New Report Puts Spotlight on the Devastating impact of Alzheimer’s

Published by Woonsocket Call on March 10, 2019

It’s hot off the press. Last Tuesday, the Chicago-based Alzheimer’s Association announced the release of its long-awaited 2019 Alzheimer’s Disease Facts and Figures. The 90-page report is chock full of national and state specific statistics and again puts a spotlight on Alzheimer’s disease, often referred to as the nation’s silent epidemic. Every 65 seconds someone in the United States develops the devastating cognitive disorder. This year, an estimated 5.8 million Americans of all ages are living with Alzheimer’s and related dementia. This number includes an estimated 5.6 million people age 65 and older and approximately 200,000 individuals under age 65 who have younger-onset Alzheimer’s.

Painting a Picture of Alzheimer’s Impact

According to the Alzheimer’s Association, the annual report, first released in 2007, is a compilation of state and national specific statistics and information detailing the impact of Alzheimer’s disease and related dementias on individuals, families, state and federal government and the nation’s health care system. For the third consecutive year, total payments to care for individuals with Alzheimer’s or other dementias is skyrocketing, say the report’s authors. In 2018, these costs were estimated to be over $ 277 billion. This year’s costs are expected to surpass $290 billion, an increase of nearly $13 billion from last year’s figure, according to data gleaned from the latest Facts and Figure report.

Yes, the 2019 Alzheimer’s Disease Facts and Figures report is a must read for congressional staff, state lawmakers, and federal and state officials.

New findings from the report released on March 5, 2019 reveal the growing burden on 16. million caregivers providing 18.5 billion hours of care valued at over $ 234 billion to 5.8 million people with cognitive disorders. By 2050, the new Alzheimer’s Association report projects that the number of persons with Alzheimer’s and other dementias will rise to nearly 14 million, with the total cost of care reaching over $1.1 trillion.

Between 2000 and 2017, the number of deaths from Alzheimer’s disease as recorded on death certificates has more than doubled, increasing 145 percent, while the number of deaths from the number one cause of death (heart disease) decreased 9 percent, says the new data in the 2019 Facts and Figures report. Alzheimer’s disease kills more than breast cancer and prostate cancer combined.

The latest Alzheimer’s Disease Facts and Figures report notes that 83 percent of care provided to the nation’s older adults comes from unpaid caregivers. Specifically, about one in three caregivers (34 percent) is age 65 or older. Approximately two-third are woman. Over one-third of dementia caregivers are daughters, one quarter of these individuals also care for children under age 18. Most caregivers (66 percent) live with the person with dementia in the community.

Of the total lifetime cost of caring for persons with Alzheimer’s and other dementias, 70 percent of these expenses are borne by families, either by out-of-pocket or from the value of unpaid care,” says the Alzheimer’s report.

Taking a Look at Cognitive Assessments

Although the 2019 Alzheimer’s Disease Facts and Figures provides the latest national stats on Alzheimer’s prevalence, incidence, mortality, costs of care, and impact on caregivers, it also takes a close look at awareness, attitudes, and utilization of brief cognitive assessments (obtained by asking questions, observations, input from family and friends, or short verbal or written tests given in a clinical setting), among seniors age 65 and older and primary care physicians.

Although an evaluation of cognitive functioning is a required component of the Medicare Annual Wellness Visit, the report’s findings show that only 1 in 3 seniors are aware these visits should include this assessment.

“While it’s encouraging to see that the vast majority of seniors and physicians understand the value of brief cognitive assessments, we’re still seeing a significant gap in those that actually pursue, perform or discuss these assessments during routine exams,” said Joanne Pike, Dr.P.H., chief program officer for the Alzheimer’s Association in a statement released with this report. “Early detection of cognitive decline offers numerous medical, social, emotional, financial and planning benefits, but these can only be achieved by having a conversation with doctors about any thinking or memory concerns and through routine cognitive assessments.,” says Pike.

While the Alzheimer’s report noted that 82 percent of seniors and 94 percent of physicians believe it is important to have their thinking and memory checked, the findings indicated that just 16 percent of the senior respondents say they receive regular cognitive assessments for memory or thinking issues during routine health checkups, compared with blood pressure (91 percent), cholesterol (83 percent), vaccinations (80 percent), hearing or vision (73 percent), diabetes (66 percent) and cancer (61 percent).

The report’s authors also found a very “troubling disconnect” between seniors and their primary care physicians regarding who they believe is responsible for initiating these cognitive assessments and silence from seniors in discussing their concerns.

According to the report’s nearly all physicians said the decision to assess patients for cognitive impairment is driven, in part, by reports of symptoms or requests from patients, family members and caregivers. Those who choose not to assess cognition cited a lack of symptoms or complaints from a patient (68 percent), lack of time during a patient visit (58 percent) and patient resistance (57 percent) as primary factors.

In addition, the Alzheimer’s report says most physicians welcome more information about assessments, including which tools to use (96 percent), guidance on next steps when cognitive problems are indicated (94 percent) and finally steps for implementing assessments efficiently into practice (91 percent).

The Alzheimer’s Association is working to help educate physicians on best practices for conducting brief cognitive assessments and to ensure that all seniors understand what to expect from an assessment, as well as how to navigate an Alzheimer’s diagnosis and care planning when needed,” said Pike. “As the number of individuals living with Alzheimer’s continues to increase, we need to detect the disease early and give individuals the best opportunity to plan for the future,” she says.

The survey found that while 51 percent of the older respondents are aware of changes in their cognitive abilities — including changes in their ability to think, understand or remember — only 40 percent have ever discussed these concerns with a health care provider, and fewer than 15 percent report ever having brought up cognitive concerns on their own.

Instead, 93 percent of the senior survey respondents say they trust their primary care physician to cognitive testing for thinking or memory problems if needed. Yet, 47 percent of these physicians say it is their standard protocol to assess all patients age 65 and older for cognitive impairment. But, only 26 percent of the senior’s report having a physician ever ask them if they have any concerns about their cognitive function without them bringing it up first.

“The findings indicate there are missed opportunities for seniors to discuss cognitive concerns and problems in the exam room,” said Pike. “We hope the report will encourage seniors and physicians both to be more proactive in discussing cognitive health during the Medicare Annual Wellness Visit and other routine exams,” she says.

Combating Alzheimer’s in the Ocean State

On the heels of the release of Rhode Island’s updated State Plan on Alzheimer’s Disease and Related Disorders by Lt. Governor Dan McKee on February 26th, the released 2019 Facts and Figures reinforces the need to implement the recommendations of the State Plan.

“These facts and figures truly demonstrate the public health crisis we are in both nationally and here in Rhode Island with Alzheimer’s disease,” said Donna M. McGowan, Executive Director with the Alzheimer’s Association Rhode Island Chapter. “We are projecting cases of the disease to increase by 17% in this state by 2025. Having this data helps us to understand the scope of the issue and what we need to do to address peoples’ needs long term.”

“With Medicaid costs rising almost 23% to care for someone with Alzheimer’s, caregivers and families need to be provided resources that they need. Our updated State Plan helps to provide the framework to address some of those concerns,” said McGowan. “I commend our state lawmakers for recognizing how deeply Alzheimer’s disease and related disorders affects our citizens here and for their support in trying to address it with legislation.”

Andrea Palagi, Director of Communications for Lt. Governor Dan McKee, says that there are several Alzheimer’s-related bills being consider by state law makers this year. “It’s the year for Alzheimer’s” she says.

With the newly released 2019 Alzheimer’s Disease Facts and Figures report we hopefully won’t see the state’s updated Alzheimer’s Plan sitting on a bureaucrat’s dusty book shelf.

 For a copy, go to www.alz.org/media/Documents/alzheimers-facts-and-figures-2019-r.pdf.

 

Mistaken Identity Can Be Hazardous to Your Business

Published in Golocalprov.com, October 24, 2014

Just three weeks before the City of Providence’s election for Mayor, Eastside customers of The Camera Werks, a long-time fixture on Hope Street, expressed concern over a recent letter to the editor (LTE) written by a Patricia Louise Zacks, who they surmised was the retail store owner. The small neighborhood retail establishment has operated for over 27 years, serving three generations of customers.

Unaware of the published letter, visitors and emails began coming in regarding the LTE, which left the shop owner. Patricia Susan Zacks, confused. Through conversations, she quickly learned that emails were circulating throughout the East Side neighborhood, linking her to the editorial letter that she never wrote. In sharp protest to the views of the editorial letter, longtime customers pledged to bring their business elsewhere.

Last week’s political drama came about because of mistaken identities. The October 15 LTE, was actually penned by Providence resident, Patricia Louise Zacks, who is now married to the retail store owner’s former husband.

The mistake of mixing up the two Zacks’ identities might not have occurred if Providence Journal newspaper readers had gotten the facts straight before they circulated the LTE to Eastside friends among the Summit Neighborhood. Each Zacks has a different middle name and reside in different cities, one is an East Side resident in Providence, and the other is a Pawtucket resident in Oakhill, just across the Providence city line.

Patricia Susan Zacks, the camera store owner, attempted to use Face Book to clarify that the author of the LTE was not her, but rather a Providence resident, stating “I am a Pawtucket resident who has been a Hope Street merchant for over 27 years and have proudly served my customers. I extend best wishes to all the candidates and look forward to working with whomever the voters decide for the future of Providence.”

Coming to Like Buddy, More

The LTE’s heading, “Journal’s fear of Cianci leads us to support him,” summed up Providence resident Patricia Louise Zacks’ personal journey to ultimately support the former Providence mayor, she says. The Eastside resident of 10 years who works for the State’s Department of Transportation notes that she and her husband “sat on the fence,” for a while not able to decide whether to cast their vote for Housing Court Judge Jorge Elorza or Cianci.

The couple knew of Cianci’s previous felony convictions (acknowledging he served his time and legally had a right to run for mayor) but that he was able to run a City and provide needed services to its residents. Elorza had “impressive credentials,” too, making their political decision, virtually “an impossible choice,” noted Patricia Louis Zacks. She also pointed out in her LTE that Cianci has little to hide, he’s an open book to the voters because of the coverage in the Providence Journal, editorials, op eds, and debates.

Finally, the LTE noted that the straw that broke the camel’s back was the continual attack on Cianci by the Providence Journal combined with an attempt by East Siders to secretly raise $1 million to defeat the two-time convicted felon.

Patricia Louise Zacks notes that after she went public with her household’s support for Cianci, several spiteful messages were left on her answering machine. One caller gave his support for her candidate, but others made typically insulting remarks.

“I expected I would get all sorts of flack, but I didn’t get upset or angry because I could just hit the delete button,” she said.

But, Patricia Louise Zacks also learned of the negative impact of her LTE on another person, one who carried her last surname.

Looking back, “What kind of world do we live in where I cannot exercise my constitutionally-protected right to express my personal opinion in a local newspaper without causing professional and possibly even financial damage to a woman [with the same last name] who owns a small photography and framing business, and is also someone I personally know, admire, and hold in high esteem,” says Patricia Louise Zacks, quipping. “How in God’s name can such a thing happen?”

Chiding those who punish merchants because of who they politically support, she believes offering a quality product or service at a fair price should be more than enough for any businessperson to offer. “Making that owner’s religion, sexual orientation, race, and gender – especially that person’s political ideology – a part of the transaction is, in my opinion, vindictive and small-minded,” charges Patricia Louise Zacks.

A Political Moral

Living in a democracy gives us many rights and privileges, including the entitlement to support a particular political candidate and the right to publically publicize that choice.

Over the years, political campaigns have become a blood sport, even more so in controversial campaigns like the Cianci-Elorza race. Patricia Louise Zacks voiced her support for Cianci, giving us examples of how she reached this decision (to the dismay of many Eastsiders) in a LTE printed in the Providence Journal, the largest major daily in the Ocean State.

But, it was Patricia Susan Zacks who faced the wrath of Eastside readers, many of her customers, because they mistakenly believed she was endorsing the former Providence mayor, a candidate that they were working hard to defeat. Circulating emails with this LTE attached only added fuel to the intense political drama in Rhode Island’s largest community.

One well-placed Elorza supporter told this columnist that he saw no problem boycotting businesses if the owner was not in sync with their choice of candidates. But, in my opinion winning an election should not be based on a “torch and burn” mentality because of differing political views.

For those who want to use their economic clout to support their candidates, I urge them to get the facts straight. Here is a situation where people took action based on faulty information.

If people have differing positions on candidates or policy issues, they can just agree to disagree. When the dust settles after the upcoming Nov. 4 election, whoever carries the day, the sun will surely rise the next day. I can guarantee that one.

Herb Weiss, LRI ’12, is a Pawtucket-based writer who covers aging, health care and medical issues, who just happens to be the husband of Patricia S. Zacks. He can be reached at hweissri@aol.com