Tag Archives for Parkinson’s disease

Senate Aging Committee Seeks Renewal of Older Americans Act 

Published in RINewsToday on November 10, 2025

 With over 359 days until the mid-term elections, the U.S. Senate Select Committee on Aging held a hearing last week to emphasize the need for reauthorizing the Older Americans Act (OAA), a crucial piece of federal legislation that expired the previous year. The hearing highlighted the key role OAA plays in assisting Americans living with age-related diseases, such as Alzheimer’s and Parkinson’s, as well as their caregivers.

Last reauthorized in 2020, the OAA expired during the 118th Congress. S. 4776, introduced by Senator Bill Cassidy, M.D. (R-LA), chair of the Senate Health, Education, Labor, and Pensions (HELP) Committee, and Senator Bernie Sanders (I-VT), the committee’s ranking member, passed the Senate by unanimous consent last year. However, the House failed to pass a companion measure due to unrelated political disagreements.

Senate Bipartisan Bill Introduced to Reauthorize the OAA

On June 18, 2025, Chairman Cassidy, alongside nine co-sponsors, reintroduced the OAA Reauthorization Act of 2025 (S. 2120). This 91-page bill would authorize new funding a strengthen services for older Americans. The bipartisan bill was referred to the Senate HELP Committee the day it was introduced, where hearings, markups, and a committee vote are expected. If approved, it will move to the full Senate. As of press time, a companion bill had not yet been introduced in the House.

 Chairman Cassidy’s co-sponsors include Senators Bernie Sanders, Kirsten Gillibrand (D-NY), Rick Scott (R-FL), chair of the Senate Special Committee on Aging, Lisa Murkowski (R-AK), Tim Kaine (D-VA), Ben Ray Luján (D-NM), Ed Markey (D-MA), Markwayne Mullin (R-OK), and Susan Collins (R-ME).

 Although S. 2120 closely mirrors last year’s S. 4776, there are notable differences. Specifically, it would reauthorize OAA programs through FY 2030 and increase funding by 18% over the next four years. It also includes measures to promote innovation, strengthen the Long-Term Care Ombudsman Program, and expand the National Family Caregiver Support Program. Additionally, the bill aims to improve services for Tribal elders and older adults with disabilities, ensuring these populations remain active and supported in their communities.

 S. 2120 would also address elder abuse by establishing a clearinghouse for best practices, focusing on legal and protective services to strengthen state ombudsman programs, adult protective services, and related legal supports.

 Senate Aging Committee Hearing Highlights Call for S. 2120 Passage

 On November 5, 2025, Chairman Rick Scott (R-FL) and Ranking Member Kirsten Gillibrand (D-NY) of the Senate Aging Committee held a full committee hearing titled “Renewing Our Commitment: How the Older Americans Act Uplifts Families Living with Aging-Related Diseases.” The hearing, which took place in SD-216 at 3:30 p.m., focused on how OAA-funded programs provide critical support to millions of Americans with Alzheimer’s and Parkinson’s disease. The goal of the hearing was to push for the passage of S. 2120 with bipartisan support.

In his opening statement, Chairman Scott emphasized the importance of reauthorizing the OAA to ensure that programs and services keep pace with a rapidly growing aging population—one increasingly affected by Alzheimer’s and Parkinson’s diseases, placing greater demands on caregivers.

“More than 7 million older Americans are living with Alzheimer’s disease, and nearly 1 million are affected by Parkinson’s,” said Scott. “Behind these numbers are caregivers—a husband, a wife, a son, or a daughter—providing unpaid, around-the-clock care.”

“Every service made possible by this law [OAA] represents compassion made real,” he added.

Ranking Member Gillibrand opening statement pointed out that most people are unaware of the OAA’s existence, despite the fact that one in six older adults benefit from its programs. “In 2024, the OAA generated 3.39 times its investment in community value and taxpayer savings. Through efficient service delivery, older adults avoided 1.9 million days of long-term hospital stays and institutional care,” she said.

“It’s not the time to take our foot off the gas,” Gillibrand continued. “Even though there have been minimal interruptions in service delivery since the Act’s authorization expired last year, it is vital that we pass a reauthorization this fall to modernize the statute and reflect the evolving needs of older adults.”

The three witnesses at this Senate Aging Committee hearing shared how OAA-funded services—such as adult day centers, home-delivered meals, caregiver support, and specialized exercise programs—helped them to maintain their health, and independence. They pointed out that these community-based services not only provided caregivers with the critical support, more important they were cost-effective alternatives to more costly nursing home care.

Key Testimonies Highlight the Impact of OAA Programs

Erick Montealegre, a volunteer community educator for the Alzheimer’s Association and a caregiver for his father, who was diagnosed with mild cognitive impairment, told the panel that adult day care centers and home-delivered meals—funded by the OAA—had made a “world of difference” in his father’s quality of life, providing essential respite care for his family.

Montealegre highlighted the importance of these programs being culturally and linguistically appropriate. His 84-year-old father, who had lost the ability to speak English and reverted to speaking his native Spanish, benefitted greatly from services that met his language needs.

“This hearing is especially meaningful to me because it’s taking place in November, National Family Caregivers Month,” Montealegre noted. In conclusion, he said, “Reauthorizing and strengthening the Older Americans Act is an investment in our families, our dignity, and our community.”

Steve Sappington, who has lived with Parkinson’s disease for the past ten years, explained that an OAA-supported exercise program, Rock Steady Boxing, has significantly slowed the progression of his symptoms. Recounting his experiences in living with Parkinson’s, he noted that he went eight years without having to increase his Parkinson’s medication after starting the boxing program. His neurologist called it a “miracle” and said he had never seen anything like it before.

“Programs like ours are possible because of the foundation laid by the OAA,” Sappington said. “Local OAA-funded services—such as transportation, congregate and home-delivered meals, caregiver support, adult day services, and other vital programs—make it possible for older adults like me to stay active and connected.” He urged Congress to reauthorize the OAA to ensure continued support for these essential services.

However, Sappington also pointed out that many older adults remain unaware of the services available to them, emphasizing the need for culturally competent outreach, particularly to low-income, rural, and minority communities.

 Duana Patton, Chief Executive Director of the Ohio District Five Area Agency on Aging and Board President of USAging, emphasized that Area Agencies on Aging (AAAs) serve as the “front door” to a network of local, community-based services. She argued that the OAA represents a cost-effective investment for the federal government, as its programs help older adults remain in their communities, which is far less expensive than placement in costly nursing homes.

 “The longer older adults can successfully age at home, the better it is financially for families and the federal government,” Patton explained. Having worked in the AAA field for over 31 years, she cited the example of “Ms. Gray,” a client who, after receiving in-home personal care and meals funded by the OAA, no longer required hospital readmissions due to the significant improvements in her health.

The witnesses stressed that the OAA needs to be promptly reauthorized, strengthened, and modernized to provide local agencies with the flexibility required to meet the evolving needs of their communities.

 A Final Note…

“We hope the Senate’s OAA reauthorization bill (S. 2120) can move forward soon, either under Unanimous Consent or attached to another legislative vehicle,” says Amy Gotwals, Chief of Public Policy and External Affairs at USAging. “While the House has yet to announce a specific plan, USAging, along with other aging organizations, is advocating for a bipartisan, bicameral bill that will pass before the end of the year.”

Gotwals notes that, although the reauthorization is important, it is not immediately necessary to ensure continued funding for the OAA. “President Trump’s budget, along with both the Senate and House FY 2026 bills, protect all but one OAA program—the Title V Senior Community Service Employment Program. If there’s a year-long Continuing Resolution, all programs will be protected,” she adds.

 “The shutdown remains our biggest challenge right now,” Gotwals concludes.

Many Seniors Struggle with High Cost of Medications

Published in the Pawtucket Times on June 18, 2001

Many seniors are struggling to pay the spiraling cost of prescription drugs as a politically divided Congress seeks a solution by crafting a bipartisan prescription drug benefit tied to Medicare.

Until this issue is addressed, a tragedy occurs in many communities across the nation.

Often, the high cost of prescription drugs has forced seniors on fixed incomes into not taking their medications at all or using only partial doses.

Noncompliance in taking medication can lead to hospitalization, nursing home admission or premature death.

According to the Families USA study released in June 2001, costly prescriptions continue to hit seniors hard in their pocketbook.

The report found that 50 of the most heavily prescribed drugs for seniors on average rose more than twice the rate of inflation in the year ending January 2001.

On average, the researchers found that prices increased by 6.1 percent from January 2000 to January 2001, though the rate of inflation excluding energy in that time period was 2.7 percent.

Furthermore, the 18-page report stated that seniors are most affected by any prescription drug price  increase.

Although older persons represent just 13 percent of the total nation’s population, they account for 34 percent of all prescribed medications dispensed and 42 percent of all prescription drug spending.

Of the 50 drugs used more frequently by seniors, the average annual cost per prescription as of January 2001 was $ 956, the report noted.

Drug prices rose significantly over the one-year period of the study.

The report findings revealed that the cost of Synthroid, a synthetic thyroid agent, rose by 22.6 percent; 22.5 percent for Alphagan, commonly used to treat glaucoma; 15.5 percent for Glucophage, prescribed for treating diabetes; and 12.8 percent for Premarin, used estrogen replacement.

While rising drug costs are national, Rhode Island fiscal nets are in place to make prescription drugs more affordable to low-to-moderate income seniors, says Susan Sweet, consultant and advocate for a variety of nonprofit agencies and minority groups.

Many aging advocates and state legislators know Sweet as “the mother of the Rhode Island Pharmaceutical Assistance to the Elderly Program (RIPAE).”

“Rhode Island is one of a handful of states that has responded to senior’s concerns and anxieties about the high cost of prescription drugs,” Sweet says.

In 1985, the Rhode Island General Assembly moved to assist elders with rising prescription drug costs by enacting RIPAE.

Initially, the RIPAE program covered only medications purchased by low-income seniors to treat hypertension, cardiac conditions and diabetes.

In the past fifteen years, the General Assembly has expanded the program,” Sweet adds, to over the cost of prescription drugs to treat glaucoma, Parkinson’s disease, high cholesterol, cancer, circulatory insufficiency, asthma, chronic respiratory conditions, Alzheimer’s disease, depression, incontinence, infections, arthritic conditions and prescription vitamins and mineral supplements for renal patients.

Additionally, the RIPAE Plus Program, proposed by Lt. Governor  Charles Fogarty with House and Senate leadership, allowed moderate income seniors to purchase prescription drugs at a lower rate that is negotiated by the state.

The state also pays a portion of the remaining cost of the drug based on the senior’s income level.

“The innovations in RIPAE have made Rhode Island a leader in assisting seniors to stay healthy and independently,” Sweet says.

With the end approaching to this year’s session of the General Assembly, lawmakers are considering legislation to again expand the RIPAE Program, states Fogarty, who authored the legislation.

Fogarty’s RIPAE Next Step would cover all FDA-approved prescribed drugs, excluding cosmetic and experimental drugs, cap out-of-pocket expenses at $ 1,500 annually, and open up the program to people age 55 and over who are receiving Social Security Disability Insurance.

While no one really opposes the passage of RIPAE expansion this year, ultimate passage of the entire legislative proposal is really a question of competing budget needs and limited state dollars, Sweet comments.

House Finance Chair Tony Pires (D-Pawtucket) remembers a time in the mid-1990s when Governors Bruce Sundlun and Linc Almond attempted to roll back the RIPAE program by calling for an increase in the senior’s co-pay and limiting access to benefits.

“The General Assembly made it very clear that it did not want to reduce state support, but rather moved to increase benefits,” Rep. Pires said.

“This year we’ll be expanding the list of drugs to include prescription drugs used to treat osteoporosis,” Rep Pires tells The Times, adding that House leadership also supports an out-of-pocket prescription drug cap of $ 1,500 annually.

With the RIPAE Next Step’s price tag of $ 3.5 million dollars. “We can’t afford to pay for an open formulary program yet because of budgetary limitations,” Rep. Pires states.

In upcoming legislative sessions, coverage for gastrointestinal drugs will seriously be considered, he adds.

“In the upcoming years the state’s pharmaceutical assistance program will remain a top priority to the General Assembly, Rep. Pires says. “There will be an expansion of coverage to a full formulary when more state monies become available, he adds.

Currently, Lt. Governor Fogarty estimates that more than 170,000 Medicare beneficiaries in Rhode Island, who do not meet the state’s pharmaceutical assistance program’s income eligibility requirements, lack comprehensive prescription drug coverage.

With an aging population, Congress and state lawmakers must roll up their sleeves to find innovative ways of making prescription drugs affordable.