota—meaning where you live can double your risk of economic hardship—it’s clear that patchwork state solutions aren’t enough.”

Rhode Island Specifics

Ahead of National Family Caregivers Month, AARP Rhode Island released its state-level caregiving data. The findings show that 23%—approximately 206,000 Rhode Island adults—provide largely unpaid care to parents, older spouses, and other loved ones. The data underscores the urgent need for legislative action to better support these caregivers.

“When a loved one needs help, family members, friends, and neighbors step up—that’s what we do,” said Catherine Taylor, AARP Rhode Island State Director. “But too often, caregivers carry this responsibility alone, putting their finances, health, and jobs at risk. As our state ages, the demand for care will only grow. With this new data and ahead of the 2026 legislative session, AARP Rhode Island is urging policymakers at every level to act now.”

AARP Rhode Island estimates that family caregivers provide $2.1 billion in unpaid care each year, enabling loved ones to remain at home and in their communities—where they want to be. Caregivers routinely handle a wide range of tasks, from bathing and meal preparation to managing medications and medical procedures, often without formal training.

Key Rhode Island caregiving statistics:

·         99% assist with instrumental activities of daily living (meal prep, administering medicine, managing finances)

·         65% assist with personal care (bathing, dressing, feeding)

·         55% perform medical or nursing tasks

·         40% provide high-intensity caregiving (many hours and complex care)

·         19% deliver at least 40 hours of care per week

The personal toll is significant:

·         80% of caregivers use their own money to meet their loved ones’ needs—averaging $7,200 annually, or 25% of their income

·         44% report financial setbacks, including debt, depleted savings, or difficulty affording food and medicine

·         70% juggle full or part-time jobs, with many reducing hours or leaving the workforce—jeopardizing their long-term financial security

A Call to Action

A dysfunctional Congress and state legislatures must directly confront the skyrocketing number of caregivers in America.

AARP and NAC along with the Alzheimer’s Association are calling on policymakers to strengthen financial supports—starting with federal legislation such as the Credit for Caring Act, which would provide a tax credit of up to $5,000 for working caregivers, and the Lowering Costs for Caregivers Act, which would expand flexible spending and health savings account uses.

States can also act by ensuring Medicaid home- and community-based care options are accessible, allowing caregivers to earn compensation, integrating caregiver recognition and training into the health care system, and adopting best practices from top-performing states.

In Rhode Island, advocacy groups including AARP, the Senior Agenda Coalition of RI (SACRI), and the Alzheimer’s Association Rhode Island Chapter have made significant progress. Rhode Island’s Temporary Caregiver Insurance (TCI) program—now offering eight weeks of paid leave at 75% wage replacement—helps family caregivers maintain income stability while providing care.

“In continuing our ongoing advocacy on behalf of caregivers, during the 2026 Rhode Island General Assembly session SACRI will prioritize legislation introduced last year — the creation of a state caregiver tax credit and advocate for the inclusion of respite services for adults under the Medicaid program,” notes Maureen Maigret, SACRI Policy Advisor.

Maigret points out that a 2021 AARP study found the average caregiver spends $7,242 out of pocket each year caring for a loved one. “It’s a huge financial burden for many caregivers, especially as the cost of living continues to rise and 40% of caregivers report household incomes of $50,000 or less,” she says, referencing the 2021 Rhode Island Behavioral Risk Factor Survey. “A recent state survey also found that short-term respite is one of the most commonly requested services that caregivers say would help support their needs.”

“Supporting caregivers is not just compassionate—it’s smart policy. In 2024, Rhode Island spent $614 million in Medicaid costs related to dementia. By strengthening caregiver supports—like respite services, dementia-specific training, and care navigation—we can help families keep loved ones at home safely for longer and avoid more costly levels of care,” says Donna McGowan, Executive Director, Alzheimer’s Association Rhode Island Chapter.

“Thoughtful policy and targeted funding is not only the right thing to do—it’s a wise investment in the health and future of our state,” notes McGowan.

To get a copy of Caregiving in the US 2025 go to https://www.aarp.org/pri/topics/ltss/family-caregiving/caregiving-in-the-us-2025/

To get a copy of Caregiving in the US 2025: Caring Across the States, go to https://www.aarp.org/pri/topics/ltss/family-caregiving/caregiving-in-the-us-2025-caring-across-states/

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To access free caregiver tools and local resource guides, visit:

·         AARP Rhode Island “Guide for Caring for Older Adults in Rhode Island helps family caregivers access key programs, services, and agencies right in their community.

·         AARP’s online Caregiving Hub has tools and information available in English and Spanish.

·         AARP and United Way Worldwide’ s 211 program connects Rhode Island family caregivers to essential local services for themselves and their loved ones via the 211 helpline.

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