Tag Archives for caregivers

Senior Fellows Give Time to Non-Profits 

Published in RINewsToday on January 20, 2025

 By Herb Weiss

When a state law was enacted in 2024 allowing families to install monitoring cameras in the nursing home rooms of their loved ones,  Ginny Lee, one of Leadership Rhode Island’s first Senior Fellows, was among those celebrating.

Lee had spent a lot of time button-holing legislators and testifying before House and Senate committees in support of the bill, which is intended to protect nursing home and assisted living residents from physical, verbal and sexual abuse.  

By advocating for passage of the “Grammy cam” surveillance law, Lee was fulfilling the civic commitment she made in 2023 as a member of the inaugural Senior Fellows program, a joint effort of LRI and Age-Friendly RI. 

Empowering older adults to take “an active role in shaping the state’s future” is exactly what James Connell,  Age-Friendly’s executive director, had in mind when he approached LRI’s then-new Executive Director, Michelle Carr,to create the Senior Fellows program.

Though Lee was among the Senior Fellows who successfully fulfilled their commitments to improve the lives of older Rhode Islanders, some Fellows in the first cohort struggled to find a way to make good on their respective pledges.    

Feedback from the pilot program indicated that more structure would help participants carry out their civic commitments, says Lyanh Ramirez, LRI’s development manager.

That’s why the 2024 Senior Fellows program offered participants the option of  volunteering with a community organizationalready engaged in age-friendly issues and activities.          

The goal was to connect participants “to the causes and efforts they were passionate about,” Ramirez says. “There are so many wonderful initiatives already happening that we didn’t want to duplicate efforts.”                 

Participants, ranging in age from 62 to 86, attended eight sessions in May and June during which they discussed the needs and challenges of the state’s older population and many other topics.

 Of the 28 participants, five are LRI alumni:  Ray Pouliot, Barry Couto, Jodi Glass, Patricia Raskin, and Patty Cotoia.        

Intergenerational communication was the focus of one session in which LRI alumni from different generations joined a discussion on ageism.  Other sessions dealt with the value of knowing one’s strengths, and legislative activity related to healthy aging.

Participants also heard directly from each of the nine partner organizations that had agreed to work with one or more of the newly minted Senior Fellows until the end of the year.

Partner organizations included the Rhode Island affiliates of Age Friendly, the AARP,  Meals on Wheels, PACE, the Senior Agenda Coalition,  the Village Common and the United Way, along with the state Department of Health and the Coventry Human Services/Resource & Senior Center.

  Here’s a sampling of what some of the Senior Fellows accomplished:  

Five Senior Fellows are contributing in different ways to the state Health Department’s efforts to make quality-of -life-improvements for those with Alzheimer’s Disease and Related Disorders (ADRD).

 “They’ve all been very active,” says Victoria O’Connor, chair of the statewide ADRD Advisory Council that developed a five-year plan of  strategies and activities to support those with dementia and their caretakers.

 Joe McCarthy came up with the idea of finding out what other states are doing to address ADRD issues and to compare their plans with Rhode Island’s current five-year plan.  

Two others, Brian Grossguth and Roland Moussally, did some “boots-on-the-ground” research. Grossguth visited two senior centers to get a sense for what resources are needed to better serve those with dementia; Moussally met with members of a group in Pawtucket to learn how they are incorporating the needs of residents with dementia in Pawtucket’s Age-Friendly action plan.

 Meanwhile, Kathy Trier and Gary Avigne have contributed research to guide a new mini-grant program to support community initiatives for those with dementia.

 They researched other grant applications for similar amounts of funding – less than $5,000 – to inform the development of the ADRD application. Trier and Avigne also assisted in the creation of a scoring matrix to compare the responses of applicants.  

The five Senior Fellows presented their findings at the November meeting of the ADRD Advisory Council, the group that oversees progress in implementing the strategies in the 2024-2029 State plan.                  

Five other Senior Fellows volunteered at the AARP.  Four  focused on efforts to make communities age-friendly.              

 “It’s important for everyone to have a safe place to walk, ride a bike, or even push a baby carriage,” explains Ray Pouliot, 77, retired East Greenwich school teacher.       

The first hurdle for joining the AARP Network of Age-Friendly States and Communities is getting a commitment from local officials. 

 At the start of his work with AARP,  Pouliot noted that being a resident of East Providence “and personally knowing the mayor might help get this initiative up and running.”

He was right. In October,  Pouliot, Deborah Perry, also from East Providence, and a small AARP delegation, met with Mayor Roberto L. DaSilva to explain what it takes to become an Age-Friendly city.

 The mayor agreed on-the-spot to support the effort. Pouliot and Perry get “full credit” for the success, says Matt Netto, AARP’s associate state director for outreach and advocacy.

 Mary Ann Shallcross Smith, a state representative and President of Dr. Day Care Learning Centers, chose to concentrate on sidewalk improvement efforts because “all the phone calls I get from many people in my hometown of Lincoln” are about sidewalks.

Shallcross Smith says working on the AARP initiative complements her legislative interests to ensure sidewalk safety. She introduced a bill in the 2024 legislative session  to maintain sidewalks and curbs along the state’s highways. The bill didn’t make it, but she intends to re-introduce a revised version in 2025.

“If there are no holes or cracks in sidewalks it will enable people who want to take a walk,” says Shallcross Smith.  “It’s free exercise!”

She and Netto of the AARP also plan to approach Town Administrator Philip G. Gould soon to urge that Lincoln consider joining the AARP Network of Age-Friendly States and Communities.

Senior Fellow Perry, 62, president and CEO of the YWCA, says she opted for the Livable Communities program “because it resonates with me.”  She once worked as a municipal planner.Perry, who expects to retire in August, 2025, says she will conduct  a sidewalk audit in a Providence neighborhood to fulfill her Senior Fellow pledge. After retiring, she hopes to have time to get involved in East Providence’s Age-Friendly program.

In October, Senior Fellow Janis Solomon, who retired in 2008 after 43 years as a professor of German Studies at Connecticut College, joined a sizable group of Rhode Islanders learning how to conduct a sidewalk audit. She will audit streets in a neighborhood in Providence.      

A fifth Senior Fellow, Vince Burks, 64, former communications director at Amica Insurance Company, chose to volunteer for the AARP’s public speaker’s bureau. ”I have experience with public speaking and public affairs, so I felt this would be a good fit,” he says.

The Senior Fellows program is offered tuition-free. Carolyn Belisle, vice president of Corporate Social Responsibility at Blue Cross and Blue Shield of Rhode Island, says she was thrilled to join Age Friendly as a sponsor of the innovative program.

New report re-examines workplace policies and caregiving

Published in RINewsToday on June 10, 2024

As a newly released AARP and S&P Global report notes, working while being a caregiver is complicated.  While the researchers say that since the previously issued report in 2020, US employers have stepped up to the plate to offer access to caregiving benefits.  However, much more must be done. 

Since the 2020 AARP and S&P Global’s last report, employers have become attuned to the needs of working parents over the past decade and especially during the pandemic, and are now moving from awareness to action in providing support for employees with adult caregiving responsibilities.

Taking a look at caregiver employees

The report’s authors say this study “explores the workplace experiences of caregivers and how they use employer provided benefits and policies to remain successful at work while providing care at home. It reveals not only the challenges of balancing work and caregiving, but also how the right workplace policies can ease the burdens.”

According to the new analysis conducted last December by AARP and S&P Global, the unpredictable nature of caregiving for an adult is one of the biggest stressors the caregiver employee faces.  Sixty seven percent of family caregivers have a very difficult time balancing work with their caregiver responsibilities.  

Half of the working caregiver respondents reported having to make work scheduling changes, (including going in early, leaving late, or just taking time off because of caregiving responsibilities), the findings indicated.

The findings indicate that workers are even reducing hours at work.  Twenty seven percent of working caregivers have shifted from full-time to part-time work or have even reduced hours, while 16% have turned down a promotion.

Meanwhile the findings indicated that 16% have stopped working entirely for a period of time — and 13% have changed employers — in order to meet their caregiving responsibilities.

With the nation’s number of adults ages 65-plus projected to surpass the population of children by 2030, the report warns that US employers must continue to offer policies and benefits that are friendly and supportive of adult caregivers to keep them in the workforce.

In order to get a handle on the needs of working caregivers and understand the importance of employer benefits for balancing work and family care obligations, in 2023 AARP and S&P Global surveyed 1,200 self-identified caregivers who worked full-time or part-time at large US companies (employing more than 1,000 employees) and who provide at least six hours of care each week to an adult.

It’s complicated – being a working caregiver 

There were other key highlights from the Working while caregiving: It’s complicated report.  

Eighty percent of the survey caregiver respondents believe that companies were more understanding of childcare issues – rather than adult caregiving responsibilities.  The researchers say that this is particularly the case among caregivers who have an under-18 child at home and they have recent experience of both caregiving situations. Those caregivers without children reported less satisfaction with company support than caregivers with children (69% versus 89%, respectively).

For those working remotely, the survey’s findings indicate that they were more likely to feel penalized or discriminated against at work because of caregiving responsibilities when compared to in-office or hybrid workers (49% versus a combined average of 29%). The researchers say that this might reflect employer challenges in assessing and engaging with remote employees’ work-life needs.

Finally, the study found that among working caregivers providing more than 21 hours of care a week, 37% say they are experiencing significantly increased difficulty due to inflation. And for those providing fewer than 10 hours of care, 25% say inflation has made providing care significantly more difficult.

According to AARP, previous AARP research shows that of the nearly 48 million family caregivers in the US, 61% are juggling both work and caregiving responsibilities, including assistance with daily living activities, medical or nursing tasks, coordinating services and supports, transportation, shopping, and serving as an advocate for their care recipient. Most family caregivers provide at least 20 hours of care each week, equal to an unpaid part-time job.

The new report’s findings found that access to a flexible work schedule at the time of caregiving increased from 32% in 2020 to 45% in 2023. Additionally, the availability of caregiving policies or benefits increased in every category except unpaid leave. 

“As the backbone of America’s long-term care system, providing $600 billion every year in unpaid labor, family caregivers need and deserve greater support from their own employers,” said Susan Reinhard, Senior Vice President and Director of AARP Public Policy Institute, in a May 16th statement announcing the release of the 21 page report’s findings.  “As our population ages, it’s critical that employers support family caregivers in the workforce with the policies, such as paid leave, that can ease their everyday burdens,” she said.

“Despite the progress observed since 2020, the latest data shows the majority of employees with adult caregiving responsibilities continue to face barriers at balancing work and caregiving obligations and need greater support from employers through enhanced benefits and policies to stay engaged in the workforce,” noted Alexandra Dimitrijevic, Co-chair of S&P Global Research Council. “Employers can help by paying forward-looking attention to employee needs and the demographics shift of the workforce in the coming years,” she added.

Best Practices to support working caregivers

The report’s authors say that employers can do more to support working caregivers and detail best practices that companies can take to support their employees. 

They call on companies to consider offering and support flexible schedules and flexible work locations either hybrid/remote. Employer-supported access to support groups, career coaching and financial advising resources could be offered.  Paid leave specifically for caregivers and/or flexible leave can be used to help with caregiving duties, they suggest.

Yes, information is power.  Companies could host free sessions to highlight how caregiving employees can optimize employer benefits and policies, as a way to address the lack of awareness in using benefits.  Senior leaders could be asked to share their stories as to how they have used the company’s caregiver-supportive benefits and policies, signaling to both people managers and their teams that they are encouraged to use them.

The report’s authors urge companies to train people managers on caregiver-inclusive managerial practices and ensure that they are aware of caregiver-supportive benefits and policies. They must make it clear that it is safe to use them all without incurring career risk.

Finally, companies can start or support an Employee Resource Group (ERG) for parents and caregivers or create a caregiving initiative across all ERGs. 

To view the full 2024 report:

https://www.spglobal.com/en/research-insights/featured/special-editorial/working-while-caregiving.

To view the 2020 report:

Click to access somethingsgottagive_spgiaarp.pdf

For details on caregiving: 

Click to access full-report-caregiving-in-the-united-states.doi.10.26419-2Fppi.00103.001.pdf

A Call for Supporting the Nation’s Caregivers

Published in RINewsToday on June 12, 2023

Just 519 days until the 2024 Presidential Election (Nov. 5, 2024), older voters call on Congress to provide more support for the nation’s family caregivers, according to a new AARP Family Caregiving study, released on May 5, 2023, conducted by the bipartisan polling team of Fabrizio Ward and Impact Research.

Former First Lady, Rosalynn Carter, observed that “there are only four kinds of people in the world. Those who have been caregivers. Those who are currently caregivers. Those who will be caregivers, and those who will need a caregiver.” The results of AARP’s survey of U.S. registered voters, compiled in the 26-page report, U.S. Voters’ Views on Support for Family Caregivers, gives weight to the truth behind Carter’s quote as one-third of the voters in this study were caregivers in the past, one-fifth are currently caregivers, and half expect to be a caregiver in the future.

Caregivers Call for Government Support 

According to AARP, this is especially true for those age 50 and older: over two-thirds of voters, and 75% of voters 50+, say it is very important for Congress to help seniors live in their own homes. More than half (57%) say the same for supporting unpaid family caregivers, notes the poll’s findings.

An overwhelming majority of voters, 78%, are either a current, past, or future family caregiver. Over 70% of voters across the political spectrum say they would be more likely to support a candidate who backed proposals to support family caregivers, such as a tax credit, paid family leave, and more support and respite services.

“Family caregivers are the backbone of a broken long-term care system, providing $600 billion in unpaid labor each year and saving taxpayers billions,” said Nancy LeaMond, AARP Executive Vice President and Chief Advocacy and Engagement Officer in a statement announcing the release of the poll findings. “It is long past time for lawmakers to enact commonsense solutions that support family caregivers and help older Americans live independently in their homes, where they want to be,” she says.

The poll’s findings indicate that legislative caregiving proposals are strongly supported across party lines: 89% of Democrats and 72% of Republicans support expanding services to help seniors live at home in the community rather than in a  nursing home. Requiring minimum staffing standards in nursing homes so residents receive quality care is supported by 8 of Democrats and 74% of Republicans polled in this survey. 

The researchers say that black voters, women, Democrats, and Latinos are especially likely to see long-term care and support for caregivers as key issues to be addressed by Congress. Among those groups, 77% of women, 82% of Black voters, 71% of Latinos and 77% of Democrats say expanding services to help seniors live independently in their own homes instead of a nursing home is very or extremely important.

Most caregivers feel stressed emotionally, stretched thin in both time (18%) and money (18%), and overwhelmed; 40% of all family caregivers say they spend over 20 hours a week on caregiving, with almost half (48%) of women caregivers spending over 20 hours a week.

“Anxiety over caregiving is not limited to those currently providing care,” says AARP, noting that more than two-thirds of voters express concerns about whether they will be able to get the care they need as they grow older or live independently.

“The data is clear: regardless of your political stripes, people adamantly want to age at home rather than a nursing home,” said Tony Fabrizio, partner in Fabrizio Ward, noting “It’s why support for helping caregivers is so politically important.”

“Family caregivers are stressed emotionally and financially, and proposals to help them are overwhelmingly popular and key to helping older Americans remain in their homes,” said John Anzalone, founder of Impact Research. “This may be the sleeper issue of the 2024 elections with a voting group that makes up one in five Americans,” he says.

Caregivers Need Assistance

For many caregivers, providing care to their loved ones takes a big chunk out of their yearly finances, and time that they must give to providing the caregiving. According the AARP’s report, four in ten family caregivers report spending over 20 hours a week on their caregiving responsibilities, while roughly six in ten incur $1,000 or more in annual out-of-pocket expenses on items such as medical supplies and equipment, transportation, or home modification. Emotional stress, having to miss important events, and needing to balance their work, family, and caregiving responsibilities are impact the majority of family caregivers.

When asked what they would like Congress or their state government to do, family caregivers say they would like increased access to healthcare and financial support. Seven in ten voters ages 18 and older say they would be more likely to support a political candidate who backed legislative proposals to support family caregivers, such as paid family leave; a tax credit of up to $5,000; and expanded access to support and respite services. These policies would allow family caregivers an opportunity to take a break from caregiving, helping to prevent their burnout and allowing them to continue providing caring for their loved ones.

According to the polls findings, most voters ages 18 and older express concern about whether or not they will be able to get the care they need when they grow older. Roughly two-thirds says they are concerned they won’t have enough money to pay for the care they need, or they won’t be able to live independently at home, while six in ten are worried that they will need to live in a nursing home providing poor care.

The Support for Family Caregiving study was conducted by the bipartisan polling team of Fabrizio Ward and Impact Research for AARP. The poll used a sample of U.S. voters age 18 and older (with oversamples of voters age 50 and over, black voters, Hispanic voters, Asian and Pacific voters and family caregivers) using a combination of phone and text to web sampling. A total of 1,425 completed 20-minute in length interviews, were  conducted in English from April 4-10, 2023.

The margin of error for the 1,425 adults’ sample is +/- 3.4% at the 95% level of confidence. For the oversampled groups, the margins of error are: +/- 3.4% for voters 50+, +/- 6.9% for Black and Latino voters, +/- 8.9% for AAPI voters, and +/- 4.9% for voters 50+.

To see poll findings, go to https://www.aarp.org/content/dam/aarp/research/surveys_statistics/ltc/2023/voters-views-caregiving-support-report.doi.10.26419-2Fres.00616.001.pdf.

For more details, contact Teresa Keenan, AARP’s Director, Consumer Insights, Health and Health Security, at TKeenan@AARP.org.