Monthly Archives for January 2026

Pandemic Lessons: “Essential Caregivers Act” Can’t Wait. A Merciful, Bipartisan Bill for a Voiceless Population

Published in RINewsToday on January 19, 2026

As COVID-19 spread rapidly across the country in March 2020—entering nursing homes largely through community transmission and staff movement—the Centers for Medicare & Medicaid Services (CMS) issued guidance calling for nationwide visitor bans in nursing homes. These strict restrictions barred all visitors and non-essential health care personnel, with limited exceptions for hospice care.

According to March 29, 2025 article, “Changes in Federal and State Policies on Visitation Restrictions in Nursing Homes During the COVID-19 Pandemic,” published in the Journal of Applied Gerontology, 31 states enacted statewide indoor visitation bans through executive orders between March 9 and April 6, 2020, and the end dates were between 6/15/2020 and 3/24/2021. CMS would later relax its guidance, permitting indoor visitation when facilities reported no new COVID-19 cases for 14 days and community positivity rates were low.

Charlie Galligan, a licensed criminal defense investigator in Rhode Island, knows firsthand the toll those restrictions took. He and his wife, Kerry, provided daily care for his parents for 13 years—his father, Jack, who died from Alzheimer’s disease in 2022, and his mother, Audrey, who lives with a traumatic brain injury. Balancing work with caregiving became the catalyst that pushed Galligan to lobby Congress to prevent the prolonged and unnecessary isolation of nursing home residents during future pandemics, including advocating for policies that allow designated family caregivers to visit.

“Long-term care lockdowns continued well after humane safety measures were established and family caregivers had been vaccinated,” Galligan claimed, noting that countless residents died alone as a result. “Daughters were forced to say goodbye to mothers with Alzheimer’s over FaceTime—often staring at their phones as exhausted staff struggled to provide even minimal connection.”

A Legislative Effort Revisited

The initial legislative proposal—the Essential Caregivers Act (H.R. 3733)—was introduced in June 2021 to reaffirm and enforce the right of nursing home residents to receive visits from family and friends during declared emergencies. When that proposal stalled due to the absence of a Senate companion bill, a second attempt followed the next year with the introduction of S. 4280/ H.R. 8331.  Political insiders say that these bills stalled due to the legislative process, timing, and competing priorities not because Congress rejected the process. Most recently, the Essential Caregivers Act of 2025 was reintroduced last month.

On Dec. 16, 2025, U.S. Senator Richard Blumenthal (D-CT) and U.S. Representative Claudia Tenney (R-NY) introduced bipartisan legislation in their respective chambers to prevent a repeat of the prolonged isolation and reduced care nursing home residents faced during the COVID-19 pandemic. U.S. Senator John Cornyn (R-TX) and U.S. Representative John B. Larson (D-CT) joined them in cosponsoring the Essential Caregivers Act.

The Senate bill, S. 3492, currently with seven cosponsors, was referred to the Senate Finance Committee. That same day, the companion measure, H.R. 6766, with 35 cosponsors, was introduced in the House and referred to the Ways and Means Committee and the Energy and Commerce Committee.

“Our movement to enact the Essential Caregivers Act is not led by professionals or lobbyists,” Galligan said. “We are simply a determined group of family caregivers—primarily brilliant, tenacious women from across the country, and one token guy from Rhode Island—who love our mothers and fathers and refuse to accept silence and separation as acceptable standards of care.”

Congressional Supporters Call for Passage

“During the COVID-19 pandemic, we experienced how dangerous and inhumane it is to isolate seniors and vulnerable patients from the people who care for them the most, say Rep. Tenney, in a statement announcing the introduction of the bill.  “Families were locked out, residents declined rapidly, and farm to many suffered alone,” she said.

“The Essential Caregivers Act ensures that this never happens again,” says Rep. Tenney, noting that they are loved ones, not visitors.  “They are caregivers, advocates, and lifelines. This bipartisan legislation protects dignity, safeguards patient rights, and makes sure compassion and comment sense guide our response during an future emergency,” she adds.

Sen. Blumenthal emphasized the bill’s bipartisan intent. “By allowing at least one designated essential caregiver to have safe, in-person access to their loved ones during an emergency, our legislation ensures that residents will never again face the devastating isolation experienced by so many during COVID-19,” he said.

Rhode Island Sen. Jack Reed, a cosponsor of the Senate bill, echoed that sentiment. “We want to keep people safe from germs, but we also want to keep them connected—because isolation can take a real toll on health,” Reed said. “Essential Caregivers Act would ensure that even during limited visitation, residents can still have in-person contact with a loved one.”

Sen. Sheldon Whitehouse has expressed support and is on a waiting list to cosponsor it – cosponsors are being added in bipartisan pairs. “Loneliness can take a real toll on residents of long-term care facilities,” he said. “This legislation recognizes the critical role loved ones play in supporting residents’ well-being, even during public health emergencies.”

Not yet committed to cosponsoring are Rhode Island’s two Representatives

At press time, Rep. Gabe Amo, had not yet committed to cosponsoring the bill. “I am reviewing the Essential Caregivers Act of 2025,” Amo said. “Family caregivers are the backbone of our long-term care system, and I remain committed to advancing policies that support patients, caregivers, families, and health care providers.”

Like his House colleague, Rep. Seth Magaziner (D-RI), has not yet committed to sponsoring the bill. Magaziner acknowledges the importance of allowing nursing home residents access to their loved ones and is open to considering the legislation. However, he is also working to understand what safeguards would be in place to ensure resident safety during emergencies, according to Noah Boucher, the lawmaker’s communications director.

The Nuts and Bolts

Recognizing that family members are essential to residents’ care and well-being, S. 3492 and H.R. 6766 aim to prevent the emotional, psychological, and physical harm caused by prolonged separation during public health emergencies.  This bill strikes a balance protecting public health while safeguarding the wellness of residents.

The Essential Caregivers Act requires nursing facilities receiving Medicare or Medicaid funding to participate. It guarantees that at least one designated essential caregiver may access a resident during periods of restricted visitation, provided the caregiver follows the same safety protocols as facility staff. If a resident is unable to designate a caregiver, a representative may do so on the resident’s behalf.

The legislation also affirms caregivers’ rights to advocate for residents, participate in care planning, and ensure residents’ civil rights are protected. Additional provisions address roommate rights, as well as exemptions for end-of-life and compassionate care.

Facilities must provide written justification if caregiver access is denied, with appeals overseen by state survey agencies.

The bill has been endorsed by the AARP and Consumer Voice.

Rhode Island Advocates Call for Passage

Calling for passage of the legislation, Rhode Island Long-Term Care Ombudsman Lori Light said the COVID-19 pandemic made painfully clear how critical family caregivers are to residents’ health, safety, and well-being.

“During extended lockdowns, we witnessed firsthand the profound impact isolation had on residents, including increased depression, anxiety, cognitive decline, weight loss, and loss of engagement in daily life. For many residents, family members are not simply visitors—they are essential partners in care – they provide emotional support, help residents communicate their needs, notice subtle changes in medical conditions, and advocate when something doesn’t seem right. When access was cut off, residents lost a vital layer of protection and connection. The lessons we learned during COVID-19 must guide future policy decisions,” Light said. “No resident should ever again experience prolonged isolation from the people who know them best,” said Light.

According to Deb Burton, MS, executive director of RI Elder, the isolation imposed on long-term care residents during the pandemic was devastating. While infection control was essential, she said, the complete separation of residents from their families caused profound and lasting harm. Burton, a gerontologist, noted that residents experienced rapid physical, cognitive, and emotional decline.

“Families endured anguish knowing their loved ones were frightened, confused, and alone during the most vulnerable moments of their lives. Family members are not simply visitors—they truly are essential caregivers. They provide a familiar face, a steady hand to hold, and an understanding of a resident’s routines, preferences, and communication needs. This is especially true for individuals living with dementia or other forms of memory loss, for whom familiarity and connection are critical to well-being and safety,” Burton said.

Comments from the American Health Care Association 

While expressing support for family involvement, the nursing home industry has raised concerns about certain provisions of the bill.

From Holly Harmon, senior vice president of quality, regulatory, and clinical services at the American Health Care Association: “While we wholeheartedly support family members taking an active role in their loved one’s care, there are certain provisions of this bill where we have concerns. Mainly, we believe each situation, including public health emergencies, requires a collaborative process among public health officials and stakeholders to determine the most appropriate way to keep residents safe and loved ones connected, rather than implementing a blanket, inflexible process for all situations. We hope to work with lawmakers to make improvements to these proposals as the engagement of loved ones is critical to our residents’ wellbeing.

“Despite our caregivers doing everything they could to step in for family members during the pandemic, we were deeply concerned about the prolonged isolation of our residents. Public health officials were put between a rock and a hard place on how to best protect those in long term care, and due to the vicious nature of the virus on our resident population, it was determined best to restrict visitors and social interactions. Nursing homes were required to follow these restrictions until March 2021, and even then, CMS and CDC had strict guidelines due to the ongoing spread of the virus.

“The best way to prevent this global tragedy again is for officials to prioritize long term care residents and staff during public health emergencies, so that they can remain protected, active, and engaged with their loved ones and the community.”

A Final Note…

The best way to prevent another tragedy is to prioritize long-term care residents and staff during public health emergencies, so they can remain protected, active, and connected to loved ones. We must learn from the painful lessons of COVID-19. No one should be forced to decline alone, grieve alone, or die alone because of a lack of clear policy, RIElder’s Burton added. She noted that the Essential Caregivers Act ensures that in the next public health emergency” when it could be any one of us in a facility” we will not be separated from the person who knows us best and stands ready to advocate for us.

Caregiver Galligan remains hopeful. “This is simply a merciful bill for a voiceless population”, he said.

(updated 1-21-26)

Veteran Lawmaker Steny Hoyer Bids Farewell After 45 Years in Congress

 Published in RINewsToday on January 12, 2026

 According to Ballotpedia’s tracker of incumbents not seeking re-election in 2026, 20 House lawmakers are retiring at the end of this Congress, 17 of whom are age 50 or older. Last week, Rep. Steny H. Hoyer (D-MD), a long-serving member of the U.S. House of Representatives, announced his retirement and now joins Reps. Nancy Pelosi (D-CA), Jerrold Nadler (D-NY), and Jan Schakowsky (D-IL)—all of whom served in House leadership and have announced their decisions not to seek another term—in departing Capitol Hill.

On Jan. 8th Hoyer addressed the House chamber announcing to his colleagues of his plans to retire. Choking up at times during his remarks, he reflected on his 45 years of serving his constituents and expressed concern about the direction of the House.

He began his remarks by looking back at a pivotal moment in 1959 when he attended University of Maryland at College Park, that would push him into public service —hearing John F. Kennedy speak at a spring convocation.  A week later after Kennedy’s speech the young college student would change his major from business to political science.  Looking back, Hoyer noted that this two hour encounter led to a 60-year career in public service.

Hoyer, who has held top Democratic leadership positions including House Majority Leader, reflected on his nearly 45 years in the House, contrasting the collegial, bipartisan atmosphere when he first arrived in 1981, under the leaders of Rep. Tip O’Neill (D-MA) and Rep. Bob Michael (R-IL)  with the current state of divisiveness and partisan bickering.

The Maryland Congressman, representing Maryland’s Fifth Congressional District, expressed concern that the House was failing to meet its constitutional responsibilities that the first article of the Constitution demands and warned that the nation was heading towards “smallness” and “pettiness.” He concluded by calling on his colleagues to work together to pass appropriation bills in a bipartisan, timely fashion to keep the government open, thanking his family and colleagues, and reaffirming his gratitude for his long, productive career.

Taking a Look at Aging and Health Care Issues   

While serving as House Majority Leader, Hoyer played a key role in the passage of the Affordable Care Act (ACA) by overseeing debates, managing Democratic floor strategy and building public support. The ACA expanded access to affordable health insurance, prohibited denial of coverage for pre-existing conditions, allowed young adults to stay on parents’ plans to age 26, and greatly expanded preventive services coverage.

Hoyer would steer the Americans With Disabilities Act (ADA) to overwhelming final approval in the lower chamber by negotiating legislative language in the bill and building bipartisan consensus.  This landmark legislation, signed into law on July 26, 1990 by Republican President George H.W. Bush, prohibited discrimination based on disability and greatly expanded accessibility in employment, public service, transportation, and places of public accommodation for millions of disabled Americans.

Eighteen years later, he would lead the House efforts to pass the ADA Amendments Act, which strengthened and clarified the original law’s protections to ensure that it would be broadly as intended, benefiting millions of Americans with disabilities.

The long-time Congressman has been a strong defender of Social Security and Medicare, tirelessly opposing privatization and advocating long-term solvency to ensure benefits for current and future retirees. He supported funding and modernization efforts that improve Medicare efficiency and access to providers for seniors.

Hoyer also helped to bring major health care-related legislation to the House floor during the pandemic.  He successfully pushed for passage The American Rescue Plan, that would fund COVID-19 vaccines and pandemic health responses and that now has lowered prescription drug costs of some medications.

Hoyer also hosted events and roundtables highlighting mental health care investments (like the 988 Suicide & Crisis Lifeline), reflecting ongoing engagement with health challenges affecting adults and seniors.

Kudos from Legislative Colleagues and Friends

Former Rhode Island Congressman James Langevin, now Distinguished Chair of Rhode Island College’s Institute for Cybersecurity and Emerging Technologies, remembers working alongside Steny Hoyer in Congress. “He was a good friend and respected colleague, but my relationship with him actually began before I was even sworn in,” he says. “He was an original author of the Americans with Disabilities Act, which opened doors for people with disabilities and empowered me to run for office.”

“When I was elected, Steny worked tirelessly to ensure I had the resources and accommodations I needed to transition to Washington and succeed as the first quadriplegic member of Congress. For Steny, accessibility was personal. I always knew that whatever I needed, Steny would make it happen. His departure from the House is a great loss for the institution, but I wish him all the best in his well-deserved retirement,” adds Langevin.

Rhode Island’s junior Congressman Gabe Amo also praised Hoyer’s service. “Steny Hoyer has been a steadfast champion of Marylanders and the American people, serving our country and Congress with integrity and conviction,” says Amo. “He was one of the first calls I received after I won the 2023 special election, and he welcomed me with open arms when I arrived in Congress.”

Amo considered Hoyer a trusted mentor who helped guide him as a newly elected member. “He always celebrated the wins we secured for Rhode Island—especially the infrastructure funding from the Bipartisan Infrastructure Law,” he notes.

According to Amo, Hoyer frequently mentioned his Rhode Island ties, sharing fond memories of his law school classmate, former Warwick Mayor Joe Walsh, and his long-time friend Congressman Langevin. “Steny is a stalwart public servant, and his impact will be felt for generations to come. He will be deeply missed in the halls of Congress,” Amo says.

Rep. Seth Magaziner offered similar praise. “Steny Hoyer is not only a congressional legend with many legislative accomplishments, he is a living reminder that politics does not have to be partisan and uncivil. He is well respected on both sides of the aisle, and I feel very fortunate to have had the opportunity to serve with him,” says Magaziner.

Robert “Bob” Blancato, President of Matzo, Blancato and Associates who served as former Staff Director of the House Aging Committees’ Subcommittee on Human Services, calls Hoyer one of the strongest Democratic leaders of the past 45 years. “During his time as Majority Leader, he stewarded landmark legislation—such as the Affordable Care Act—through the House and later its final passage through Congress,” he notes.

“As a senior member of the House Appropriations Committee, he helped ensure aging programs received priority funding even in difficult times. He was a gentleman legislator, and his level of service in Congress will be hard to duplicate,” says Blancato.

Max Richtman, President and CEO of the National Committee to Preserve Social Security and Medicare and former staff director of the U.S. Senate Special Committee on Aging, views Hoyer as a committed advocate for older Americans. “Steny has always been very accessible to the seniors’ advocacy community. He kept an open mind on the issues we care about. I have known him a very long time and personally liked him. He will be missed.”

Looking back, when President George W. Bush declared his intention to privatize Social Security after his re-election in 2004, Steny brought advocates together for regular strategy sessions to protect the program, says Richtman. “He united the advocacy community and helped orchestrate the defeat of Bush’s privatization plan. That’s a prime example of the leadership Steny provided,” he says.

Like Richtman, Robert Weiner, former Staff Director of the U.S. House Select Committee on Aging, recognized Hoyer’s effort to stop the privatization of Social Security — and helped in the regaining of the House majority as a result.  “During his time in Democratic House leadership, he never lost a bill he scheduled or brought to the floor for a vote,” says Weiner.

Weiner, who served with Hoyer as national officer in Young Democrats in the 70’s, remembers  Hoyer chairing weekly meetings with committee members and issue leaders to gauge party sentiments and anticipate votes, shaping House agendas. “At his recent birthday “Bull Roast” he invited me to, Hoyer discussed “bringing bills to the floor,” setting calendars, and securing votes. His foresight — and passionate House floor speeches — consistently assured favorable results.

The end of a 60-year career in public service with a dedication to senior friendly issues will keep his memory strong in Congress.

Medicare Drug Savings Eclipsed by Part B Premiums, COLA Challenges and ACA’s Rising Costs

Published in RINewsToday on January 5, 2026

The official arrival of the New Year was marked by millions of viewers channel surfing between ABC, CBS, NBC, and CNN, eager to watch the ball drop in Times Square and ring in 2026. The iconic New York City ball—12,000 pounds and adorned with 5,280 Waterford Crystal discs and LED lights—descended a 139-foot flagpole atop One Times Square. In just 60 seconds, it reached the bottom at midnight on New Year’s Eve, signaling the beginning of 2026.

Just two days before January 1—when Medicare-negotiated prices for 10 prescription drugs take effect—AARP Executive Vice President and Chief Advocacy & Engagement Officer, Nancy LeaMond, shared good news. As the clock struck midnight, she announced that older Americans would see lower prices for the first 10 Medicare-negotiated drugs, which would take effect on January 1, 2026. AARP quickly issued a statement, celebrating the first-ever Medicare-negotiated drug prices and estimating a whopping 50% reduction in out-of-pocket costs for beneficiaries.

“For millions of older Americans managing chronic conditions, prescription drugs are not optional—they are a lifeline. But medicine doesn’t work if people can’t afford it,” said LeaMond in a Dec. 29 statement. She emphasized that AARP has been at the forefront of advocating for drug pricing reforms since 2022. The nation’s largest aging advocacy group, representing nearly 38 million members, shared their stories, conducted national research on drug costs, and urged lawmakers on both sides of the aisle to support legislative efforts to lower drug costs.

According to LeaMond, this advocacy has delivered significant progress. On January 1, negotiated prices will take effect for the first time, marking a major milestone for both patients and taxpayers. “Older Americans will see real results and billions in savings as the first Medicare-negotiated prices take effect,” she stated, pledging that “AARP won’t stop fighting to lower drug prices until every American can get the medications they need at a price they can afford.”

“These drugs are used by nearly 9 million Medicare beneficiaries and treat conditions such as diabetes, heart disease, autoimmune disorders, and cancer,” she noted.

While Medicare beneficiaries are set to see substantial savings, the Centers for Medicare and Medicaid Services (CMS) anticipates that the Medicare drug price negotiation program will save billions. CMS, a federal agency providing health coverage to over 160 million people through Medicare, Medicaid, the Children’s Health Insurance Program, and the Marketplace, expects the program to save enrollees roughly $1.5 billion in out-of-pocket costs in 2026 while saving the Medicare program $6 billion per year.  The negotiated prices are a minimum of 38% off the 2023 list price.

On the Other Hand

Though Medicare beneficiaries will benefit from lower out-of-pocket costs on 10 Medicare-negotiated drugs in the new year, the 2026 Social Security COLAs will barely cover Medicare Part B premiums and rising inflation.  Meanwhile, older Americans who are not eligible for Medicare coverage will face soaring health insurance premiums due to the Senate’s failure to extend the Affordable Care Act (ACA) Tax Credits.

Max Richtman, President and CEO of the National Committee to Preserve Social Security & Medicare, stressed the importance of ACA marketplace coverage for older adults, who often struggle to find affordable health insurance. “It’s not only cruel to let their premiums skyrocket; it costs everyone in the long run,” observes Richtman. “Older patients without insurance will be forced to use emergency rooms for care, which drives up costs for all healthcare consumers,” he says in a statement released on Dec. 11, 2026.

“They’ll also arrive at Medicare sicker or more disabled, which not only costs taxpayers more but raises premiums for all older Americans on Medicare,” warns Richtman.

Richtman pointed out that 40% of ACA enrollees are between the ages of 45 and 64. Without the extended tax credits, many of these individuals—including farmers, ranchers, entrepreneurs, and small business owners—will face unaffordable premium increases and may be forced to drop or downgrade their health care coverage. “Extending these tax credits to prevent premium hikes would have made simple common sense,” Richtman argued. “Why would Senators vote to push people off health insurance instead of widening the safety net when the ACA is so clearly beneficial, especially for older, vulnerable enrollees?,” he asked.

Additionally, this year’s premium increase for the standard Medicare Part B program, while not as high as originally projected, will still affect beneficiaries, too. They will face an increase of nearly $18 per month, marking roughly a 10% hike in 2026. In a statement on Nov. 17, 2025, Richtman said that this rise basically cancels out one-third of the average beneficiary’s cost-of-living adjustment (COLA) for 2026.

The standard Part B premium for 2026 will be $ 202.90 a month, which is $17.90 more than last year’s $ 186.  The average COLA will be $ 56 a month in 2026. After accounting for the $18 Part B premium increase, the average Social Security beneficiary will be left with an effective monthly increase of only $36 next year, notes Richtman.

Richtman pointed out that the 2.8% COLA for 2026, announced in October, was already modest before the Medicare premium hike. “In this economy, an extra $36 per month will provide only marginal relief for Social Security beneficiaries,” he said, stressing that seniors with below-average benefits will see even less of a benefit increase once Medicare Part B premiums are deducted.

“Some in lower-income brackets may experience an effective COLA of zero,” predicts Richtman.

A Final Note…

Yes, Medicare beneficiaries will see a decrease in Medicare-negotiated prices for 10 prescription drugs that took effect last week.  But, with inflation rising and older adults struggling to afford basic needs such as food, rent, utilities, and healthcare costs, aging advocates urge Congress to  take action to mitigate the negative impacts of HR 1, the 2025 budget reconciliation bill, on the Medicare drug price negotiation program.  It’s also crucial that Social Security COLAs accurately reflect the out-of-pocket expenses faced by beneficiaries, they say.

“Unfortunately, the 2025 budget reconciliation bill—HR 1—further limits the drugs that can be negotiated under the IRA’s negotiation program, reducing its effectiveness,” warns Julie Carter of the Medicare Rights Center in an October 9, 2025, blog post for Medicare Watch. “KFF, an independent health policy and research organization, estimates that this change will increase Medicare spending by at least $5 billion. As always, increases in Medicare spending lead to higher out-of-pocket costs for beneficiaries,” she says.

“At Medicare Rights, we strongly oppose efforts to scale back the IRA’s negotiation framework. We believe more drugs should be subject to negotiation, not fewer. We also advocate for expanding other cost-saving aspects of the law to reduce expenses for those covered by other forms of insurance,” Carter adds.

“Social Security COLAs are meant to offset the impact of inflation on beneficiaries. However, they are clearly insufficient for many seniors living on fixed incomes,” argues NCPSSM’s Richtman. He explains that this is why his organization has been pushing for an improved COLA formula—the CPI-E (Consumer Price Index for the Elderly). The CPI-E would more accurately reflect the inflationary effects on the goods and services seniors rely on, he says.

“We support legislation that would adopt the CPI-E for determining COLAs, but Congress has yet to take action. Adopting this formula would be a reasonable step toward expanding benefits and truly meeting the needs of 21st-century seniors,” Richtman concludes.