Tag Archives for AARP

Caregivers Taking Care of Persons with Dementia Have Unique Needs

Published in the Woonsocket Call on December 9, 2018

Being a caregiver 24/7 to a person in relatively good health is a tough job. But, caring for someone with dementia, becomes a 36 hour, say Authors Nancy L. Mace and Peter V. Rabins, in their ground-breaking book (published in 1981) on providing care for those with the devastating mental disorder.

The Washington, DC-based AARP releases survey findings last month that takes a look at this “unique subset of caregivers” who are taking care of persons with dementia and other cognitive disorders. Caregiving takes a physical, and emotional toll on these individuals, forcing them to put in longer hours providing care and making adjustments at work and in their personal relationships, says the findings of the newly released study.

The AARP online national survey (of caregivers 18 and older) takes a look at the demands on 700 caregivers taking care of persons with dementia or other forms of cognitive impairments (most often their parents), as well as 400 caregivers who were providing care for a loved one without dementia. Regardless of the situation, on average, caregivers report having been caring for their loved one for almost 3 years.

“Family caregivers take on big responsibilities that can be physically, emotionally and financially challenging. AARP’s new research shows that this can be particularly true for those caring for loved ones with dementia,” said Nancy LeaMond, AARP Chief Advocacy and Engagement Officer, in a statement released with the study report, Caring for People with Dementia: Caregivers’ Experiences. “That’s why AARP has developed resources to help family caregivers balance their own needs with the needs of their loved one,” adds LeaMond.

The AARP Study Found…

Obviously, it is time consuming to be a caregiver. The AARP Survey’s findings, released on November 30, 2018, found that 7 in 10 of those surveyed spend less time with friends and more than half spend less time with other family members because of the intensity of caregiving responsibilities While 75 percent of the survey respondents reported that caring for someone with dementia has brought about closer relationships and more meaning to their lives, the findings also indicate that caregiving experiences bring greater challenges to their lives, too.

According to the 26-page AARP report’s findings, those caring for persons with dementia (more likely a parent) spend on average 13.7 hours per week caregiving while caregivers, taking care of persons with no cognitive afflictions, spend 11.7 hours (more likely a spouse or partner or a friend or neighbor). Three in ten of the caregiver respondents (over age 35) spend over 21 hours per week caregiving, says Study’s findings.

Most of the caregiver respondents providing care to persons with dementia see the devastating disorder’s slowly progressing over time. But younger caregivers perceive that the onset of cognitive decline as suddenly happening.

About 32 percent of the caregiver respondents providing more intense caregiving to persons with dementia say managing their emotions and the demands of care (26 percent) they deliver as the biggest challenges the face.

Caregivers taking care of persons with dementia also reported negative health behaviors. They slept less (71 percent), had more anxiety (65 percent) and depression (54 percent), and spent less time on themselves and with their friends. Research studies reveal that social isolation and loneliness are linked to poorer physical and mental health outcomes.

Not only are the millions of family caregivers for those with dementia less socially connected, they are significantly more likely to put off medical care – over half (55 percent) have done so, compared to just 38 percent among the total caregiver population. However, there were positive health behaviors identified in the poll as well – 79 percent took steps to maintain or improve their brain health and 47 percent exercised more.

About 62 percent of those taking care of persons with dementia state that their intense caregiving responsibilities have led them to working different hours, leaving work early (62 percent) or take paid (53 percent) and unpaid time off (47 percent) for caregiving duties, and also worry about their finances.

But, two-thirds of all caregivers surveyed say they feel closer to their loved one, but those taking care of persons with dementia were more likely to say their relationship with their loved one over time had grown further apart (22 percent) than others. Those caregivers of persons with dementia were more likely to say the relationship with other family has been strained.

Finally, caregiver respondents say that they are receiving what they need from health care providers yet those caring for someone with dementia also have sought out more information about caregiving and from a greater variety of sources.

The AARP survey was conducted October 1-10, 2018. Data are weighted by income, gender, and age according to caregiver benchmarks obtained in Caregiving in the U.S. (2015).

Finding Caregiver Resources

AARP helps family caregivers find the information and support they need to manage their own care along with their loved one’s care. Go to http://www.aarp.org/caregiving for more resources and information on family caregiving, including AARP’s Dementia Care Guide and the Community Resource Finder.

For more info, contact AARP Researcher G. Oscar Anderson at ganderson@aarp.org.

AARP Survey Gives a Snapshot of Midterm Election Results

Published in the Woonsocket Call on November 25, 2018

Before November 6, President Donald J. Trump and Congressional Republicans rolled the dice betting on what midterm election issues would propel them to a midterm election victory in retaining control of Congress. But the results were a mixed bag. While maintaining a majority in the Senate, the GOP lost control of the lower chamber.

Many were surprised that the Republican-controlled White House and Congress did not tout an improved national economy, but chose to focus their campaign attack ads on the intense Democratic attack on Judge Brett M. Kavanaugh’s character during his Supreme Court nomination hearing, a caravan of thousands of immigrants marching to the U.S.-Mexico border to escape poverty and violence in Guatemala, Honduras, and El Salvador and law and order. Democrats put their chips on access to health care, Social Security, Medicare, and putting the brakes on skyrocketing prescription drug costs.

Although the GOP maintained control in the Senate (by a majority of 52 to 47), voters put the Democrats in control of the House, with the winning of 232 seats, reaching the magical number of 218 seats, required to take control of the chamber.

Health Care a Key Issue for Voters in Midterm Election

Just days ago, the Washington, DC-based AARP released findings of a national poll of general election voters, along with over samples in both 39 GOP-held seats that flipped to a Democrat and 37 GOP-held seats targeted as competitive by the Cook Political Report that held for the GOP.

AARP’s bipartisan post-election poll, fielded jointly by Fabrizio Ward and Benenson Strategy Group, found that, for 50-plus voters, Social Security, Medicare, and health care were their top midterm issues, pushing them to vote. The 2,800-voter survey (of General Election voters) also indicated age 50 and over voters across the board are also concerned about bipartisan bickering and gridlock inside the Washington, DC – Beltway, saying they favored a candidate who will work across the aisle.

“Older Americans were crystal clear that health care was the most important issue in this election,” said John Hishta, AARP Senior Vice President of Campaigns in a statement announcing the release of the 22-page report detailing survey findings on November 16. “They want Congress to come together to find commonsense solutions to lowering health care costs and they can start by preventing drug companies from price gouging older Americans and all taxpayers.,” says Hishta.

Adds Tony Fabrizio, of Fabrizio Ward, “Fifty plus voters chose Donald Trump by a wide margin two years ago. This year they were instrumental in Democrats retaking the House. They have become a formidable swing voting block for 2020.”

“This election made it clear that candidates and parties can’t build a winning-coalition without older Americans – or take their vote for granted.” said Amy Levin, Partner Benenson Strategy Group.

Taking a Closer Look…

The AARP survey revealed that while voter survey respondents under age 50 were more likely to identify as Independents, those age 50 and over were most likely to affiliate as either Democrat or Republican.

According to the AARP survey, for age 50-plus voters, concerns about Social Security (83 percent), Medicare (79 percent) and health care (79 percent) were their top midterm issues. However, younger voters find education (67 percent), health care (64 percent) and the economy (66 percent) to be most important to them.

The findings clearly show that the surveyed voters sent a message at the polls on November 6 that they want Democrats and Republicans to govern and not to not get mired down in political gridlock. In GOP-held districts that Democrats flipped, 63 percent of the age 50 and over voters wanted elected officials to work in a bipartisan manner. For districts the GOP held, 65 percent of voters felt the same way. While voters of both political parties expect more political gridlock, younger voters surveyed were even more pessimistic when compared to age 50 voters that this could happen.

AARP’s post-midterm election survey revealed that a pink wave was key in electing Democratic candidates, say the pollsters. Age 50 and over women were instrumental in the Democrat’s in gaining House seats — they favored a Democrat for House by 12 percent in the districts Democrats flipped.

The AARP survey found that the majority of survey respondents approved many of Trump’s policies, while almost 2/3 disapproved of him personally. The pollsters also noted that in districts held by the GOP, 55 percent of age 50-plus voters approved of President Donald Trump’s policies and 38 percent approve of him personally.

But the AARP survey revealed that voters nationally and in Dem Flips wanted a check on Trump, especially the independent voters. Obviously, GOP Hold
districts voters were more favorable to Senate and House candidates who supported Trump ‘s policy agenda. Age 50 and over voters wanted a check on Trump (by 6-points), this being smaller than the margin of voters under age 50.

Both Democratic flips and GOP Hold Districts were whiter and older than the nation as a whole, but Democratic Flips took places in districts that were more suburban, educated and affluent. But, key to the Democratic national successes in both the Dem Flip & GOP Hold segments was Independents age 50 and over voting Democrat by double digit margins across the board.

Meanwhile, while less Democratic friendly than voters under age 50, those age 50 and over narrowly favored the Democratic candidate both nationwide and in districts Democrats flipped from Republicans. And, their support for Republican candidates in the GOP Hold districts helped Republican losses from being even worse.

In October, AARP released, a 52-page report, “2018 Mid-Term Election Voter Issue Survey,” that found that the majority of those surveyed said that they would vote for candidates that supported lowering health care costs, strengthening and reforming Social Security and Medicare, putting the brakes to skyrocketing prescription drug costs. AARP’s post-election survey clearly mirrors these priorities.

With the 116th Congress convenes on January 3, 2019, Republican and Democratic lawmakers along with President Trump must work to put aside their political differences and govern by crafting bipartisan legislation that benefits the nation. As can be seen by AARP’s bipartisan post-election survey, voters demand this.

For more details on the survey’s findings, call Colby Nelson at (202) 434-2584 or email, cnelson@aarp.org.

Cicilline to Reintroduce Resolution to Reestablish House Aging Committee

Published in the Woonsocket Call on November 18, 2018

In October 1992, the House eliminated the House Permanent Select Committee on Aging charged with investigating and putting a spotlight on aging policy. The Committee was instrumental in conducting research and publishing a number of reports on elder abuse, leading to the passage of reform legislation intended to improve nursing home operations and reduce abuse against patients. The Committee’s work also led to increased home care benefits for the aging, establishing research and care centers for Alzheimer’s Disease, and many other accomplishments on a broad array of aging issues.

Over 26 years later, on March 1, 2016, Congressman David Cicilline (D-RI) introduced his House resolution 160 to reestablish the Committee. He would attract Rhode Island Congressman James R. Langevin (D-RI) and 23 other cosigners (no Republicans) out of 435 lawmakers, but would ultimately see no legislative action taken. “I discussed this proposal with Speaker Paul Ryan (R- WI) and followed up with a letter asking him to move forward with this idea, but he declined to do so.”

“I think many of my Democratic colleagues didn’t think this resolution would get much traction with a Republican controlled House, but we did get Seniors Task Force Co-Chairs, Reps. Doris Matsui (D-CA) and Jan Schakowsky (D-IL), which was important,” says the Rhode Island Congressman.

A New Opportunity with a House Democratic Majority

With a Republican-controlled Congress successfully blocking Cicilline’s simple resolution from reaching the floor for a vote, the Democratic lawmaker says he will reintroduce House resolution 160 in the new Congress with the Democrats controlling the chamber’s legislative agenda. “With Democrats in the majority, I think there will be more interest from other members in this resolution,” he says, noting, “We will try to make this a bipartisan effort and hope to find Republicans who would be supportive.

“I will first reintroduce the resolution [in the new Congress] and build support from members and then present the proposal to my House leadership. We will try to make this a bipartisan effort and hope to find Republicans who would be supportive,” says Cicilline, noting that he will reach out to aging groups for support, including the Leadership Council on Aging Organizations, whose leadership includes Alliance for Retired Americans, the National Committee to Preserve Social Security and Medicare, and AARP.

“Of course, I would be honored to lead the reestablished House Permanent Select Committee on Aging, but that decision will be made by the incoming Speaker,” says Cicilline.

According to Cicilline, the House can readily create an ad hoc (temporary) select committee by approving a simple resolution that contains language establishing the committee—giving a purpose, defining membership, and detailing other aspects. Funding would be up to the Appropriations Committee. Salaries and expenses of standing committees, special and select, are authorized through the Legislative Branch Appropriations bill.

Cicilline says that a newly established House Permanent Select Committee on Aging would be charged to conduct comprehensive studies on aging policy issues, funding priorities and trends. As its predecessor, its efforts would not be limited by narrow jurisdictional boundaries of the standing committee but broadly at targeted aging policy issues.

“Our nation’s seniors deserve dedicated attention by lawmakers to consider the legislative priorities that affect them, including strengthening Social Security and Medicare, reducing the costs of prescription drugs, and the particular challenges of poverty, housing, long-term care, and other important issues,” adds Cicilline.

Aging Advocates Call for Reestablishing the House Select Committee on Aging

When Max Richtman, CEO and President of the Washington, D.C-based National Committee to Preserve Social Security and Medicare (NCPSSM), and former Staff Director of the Senate Special Committee on Aging, heard of Cicilline’s efforts to bring back the House Select Committee on Aging almost three years ago, he remarked, “It’s long overdue.” The Select Committee will once again provide serious oversight and lay the ground work for House legislative proposals impacting Social Security, Medicare and Medicaid, he said.

Richtman says that NCPSSM has just joined a working group to push for the reestablishment of the House Permanent Select Committee on Aging spearheaded by Howard Bedlin of the National Council on Aging. This group will devise strategies to resurrect the Committee, adds Richtman.

Richard Fiesta, Executive Director at the Alliance for Retired Americans, whose organization chairs the LCAO, representing over 70 aging groups, says that its membership voted this month to support and push for the reestablishment of the House Select Committee on Aging. “Members during the discussion expressed views that the Committee can be a focal point on aging issues such as such as Medicare, Social Security, Medicaid, long term care, and prescription drug prices,” says Fiesta, noting that it could provide important oversight on the U.S. Administration of Aging programs and be a forum for emerging issues such as home care needs.

“With 10,000 American turning age 65 each day, a Select Committee on Aging would be an important step in addressing the needs of older Americans,” says Fiesta.

Bill Benson, a former staff director of the Subcommittee on Housing and Consumer Interests, one of the four subcommittees of the House Select Committee on Aging, concurs with Richtman that the establishing the Committee is “long overdue.”

“During the 26 years we’ve been without the House counterpart to the Senate Special Committee on Aging,” which Benson also served on, “the House has not had an equivalent powerful voice for advancing critical issues for an aging society as we’ve had in the Senate. To successfully improve national policy requires both chambers of the Congress to be fully engaged. Restoring the House Select Committee on Aging would be important to do that.”

Howard Bedlin, National Council on Aging Vice President of Public Policy and Advocacy, adds: “A House Select Committee on Aging will raise visibility of the challenges older Americans are facing every day and support the work of authorizing committees to craft bipartisan policy solutions. Aging is an issue for all Americans. Discussion about the systemic strains that come with longevity and a growing aging population, or highlighting the many intergenerational needs of families across the country can only lead to better understanding and ultimately better support for all Americans as we age.”

Taking an Important Step to Protecting Seniors

As Cicilline gears up to put together the bipartisan support to pass his reintroduced to reestablish the House Permanent Select Committee on Aging, he says, “Overall, this resolution represents an important step towards protecting our seniors and the benefits they have earned, like Social Security and Medicare.”

“The reestablishment of this Select Committee on Aging would emphasize Congress’ commitment to our current and future seniors and would allow us to focus our energy to ensure that they are able to live with dignity and enjoy a high quality of life,” he adds.

A Washington insider tells me that some Democratic House lawmakers and aging groups are now pushing to reestablish the House Select Committee on Aging through new rules enacted by the incoming House Democratic leadership. The Washington, DC-based LCAO can now play a pivotal role in reestablishing the House Select Committee by advocating for and supporting Cicilline’s resolution that will be introduced in the next Congress or backing the attempt to change House rules. As the House takes up in the new Congress its debates on Social Security, Medicare and Medicaid, the Older Americans Act, and other issues of importance to older adults, it will be important to have a House Select Committee that once again puts the spotlight and attention on America’s aging issues.