Tag Archives for caregivers

A Call for Supporting the Nation’s Caregivers

Published in RINewsToday on June 12, 2023

Just 519 days until the 2024 Presidential Election (Nov. 5, 2024), older voters call on Congress to provide more support for the nation’s family caregivers, according to a new AARP Family Caregiving study, released on May 5, 2023, conducted by the bipartisan polling team of Fabrizio Ward and Impact Research.

Former First Lady, Rosalynn Carter, observed that “there are only four kinds of people in the world. Those who have been caregivers. Those who are currently caregivers. Those who will be caregivers, and those who will need a caregiver.” The results of AARP’s survey of U.S. registered voters, compiled in the 26-page report, U.S. Voters’ Views on Support for Family Caregivers, gives weight to the truth behind Carter’s quote as one-third of the voters in this study were caregivers in the past, one-fifth are currently caregivers, and half expect to be a caregiver in the future.

Caregivers Call for Government Support 

According to AARP, this is especially true for those age 50 and older: over two-thirds of voters, and 75% of voters 50+, say it is very important for Congress to help seniors live in their own homes. More than half (57%) say the same for supporting unpaid family caregivers, notes the poll’s findings.

An overwhelming majority of voters, 78%, are either a current, past, or future family caregiver. Over 70% of voters across the political spectrum say they would be more likely to support a candidate who backed proposals to support family caregivers, such as a tax credit, paid family leave, and more support and respite services.

“Family caregivers are the backbone of a broken long-term care system, providing $600 billion in unpaid labor each year and saving taxpayers billions,” said Nancy LeaMond, AARP Executive Vice President and Chief Advocacy and Engagement Officer in a statement announcing the release of the poll findings. “It is long past time for lawmakers to enact commonsense solutions that support family caregivers and help older Americans live independently in their homes, where they want to be,” she says.

The poll’s findings indicate that legislative caregiving proposals are strongly supported across party lines: 89% of Democrats and 72% of Republicans support expanding services to help seniors live at home in the community rather than in a  nursing home. Requiring minimum staffing standards in nursing homes so residents receive quality care is supported by 8 of Democrats and 74% of Republicans polled in this survey. 

The researchers say that black voters, women, Democrats, and Latinos are especially likely to see long-term care and support for caregivers as key issues to be addressed by Congress. Among those groups, 77% of women, 82% of Black voters, 71% of Latinos and 77% of Democrats say expanding services to help seniors live independently in their own homes instead of a nursing home is very or extremely important.

Most caregivers feel stressed emotionally, stretched thin in both time (18%) and money (18%), and overwhelmed; 40% of all family caregivers say they spend over 20 hours a week on caregiving, with almost half (48%) of women caregivers spending over 20 hours a week.

“Anxiety over caregiving is not limited to those currently providing care,” says AARP, noting that more than two-thirds of voters express concerns about whether they will be able to get the care they need as they grow older or live independently.

“The data is clear: regardless of your political stripes, people adamantly want to age at home rather than a nursing home,” said Tony Fabrizio, partner in Fabrizio Ward, noting “It’s why support for helping caregivers is so politically important.”

“Family caregivers are stressed emotionally and financially, and proposals to help them are overwhelmingly popular and key to helping older Americans remain in their homes,” said John Anzalone, founder of Impact Research. “This may be the sleeper issue of the 2024 elections with a voting group that makes up one in five Americans,” he says.

Caregivers Need Assistance

For many caregivers, providing care to their loved ones takes a big chunk out of their yearly finances, and time that they must give to providing the caregiving. According the AARP’s report, four in ten family caregivers report spending over 20 hours a week on their caregiving responsibilities, while roughly six in ten incur $1,000 or more in annual out-of-pocket expenses on items such as medical supplies and equipment, transportation, or home modification. Emotional stress, having to miss important events, and needing to balance their work, family, and caregiving responsibilities are impact the majority of family caregivers.

When asked what they would like Congress or their state government to do, family caregivers say they would like increased access to healthcare and financial support. Seven in ten voters ages 18 and older say they would be more likely to support a political candidate who backed legislative proposals to support family caregivers, such as paid family leave; a tax credit of up to $5,000; and expanded access to support and respite services. These policies would allow family caregivers an opportunity to take a break from caregiving, helping to prevent their burnout and allowing them to continue providing caring for their loved ones.

According to the polls findings, most voters ages 18 and older express concern about whether or not they will be able to get the care they need when they grow older. Roughly two-thirds says they are concerned they won’t have enough money to pay for the care they need, or they won’t be able to live independently at home, while six in ten are worried that they will need to live in a nursing home providing poor care.

The Support for Family Caregiving study was conducted by the bipartisan polling team of Fabrizio Ward and Impact Research for AARP. The poll used a sample of U.S. voters age 18 and older (with oversamples of voters age 50 and over, black voters, Hispanic voters, Asian and Pacific voters and family caregivers) using a combination of phone and text to web sampling. A total of 1,425 completed 20-minute in length interviews, were  conducted in English from April 4-10, 2023.

The margin of error for the 1,425 adults’ sample is +/- 3.4% at the 95% level of confidence. For the oversampled groups, the margins of error are: +/- 3.4% for voters 50+, +/- 6.9% for Black and Latino voters, +/- 8.9% for AAPI voters, and +/- 4.9% for voters 50+.

To see poll findings, go to https://www.aarp.org/content/dam/aarp/research/surveys_statistics/ltc/2023/voters-views-caregiving-support-report.doi.10.26419-2Fres.00616.001.pdf.

For more details, contact Teresa Keenan, AARP’s Director, Consumer Insights, Health and Health Security, at TKeenan@AARP.org.

Larson Pushes to Get Social Security Reform Proposal for House Vote

Published in Pawtucket Times on June 13, 2022

The House Ways and Means Committee is preparing for a full mark-up on H.R. 5723, Social Security 2100: A Sacred Trust, authored by Committee Chairman John B. Larson (D-CT) this summer. Last week Larson held a press conference calling for passage of the legislative proposal. 

The morning press conference, held on June 2nd at the Connecticut AFL-CIO headquarters, based in Rocky Hill, Connecticut, brought together Connecticut AFL-CIO President Ed Hawthorne, Connecticut Alliance for Retired Americans President Bette Marafino, State Senator Matt Lesser, State Senator Saud Anwar, State Representative Amy Morrin Bello to announce the endorsement of H.R. 5723 by the AFL-CIO.  The AFL-CIO is known as the nation’s largest federation of unions, made up of 56 national and international unions, representing more than 12 million active and retired workers.

On the same day, the Social Security Administration released the 2022 Social Security Trustee Report.

According to Larson’s statement, over 200 House Democrats [no Republican has yet to support the proposal], are cosponsoring H.R. 5723. Forty-two national organizations (aging, union, veterans, disability and consumer health organizations) are calling for passage of H.R. 5723, including the Leadership Council on Aging Organizations and the Strengthen Social Security Coalition representing hundreds of national and state aging organizations.

Larson noted that it has been 50 years since Congress acted to expand Social Security benefits. The Connecticut Congressman stated: “By passing Social Security 2100: A Sacred Trust, we can act now to expand our nation’s most effective anti-poverty program and ensure this program remains a ‘sacred trust’ between the government and its people. It is an honor to stand alongside the AFL-CIO today as they announce their support for our legislation.”

“Social Security benefits are a promise made to workers and Social Security 2100 is essential in fulfilling this promise,” said Connecticut AFL-CIO President Ed Hawthorne. He praised Larson’s efforts to repeal the Windfall Elimination Provision that harms Connecticut’s teachers, firefighters, and police officers by reducing social security benefits they earned because they are receiving pensions after years of dedicated public service.

“Retirees and those most vulnerable in our society depend on Social Security to live a life of dignity. The Connecticut AFL-CIO and our over-200,000 members stand in solidarity with Congressman Larson in his fight to ensure Social Security is a promise we keep for generations of Americans to come,” said Hawthorne.

State Senator Saud Anwar, (D-South Windsor) joined Larson and others, too, supporting H.R. 5723. “Social Security has long been an American institution, one relied upon and paid into by countless citizens who receive a promise that they will be taken care of,” said the Connecticut Senate’s Deputy President pro tempore. “We must take action to expand this program and ensure this vital service will remain available for future generations, and Social Security 2100 will do just that. I am grateful for Connecticut’s federal representatives in their work to support our communities, our state and our country,” he said.

Senator Richard Blumenthal (D-CT), who introduced the companion bill to H.R. 5723 in the Senate could not be there, but issued this statement: “As seniors and people with disabilities struggle with the costs of food, housing, and prescription drugs, this bill enhances and expands benefits for millions of Americans who need them. I am proud to stand with my colleagues and union members to support the Social Security 2100 Act, keeping this vital lifeline solvent ensuring our nation’s bedrock social insurance program will continue to provide current and future beneficiaries with a quality standard of living,” said Connecticut’s senior Senator. 

H.R. 5723: The Nuts and Bolts

On Oct. 26, 2021, H.R. 5723 was referred to the House Ways and Means, Education and Labor, and Energy and Commerce Committees, being introduced in the lower chamber that day.

According to a legislative fact sheet, H.R. 5723 gives a benefit bump for current and new Social Security beneficiaries by providing an increase for all beneficiaries (receiving retirement, disability or dependent benefits).

Larson’s Social Security fix also protects Social Security beneficiaries against inflation by adopting a Consumer Price Index for the Elderly (CPI-E), to better reflect the costs incurred by seniors who spend a greater portion of their income on health care and other necessities.

This legislative proposal protects low-income workers by providing a new minimum benefit set at 25% above the poverty line and would be tied to wage levels to ensure that minimum benefits does not fall behind.

It also contains other provisions that seniors and their advocates have sought for years, including:

  • Improving Social Security benefits for widows and widowers in two income households so they are not penalized for having two incomes.
  • Ending the five-month waiting period to receive disability benefits so those with ALS or other severe disabilities no longer have to wait.
  • Providing caregiver credits for Social Security wages to ensure that caregivers are not penalized in retirement for taking timeout of the workforce to care for children and other dependents.
  • Extending Social Security benefits for students to age 26 and for part-time students.
  • Increasing access to Social Security dependents for children who live with grandparents or other relatives.                       

H.R. 5723 would pay for strengthening the Social Security Trust Fund by having millionaires and billionaires pay the same rate as everyone else. Currently, payroll taxes are not collected on an individual wages over $142,800. The legislative proposal would apply payroll taxes to wages above $400,000, only impacting the top 0.04% of wage earners.

Larson’s proposal would also extend the solvency of Social Security by giving Congress more time to ensure long-term solvency of the Trust Fund.  It also cuts long-term shortfalls by more than half.

Finally, H.R. 5723 would combine the Old-Age and Survivors Insurance with Disability Insurance into one Social Security Trust Fund, to ensure all benefits will be paid.

NCPSSM Pushes for Passage

Even with over 200 cosponsors, a Washington insider says that H.R. 5723 may be stalled because of concerns of House Speaker Nancy Pelosi’s (D-CA) policy staff about the cost of the proposed legislation.  At press time, House lawmakers are waiting for the non-partisan Congressional Budget Office to score the legislation [to determine its cost], this being required to bring it to the House floor for a vote.

In a blog article, posted on May 27th by the Washington, DC-based National Committee to Preserve Social Security and Medicare (NCPSSM), seniors are urged to request their House lawmakers, if they are not currently cosponsoring H.R. 5723, to support Larson’s landmark legislation to strengthen Social Security.  According to the NCPSSM, Reps. Cynthia Axne (D-IA) Susie Lee (D-NV) and Tom O’Halleran (D-AZ) are among the 22 Democrats that have not yet sponsored H.R. 5723. With the upcoming mid-term elections just 148 days away, these Democratic lawmakers may fear Republican attacks, accusing them of raising taxes, speculates NCPSSM.

“The more Democratic co-sponsorships the bill garners, the stronger the case that House leadership should bring it to the floor for a vote,” says NCPSSM.

NCPSSM reports that Larson’s Social Security proposal has strong public support. “A poll by Lake Research Partners showed that across party lines, 79% supported paying for an increase in benefits by having wealthy Americans pay the same rate into Social Security as everyone else. A recent survey of our members and supporters indicated 96 percent support for raising the cap,” says the Social Security Advocacy group.

NCPSSM says Larson’s legislative proposal gives Democrats an opportunity to build upon, strengthen, and expanding the Social Security program, created by President Franklin D. Roosevelt in 1935. 

Many feel it is time for House Speaker Nancy Pelosi to use the power of her office, responding to over 200 Democrats in her Caucus, to bring H.R. 5723 to a House Ways and Means Committee and floor vote.  If the Republicans take control of the House and Senate Chambers, Social Security reform to expand and strengthen Social Security may be in jeopardy, so time is of the essence to supporters to see H.R. 5723 passed and enacted.

With Thanksgiving approaching, beat the Holiday Blues

Published on November 22, 2021 in RINewsToday

Just a year ago, the coronavirus (COVID-19) pandemic transformed the way we celebrated the traditional Thanksgiving dinner. Normally a personal gathering day with family and close friends, the cooler weather pushed people inside where the virus more easily spreads, forcing families to meet on Zoom for turkey dinner and catching up.

Today, COVID-19 vaccines have made it safer to bring families together to this annual holiday gathering. With the nation’s borders now open and 195 million Americans fully vaccinated and new travel guidelines in place, AAA predicts more than 53.4 million people are expected to travel to reunite with their loved ones, the highest single-year increase since 2005.

But like previous Thanksgiving celebrations, not every family gathering will be as serene as the one portrayed in Noman Rockwell’s iconic Freedom from Want painting that appeared in the March 6, 1943 issue of the Saturday Evening Post. Thoughts of attending the upcoming gathering might just tear open psychological wounds and bring to the surface bad memories, triggering stress, tension, and even depression.

Increased family demands and obligations that begin before Thanksgiving and continue through Christmas, and finally New Year’s Eve, can bring about the holiday blues, sad feelings specific to the holiday season. While there is no formal diagnosis of the holiday blues, these feelings are quite real for some people. Usually, it is felt by people who are going through the first holiday after a loss of a significant person in their life or a bad childhood memory from past the holidays. 

Holiday stresses brought about by last minute shopping for gifts, baking and cooking, cleaning and hosting parties, and even having unrealistic expectations can trigger depression. It can also bring about a feeling of malaise, tiredness, headaches, excessive drinking and overeating and even difficulty in sleeping.

COVID-19 and the Holiday Blues

At the beginning of the COVID-19 pandemic there was less stress because people were not doing face-to-face gatherings, says Elaine Rodino, Ph.D., psychologist in private practice for over 41 years in California and Pennsylvania. “But it still came up because they were worried about Uncle Morrie showing up on Zoom,” she says.

The COVID-19 pandemic is overshadowing this year’s holiday season yet again, says Rodino, who is former president of the American Psychological Associations’ Division 46 (Society for Media Psychology & Technology), and Division 42 (Psychologists in Independent Practice), the Los Angles County Association, and the Central Pennsylvania Psychological Association.

“There’s plenty of mitigating news this year about inflation and how prices are higher on almost all items including Thanksgiving Day dinner. People having financial issues this year can let themselves feel better by realizing that they are not alone. Many people are suffering economically through no fault of their own,” Rodino says.

“We’ve been experiencing many new ways of having to think about things,” adds Rodino, urging people to “be flexible and find new ways to enjoy life with less dependence on material things.”

According to Rodino, preplanning your visit can be the best way to reduce holiday blues. “Give thought to what you’re expecting and determine if your expectations are valid or just wishful thinking. Then decide to literally “make the best of it” by focusing on the good things and the good reasons why you’re making this visit,” she advises.

Putting the Kibosh on Hot Topics at Dinner

What can you do to steer away from heated political debates or sensitive issues including “why aren’t you vaccinated?”

Stressful situations at Thanksgiving gatherings can be reduced if you give thought to what to expect in visiting with your relatives. “Plan ahead on how you’re going to avoid being taken down a rabbit hole of controversy. How are you are going to pivot away from conversations when you see them going in a dangerous direction?”  

Rodino adds, “Remember who they are and how they think. Since it’s only a limited time visit, try to remain neutral. Don’t try to change anyone’s thinking. Things usually go badly when people try to convince others to think the way they do. That never goes well.”

You can plan ahead about how you will handle these conversations. “Do not fight!  There will be no winner. Talk about sports, the weather (not climate change), how delicious the food is, even how cute the dog is,” recommends Rodino.

“It’s best to accept that everyone has their own opinions (even if some seem very bizarre). Just think to yourself that you will soon be going back to your own home. You do not need to try to convince anyone about anything,” adds Rodino.

“When feeling stress, it’s important to realize that it’s time limited. Take care of yourself, whether it’s exercising, taking a warm bath, or just taking a break and reading a book. “There needs to be just some time that you just check out from the holiday stress part,” she says.

The holiday blues should begin to fade away by the first couple of weeks in January, notes Rodino. “So, if people are still feeling that, like say the second, third week of January, then they really should talk with a psychologist, because there could be issues that really need to be sorted out and processed,” she says.

With the ongoing pandemic we need to create new ways of doing things, says Rodino, noting that “People need to become creative and think up new ways to celebrate.”

As to compiling other strategies to cope with the holiday blues, Rodino suggests Googling ideas for surviving the pandemic holidays. “There’s something there for everyone,” she says.

Depression and Suicidal Thoughts

During this time of year, some may even feel a little depressed or have suicidal thoughts. Losses of all types can weigh heavily on anyone, but loss from COVID-19 has tragically impacted on so many and we can now add the pandemic to the challenges many face along with unemployment, experiencing painful chronic illnesses, or just feeling isolated from others. Sometimes, you aren’t ready for professional help from a doctor or mental health professional. Sometimes, you just need someone to talk to.

Think about calling The Samaritans of Rhode Island – where trained volunteers “are there to listen.” Incorporated in 1977, the Pawtucket-based nonprofit program is dedicated to listening to those in need through its nonjudgment befriending hotline/listening line program serving all of the state’s 39 cities and towns.

Executive Director, Denise Panichas, of the Rhode Island branch, notes that the communication-based program teaches volunteers to effectively listen to people no matter the caller’s issues or status. “You don’t need insurance, you don’t need to be in crisis, you don’t need to be in professional care, you don’t need a diagnosis to call. Most importantly, conversations are free, confidential and anonymous.

And, Panichas notes, for those in professional care, Samaritan volunteers can  be there to listen when family, friends and professionals are not available.

Panichas noted The Samaritans of Rhode Island Listening Line is also a much-needed resources for caregivers and older Rhode Islanders. Caregiving is both rewarding but most caregivers don’t want to talk about the stress to family and friends. Caregivers don’t want to be a bother to anyone. Caregivers need to know, however, that they are never a bother to our Listening line volunteers.

This year, The Samaritans partnered with Rhode Island Meals on Wheels to share information about the availability of the Listening Line services to homebound seniors. Family members are encouraged to share The Samaritans telephone number with seniors who are family members living alone, or even for those seniors living in facilities – most have private phones and they can call, too.

The Samaritans of Rhode Island can be the gateway to care or a “compassionate nonjudgmental voice on the other end of the line,” Panichas notes. “It doesn’t matter what your problem is, be it depression, suicidal thoughts, seeking resources for mental health services in the community, or being lonely or just needing to talk, our volunteers are there to listen.”

Suicide prevention education is still a very important feature of the agency’s mission. For persons in need of more information about suicide emergencies, The Samaritans website, http://www.samaritansri.org, has an emergency checklist as well as information by city and town including Blackstone Valley communities from Pawtucket to Woonsocket.

Holiday giving to financially support the programs of The Samaritans of Rhode Island is always welcomed. Donations can be made online at its website or by mail to: The Samaritans of Rhode Island, P.O. Box 9086, Providence Rhode Island 02940.

Emergency? Call 911. Need to talk? Call a volunteer at The Samaritans. Call 401.272.4044 or toll free in RI (1-800) 365-4044.