Calling on Congress to Increase Alzheimer’s Funding

Published in Woonsocket Call on February 21, 2016

Three weeks before President Obama released his Fiscal Year 2017 Budget on February 9,  Senators Susan Collins (R-ME), who chairs the U.S. Select Committee on Aging, and Amy Klobuchar (D-MN) along with seven of their colleagues, called on the Democratic President to increase funding for Alzheimer’s research as part of his last proposed budget request. Senator Sheldon Whitehouse (D-RI), who sits on the Senate Aging Panel, was among the cosigners.

In the bipartisan January 28 correspondence,  the cosigners said, “If nothing is done to change the trajectory of Alzheimer’s, the number of Americans afflicted with the disease is expected to more than triple between 2015 and 2050,” the Senators wrote.  Already our nation’s costliest disease, Alzheimer’s is projected to cost our country more than $1 trillion by 2050… Surely, we can do more for Alzheimer’s given the tremendous human and economic price of this devastating disease.”

Furthermore, cosigners warned that “$2 billion per year in federal funding is needed to meet the goal of preventing or effectively treating Alzheimer’s by 2025.” 

 Aging Groups Express Disappointment

Max Richtman, President and CEO of the National Committee to Preserve Social Security and Medicare (NCPSSM), says that the Consolidated Appropriations Act, 2016, (P.L.114-113) provided $936 million in FY 2016 (a $350 million or 59.7% increase over FY 2015) for Alzheimer’s disease research at the National Institute on Aging (NIA), the nation’s leading funder of Alzheimer’s disease research.

Richtman expressed disappointment that Obama’s budget proposal did not recommend funding about the FY 2016 level for Alzheimer’s disease and dementia research, it was essentially flat funded.

“Scientists have estimated that spending at least $2 billion a year on research is necessary to accomplish the national Alzheimer’s plan goal of preventing or effectively treating Alzheimer’s disease by 2025,” says Richtman.

According to NCPSSM’s 2016 Legislative Report, “the number of people suffering from Alzheimer’s disease or a related dementia is expected to skyrocket over the next few decades because many people are living longer and the incidence of Alzheimer’s disease increases with age.”

Richtman says “making a significant investment in funding towards finding a cure and appropriate treatments for persons with Alzheimer’s disease and dementias is key to reducing the massive financial drain this disease will impose on the future of the Medicare program, along with the devastating emotional and financial toll exacted on the millions of Alzheimer’s victims and their family members and caregivers.”

The Alzheimer’s Foundation of America (AFA) also expressed disappointment in the proposed $337 million cut in research funding at NIA, contained in Obama’s 2017 Fiscal year budget proposal. “The Administration has been a champion in the fight against Alzheimer’s disease; however, we are disappointed that, in his final budget, the President is retreating,” said CEO and President Charles J. Fuschillo, Jr., of the Alzheimer’s Foundation of America (AFA). “We were hoping President Obama would take the dramatic step necessary to confront the dementia crisis in this country head-on. We will continue to work with Congressional appropriators to ensure we are on the path to a cure,” says Fuschillo, Jr.

Like NCPSSM, Cicilline, Reed, Whitehouse, and many members of congress, the New York-based AFA urged the Administration to build on the historic 60 percent increase in Alzheimer’s research funding that was included in this year’s budget that provided an additional $1 billion in research funding in the upcoming federal budget.  If done, total federal spending would reach almost $ 2 billion, an amount that Alzheimer’s experts say is necessary to finding a cure or meaningful treatment by 2025 (detailed in the National Plan to Address Alzheimer’s Disease.

According to AFA, currently Alzheimer’s disease is the sixth leading cause of death in the United States, with studies indicating it could actually be as high as the third-leading caused.  But this devastating disorder is the only disease in the top 10 for which there is neither a cure nor impactful treatment.  Furthermore, “even with the Fiscal Year 2016 funding increase, funding for Alzheimer’s lags far behind HIV/AIDS, cancer and heart disease.

On the Home Front

Congressman David N. Cicilline, who successfully led the effort in the House to increase funding for Alzheimer’s research by more than 50% last year, sees a need for increased funding a necessity in the Fiscal Year 2017. “Alzheimer’s disease afflicts 22,000 Rhode Islanders and their families each year,” the Democratic congressman representing Congressional District 1.

With Congress poised to begin hammering out next year’s federal budget, Cicilline plans to continue his efforts in the House to fight for an increase federal funding for a treatment and a cure of the devastating disorder.  He urges for Alzheimer’s disease research remain a major funding priority for policymakers at every level of government.

Senator Jack Reed, serving as a member of the Labor-HHS Appropriations Subcommittee, says, “Last year, we successfully included a $350 million boost in new spending for Alzheimer’s research, a 60% increase over the previous year.  Looking ahead to the coming fiscal year, we still have our work cut out for us in this challenging budgetary climate, but I am pushing to secure additional resources to help prevent, treat, and cure Alzheimer’s, as well as for education and outreach.”

“More and more Americans are being impacted by Alzheimer’s disease and we need a serious national commitment to finding cures and treatments.  That means making strategic investments now that will help save lives and future dollars in the long-term,” notes the Senator.

A Call for Action

Experts tell us an impending Alzheimer’s disease epidemic is now upon us. Federal and state officials are scrambling to gear up for battle, developing national and state plans detailing goals to prevent or treat the devastating disease by 2025.

According to the Rhode Island Chapter of the Alzheimer’s Association, an estimated five million Americans over age 65 are afflicted with Alzheimer’s disease in 2013.  The prevalence may well triple, to over 16 million, if research does not identify ways to prevent or treat the cognitive disorder, says the Rhode Island nonprofit.  By 2050, it’s noted that the estimated total cost of care nation-wide for persons with Alzheimer’s disease is expected to reach more than $1 trillion dollars (in today’s dollars), up from $172 billion in 2010.

Congress must not act “penny wise and pound foolish” when it ultimately comes to determining the amount of federal dollars that will be poured into Alzheimer’s research in next year’s fiscal budget.  Less dollars or level funding will only increase state and federal government’s cost of care for Alzheimer’s care in every municipality in the nation.  A total of 469 seats in the Congress (34 Senate seats and all 435 House seats) are up for grabs in the upcoming presidential election in November.  Lawmakers must remember that every voter may be personally touched, either caring for a family member with the cognitive disorder or knowing someone who is a caregiver or patient.  That ultimately becomes a very powerful message to Capitol Hill that it is important to increase the funding to NIA to find the cure.

 

 

Rhode Islanders Share ’16 Resolutions

Published in Woonsocket Call on January 3, 2016

 

Each New Year, on January 1, we make promises to ourselves to start doing something good or stop doing something bad, either way on a personal and/or professionally level. Here’s a listing of Rhode Islanders, many who you may know, who reflect on their successes of keeping last year’s resolutions and they even share their 2016 New Year Resolutions, too.

Ernie Almonte, 60, Partner at RSM, LLP and former candidate for Rhode Island Treasurer.  The Scituate resident’s 2015 resolution was to find a firm with a “great work culture.”  Did he succeed? Yes, “wildly beyond his expectations,” he says. For his 2016 New Year’s Resolution, he plans to create a great future for his family.

Jonathan Bissonnette, 28, a reporter covering the Pawtucket Beat for the Pawtucket Times. In 2015, the journalist looked to cut back on junk food from fast food restaurants.  He did not succeed.  For this year, he repeats last year’s resolution and continues to look for ways to improve his nutrition.  He again looks to stay away from fast food restaurants.

Rep. David N. Cicilline, 54, representing Rhode Island’s First Congressional District.  Last year, the lawmaker backed legislation that helps create jobs and grow the economy and worked to ensure that government was “fair and more efficient” for his constituents  He was successful in enacted that strengthens America’s manufacturing sector, a bill that renamed a local post office for the late Sister Ann Keefe, provisions in the new education legislation that enhance after school partnerships across the nation, and ensuring Rhode Island receives funding for infrastructure as part of the new multi-year federal highway funding bill fund. This coming year Cicilline looks to curb the skyrocketing costs prescription and education.  He will also focus his attention on fixing the broken campaign finance system and making our communities safer from gun violence.

Scott Davis, 58, owner of Rhode Island Antiques Mall and an Entrepreneur.  The Providence resident worked last year to “eliminate stressors” in his life.  Did he succeed?  “Mostly,” he responded. For 2016, Davis says he will “figure out how to make a living once stressors are eliminated.”

Linda Dewing, ageless, is a broker associate at Places & and Spaces Realty and a seasoned artist.  The Pawtucket resident’s 2015 New Year’s Resolution was “to grow in business and wisdom.”  When asked if she succeeded, Dewing responded “somewhat.”  For next year, 2016 she plans to finish two pieces of art work and continue to contribute to Pawtucket’s growth by bringing more businesses into the City’s historic downtown.

Josh Fenton, 52, CEO and Co-Founder of GoLocal24.  Last year Fenton made a resolution to get up earlier in the morning to be more productive. The Providence resident believes he generally succeed by getting up by 4:45 a.m. “I saw a lot of good sunrises,” he says.  For 2016, his New Year Resolution is to spend more time with close family and friends.

Charlie Fogarty, 60, is the Director of the Rhode Island Division of Elderly Affairs.  Last year the Glocester resident resolved to be mindful of his health and wellness. .He made small lifestyle changes, such as adding a 30-minute walk to each day, resulting in improved health. In the New Year he resolves to promote physical, social, and mental well-being. He says healthy lifestyles for seniors, supported by family, friends, caregivers and the community enables these individuals to remain at home.

Attorney General Peter Kilmartin, 53, Office of the Attorney General.  When asked about his 2015 resolutions he responds “I typically don’t make New Year’s resolutions, as I try to work on improving myself throughout the year.”  For 2016, he says, “I will try to work on improving myself and the Office of Attorney General each and every day.  Every morning I read a spiritual piece which is aimed at recognizing not only what is good in our lives, but also how to keep a positive attitude and improve our lives.  It is my goal to continue this practice each day for 2016.”

Nicholas A. Mattiello, 52, is a self-employed Cranston attorney who serves as Speaker of the House in the Rhode Island General Assembly.  Last year the lawmaker resolved to pass a State budget that would include an exemption from the State income tax for many Social Security recipients.  “Retirees have worked their whole lives and do not deserve to be taxed on Social Security,” he said.  He was pleased to see his chamber pass the budget unanimously, and the Governor sign into law.  For the upcoming year, his resolution is to continue to work hard in improving the State’s economy and job climate.  “I want to see the economic momentum we have built-in the last few years continue to grow and to make Rhode Island once again competitive with other states in the region,” he says.

Edward M. Mazze, 74, Distinguished University Professor of Business Administration, at University of Rhode Island.  In 2015, the Narragansett resident’s New Year’s resolution was to lose weight (become more healthy) and be more optimistic about Rhode Island’s Economic Growth.  He believes that he succeeded.  In 2016, he is looking to continue losing weight and hopes to be more patient with Rhode Island’s Economic Growth.

Lt. Governor Daniel J. McKee, 64, a former Mayor of Cumberland who served 6 terms.  Last year he resolved “to be champion of the family’s annual holiday ping-pong tournament.  “Let’s just say there’s a next year,” he says.  As to 2016 resolutions, McKee says, “While many people are resolving to hit the gym and lose weight, I want to build on my “39 Cups of Coffee” tour (one in every city and town) and support our economy by dining at as many local restaurants as I can.“

John J. Partridge, 75, is Senior Counsel at Partridge Snow & Hahn, LLP.  In 2015, the Providence resident worked “on patience.”  When asked if he succeed, Partridge responded “impatiently yes.”  For 2016, the lawyer who has published three murder mystery thrillers plans on publishing his fourth Algy Temple mystery, “Hanger.”

Governor Gina Raimondo, 44, is the highest elected state official in Rhode Island.  Last year the governor’s resolution was to “bring Rhode Islanders together to grow our economy.”  It’s too early to make judgements if she has succeed, says Raimondo, but the signs of improvement are there.  She resolves to come back in January, “re-energized to keep fighting for Rhode Islanders.

“There are crucial challenges ahead, including our under-performing schools, and our crumbling roads and bridges. We’ve just got to keep the momentum going with more work, more action, and more results,” she says.

Scott Rotondo, 42, is the Accounting Manager at Tivoli Audio in Boston, Massachusetts and a radio talk show host.  The Pawtucket resident’s 2015 resolution was to challenge his own assumptions and opinions.  He believes he “mostly succeeded.”  For the upcoming year his New Year’s Resolution is “to be more patient with others and with myself.”

Ron St. Pierre, over 21, is the Morning Drive host for News radio 920/I Heart Media.

The East Greenwich resident’s 2015 resolution was “to make it to 2016.  Was he successful?  He responds, “to be determined by making it to January 1, 2016.   This year’s New Year Eve’s resolution is “to make it to 2017.”

Charles Steinberg, 57, President of PawSox, at McCoy Stadium.  The baseball executive’s 2015 resolution was to help the Boston Red Sox “enhance bonds with fans through experiences and events at the ballpark and outreach to the community.  Did he feel he succeed?  “I hope so, but the fans are the best judge of that.”  As to this year’s New Year resolution, he hopes to help the PawSox, Pawtucket’s AAA Team bond with its fans by giving them great, memorable experiences and events at the ball park and to reach out to the community.

To all my loyal readers, may you have a Happy New Year and a great 2016.

 

 

 

Everyone Loves a Countdown

In his own words, this writer’s top 5 commentaries of 2015

Published in the Woonsocket Call on December 27, 2015

As a columnist on “the aging beat” it has been a very eventful year in covering aging, health care and medical issues. During 2015, over 47 weekly commentaries appeared in the Pawtucket Times and Woonsocket Call. By reading my weekly commentaries readers were kept abreast on a dazzling array of aging issues including Congressional attempts to whittle away the Social Security and Medicare programs. They learned first-hand about the Rhode Island General Assembly’s move to not tax Social Security and to provide new benefits to Ocean State caregivers. Commentaries even touched on the passing away of Wayne Dwyer and Capitol TV’s Dave Barber, how to put the fire back in your relationship, and even travel tips.

Below are five article, providing you with the breadth and depth of my commentaries. Al other articles can be found on my blog, herbweiss.wordpress.com.

1. “Cicilline Spearheading Key Comeback: Rep. Wants to Reestablish House Select Committee on Aging, published in the Dec. 20 issue of the Woonsocket Call; in the Dec. 21 issue of the Pawtucket Times.

After Congress eliminated the House Select Committee on Aging in 1993 to rein in costs, this commentary takes a close look at Rep. David N. Cicilline (D-Rhode Island) and 63 House colleagues efforts to urge the newly elected GOP House Speaker Paul Ryan in correspondence to bring back the Aging panel to the House Chamber. It was extremely obvious to Cicilline and his cosigners of the House Aging panel’s importance to today’s Congress, especially with efforts to put Social Security and Medicare on the budgetary chopping block. In the late 1980s as a journalist covering Capitol Hill I saw first-hand how the former Aging panel’s bipartisan approach ultimately created sound aging. Working together for the common good of older Americans is sorely needed now with a House divided. Cicilline’s legislative efforts to bring this select committee back to life, can send a powerful message that the House is ready to confront concerns of the nation’s seniors. Go to: http://www.herbweiss.wordpress.com/2015/12/20/cicilline-spearingheading-key-comeback/.

2, Pausch’s The Last Lecture Is a Must Read,” published in the Jan. 30 issue of the Pawtucket Times. The 206 page book, “The Last Lecture” coauthored by Randy Pausch and Wall Street Journal reporter Jeffrey Zaslow, published by Hyperion in 2008, is a great read for those wanting to get their life’s priorities in order. The tome is jam-packed with Pausch’s wisdom that will certainly come in handy to the reader when confront by the “brick walls” or challenges in personal and/or professional careers

This commentary details the thoughts of terminally ill Carnegie Mellon University (CMU) Professor Randy Pausch, a 47-year-old father of three who had from three to six more months to live at the time he was diagnosed with pancreatic cancer in August 2007. One month before his death he gave his last lecture, part of an ongoing CMU lecture series where top academics give their “final talk,” revealing what really matters to them and the insights gleaned over their life if it was their last opportunity. Sadly, Pausch literally got his last chance to give his talk, “Really Achieving Your Childhood Dreams.” Go to: http://www.herbweiss.wordpress.com/2015/01/30/pauschs-the-last-lecture-is-a-must-read.

3. “You are Never Too Old for Romance,” published in the February 13 issue of the Pawtucket Times. Rekindling your relationship may be as simple as packing your bags and taking a romantic trip. In this commentary AARP’s Love and Relationships Ambassador Dr. Pepper Schwartz, a sociologist and sexologist teaching at the University of Washington in Seattle Washington, says the findings reveal a need for couples to plan romantic getaways as a way to spend quality time with their partner and bolster their relationship.

In this commentary Dr. Schwartz, co-author of the newly released book Places for Passion, says “I wish we could be as romantic at home as we can on a trip but there is something about getting away that lets us forget about our daily stuff and instead, fully concentrate on each other. When we stay at home, it’s hard not to answer the phone or try to answer one more email but in fact, we seem to need to get away to have a new stage setting’ for romance to bring out the best in us.” Couples with children can take a short trip without them to boost the romance in their relationship, she says. Readers will find the commentary chock-full of tips for heightening the romance on the trip. Go to: http://www.herbweiss.wordpress.com/2015/02/13/baby-boomers-can-spice-up-valentines-day.

4. “Sensible Advice from Seasoned Folk to the Class of 2015,” published in the May 17 issue of the Woonsocket Call; in the May 18 Pawtucket Times. Every year very notable and professionally successful commencement speakers gather at the nation’s Colleges and Universities to give the graduating seniors their practical tips and advice as how to have a rewarding personal and professional life. This commentary calls for the end of the practice of bringing celebrities, politicians and corporate heads to give commence speakers. Regular people will do. Thirteen Rhode Islanders, many not recognized on the street but well-known in their communities were asked to give their “pearls of wisdom” to graduating seniors if they had the opportunity. They most certainly did. Go to:  http://www.herbweiss.wordpress.com/2015/05/17/sensible-advice-from-seasoned-folk-to-the-class-of-2015.

5. “Aggressive Scams Popping up All around the Ocean State,” published in the November 25 issue of the Woonsocket Call; in the November 26 issue of the Pawtucket Times. Throughout the year there were several commentaries to increase the reader’s awareness of protecting themselves from financial scams. According to the U.S. Federal Trade Commission list of top consumer fraud complaints last year, more than 6,200 Rhode Island residents were victims of imposter scams. The commentary details one scam where the caller “Sergeant Bradley” threatens a person with a felony for not appearing in court unless they immediate make a payment on a debit card.

The commentary details AARP’s Fraud Watch Network. By registering for the free service a person can receive alerts via smart phone or your computer when a new scam surfaces. This program also allows you to report a scam going around your neighborhood that is shared across the network. For those not connected to the Internet, you can receive alerts and tips via a quarterly newsletter mailed to homes. Rhode Island Attorney General Peter Kilmartin calls for “constant vigilance” and gives tips also gives tips on protecting yourself against scams.