Senior Agenda Coalition of RI zeros in on key aging legislation 

Published in RINewsToday on May 30, 2022

As the General Assembly winds down, the Senior Agenda Coalition of Rhode Island (SACRI) is tracking 16 House and Senate Bills along with FY 24 Budget Articles that have an impact on the state’s senior population. In a legislative alert, SACRI details a listing of 16 House and Senate bills and FY23 Budget Articles relating to care givers, mobile dental services, supplemental nutrition, housing, tax relief and home care worker wages. 

The state’s largest organization of aging groups is focusing and pushing for passage of the following four bills during the upcoming weeks.

SCARI puts on its radar screen S-2200/H-7489 to push for passage. The legislation (prime sponsors Senator Louis DiPalma (D-District 12) and Representative Julie Casimiro (D-District 31), establishes a process which would require Executive Office of Health and Human Services (EOHHS), assisted by a 24-member advisory committee, to provide review and recommendations for rate setting, and ongoing review of medical and clinical service programs licensed by state departments, agencies and Medicaid.  

Meanwhile, DiPalma and Casimiro have also introduced S-2311/H-7180 to require a 24-member advisory committee to provide review/recommendations for rate setting/ongoing review of social service programs licensed by state departments/agencies and Medicaid. The House and Senate Finance Committees have recommended these measures be held for further study.

Ratcheting Up the Pay for Rhode Island’s Home Care Workers

In testimony on April 28th, SACRI’s Executive Director Bernard J. Beaudreau says, “Because payment levels for services have not been updated in years, especially in our current inflation ,levels, the low-pay level of direct care workers has created workforce shortages, impoverished workers and has put at risk our ability to provide proper care for our aging elder population.”

“Shamefully, an estimated 1 in 5 Rhode Island home care workers live in poverty and most have insufficient incomes to meet their basic needs,” says Beaudreau, calling for enactment of this bill to raise the wages of the lowest paid care workers as a top priority. 

S-2200 was referred to the Senate Finance Committee and companion measure, H 7489, was referred to the House Finance committees for review.  After hearings in their respective chambers, both bills are being held for further study. 

At press time, the Rhode Island General Assembly is hammering out its state budget for Fiscal Year 2023, taking effect July 1, 2022, to June 30, 2023.  SACARI calls on the state to make it a budgetary priority to address Rhode Island’s home care crisis.

According to Maureen Maigret, Chair of the Aging in Community Subcommittee of the Long-Term Care Coordinating Council, who also serves SACRI as a volunteer policy adviser and Board Member, says that the Governor’s budget calls for suspending use of an estimated $38.6 million in state funds which, by law, should be used to enhance home and community-based services. This law, says Maigret, is referred to as the “Perry-Sullivan” law after its sponsors.

Maigret calls for these funds to be used to increase home care provider rates so they may be fair and competitive to home care workers and increase rates for independent providers.  Many of these workers are low-income, women, and women of color, she says.

Lowering the property taxes for Rhode Island’s low-income seniors

SACRI also calls for the Rhode Island General Assembly to provide property tax relief for low-income seniors and Social Security Disability Income (SSDI) recipients. As housing costs rise and property taxes increase, more older Rhode Islanders with limited or fixed incomes and those on SSDI are becoming housing tax burdened, says the Providence-based the aging advocacy coalition. 

In SACRI’s legislative alert, Maigret calls for the passage of H-7127 and S-2192, with primary sponsors Representative Deborah Ruggiero (D-District 74) and Senator Cynthia Armour Coyne (D-32), charging that Rhode Island’s property tax relief law needs urgent updating.

Rhode Island’s Property Tax Review Law, sometimes referred to as the Circuit Breaker Law, needs serious updating. Initially the law was enacted to help provide property tax relief for persons aged 65 and over and to those on SSDI, says Maigret.  It is currently available to those with incomes up to $30,000 (set in 1999) and provides a credit or refund up to $415 against a person’s state taxes owed.  Both homeowners and renters are eligible to a apply. 

H-7127 and S-2192 would make hundreds of older Rhode Islanders eligible to participate by increasing the income cap from $30,000 to $ 50,000. Maigret notes that if these bills pass, a person with household incomes of $35,000 who is not eligible now could be eligible to get a refund of up to $850 next year. “These changes would provide direct relief against high property taxes and make Rhode Island more in line with our neighboring states of Connecticut and Massachusetts,” she says.

Finally, Executive Director Beaudreau testified on May 17th before the House Finance Committee, calling for the passage of H-7616, Reinstating the Department of Healthy Aging. “The time is long overdue for the state to re-invest in serving the needs of aging population,” he says, noting that “the state’s total population of 65 years and older has grown by 20% from 152,283 in 2010 to 182,486 today.”

Beaudreau testified that the “data clearly indicates that Rhode Island should be increasing plans, resources and services to meet the need of the state’s aging population, not cutting back.” The state’s budget has not kept up with the growth needed in the Office of Healthy Aging, charged with overseeing the state’s programs and services for older Rhode Islanders. “Additional funding is needed for increasing the Department’s staffing capacity and increasing financial support of Senior Centers serving thousands of older Rhode Islanders every say,” he adds.

But do not forget oral health of seniors, says SACRI.  According to the aging coalition, the importance of accessing quality oral health care in nursing homes is key to a nursing facility resident’s health, well-being and quality of life. Poor oral health care results in a higher incidence of, pneumonia cardiovascular disease diabetes, bone loss and cancer; all situations increasing the frequency of accessing medical care resulting in higher costs. 

Improving oral health care to Rhode Island’s seniors and special populations

SACRI calls for the passage of S-2588 and H-7756, bills that would provide for reimbursement for patient site encounter mobility dentistry visits to be increased to $180 per visit. The state’s reimbursement for mobile dentistry site visits began in 2008, only in nursing homes, but failed to provide funding for dental care in other settings. 

These bills would also expand the availability of this service to additional community-based group homes, assisted living facilities, adult day health and intellectual and developmental disability day programs. Passage of these bills will increase access to special populations who have difficulty in accessing basic dental services.

S-2588, referred to the Senate Finance Committee, was held for further study.  The House companion measure is scheduled to be heard on May 28th at a House Finance Committee hearing. 

Reimbursement for this service has not increased since it was initially funded over 14 years ago and does not cover the cost of delivering this critical service, says SACRI.

SACRI says “Make your voice heard!  Call House Speaker Joseph Shekarchi (401 222-2466) and Senate President Dominick J. Ruggerio (401 222-6555) and your legislative delegation to urge supporting SACRI’s priority legislation. 

To see a listing of SACRI’s 2022 Priority Legislation, go to https://img1.wsimg.com/blobby/go/049a7960-1c2a-4880-afdd-8d1e0e283acc/downloads/SACRI%20Bill%20Tracker%202022.pdf?ver=1653052514912.

For more details about SACRI, go to https://senioragendari.org/

Senior Agenda Coalition of RI honors senior heroes

Published in RINewstoday on May 23, 2022

During Older Americans Month, it was a wonderful time to break bread, catch up with old friends and to recognize outstanding Rhode Island senior advocates. After a two-year hiatus due to the COVID-19 pandemic, over 100 people gathered at the Providence Marriott Downtown to attend the Senior Agenda Coalition of Rhode Island’s [link to members https://senioragendari.org/coalition ] (SACRI) 6th Annual Awards “Celebrating our Senior Heroes,” to honor eight honorees from the government, private and community agency sectors.

Kicking off the awards luncheon, SACRI’s Executive Director Bernard J. Beaudreau, recognized and thanked a slew of elected leaders and state officials in attendance: Lt. Governor Sabina Matos; Secretary of State Nellie Gorbea and Democratic candidate for Governor; Director Maria Cimini, Director, Office of Healthy Aging; Senate President Dominick Ruggerio (D-District 4) who brought Senate Majority Leader Michael J. McCaffrey (D-District 29); Deputy Senate Majority Leaders James Seveney (D-District 11) and Senators Sandra Cano (D-District 9); Josh Miller (D-District 28); House Deputy Majority Leader Laura Carson (D-District 75); House Leader Christopher R. Blazejewski (D-District 2);Terri Cortvriend (D-District 72); Deborah Ruggiero (D-District 74); and Susan Donovan, (D-District 69). Former Senate President Teresa Paiva-Weed, now serving as president of the Rhode Island Hospital Association, also attended.

Beaudreau, assisted by Lt. Governor Sabina Matos, called up each honoree to be presented with a citation and inscribed box. This year’s advocate heroes are: Rhode Island Lawmakers, House Leader Christopher R. Blazejewski, and Senators Mary Ellen Goodwin, and former State Senator Harold Metts, Elder Information Specialist Deborah Burton, SCACRI Volunteer and adviser Doris Stearn Donovan, Former SACRI Executive Director William Flynn, Case Manager Extraordinaire Saul Richman, and Community Organizer Marjorie Waters. (see bios below)

“Taking a moment to acknowledge and thank those who have stood out as leaders, people who made the extra effort for the greater good, whether being an elected leader, or work/volunteer for a community agency is an important part of building our members for change,” says Beaudreau. “These honored heroes inspire and motivate us to step up to the plate and get in the [legislative] game. They fuel us all to do our part,” he says.

Praising SACRI’s Senior Heroes

Lt. Governor Sabina Matos, who co-chairs the state’s Long-Term Care Coordinating Council (LTCCC) also saluted SACRI’s honorees. “Thank you to the awardees & the Coalition for your tireless advocacy & service to older adults in our state,” Matos said.

Rhode Island House Speaker Joseph Shekarchi offered his congratulations.

“I applaud all the award-winners, particularly House Majority Leader Blazejewski and Senate Majority Whip Goodwin. They are well-deserving of this honor due to their demanding work and dedication on many senior issues. They were the respective House and Senate sponsors of a bill passed a few years back which established an individual provider model for home care in Rhode Island. This model gives seniors another option to be cared for at home and remain connected to their communities and families. Older residents prefer home care. Not only is it more comfortable for seniors, but it is also more cost-effective,” he said.

According to Senate President Dominick J. Ruggerio, Sens. Goodwin, Metts and Representative Christopher Blazejewski have been tremendous advocates for Rhode Island’s seniors, and they are incredibly deserving of this recognition.

“Whip Goodwin has long been a champion for seniors and people living with disabilities in our state. Last year, she helped shepherd the Nursing Home Staffing and Quality Care Act into law, a critical step in addressing the resident care crisis in Rhode Island by setting new staffing requirements and minimum standards of care.

In 2018, she helped lead a successful effort to expand home-based care for seniors and the disabled. She also worked to improve reimbursement rates for nursing homes, among many other accomplishments,” said Senate President Ruggerio.

“During his decades in the General Assembly, former Senator Metts was a powerful advocate for the Meals on Wheels program, as well as efforts to restore free bus passes for low-income seniors and people living with disabilities. His work has improved the lives of thousands of Rhode Islanders, including many of the most vulnerable members of our communities. I am forever grateful for his service and his friendship,” notes the Senate President.

Two SACRI Board members also gave thumbs-up to the latest group of SACRI heroes, too.

“It was exciting to see such great participation in the luncheon to honor this year’s senior heroes,” says Maureen Maigret, the Senior Agenda’s policy adviser who serves on its Board. “This year’s heroes included both legislative leaders who have been strong advocates for seniors and members of the community who work to bring dignity, respect, and an excellent quality of life for older Rhode Islanders. I salute them,” says Maigret.

According to Maigret, the state’s legislative leaders have also been responsive to senior advocates, supporting the creating the Aging in Community Subcommittee of the Long-Term Care Coordinating Council promoted by the Senior Agenda Coalition.

“There are a variety of Senior Heroes in our community, and it is important for the Senior Agenda Coalition of RI to pause and give recognition to these selfless individuals. These soldiers for service are truly compassionate people who advocate for legislative changes that will improve “living in place” for older adults/families,” says Vin Marzullo, a well-known aging advocate who served as a federal civil rights and national service administrator. They help organize and promote the use of local elder services (nutrition, health care, and recreational), and they help protect and aid seniors who are victims of abuse,” noted the West Warwick resident, one of the newest Senior Agenda Board Members.

Honorees at SACRI’s Recognition

Deborah Burton expressed her gratitude for being given the prestigious SACRI recognition. “As advocates, we lean into our work to make the world a better place for all of us without necessarily being aware of the ripple effect we have on our community,” says Deb Burton, gerontologist and Executive Director of RI Elder Information, a website providing resources to older Rhode Islanders. “I was extremely honored to be recognized by Senior Agenda Coalition as a Senior Hero! The other nominees are wonderful people tirelessly doing amazing advocacy work and I am proud to be counted among them,” she adds.

Senator Goodwin stated that she “felt humbled to be included among such a distinguished group of honorees, especially my friend Harold Metts. This award is incredibly special to me, and to receive it from an organization as vital and esteemed as the SACRI is extremely meaningful,” she said, noting that this organization has been an incredible ally in my work and the work of my colleagues, and I know it will continue to be in the future.”

SACRI is an independent and diverse coalition of agency and individual members.  Its mission is to mobilize people to achieve power in order to implement an agenda that improves the quality of life of Rhode Island seniors.  For details about this group, go to https://senioragendari.org/

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Bios of Honorees:

House Leader Christopher R. Blazejewski (D-District 2) — For over 12 years, Rep. Blazejewski has championed environmental protection, education, civil rights, senior services, health care, and economic opportunity for working families. Among the senior issues he has advocated for over the years, Blazejewski worked tirelessly to pass legislation creating an Independent Provider (IP) program for home care in Rhode Island. That innovative program is helping expand the home care workforce. He also helped win its continued funding. Responding the COVID’s impact on nursing home residents, he helped pass legislation raising quality standards for nursing homes. He again worked with the Senior Agenda Coalition to help pass the Nursing Home Safe Staffing and Quality Care Act.

Deborah Burton — As Executive Director of RI Elder Info and creator of rielderinfo.com, Burton maintains the most comprehensive, expert-curated, multilingual resources for Seniors, Caregivers and Professionals in Rhode Island. She is the creator and host of Friday Friends-a weekly livestream and podcast and serves as Master of Ceremonies for RI Elder Info’s Virtual Senior Resource Fairs, annual Calling All Veterans Day and annual Calling All Women Warriors.

For over 30 years, Burton has been a strong advocate for aging independently, in the community of our choosing, surrounded by those that we care for and who care for us. She has provided outreach and education to the community on how to achieve these goals.Doris Stearn Donovan

Doris Stearn Donovan — The deputy director of the Rhode Island Foundation has become a powerful advocate for older seniors. During SACRI’s 2020 Strategic Plan sessions, Donovan urged that in the years ahead the organization work harder to combat ageism, especially discrimination toward people over age 75. Donovan has an impressive career. She was valedictorian of her class at Bown; an expert in educational-program evaluation. She has served also served on many boards including Children’s Friend and the George Wiley Center.

William F. Flynn – Under his leadership, hundreds of older Rhode Islanders have engaged in successful citizen action to win public policy changes over the years. Flynn served as served as SACRI’s Executive Director from 2008 to early 2022. Prior to joining the Coalition, he held leadership positions at the RI Community Food Bank, George Wiley Center, and Urban League of Rhode Island. During Flynn’s tenure at SACRI, the organization achieved important wins. These included: Permanent state funding for the No-Fare Bus Pass Program for seniors and persons with disabilities; Increasing annual funding for Meals on Wheels and Senior Centers; Higher pay for home health care workers; Raising the Bar legislation for increased staffing and pay increases for direct care providers in nursing homes; and, Increasing eligibility for moderate income seniors for home care cost-share options.

Senator Maryellen Goodwin — With over 36 years in the Senate under her belt, the  Rhode Island Senate Majority Whip, the third-ranking member of the Senate Leadership, has been a fierce advocate and effective advocate for seniors in the Senate. Last legislative session, the Senator helped to enact the Nursing Home Staffing and Quality Care Act into law, setting new staffing requirements and minimum standards of care.

In 2018, she also pushed to expand home-based care for seniors and the disabled along with working to  improve reimbursement rates for nursing homes.

Senator Harold Metts – After serving as State Representative from 1984 to 1998, Metts would later win a seat in the upper Chamber in 2004, serving until 2020. Metts. Served as President, vice president and twice Secretary of The Rhode Island Black Caucus of State Legislators; and former Secretary/chaplain of The Rhode Island Caucus of Black and Latino State Legislators. During his 30 years in the General Assembly, the Senator was an advocate for the Meals on Wheels program, and for touring free bus passes for low-income seniors and people living with disabilities.

Saul Richman – For several years Richman has worked a case manager for Protective Services for Tri-County Community Action Agency. He also assists seniors to learn more about Medicare benefit. When the state of Rhode Island gets a report that an older adult needs assistance, Richman makes a home visit, gathers information, and works to provide them with appropriate public services. His tireless efforts have helped to resolve issues of countless senior clients. Oftentimes he goes beyond his duties to ensure the safety and security that his clients require, working well beyond his workday scheduled.

Marjorie Waters – Serves as a Community Organizer for the Rhode Island Organizing Project (RIOP), a leadership role that she has held over the past eight years. As to her organizing strategy, Waters listens to what older adults are saying. Her rule is “don’t think you know what you’re going to hear..”  She listens, and then she acts. Before RIOP, Marjorie directed the Westminster Senior Center in Providence after an earlier career in information technology. Waters was a leader in both the Home Care Independence Provider Program and the Raise the Bar coalitions, both of which passed the legislature and have a profound impact of the daily and quality of living situations for those who need homecare and nursing home care.

About the Senior Agenda Coalition:

https://senioragendari.org

The Senior Agenda Coalition is an independent and diverse coalition of agency and individual members. Our mission is to mobilize people to achieve power in order to implement an agenda that improves the quality of life of older Rhode Islanders. We accomplish this through community organizingpublic education and legislative advocacy.

To read all articles by Herb Weiss, go to: https://rinewstoday.com/herb-weiss/

National Report Grapples with Impending Alzheimer’s Epidemic

Published in the Pawtucket Times, July 25, 2013

.This 56 page report must not sit on a bureaucrat’s dusty shelf.

With the graying of the nation’s population and a skyrocketing incident rate of persons afflicted with Alzheimer’s disease, the Chicago-based Alzheimer’s Association and the U.S. Centers for Disease Control (CDC) and Prevention release a report last week to address a major public health issue, an impending Alzheimer’s disease epidemic on the horizon.

Researchers say that in 2013, an estimated 5 million Americans age 65 and older have Alzheimer’s disease. Unless more effective ways are identified and implemented to prevent or treat this devastating cognitive disorder the prevalence may triple, skyrocketing to almost 14 million people.  Simply put, Alzheimer’s disease is now the 6th leading cause of death and 5th among those 65 to 85 years of age.

A Call to Arms

A July 15, 2013, CDC, the federal agency charged with protecting public health and safety through the control and prevention of disease, injury, and disability, and the Alzheimer’s Association, the world’s leading voluntary health organization in Alzheimer’s care, support and research, unveiled The Healthy Brain Initiative: The Public Health Road Map for State and National Partnerships, 2013-2018 at the 2013 Alzheimer’s Association International Conference in Boston.

The released report calls for public health officials to quickly act to stem the growing Alzheimer’s crisis and is a follow-up to the 2007 The Healthy Brain Initiative: a National Public Health Road Map to Maintaining Cognitive Health.

“The public health community is now paying greater attention to the Alzheimer’s epidemic that millions of families have been facing for decades and that is poised to drastically increase,” said Robert Egged, Vice President of Public Policy at the Alzheimer’s Association. “On the heels of the 2012 release of the country’s first-ever National Alzheimer’s Plan, the Alzheimer’s Association and CDC have partnered again to create a tool for public health officials to improve the quality of life for those families and advance cognitive health as a integral component of public health,” says Egged.

Released five years ago, the original Road Map addressed cognitive health and functioning from a public health perspective and provided a framework for the public health community to engage cognitive health, cognitive impairment, and Alzheimer’s disease and other dementias. More than 280 experts in the field contributed to this new Road Map report that outlines specific actions steps that state and local public health officials can take to promote cognitive functioning, address cognitive impairment for individuals living in the community and help meet the needs of caregivers.

While federal agencies play a critical role in leading and funding efforts to address Alzheimer’s disease, state and local health departments organize and provide public health services at the community level.

“The goal of the Healthy Brain Initiative is to enhance understanding of the public health burden of cognitive impairment, help build evidence-based communications and programs, and translate that foundation into effective public health practices in states and communities. This Road Map provides guidance to states, communities, and national partners to plan for and respond to this major public health issue,” said Lynda Anderson, PhD, Director of the Healthy Aging Program at CDC.

A former Assistant Secretary at the U.S. Administration on Aging, Bill Benson, now a managing partner of Silver Spring, Maryland-based, Health Benefits ABC, notes that the cost of providing care to people with Alzheimer’s disease will have a drastic impact on the nation’s economy due to the cost of lost productivity, and the care costs for those no longer able to care from themselves. “This does not include the profound personal impact and consequences to those who suffer from Alzheimer’s and to their loved ones,” he says.

“The scope, cost and the extraordinary burden both to individuals and to society make it a true health crisis,” says Benson, stressing that public health officials need to know more about the disease and those who have it, better ways to diagnosis it.  There must also be a better understanding of the economic impact and programs and services that are proven to ease the burden of those who suffer from it and their caregivers, he adds.

Action Steps for Local Communities to Follow

The Road Map report includes more than 30 action steps that the public health community can take at the federal, state and local levels over the next five years to address cognitive health and cognitive impairment from a public health perspective. The actions are intended as a guide for what state and local public health officials could do – on their own or with other national, state and local partners. Agencies are encouraged to select those actions that best fit state and local needs and customize them to match priorities, capabilities and resources.

As to specifics, the Road Map report calls for improved monitoring and evaluation of persons with dementia including Alzheimer’s disease and younger onset as they relate to employment and employers, and defining the needs of these individuals and their caregivers.  Also, increased support should be given to state and local needs assessments to identify racial/ethnic; lesbian, gay, bisexual, and transgender; socioeconomic; and geographic disparities related to cognitive health and impairment.

Public health officials must educate and empower the nation in confronting the epidemic of Alzheimer’s disease by promoting advance care planning and financial planning to care partners, families, and individuals with dementia in the early stages before function declines.  They can and promote early diagnosis.

The Road Map report urges that sound public health policies be developed and partnerships created to collaborate in the development, implementation, and maintenance of state Alzheimer’s disease plans. It also recommends that state and local government integrate cognitive health and impairment into state and local government plans (e.g. aging, coordinated chronic disease, preparedness, falls, and transportation plans).

Finally, the Road Map report also recommends that strategies be developed to help ensure that state public health departments have expertise in cognitive health and impairment related to research and best practices.  Support must also be provided to continuing education efforts that improve healthcare providers’ ability to recognize early signs of dementia, including Alzheimer’s disease, and to offer counseling to individuals and their care partners.

A Local View

Maureen Maigret, policy consultant for the Senior Agenda Coalition of RI coordinator of the Rhode Island Older Women’s Policy Group, agrees with the assessment of theRoad Map report, especially with the Ocean State having the “highest percent of persons age 85 and over in the 2010 Census and this is the population that is growing fast and most likely to have dementia.”

Maigret notes the economic impact will have significant impact across our economy for the state budget and for individual families. “It is imperative for our public officials to promote programs to identify those with early cognitive problems and implement policies to strengthen community and caregiver supports that will help persons to safely remain in home and community settings as long as possible, she says.

The Rhode Island General Assembly passed legislation this year that requires caregiver assessments in the state Medicaid long term care system.  “It’s a good first step in helping caregivers. But we must do so much more to inform the public about available resources, to adequately fund assistance programs such as RIde, Meals on Wheels and respite services and to promote cognitive screening as part of annual wellness visits funded by Medicare,” she says.

“Having a clear active mind at any age is important but as we get older it can mean the difference between dependence and independent living,” says Executive Director, Donna McGowan, of the Alzheimer’s Association-Rhode Island Chapter. “We are excited that the CDC has partnered again with the Alzheimer’s Association to create a tool for public health officials to improve the quality of life for those families afflicted by the disease,” she says.

For more information on The Healthy Brain Initiative: The Public Health Road Map for State and National Partnerships, 2013-2018, visit alz.org/publichealth. For more information on Alzheimer’s disease and the Alzheimer’s Association, call 1-800-272-3900 or visit alz.org®.