Congress Passes RAISE Family Care Givers Act

Published in the Woonsocket Call on January 14, 2018

With the dust finally settling after the heated partisan battles over the dismantling President Obama’s landmark Obamacare and later reforming the nation’s tax code, Congressional Democrats and Republicans put political and philosophical differences aside to overwhelming pass by voice vote the Recognize, Assist, Include, Support, and Engage (RAISE) Family Caregivers Act of 2017.

The RAISE Family Caregivers Act of 2017, introduced in the U.S. Senate by Senators Susan Collins (R-ME) and Tammy Baldwin (D-WI), was passed on January 8, 2017. Two months earlier a House companion measure (H.R. 3759), introduced by Reps. Gregg Harper (R-MS) and Kathy Castor (D-FL), was passed. At press time, the legislation now heads to the President’s desk to be signed into law.

The caregiver legislation would direct the U.S. Secretary of Health and Human Services to develop and sustain a strategy to recognize and support family caregivers across the nation. This bipartisan legislation has been endorsed by more than 60 aging and disability organizations, including AARP, the Alzheimer’s Association, the National Committee to Preserve Social Security and Medicare, the Elizabeth Dole Foundation, the Michael J. Fox Foundation, and the Arc.

Universal Praise for Congressional Passage

Congress clearly understands that caregiving is not a partisan issue but a life experience for millions of Americans.Yes, everyone at some time in their life may take on the role of caregiver for parents, spouses, children and adults with disabilities, or personally know caregivers.

According to AARP’s Public Policy Institute, there are 40 million family caregivers in the United States who provided an estimated $470 billion in uncompensated long-term care in 2013. In the Ocean State at any time during the year, an estimated 134,000 Rhode Island family caregiver step up to provide 124 million hours of care for an aging parent or loved one, most often helping them to live independently in their own homes.

“Family caregivers play an essential role in our communities by dedicating time and attention and making countless personal and financial sacrifices to care for their loved ones,” said Sen. Collins upon the Senate bills passage. “I am delighted that our bipartisan legislation to develop a coordinated strategic plan to leverage our resources, promote best practices, and expand services and training available to caregivers will now become law,” adds the Maine Senator, who chairs the Senate Special Committee on Aging.

Senator Sheldon Whitehouse sees the value of the RAISE Family Caregivers and its impact to Rhode Island caregivers. “The passage of the bipartisan RAISE Family Caregivers Act is an important first step toward easing the burden on the caregivers who mean the world to the family members they care for.” says the Rhode Island Senator who serves on the Senate Special Committee on Aging.

“Family caregivers play a key role in supporting their loved ones in Rhode Island and throughout the nation. adds Democratic Policy and Communications Committee Co-Chair David N. Cicilline. “The RAISE Family Caregivers Act ensures that family caregivers have the support and the resources they need to do their jobs safely and effectively. As a co-sponsor of H.R. 3759, I made sure my colleagues understood that this bill needed to become law as soon as possible, and I am glad that it passed both Chambers without objection. Now I urge President Trump to sign it and allow this important law to take effect”

“Thanks to the efforts of bipartisan Senate and House champions—Senators Collins and Baldwin and Representatives Harper and Castor—the RAISE Family Caregivers Act will help address the challenges family caregivers face,” said AARP Chief Advocacy & Engagement Officer Nancy A. LeaMond, in a statement. “Family caregivers are the backbone of our care system in America. We need to make it easier for them to coordinate care for their loved ones, get information and resources, and take a break so they can rest and recharge,” she says.

According to LeaMond, family caregivers take on a range of tasks including managing medications, helping with bathing and dressing, preparing and feeding meals, arranging transportation, and handling financial and legal matters. She estimates that the unpaid care that family caregivers provide helps delay or prevent costly nursing home care, which is often paid for by Medicaid.

What’s in the RAISE Family Caregiver Act?

The RAISE Family Caregivers Act directs the Secretary of Health and Human Services to develop and update a national strategy to support family caregivers. The legislation would also create a Family Caregiving Advisory Council comprised of relevant Federal agencies and non-federal members, also including family caregivers, older adults with long-term care needs, individuals with disabilities, employers, health and social service providers, advocacy organizations engaged in family caregiving, state and local officials, and others with expertise in family caregiving.

The newly established Advisory Council (meetings open to the public) would be charged with making recommendations to the Secretary. The strategy would be updated to reflect new developments. The Advisory Council’s initial report would include an initial inventory and assessment of federally funded caregiver efforts that would be incorporated into the initial strategy. The strategy would then identify recommended actions that government, providers, communities, and others could take to support family caregivers.

The development of the initial strategy would take up to 18 months, followed by updates of the strategy biennially. The bill would improve the collection and sharing of information, including information related to evidence-based or promising practices and innovative models regarding family caregiving; better coordinate, assess, maximize the effectiveness, and avoid unnecessary duplication of existing federal government activities to recognize and support family caregivers. The strategy and work around it could help support and inform state and local efforts to support family caregivers, promoting greater adoption of person- and family-centered care in all health and Long-Term Service and Support (LTSS) settings, with the person and the family caregiver (as appropriate) at the center of care teams

In addition to requiring the development of a strategy to support the nation’s family caregivers, the bill also establishes an advisory body that will bring together stakeholders from the private and public sectors to make recommendations that communities, providers, government, and others are taking and may take to help make the big responsibilities of caregiving a little bit easier.

The activities under the bill would be funded from existing funding appropriated for the Department of Health and Human Services. No new funding is authorized and it would sunset in five years.

Calls for More Caregiver Assistance

“In Rhode Island, we’re working hard at staying ahead on legislation supporting caregivers,” said AARP Rhode Island State Director Kathleen Connell. “We passed temporary caregiver insurance, which covers thousands of working caregivers with salary protection much like TDI (Temporary Disability Insurance). Earned-paid sick leave fills in a gap that caregiver TDI may not cover in emergency situations. The AARP-back CARE Act now requires hospitals, upon admitting patients, identify a designated caregiver, inform that person on discharge and provide training for at-home medical tasks. We have passed legislation making it easier for caregivers to modify their homes. And just this month, the state opened applications for a grant program we fought for in the current budget that provides up to $5,000 in hard cash for caregivers who make qualifying home improvements.” (Download a grant application at http://www.aarp.org/ricaregiving)

“We cannot stop here,” added Connell. “And the RAISE Act keeps the need for ongoing strategic planning and smart policymaking on the front burner. The numbers demand escalating action that will improve conditions not just for people who need care, but their family caregivers as well. But it is very important to emphasize that all taxpayers benefit when someone with chronic illness or aging disabilities can stay in their homes, rather than move into Medicaid-supported nursing homes. We all win when we support caregivers.”

NOTE: “The Rhode Island Chapter of the Alzheimer’s Association has a commitment to assisting caregivers navigate the various challenges of caring for someone living with Alzheimer’s and other related dementias,” says Donna McGowan, Executive Director of the Alzheimer’s Association, RI Chapter. Call 1-800-272-3900 for details about caregiver and provider services (including confidential support, information, and referrals to local resources via access to a 24/7 Helpline, care consultation, caregiver support groups, education programs for families, and online information (www.alz.org/ri ).

Zarlengo Earns AARP Rhode Island’s Most Prestigious Volunteer Award

Published in Pawtucket Times on December 18, 2017

“To Serve and Not be Served” – Dr. Ethel Percy Andrus

AARP Rhode Island recognizes its own, Phil Zarlengo, for his decades of serving the state’s and the nation’s seniors. Over 130 family and fellow AARP Rhode Island members gathered at the Warwick Country Club at a luncheon ceremony to recognize his remarkable service to America’s largest aging advocacy group.

AARP top national officials (Joan R. Ruff, Chair of the AARP National Board of Directors, Kelly Clark, AARP Eastern Region Vice-president and Megan Hookley, AARP Vice President, Volunteerism & Services), came bringing their greetings.

Last week, Zarlengo, 71, a resident of Jamestown for over 30 years, became the 16th recipient AARP Rhode Island Ethel Percy Andrus Award for Community Service — the nonprofit group’s most prestigious and visible state volunteer award for community service.

Every year, Andrus Award recipients across the nation are chosen for their ability to enhance the lives of AARP members and prospective members, improve the community in or for which the work was performed, and inspire others to volunteer.

An Easy Pick

Zarlengo, a native of Chicopee, Massachusetts, was nominated for the Rhode Island Chapter’s prestigious award by Alan Neville, a retired executive in the financial services sector who now serves as AARP Rhode Island state president. “It was a very easy to pick Zarlengo,,” says Neville, acknowledging that “working with him has been a great privilege for me.”

“He is dedicated to public service and I consider him to be an authentic leader,” says Neville.

“As I have gotten to know him, I have come to appreciate the depth and breadth of Phil’s knowledge and experience,” says Neville, echoing many at the December 10 award ceremony who observed that the former teacher and school administrator’s volunteer efforts extend far beyond AARP to countless other regional and national groups and span decades of giving back to his community.

Zarlengo’s professional and educational credentials are impressive. He has a bachelor’s degree in Social Science from UMASS Amherst, an MA in History from Brown University, a doctorate in Management & Evaluation from the University of Connecticut and a Public Affairs Certificate from Tufts University.

Zarlengo Brings a lot to the Plate

A quick glance at his bio reveals his love for education. Zarlengo was Executive Director of Brown University’s National Education Research Lab, where he developed new models for teacher and school program evaluations disseminated across the nation. As an administrator in the Rhode Island Department of Education and the Providence School Department he monitored state and local programs for special population children. Currently, he is CEO of his own management consulting firm that evaluates and helps improve innovative school programs for low achieving students in urban schools, and is a member of the ACE Charter School Board of Directors.

Zarlengo’s award “acts as a symbol to the public that we can all work together for positive social change,” AARP Rhode Island State Director Kathleen Connell told the attending. “AARP has long valued the spirit of volunteerism and the important contributions volunteers make to their communities, neighbors, and the programs they serve,” she said.

Connell considered Zarlengo a guiding light to AARP Rhode Island when he was asked to assist in organizing the first AARP Rhode Island state office in Providence. She had reached out to her former boss after working with him at Brown to serve as the aging advocacy group’s first volunteer state president.

“His advice on elderly and elderly issues was invaluable and his commitment extraordinary,” Connell says, stressing that Zarlengo “helped to put our office on the map early on, and in recognition of his work he moved swiftly on to his position on the National Board.”

Zarlengo eventually put his energies at the national level by serving on AARP National Board and Board Chair before stepping down in 2012. During his 14 years of volunteer service, he has been an energetic defender of Social Security and Medicare and a strong voice in improving healthcare quality and access for all. Since he left his national position three years ago, he still remains active in AARP in many roles, including AARP’s designee on the U.S. Federal Emergency Management Agency, with a focus on helping older Americans prepare for natural disasters. He works closely with AARP Rhode Island’s legislative committee, bringing his understanding of complex national aging policy issues to the General Assembly when they are considering legislation impacting older Rhode Islanders.

“Nonetheless, he never left our fold, offering counsel and assistance whenever asked – and often when we didn’t ask. That’s Phil’s style and everyone who has ever worked with him here has benefited from his vision, wisdom and his warm enthusiasm,” says Connell.

Top AARP Volunteer Comes to Rhode Island

The award was presented by Joan Ruff, current AARP National Board Chair, who has worked as a executive, human resources consultant and attorney. “You have left more than a legacy of service for those of us who have followed in your footsteps,” she said, before presenting the award.

“Your instinct to emphasize the value of state offices and engines for positive social change and to focus on what we now call engaging locally was spot on. You made the case that the more engaged our membership is with AARP the more likely they are to get involved, to renew their commitment and to tell friends and family members about the value of the work we do,” noted Ruff.

“To Zarlengo’s surprise, Huff also conveyed a letter from AARP CEO Jo Ann Jenkins, which read in part, “Having previously served as AARP Rhode Island’s State President, as a national board member for six years and as AARP Board Chair for two years, you know as well as anyone the high level of commitment and dedication this honor represents.

“As a former state president, you were always thinking about how to make the states and national office work more closely together and how to make AARP a stronger presence in local communities across the country.

“You were instrumental in pushing for the integration of the states into AARP’s strategy development and in making AARP more of a local presence across the country. As president of AARP Foundation at the time, I was energized by your support for The Drive to End Hunger and our efforts in financial services,” Jenkins wrote.

“When AARP decided to bring Experience Corps into the AARP family of programs, you saw the benefit of serving all generations to help strengthen our communities. And, as AARP’s representative to the Federal Emergency Management Agency (FEMA), you spearheaded AARP’s relief efforts in communities hit by natural disasters, leaving a legacy we continue to build on today.

Accolades, Accolades, Accolades

Dr. Reid Appleby, 38, ophthalmologist in East Greenwich who has known Zarlengo for over 48 years, calls him “a wonderful man who is dedicated to society and a friend to everyone he ever met.” It is very appropriate that he receive this prestigious award at this point in his life, says Appleby.

“It’s incredibly important to recognize his work,” says Senator Dawn Euer, representing Newport and Jamestown, noting that she had heard stories about his impact on the state’s aging policy. “It’s valuable for organizations like AARP to recognize their volunteers working to address aging issues that have an impact on the state and nation,” she said, noting that her legislative district has the highest concentration of AARP members in the Ocean State.

Senator Louis P. Dipalma, representing Little Compton, Middletown, Newport, Tiverton, was not surprised that Zarlengo was receiving AARP’s most prestigious award because “his record is impressive.”

According to Dipalma, you need more people like Zarlengo with their extensive knowledge of Social Security and Medicare with such trying times at the federal level with a GOP Congress looking to cut these programs.

When accepting his recognition, an overwhelmed Zarlengo stated that he was not ready to hang up his spurs and there was still much work to do with Congress targeting Social Security and Medicare for cuts. “ AARP has given me the opportunity to grow, to contribute, to learn and to enjoy – at a very exciting time – when the older population is rapidly increasing – you know today nationally we have surpassed the 50 million mark of seniors age 65 and over and we’re well on our way to reaching 83 million by 2080.”

AARP’ Zarlengo and tens of thousands of committed AARP volunteers throughout the nation will be there “to serve and not be served.”

Zarlengo resides in Jamestown with his wife Charlotte. They are parents of, Nancy Gilbert (who resides in Wellesley, Mass., with her husband Michael) and are grandparents of Jeffrey, Elizabeth and Abigail.

New Report Charges that States Disfranchise Older Voters

Published in Woonsocket Call on November 11, 2017

Since 1948, Wisconsin resident Christine Krucki had voted in every presidential election, but effectively lost her right to vote when her state enacted a voter ID law in 2011. An old Illinois photo ID and proof of her residence in Wisconsin was just not good enough to allow her to cast a vote.

Krucki did not have a birth certificate and was forced to purchase one for $20. However, her last name on the document did not match her current last name, changed when she married. She then paid $15 dollars for a copy of her marriage certificate , but that document listed her list name differently than her birth name, as she was adopted a different name after moving in with her stepsister when she was in her early 20s. Changing her name on the Illinois marriage certificate to match her birth certificate to solve the problem would cost between $ 150 and
$ 300.

The obstacles Krucki faced when attempting to exercise her right to vote are encountered by millions of older Americans when they attempt to vote. With the 2018 mid-term elections less than a year away, two U.S. Senators release a report detailing Krucki’s problem at the polls, and notes how suppressive state laws and inaccessible voting locations disenfranchise older voters.

Pushing Older Voters Away from the Polls

Senators Bob Casey (D-PA), Ranking Member of the Special Committee on Aging, and Amy Klobuchar (D-MN), Ranking Member of the Committee on Rules and Administration’s 15 page report, “Barriers to Voting for Older Americans: How States are Making it Harder for Seniors to Vote,” finds that strict voter identification (ID) laws, closure of voting locations, inaccessible polling places and limits on early voting and absentee ballots are preventing seniors and people with disabilities from casting votes.

“The right to vote is one of the fundamental pillars of American democracy. But, that right is under threat for millions of older Americans and individuals with disabilities across the nation,” stated Sen. Bob Casey in a statement announcing the report’s release. “This report brings awareness to the unique challenges that seniors face in exercising their constitutional right. We must work to ensure that all Americans have equal access to the voting booth.”

“The right to vote is the foundation of our democracy, but exercising that right is becoming harder and harder for many Americans, especially our seniors,” add Sen. Klobuchar, noting that long lines, inaccessible polling places, and strict voter ID laws have become barriers to voting for older Americans. “This important report shines a light on the hardships these voters face and proposes common sense solutions to make voting easier for everyone. We need to do more to restore Americans’ confidence in our political system. Our first step should be making it easier for their voices to be heard on Election Day,” he says.

The report, released on Nov. 2, also includes new information from the U.S. Government Accountability Office (GAO), which found that only 17 percent of the polling places it examined during the 2016 election were fully accessible. Most polling places GAO examined had one or more impediments from parking to the voting area and had accessible voting stations that could impede private and independent voting.

According to the report, suppressive voting laws and issues of accessibility affect tens of millions of older Americans and people with disabilities. In the 2016 election, 30 percent of the voters were between the ages of 50 and 64-years-old and 13 percent were 65 and older. Sixteen million (11.5 percent) of the 139 million votes were cast by people with disabilities. As the baby boomer population continues to age, these restrictions and barriers are likely to adversely impact more Americans.

In order to protect the voting rights of older voters and persons with disabilities, the report calls on Congress to ensure the full authorization and empowerment of all federal voting laws, which will make polling places accessible to older voters. Access to polls can also be increased by allowing opportunities for accessible early voting and absentee voting. Finally, it calls on limiting restrictions on voting and ensure that election laws fully consider the needs and abilities of older Americans.

Reflections from Rhode Island

“The depth of this issue varies from state to state,” says AARP State Director Kathleen Connell, who herself is a former Rhode Island Secretary of State. “I believe that older Rhode Islanders are well protected here, but we must be vigilant. Older Rhode Islanders are traditionally the most engaged voting group. Their voices are important and should not be silenced in any way.”

“I would add, however, that deliberate voter suppression is a threat to voters of all ages and the implications are as serious as they are obvious.

“When Voter ID legislation was passed in Rhode Island, we worked with then Secretary of State Ralph Mollis to set up photo booths to create ID cards for voters who did not have proper photo IDs. It was well received, but transportation was identified as a barrier to reaching some potential voters. Fortunately there were other remedies in place and, I have to say, no one contacted us saying they were prohibited from voting.”

Adds, Secretary of State Nellie Gorbea, this report presents a troubling situation across our country. The right to vote is sacred. I have spent the past three years modernizing our elections so that we can engage and empower all Rhode Islanders. Civic participation at all age levels is critical to our success as a state. I will continue to work to remove barriers so that eligible Rhode Islanders can have easier access to the ballot.”

Joe Graziano, Gorbea’s Communication Coordinator, notes that the GAO findings cited in this “Barriers to Voting” report is based on Council on State Governments research that his Department did not have a chance to review. “While it is not called “early voting”, Rhode Island does have an emergency mail ballot period that allows Rhode Islanders to cast their ballot ahead of Election Day without an excuse, says Graziano, noting that older voters have been able to use this system, in fact, 45 percent of the emergency mail ballots cast last year were by Rhode Islanders 65 and older.

Graziano admits that the GAO report shines a light on some of the barriers to voting across the nation. “Secretary Gorbea agrees that access to voting is critical and has successfully strived to improve it in the last three years including the introduction of online voter registration, automatic voter registration and the implementation of new, easier to use elections technologies (voting machines and ePoll books). Additionally, she has redesigned the ballot and the voter information guide to make them easier to read and understand. She also introduced legislation to update and expand opportunities for early, in-person voting,” he says.

“As a way to mitigate the negative impact of the photo ID requirement for voting, the Rhode Island Department of State has made sure that free photo Voter IDs are available to people in the communities where they live,” says Graziano, noting that last year alone, the Secretary of State staff held 51 events at senior centers and retirement facilities to ensure that eligible, older voters had proper voter identification, were introduced to new voting technologies and had any of their elections related questions answered by our Elections Division staff.

Looking to the upcoming General Assembly Session, Graziano says that Secretary Gorbea will once again introduce legislation for early in-person voting. “The legislation would eliminate the need for emergency mail ballots by allowing voters to cast their ballot at their local city or town hall, up to 20 days prior to an election, including the Saturday and Sunday prior to Election Day,” he says.

For more details about the Senate voting obstacle report, go to http://www.aging.senate.gov/imo/media/doc/Voting%20Rights%20Report.pdf.