Pandemic Lessons: “Essential Caregivers Act” Can’t Wait. A Merciful, Bipartisan Bill for a Voiceless Population

Published in RINewsToday on January 19, 2026

As COVID-19 spread rapidly across the country in March 2020—entering nursing homes largely through community transmission and staff movement—the Centers for Medicare & Medicaid Services (CMS) issued guidance calling for nationwide visitor bans in nursing homes. These strict restrictions barred all visitors and non-essential health care personnel, with limited exceptions for hospice care.

According to March 29, 2025 article, “Changes in Federal and State Policies on Visitation Restrictions in Nursing Homes During the COVID-19 Pandemic,” published in the Journal of Applied Gerontology, 31 states enacted statewide indoor visitation bans through executive orders between March 9 and April 6, 2020, and the end dates were between 6/15/2020 and 3/24/2021. CMS would later relax its guidance, permitting indoor visitation when facilities reported no new COVID-19 cases for 14 days and community positivity rates were low.

Charlie Galligan, a licensed criminal defense investigator in Rhode Island, knows firsthand the toll those restrictions took. He and his wife, Kerry, provided daily care for his parents for 13 years—his father, Jack, who died from Alzheimer’s disease in 2022, and his mother, Audrey, who lives with a traumatic brain injury. Balancing work with caregiving became the catalyst that pushed Galligan to lobby Congress to prevent the prolonged and unnecessary isolation of nursing home residents during future pandemics, including advocating for policies that allow designated family caregivers to visit.

“Long-term care lockdowns continued well after humane safety measures were established and family caregivers had been vaccinated,” Galligan claimed, noting that countless residents died alone as a result. “Daughters were forced to say goodbye to mothers with Alzheimer’s over FaceTime—often staring at their phones as exhausted staff struggled to provide even minimal connection.”

A Legislative Effort Revisited

The initial legislative proposal—the Essential Caregivers Act (H.R. 3733)—was introduced in June 2021 to reaffirm and enforce the right of nursing home residents to receive visits from family and friends during declared emergencies. When that proposal stalled due to the absence of a Senate companion bill, a second attempt followed the next year with the introduction of S. 4280/ H.R. 8331.  Political insiders say that these bills stalled due to the legislative process, timing, and competing priorities not because Congress rejected the process. Most recently, the Essential Caregivers Act of 2025 was reintroduced last month.

On Dec. 16, 2025, U.S. Senator Richard Blumenthal (D-CT) and U.S. Representative Claudia Tenney (R-NY) introduced bipartisan legislation in their respective chambers to prevent a repeat of the prolonged isolation and reduced care nursing home residents faced during the COVID-19 pandemic. U.S. Senator John Cornyn (R-TX) and U.S. Representative John B. Larson (D-CT) joined them in cosponsoring the Essential Caregivers Act.

The Senate bill, S. 3492, currently with seven cosponsors, was referred to the Senate Finance Committee. That same day, the companion measure, H.R. 6766, with 35 cosponsors, was introduced in the House and referred to the Ways and Means Committee and the Energy and Commerce Committee.

“Our movement to enact the Essential Caregivers Act is not led by professionals or lobbyists,” Galligan said. “We are simply a determined group of family caregivers—primarily brilliant, tenacious women from across the country, and one token guy from Rhode Island—who love our mothers and fathers and refuse to accept silence and separation as acceptable standards of care.”

Congressional Supporters Call for Passage

“During the COVID-19 pandemic, we experienced how dangerous and inhumane it is to isolate seniors and vulnerable patients from the people who care for them the most, say Rep. Tenney, in a statement announcing the introduction of the bill.  “Families were locked out, residents declined rapidly, and farm to many suffered alone,” she said.

“The Essential Caregivers Act ensures that this never happens again,” says Rep. Tenney, noting that they are loved ones, not visitors.  “They are caregivers, advocates, and lifelines. This bipartisan legislation protects dignity, safeguards patient rights, and makes sure compassion and comment sense guide our response during an future emergency,” she adds.

Sen. Blumenthal emphasized the bill’s bipartisan intent. “By allowing at least one designated essential caregiver to have safe, in-person access to their loved ones during an emergency, our legislation ensures that residents will never again face the devastating isolation experienced by so many during COVID-19,” he said.

Rhode Island Sen. Jack Reed, a cosponsor of the Senate bill, echoed that sentiment. “We want to keep people safe from germs, but we also want to keep them connected—because isolation can take a real toll on health,” Reed said. “Essential Caregivers Act would ensure that even during limited visitation, residents can still have in-person contact with a loved one.”

Sen. Sheldon Whitehouse has expressed support and is on a waiting list to cosponsor it – cosponsors are being added in bipartisan pairs. “Loneliness can take a real toll on residents of long-term care facilities,” he said. “This legislation recognizes the critical role loved ones play in supporting residents’ well-being, even during public health emergencies.”

Not yet committed to cosponsoring are Rhode Island’s two Representatives

At press time, Rep. Gabe Amo, had not yet committed to cosponsoring the bill. “I am reviewing the Essential Caregivers Act of 2025,” Amo said. “Family caregivers are the backbone of our long-term care system, and I remain committed to advancing policies that support patients, caregivers, families, and health care providers.”

Like his House colleague, Rep. Seth Magaziner (D-RI), has not yet committed to sponsoring the bill. Magaziner acknowledges the importance of allowing nursing home residents access to their loved ones and is open to considering the legislation. However, he is also working to understand what safeguards would be in place to ensure resident safety during emergencies, according to Noah Boucher, the lawmaker’s communications director.

The Nuts and Bolts

Recognizing that family members are essential to residents’ care and well-being, S. 3492 and H.R. 6766 aim to prevent the emotional, psychological, and physical harm caused by prolonged separation during public health emergencies.  This bill strikes a balance protecting public health while safeguarding the wellness of residents.

The Essential Caregivers Act requires nursing facilities receiving Medicare or Medicaid funding to participate. It guarantees that at least one designated essential caregiver may access a resident during periods of restricted visitation, provided the caregiver follows the same safety protocols as facility staff. If a resident is unable to designate a caregiver, a representative may do so on the resident’s behalf.

The legislation also affirms caregivers’ rights to advocate for residents, participate in care planning, and ensure residents’ civil rights are protected. Additional provisions address roommate rights, as well as exemptions for end-of-life and compassionate care.

Facilities must provide written justification if caregiver access is denied, with appeals overseen by state survey agencies.

The bill has been endorsed by the AARP and Consumer Voice.

Rhode Island Advocates Call for Passage

Calling for passage of the legislation, Rhode Island Long-Term Care Ombudsman Lori Light said the COVID-19 pandemic made painfully clear how critical family caregivers are to residents’ health, safety, and well-being.

“During extended lockdowns, we witnessed firsthand the profound impact isolation had on residents, including increased depression, anxiety, cognitive decline, weight loss, and loss of engagement in daily life. For many residents, family members are not simply visitors—they are essential partners in care – they provide emotional support, help residents communicate their needs, notice subtle changes in medical conditions, and advocate when something doesn’t seem right. When access was cut off, residents lost a vital layer of protection and connection. The lessons we learned during COVID-19 must guide future policy decisions,” Light said. “No resident should ever again experience prolonged isolation from the people who know them best,” said Light.

According to Deb Burton, MS, executive director of RI Elder, the isolation imposed on long-term care residents during the pandemic was devastating. While infection control was essential, she said, the complete separation of residents from their families caused profound and lasting harm. Burton, a gerontologist, noted that residents experienced rapid physical, cognitive, and emotional decline.

“Families endured anguish knowing their loved ones were frightened, confused, and alone during the most vulnerable moments of their lives. Family members are not simply visitors—they truly are essential caregivers. They provide a familiar face, a steady hand to hold, and an understanding of a resident’s routines, preferences, and communication needs. This is especially true for individuals living with dementia or other forms of memory loss, for whom familiarity and connection are critical to well-being and safety,” Burton said.

Comments from the American Health Care Association 

While expressing support for family involvement, the nursing home industry has raised concerns about certain provisions of the bill.

From Holly Harmon, senior vice president of quality, regulatory, and clinical services at the American Health Care Association: “While we wholeheartedly support family members taking an active role in their loved one’s care, there are certain provisions of this bill where we have concerns. Mainly, we believe each situation, including public health emergencies, requires a collaborative process among public health officials and stakeholders to determine the most appropriate way to keep residents safe and loved ones connected, rather than implementing a blanket, inflexible process for all situations. We hope to work with lawmakers to make improvements to these proposals as the engagement of loved ones is critical to our residents’ wellbeing.

“Despite our caregivers doing everything they could to step in for family members during the pandemic, we were deeply concerned about the prolonged isolation of our residents. Public health officials were put between a rock and a hard place on how to best protect those in long term care, and due to the vicious nature of the virus on our resident population, it was determined best to restrict visitors and social interactions. Nursing homes were required to follow these restrictions until March 2021, and even then, CMS and CDC had strict guidelines due to the ongoing spread of the virus.

“The best way to prevent this global tragedy again is for officials to prioritize long term care residents and staff during public health emergencies, so that they can remain protected, active, and engaged with their loved ones and the community.”

A Final Note…

The best way to prevent another tragedy is to prioritize long-term care residents and staff during public health emergencies, so they can remain protected, active, and connected to loved ones. We must learn from the painful lessons of COVID-19. No one should be forced to decline alone, grieve alone, or die alone because of a lack of clear policy, RIElder’s Burton added. She noted that the Essential Caregivers Act ensures that in the next public health emergency” when it could be any one of us in a facility” we will not be separated from the person who knows us best and stands ready to advocate for us.

Caregiver Galligan remains hopeful. “This is simply a merciful bill for a voiceless population”, he said.

(updated 1-21-26)

Veteran Lawmaker Steny Hoyer Bids Farewell After 45 Years in Congress

 Published in RINewsToday on January 12, 2026

 According to Ballotpedia’s tracker of incumbents not seeking re-election in 2026, 20 House lawmakers are retiring at the end of this Congress, 17 of whom are age 50 or older. Last week, Rep. Steny H. Hoyer (D-MD), a long-serving member of the U.S. House of Representatives, announced his retirement and now joins Reps. Nancy Pelosi (D-CA), Jerrold Nadler (D-NY), and Jan Schakowsky (D-IL)—all of whom served in House leadership and have announced their decisions not to seek another term—in departing Capitol Hill.

On Jan. 8th Hoyer addressed the House chamber announcing to his colleagues of his plans to retire. Choking up at times during his remarks, he reflected on his 45 years of serving his constituents and expressed concern about the direction of the House.

He began his remarks by looking back at a pivotal moment in 1959 when he attended University of Maryland at College Park, that would push him into public service —hearing John F. Kennedy speak at a spring convocation.  A week later after Kennedy’s speech the young college student would change his major from business to political science.  Looking back, Hoyer noted that this two hour encounter led to a 60-year career in public service.

Hoyer, who has held top Democratic leadership positions including House Majority Leader, reflected on his nearly 45 years in the House, contrasting the collegial, bipartisan atmosphere when he first arrived in 1981, under the leaders of Rep. Tip O’Neill (D-MA) and Rep. Bob Michael (R-IL)  with the current state of divisiveness and partisan bickering.

The Maryland Congressman, representing Maryland’s Fifth Congressional District, expressed concern that the House was failing to meet its constitutional responsibilities that the first article of the Constitution demands and warned that the nation was heading towards “smallness” and “pettiness.” He concluded by calling on his colleagues to work together to pass appropriation bills in a bipartisan, timely fashion to keep the government open, thanking his family and colleagues, and reaffirming his gratitude for his long, productive career.

Taking a Look at Aging and Health Care Issues   

While serving as House Majority Leader, Hoyer played a key role in the passage of the Affordable Care Act (ACA) by overseeing debates, managing Democratic floor strategy and building public support. The ACA expanded access to affordable health insurance, prohibited denial of coverage for pre-existing conditions, allowed young adults to stay on parents’ plans to age 26, and greatly expanded preventive services coverage.

Hoyer would steer the Americans With Disabilities Act (ADA) to overwhelming final approval in the lower chamber by negotiating legislative language in the bill and building bipartisan consensus.  This landmark legislation, signed into law on July 26, 1990 by Republican President George H.W. Bush, prohibited discrimination based on disability and greatly expanded accessibility in employment, public service, transportation, and places of public accommodation for millions of disabled Americans.

Eighteen years later, he would lead the House efforts to pass the ADA Amendments Act, which strengthened and clarified the original law’s protections to ensure that it would be broadly as intended, benefiting millions of Americans with disabilities.

The long-time Congressman has been a strong defender of Social Security and Medicare, tirelessly opposing privatization and advocating long-term solvency to ensure benefits for current and future retirees. He supported funding and modernization efforts that improve Medicare efficiency and access to providers for seniors.

Hoyer also helped to bring major health care-related legislation to the House floor during the pandemic.  He successfully pushed for passage The American Rescue Plan, that would fund COVID-19 vaccines and pandemic health responses and that now has lowered prescription drug costs of some medications.

Hoyer also hosted events and roundtables highlighting mental health care investments (like the 988 Suicide & Crisis Lifeline), reflecting ongoing engagement with health challenges affecting adults and seniors.

Kudos from Legislative Colleagues and Friends

Former Rhode Island Congressman James Langevin, now Distinguished Chair of Rhode Island College’s Institute for Cybersecurity and Emerging Technologies, remembers working alongside Steny Hoyer in Congress. “He was a good friend and respected colleague, but my relationship with him actually began before I was even sworn in,” he says. “He was an original author of the Americans with Disabilities Act, which opened doors for people with disabilities and empowered me to run for office.”

“When I was elected, Steny worked tirelessly to ensure I had the resources and accommodations I needed to transition to Washington and succeed as the first quadriplegic member of Congress. For Steny, accessibility was personal. I always knew that whatever I needed, Steny would make it happen. His departure from the House is a great loss for the institution, but I wish him all the best in his well-deserved retirement,” adds Langevin.

Rhode Island’s junior Congressman Gabe Amo also praised Hoyer’s service. “Steny Hoyer has been a steadfast champion of Marylanders and the American people, serving our country and Congress with integrity and conviction,” says Amo. “He was one of the first calls I received after I won the 2023 special election, and he welcomed me with open arms when I arrived in Congress.”

Amo considered Hoyer a trusted mentor who helped guide him as a newly elected member. “He always celebrated the wins we secured for Rhode Island—especially the infrastructure funding from the Bipartisan Infrastructure Law,” he notes.

According to Amo, Hoyer frequently mentioned his Rhode Island ties, sharing fond memories of his law school classmate, former Warwick Mayor Joe Walsh, and his long-time friend Congressman Langevin. “Steny is a stalwart public servant, and his impact will be felt for generations to come. He will be deeply missed in the halls of Congress,” Amo says.

Rep. Seth Magaziner offered similar praise. “Steny Hoyer is not only a congressional legend with many legislative accomplishments, he is a living reminder that politics does not have to be partisan and uncivil. He is well respected on both sides of the aisle, and I feel very fortunate to have had the opportunity to serve with him,” says Magaziner.

Robert “Bob” Blancato, President of Matzo, Blancato and Associates who served as former Staff Director of the House Aging Committees’ Subcommittee on Human Services, calls Hoyer one of the strongest Democratic leaders of the past 45 years. “During his time as Majority Leader, he stewarded landmark legislation—such as the Affordable Care Act—through the House and later its final passage through Congress,” he notes.

“As a senior member of the House Appropriations Committee, he helped ensure aging programs received priority funding even in difficult times. He was a gentleman legislator, and his level of service in Congress will be hard to duplicate,” says Blancato.

Max Richtman, President and CEO of the National Committee to Preserve Social Security and Medicare and former staff director of the U.S. Senate Special Committee on Aging, views Hoyer as a committed advocate for older Americans. “Steny has always been very accessible to the seniors’ advocacy community. He kept an open mind on the issues we care about. I have known him a very long time and personally liked him. He will be missed.”

Looking back, when President George W. Bush declared his intention to privatize Social Security after his re-election in 2004, Steny brought advocates together for regular strategy sessions to protect the program, says Richtman. “He united the advocacy community and helped orchestrate the defeat of Bush’s privatization plan. That’s a prime example of the leadership Steny provided,” he says.

Like Richtman, Robert Weiner, former Staff Director of the U.S. House Select Committee on Aging, recognized Hoyer’s effort to stop the privatization of Social Security — and helped in the regaining of the House majority as a result.  “During his time in Democratic House leadership, he never lost a bill he scheduled or brought to the floor for a vote,” says Weiner.

Weiner, who served with Hoyer as national officer in Young Democrats in the 70’s, remembers  Hoyer chairing weekly meetings with committee members and issue leaders to gauge party sentiments and anticipate votes, shaping House agendas. “At his recent birthday “Bull Roast” he invited me to, Hoyer discussed “bringing bills to the floor,” setting calendars, and securing votes. His foresight — and passionate House floor speeches — consistently assured favorable results.

The end of a 60-year career in public service with a dedication to senior friendly issues will keep his memory strong in Congress.

Don’t Drop Your Guard Against COVID, Flu, and RSV

Published in RINewsToday on December 12, 2022

COVID 19 cases across the nation are fewer in number than this time last year. But health care experts say that the Covid-19 is here to stay.

A new poll released by the Washington, DC-based American Psychiatric Association (APA), the nation’s oldest medical association, shows that while nearly a third of Americans report that while they anticipate being more stressed out this holiday season than last year, they are less worried about spreading or contracting COVID at a festive family gathering. Researchers say the findings, reported in the Dec. 2022 Healthy Minds Monthly Poll, reported they were more worried about affording holiday gifts. The APA’s study was conducted online by Morning Consult from Nov. 9-14, 2022, among 2,209 U.S. adults, with a margin of error of plus or minus 2 percentage points.

Holiday Worries, Less Concern about COVID Pandemic  

According to the poll’s findings, 31% of adults say they expect to feel more stressed this upcoming holiday season compared to last. This is an increase of 9 percentage points since 2021. Potential drivers of holiday stress include worries like affording holiday gifts (50%) and meals (39%) and finding and securing holiday gifts (37%). Younger adults and those making less than $50,000 are more likely to worry about affording the holidays, say the researchers.

Compared to 2021, adults are less worried this holiday season about spreading (35% in 2021 versus 25% in 2022) or contracting (38% in 2021 versus 26% in 2022) COVID-19 at a holiday gathering, noted the researchers. Adults are also less worried about spending time with family who have different views about COVID-19 (30% in 2021 versus 18% in 2022),” they say.

“This is a busy time of year for many people, and it’s common to put a lot of expectations on ourselves during the holidays,” said APA President Rebecca W. Brendel, M.D., J.D in a Dec. 1st statement announcing the study’s findings. “We can all benefit by enjoying moments that bring meaning and belonging, but those times are different for each of us. It’s also okay to opt out of some or all events if they bring more stress or distress than joy. There is no one right way to spend the holiday time of year,” she said.

On the positive side, the researchers added, “the plurality of adults (47%) say they are most looking forward to seeing family and friends this holiday season, of the options tested. That varied by age: Older adults (45-64: 50%, 65+: 63%) are more likely than younger adults (18-34: 37%, 35-44: 36%) to say so. A fifth of American adults (21%) said they were most looking forward to eating good food.”

The researchers noted that parents (39%) are more likely than non-parents (27%) to say they anticipate experiencing more stress this holiday season compared to last year. “Young adults and Democrats are more likely to worry about discussing politics and spending time with family with different viewpoints about COVID-19 during the holidays,” they say.

“While Americans are looking forward to seeing family this year, it’s important to remain vigilant about COVID-19, the flu and RSV,” warns APA CEO and Medical Director Saul Levin, M.D., M.P.A. “We are in a different situation than in 2020 or even 2021, but it’s still important to take precautions and stay home if you are sick,” she said.

Beware of the “Tripledemic”  

 With the Christmas holidays just weeks away, older adults must now not let their guard down about protecting themselves against a “tripledemic” of COVID, flu and RSV, says Nick Landekic, a retired scientist and biotechnology entrepreneur who is a contributor to RINewsToday. 

“COVID is now a pandemic of older people,” warns Landekic in a Dec. 9 article in the state-wide news blog. “With the year-end holidays upon us and infection rates rising across the country, the stark new reality is COVID is now a pandemic of older people,” he says.

“Right now, is a particularly risky time with a ‘tripledemic’ of COVID, flu, and RSV, with almost the entire country at ‘high’ or ‘very high’ levels of infection. Hospitalizations and deaths are both up sharply over the past two weeks, with deaths increasing as well,” says Landekic.

According to Landekic, the most accurate predictor of ending up hospitalized or dying from COVID is age. “Older people are thousands of times more likely to die of infection than younger persons,” he says, noting that the statistics bear this out. “Ninety percent of COVID deaths are now among those over 65. Over 300 Americans continue to die of COVID every day, and nearly 1,000 just on December 7 – a rate of over 100,000 a year – and most of them are over 65,” he says.

(COVID is now a pandemic of older people – Nick Landekic: https://rinewstoday.com/covid-is-now-a-pandemic-of-older-people-nick-landekic)

“You don’t want to get sick from one of these viral  infections and miss visiting with family and friends during the Christmas and New Year holidays, says Michael Fine, MD, author and chief health strategist for the City of Central Falls, adding that  “we’re in a “tripledemic” of COVID, flu and RSV (filling the nation’s pediatric hospitals). “It’s the worst flu year we’ve seen in recent memory,” he says, noting that “it has come early and hit hard.”

Dodging the Bullet 

During the upcoming holidays, Fine says it is easy to protect yourself against the “tripledemic” to prevent infection.  He recommends the importance of getting a bivalent COVID booster  if you haven’t had a booster during the last four months.

“You want to be extra careful two weeks before attending holiday gatherings,” says Fine, a family physician who contributes on health and medical issues (as well as short stories) for RINewsToday and is the former Director of the Rhode Island Department of Health.  Specifically, wear masks in stores and avoid restaurants and bars for about two weeks before a gathering or planned travel. “I don’t think many are eating outside at this point,” he quips.

“Wearing a mask in an airport terminal is important when traveling to family gatherings,” says Fine.  While there is good air infiltration in the air, it is not so in terminals, he adds.

When attending a holiday gathering with multiple households, it is a very good idea for everyone attending to take a COVID 19 home test. “It is not perfect but better than nothing,” says Fine.

“Those who have not been vaccinated yet, you still have time to do so before attending those holiday gatherings,” says Fine

Fine believes that people who haven’t yet been vaccinated can take comfort from the last two years and our now extensive experience with the vaccine. “We have two years of experience with the vaccine with billions being vaccinated.  We haven’t seen any substantial programs. It’s now the best tested vaccine in history,” notes Fine.