AARP launches campaign to support Family Caregivers

Published in RINewsToday on July 5, 2021

With caregiving costs skyrocketing, and with caregivers now estimated to be spending $7,242 annually out-of-pocket, AARP launches a national campaign to push for passage of the Credit for Caring Act.

The Washington, DC-based aging advocacy group has endorsed the bipartisan legislative proposal that would provide up to a $5,000 nonrefundable federal tax credit for eligible working family caregivers. The caregiver bill was introduced on May 18th  in the Senate by Senators Joni Ernst (R-IA), Michael Bennet (D-CO), Shelley Moore Capito (R-WV), and Elizabeth Warren (D-MA) and in the House by Representative Linda Sánchez (D-CA).

According to the National Alliance for Caregiving and AARP’s Caregiving in the U.S. 2020 study, there are an estimated 48 million Americans who provide care to either an adult or child with special needs at some time in the past 12 months. The study showed an increase of about 8 million caregivers from 2015 to 2020, indicating a significant growth in the nation’s caregivers’ population.

A 2019 AARP Public Policy Institute report noted that family caregivers in the United States provide $470 billion in uncompensated care.

Calling for Congressional Action to Assist Caregivers

AARP’s national campaign, urging passage of the Credit for Caring Act and more support for family caregivers, involves significant grassroots advocacy, including at least 60 tele-town halls, a major digital and video advertising initiative, and social media outreach through AARP’s national and state offices. Already, more than 100,000 contacts have been made with Members. In addition, more than 110 organizations, including 36 military and veterans service and support organizations, have joined AARP in asking Congress to pass the act. 

“This research reflects the incredible strain and sacrifices our 48 million family caregivers face every day. They are the backbone of our long-term care system, yet their backs are breaking from a lack of support,” said Nancy A. LeaMond, AARP Executive vice president and Chief Advocacy Officer in a June 29th statement announcing the kick-off of its new national grassroots campaign and also the release of its newest caregiver study, “AARP’s Caregiving Out- of-Pocket Costs Study.”

Adds AARP Rhode Island State Director Catherine Taylor: “This research reflects the incredible strain and sacrifices the 136,000 family caregivers in Rhode Island face every day. They are the backbone of our long-term care system, yet their backs are breaking,” 

“AARP research shows family caregivers contribute 114 million hours each year in their vital roles, “Taylor noted.

“We hear from so many caregivers from across the state who struggle financially,” Taylor added. “It is heartbreaking to know that cost, along with stress, fatigue and other factors take their toll over time. The need for support is more than evident.”

The Cost of Caregiving

Last month, AARP released its caregiver study, putting a spotlight on the out-of-pocket costs of caregiving, taking a close look at the financial strains on family caregivers and financial sacrifices (uncompensated care) they make in providing assistance to their loved ones. The study is a five year follow up to the landmark 2016 out-of- pocket caregiving study.

According to newly released study, nearly 8 in 10 of those caring for an adult family member (78%) are facing regular out-of-pocket costs, with the highest burden falling on younger caregivers and those who are Hispanic/Latino or African American. AARP researchers tracked what caregivers pay for using their own money and found average annual spending totaled $7,242 and, on average, 26% of the caregiver’s income. Housing expenses like rent or mortgage payments, home modifications, and assisted living made up more than half of caregivers’ spending, followed by medical expenses at 17%.

Out-of-pocket spending is much greater for some groups of caregivers, either in total dollars spent or as a percentage of average household income.

The researchers say that working caregivers who reported two work-related strains from caregiving, such as taking time off or working more hours, spend $10,525 each year on average – twice as much as caregivers who report one or no work-related strains.

AARP’s caregiver study also examined how caregiving financially impact between different generations of caregivers. Gen X caregivers spent the most money at $8,502. However, Gen Z and Millennial caregivers reported the greatest financial strain (spending on average $7,462 per year), spending a larger share of their household income. These caregivers have less time in the workforce to build financial security.

The AARP study found that Hispanic/Latino and African American caregivers also reported greater financial strain than White or Asian American caregivers. Hispanic/Latino caregivers spent on average, 47% of their household income on caregiving, and expenses for African American caregivers totaled, on average, 34% of income.

Researchers also found that caregivers caring for someone with Alzheimer’s disease/dementia or mental health issues tend to spend more ($8,978 per year and $8,384 per year, respectively) than those caring for someone without those conditions.

Work-related or personal strain as a result of caregiving can impact the caregiver’s long term financial security, too, say the researchers.  Nearly 47% of caregivers have experienced at least one setback as a result of being a caregiver. These setbacks include dipping into personal savings, cutting back on their own spending, and reducing how much they save for their retirement years.

More than 53% have experienced at least one work-related impact as the result of caregiving. Taking time off (both paid or unpaid) and working different hours are ways that caregiving impacts work. 

In addition to direct out-of-pocket spending, caregivers are also experiencing indirect financial setbacks. Nearly half of family caregivers (47%) experienced at least one financial setback such as having to cut back on their own health care spending, dip into their personal savings or reduce how much they save for their retirement.

Send your letters to Congress urging passage of the bipartisan Credit for Caring Act.  With an aging society and the number of caregivers increasing, a $5,000 nonrefundable federal tax credit for eligible working family caregivers might just help to pay the mounting costs of caregiving expenses. 

For more details about AARP’s caregiver study, go to:  https://www.aarp.org/content/dam/aarp/research/surveys_statistics/ltc/2021/family-caregivers-cost-survey-2021.doi.10.26419-2Fres.00473.001.pdf.

More resources for family caregivers, including a free financial workbook, are available at aarp.org/caregiving.

One Year Later – Two Surveys Examine Impact of COVID-19

Published in RINewsToday on May24, 2021

Over the year the raging pandemic has impacted on the physical and mental health of Americans. With daily COVID case counts now the lowest since last year and hospitals seeing less coronavirus hospitalizations, most states, including Rhode Island, are now opening up.

According to the American Psychological Association’s (APA) latest Stress in AmericaTM poll (findings released on March 11, 2021), the nation’s health crisis is far from over. Just one year after the World Health Organization declared COVID-19 a global pandemic, many adults report increased negative behaviors, such as undesired changes to their weight and increased drinking, that may be related to their inability to cope with prolonged stress.

APA’s survey of U.S. adults, conducted in late February 2021 by The Harris Poll, shows that a majority of adults (61 percent) experienced undesired weight changes—weight gain or loss—since the pandemic started, with 42 percent reporting they gained more weight than they intended. Of these individuals, they gained an average of 29 pounds (the median amount gained was 15 pounds) and 10 percent stated they gained more than 50 pounds, noted the poll’s findings.

Gaining Weight Bad for Your Health

Weight changes come with significant health risks, including higher vulnerability to serious illness from COVID-19.  According to the National Institute of Health, people who gain more than 11 pounds are at higher risk of developing Type II diabetes mellitus and coronary heart disease, and people who gain more than 24 pounds are at higher risk of developing ischemic stroke. 

For the 18 percent of Americans who said they lost more weight than they wanted to, the average amount of weight lost was 26 pounds (median amount lost was 12 pounds). Adult respondents also reported unwanted changes in sleep patterns and increased alcohol consumption. Two in 3 (67 percent) said they have been sleeping more or less than desired since the pandemic started. Nearly 1 in 4 adults (or 23 percent) reported drinking more alcohol to cope with their stress.

“We’ve been concerned throughout this pandemic about the level of prolonged stress, exacerbated by the grief, trauma and isolation that Americans are experiencing. This survey reveals a secondary crisis that is likely to have persistent, serious mental and physical health consequences for years to come,” said Arthur C. Evans Jr, PhD, APA’s chief executive officer, in a March 21st statement announcing the results of the study’s findings. 

Evans calls on health and policy leaders to come together quickly to provide additional behavioral health supports as part of any national recovery plan.

The researchers found that the pandemic took a particularly heavy toll on parents of children under 18-years old. While slightly more than 3 in 10 adults (31 percent) reported their mental health has worsened compared with before the pandemic, nearly half of mothers who still have children home for remote learning (47 percent) say that their mental health has worsened; 30 percent of the fathers who still have children home said the same. 

APA’s study also found that parents were more likely than those without children to have received treatment from a mental health professional (32 percent vs. 12 percent) and to have been diagnosed with a mental health disorder since the coronavirus pandemic began (24 percent vs. 9 percent). More than half of fathers (55 percent) reported gaining weight, and nearly half (48 percent) said they are drinking more alcohol to cope with stress.

As to essential workers, (either persons working in health care or law enforcement), the majority said that they relied on a lot of unhealthy habits to get through the year-long pandemic. Nearly 3 in 10 (29 percent said their mental health has worsened, while 3 in 4 (75 percent) said they could have used more emotional support than they received since the pandemic began. Essential workers were more than twice as likely as adults who were not essential workers to have received treatment from a mental health professional (34 percent vs. 12 percent) and to have been diagnosed with a mental health disorder since the coronavirus pandemic started (25 percent vs. 9 percent).

Furthermore, people of color noted that unintended physical changes occurred during the pandemic. Hispanic adults were most likely to report undesired changes to sleep (78 percent Hispanic vs. 76 percent Black, 63 percent white and 61 percent Asian), physical activity levels (87 percent Hispanic vs. 84 percent Black, 81 percent Asian and 79 percent white) and weight (71 percent Hispanic vs. 64 percent Black, 58 percent white and 54 percent Asian) since the beginning of the pandemic.

Black Americans were most likely to report feelings of concern about the future, say the researchers, noting that more than half said they do not feel comfortable going back to living life like they used to before the pandemic (54 percent Black vs. 48 percent Hispanic, 45 percent Asian and 44 percent white).  They also feel uneasy about adjusting to in-person interaction once the pandemic ends (57 percent Black vs. 51 percent Asian, 50 percent Hispanic and 47 percent white).

“It’s clear that the pandemic is continuing to have a disproportionate effect on certain groups,” said APA President Jennifer Kelly, PhD. “We must do more to support communities of color, essential workers and parents as they continue to cope with the demands of the pandemic and start to show the physical consequences of prolonged stress,” says Kelly.

COVID-19’s Impact on Seniors

A newly released AARP study, released on May 10, 2021, has found that more than a year into the coronavirus pandemic, most adults age 50 and older say that it has had a negative impact on their mental health. Researchers found that seven in 10 older adults reported an increase in sadness or depression due to the COVID-19 pandemic, and nearly 8 in 10 said they had increased concern about the future, worry or anxiety. Half of adults 50 and older reported feelings of anxiety in the last two weeks, and 56% noted difficulties falling asleep or staying asleep, say the study’s findings.

“If you are feeling stressed and anxious after the last year, you are far from alone!” said Alison Bryant, Senior Vice President of Research at AARP in a statement announcing the survey results. “As our survey highlights, most older adults’ mental health and wellbeing was affected by the pandemic—and some of the ways we coped might not have been great for our health, either. With many communities returning to normal, we hope older adults will consider taking steps to reclaim their health this spring and summer,” she said.

Coping with the COVID-19 pandemic

According to the AARP study findings, seniors are responding to the increased stress in a variety of ways. About one in four of the respondents reported they are eating comfort foods or “unhealthy foods” like chips and candy more often than before the pandemic. And 27 percent of people 50 and over have increased the time they spend praying or meditating. One in 10 survey respondents reported seeking mental health care in the last year, a third of whom did so specifically because of the pandemic. Overall, 15 percent of older adults said that experiencing the pandemic made them more likely to seek help from a mental health provider if they had concerns.

AARP’s survey also highlighted how the pandemic increased loneliness and isolation among those age 50 and over.  Among older adults, 58 percent reported feeling increased loneliness, and 62 percent were less likely to socialize with friends and family compared to before the pandemic.

Fixing Access to Internet as Tech Usage Surges Among Seniors During Pandemic

Published in Pawtucket Times on May 10, 2021

Over a year where a global pandemic has significantly reduced social interaction, technology becomes more important than ever, especially for home bound seniors. A newly released 39-page report from the Washington, DC-based AARP found that more older adults (44 percent) view tech more positively as a way to stay connected than they did before COVID-19. The findings indicate that 4 out of 5 adults age 50 and over-relied on technology to stay connected and in contact with family and friends.

Yet, the researchers found that the greater adoption and reliance on technology is uneven because 15 percent of adults 50 and over do not have access to any type of internet, and 60 percent say the cost of high-speed internet is a problem.

Pandemic Increases Use of Technology

“Technology-enabled older adults to better weather the isolation of the pandemic, from ordering groceries to telehealth visits to connecting with loved ones,” said Alison Bryant, Senior Vice President of Research at AARP in an April 21 statement announcing the release of the report, 2021 Tech Trends and the 50+: Top 10 Big Trends. “But it also exacerbated the divide. So much more is done online, and the 38 million disconnected older adults are being further left out,” she says. 

The report’s findings indicate that annual tech spending by those age 50 and over exponentially increased – from $394 to $1144. The top three tech purchases were smartphones, smart TVs, and earbuds/Bluetooth headsets. 

According to the researchers, using technology to connect with family and friends across multiple forms of communication has increased since the onset of the COVID-19 pandemic. Many say they are using video chats (45 percent), texting (37 percent), emailing (26 percent), and phone (29 percent) more now than before the pandemic’s onset. As of 2019, about half had never even used video chat, but one year later they did. Seventy percent have, with 1 in 3 using video chat weekly. Tech use among the age 50 plus community increased particularly in wearable devices – from 17 percent to 27 percent.

The AARP study’s findings indicate that the older participant’s use of smartphones increased dramatically, especially among the homebound. For instance, use for ordering groceries grew from just 6 percent to 24 percent; use for personal health increased from 28 percent to 40 percent for activities like telehealth visits, ordering prescriptions, or even making appointments; use for health and fitness information increased 25 percent to 44 percent and use for financial transactions increased 37 percent to 53 percent.

Weekly use of streaming increased to 58 percent from 44 percent, a significant shift in how the 50+ consume entertainment says the researchers.

Although the study’s researchers also found that half of the age 50 plus wanted to learn more about using tech (54 percent), cost (38 percent), awareness/lack of knowledge (37 percent), and privacy concerns (34 percent) were the top self-reported barriers holding them back from adopting and using the new technology.  

“Privacy concerns continue to be a factor when it comes to using tech, with 83 percent lacking confidence that what they do online remains private,” says the researchers.   

Bringing U.S. Broadband Networks to Millions of Americans

According to Washington, DC-based Free Press, a nonprofit group that is part of the media reform or media democracy movement, more than 77 million Americans lack adequate internet service at home, either because they do not have access or can’t afford it.  

Because of the “stark digital divide,” a much a higher percentage of white families use home broadband internet than Black or Latino families. The ongoing pandemic clearly showed these disparities, particularly for students who struggled to connect while learning remotely, compounding learning loss and social isolation for those students.

Although Congress has already included $3.2 billion in emergency funding for broadband access in the 2021 COVID-19 Stimulus Bill this year, President Biden has called for more funding to increase access to the nation’s U.S. Broadband Networks. Biden recently unveiled the American Jobs Plan Act of 2021, a $ 2.3 trillion infrastructure package, which includes $100 billion in funding to build affordable, reliable high-speed broadband infrastructure throughout the nation to reach 100 percent coverage, as a goal. It would also ensure that all Americans have lower costs for the internet.

Biden’s proposal would build “future proof” broadband infrastructure in unserved (rural and tribal lands) and underserved areas to reach 100 percent high-speed broadband coverage. It calls for reducing the cost of broadband to allow anyone who wants high-quality and reliable broadband internet to afford it and to promote widespread adoption. It funds the building of high-speed broadband infrastructure to reach 100 percent coverage, bringing access to unserved and underserved areas across the nation. It would also promote price transparency and competition among internet providers. This would be accomplished by lifting barriers that prevent municipally owned or affiliated providers and rural electric co-ops from competing on an even playing field with private providers, and requiring internet providers to clearly disclose the prices they charge.

The internet item falls within a broader “infrastructure proposal”. Rhode Island Congressman David Cicilline calls for the passage of Biden’s infrastructure proposal, stating: “I’m especially pleased that President Biden’s American Jobs Plan addresses some of our most pressing priorities here in Rhode Island. It will rebuild our national transportation infrastructure by modernizing 20,000 miles of roads and doubling federal support for public transit. It will put us on track towards a more sustainable future by electrifying our transportation system and building a network of half a million electric vehicle charging stations. It will ensure every American has access to clean drinking water by replacing lead service lines and pipes that still serve up to ten million homes in our country. It will double the number of registered apprenticeships so that more Americans can take advantage of the jobs this plan creates.” 

It’s Time to Seriously Negotiate

GOP House Minority Leader Kevin McCarthy of Calif. and GOP Senate Minority Leader Mitch McConnell, of Kentucky, along with members of their Caucuses, are united in their opposition to the passage of Biden’s infrastructure proposal. An insurmountable wedge was created by the bill’s expansive definition of infrastructure, to includes major funding investments for transportation, housing, eldercare workforce development, and access to broadband, to name a few. It even includes climate change policies, too. GOP lawmakers have a very narrow definition. Simply put, they say just include funding to fix roads, bridges, ports and waterways, and expanding broadband.  

Ultimately, another deal-breaker is how the costly legislative proposal is paid for. Biden calls for the costs to be offset by a corporate tax increase while Republicans see user fees such as road-related taxes and unspent COVID-19 relief funding, to cover costs.

Speaking recently at a press conference at the University of Louisville, McConnell said Democrats should expect “zero” support from the GOP for Biden’s big-ticket infrastructure and social spending proposal. He called on Democrats to support a Senate GOP counteroffer to Biden’s costly infrastructure proposal, costing a mere $568 billion (for roads and bridges, ports, waterways and expanded broadband).

There are many provisions of Biden’s American Jobs Plan of 2021 that both Republicans and Democrats agree on, including investing in roads, bridges, rail lines, ports electricity grid improvements, and increasing access to broadband. Biden says “he’s prepared to negotiate” the cost of the package and how it is paid for. 

So, it’s now time for McCarthy and McConnell to step up to the negotiating table to address their political and philosophical differences over Biden’s definition of infrastructure and funding.

It’s time to send a bipartisan infrastructure bill to Biden to sign.

·For more details about AARP’s Tech Study, go to https://press.aarp.org/2021-4-21-Tech-Usage-Among-Older-Adults-Skyrockets-During-Pandemic.