Documentary Explores World of Alzheimer’s Victims, Caregivers

Published in Pawtucket Times on January 26, 2004

Sally Weiss, my 80-year-old mother, has Alzheimer’s disease.

Over the past seven years, the progression of this disease was noticeable to me when I made my trips back home to Dallas, Texas.

However, my family, just like the tens of millions of families across the nation who have loved ones afflicted with this mental disorder, tries to understand and cope with the emotional social and financial impact of this devastating disease.

Last Wednesday, a hard-hitting, nationally broadcast PBS program, “The Forgetting: A Portrait of Alzheimer’s,” sought to bring more “insight, context, hope and help” to viewers who tuned in, hoping to better understand this frightening disorder.

The 90-minute documentary explores Alzheimer’s disease by weaving together the history and biology of the disease, the real-life experiences of three Alzheimer’s patients and their families who lives are touched by Alzheimer’s and the latest research findings that may lead to a cure.

Shame on you if you missed last week’s showing of “The Forgetting,” but you’re in luck, especially if you want a second chance to see the PBS program before it comes out on video. The Rhode Island PBS program affiliate, WSBE 36, has scheduled a rerun of this broadcast for Jan. 29 at 9:00 p.m. and again on Feb. 5 at 2:00 p.m.

The PBS documentary is based on David Shenk’s best-selling book, “The Forgetting.”

After overhearing a conversation in a restaurant about a man and his wife- a woman in her 50s afflicted with Alzheimer’s – he realized that this woman could not recognize her husband. By the time Shenk left the restaurant, he was horrified at the thought of his wife not even knowing who he was, being a stranger to her during the best years of their marriage. This thought ultimately propelled Shenk, a journalist and occasional National Public Radio commentator, to explore the mysteries of Alzheimer’s leading to the writing and publication of his 292-page book.

The PBS documentary warns that with the graying of our nation, we will see a growing number of person’s afflicted with Alzheimer’s disease which is considered  to be an age-related disordered.

By 2011, the first of the nation’s 76 million baby boomers will turn age 65, ultimately setting off a demographic time bomb, creating this Alzheimer’s epidemic.  When this occurs, Alzheimer’s may well become American’s biggest public health concern.

Using special animation, “The Forgetting” helps viewers better understand how Alzheimer’s begins, how it does damage and what kind of new medical treatments are being used to treat it.

“The Forgetting” also focuses on the real-life stories of three families, showing how the disease slowly impacts the family caregivers and the loved ones afflicted with Alzheimer’s.

“Like so many coping with this tragedy, the families who share their stories in  “The Forgetting” all have one major motivation in common – they want to let other people facing similar situations know that they are not alone, that there is help and that they too, can find the strength to face a  tragedy like Alzheimer’s with dignity and grace,” said Elizabeth Arledge, a respected film producer who created the PBS documentary, in a written statement.

“These families are drawing on reservoirs of strength and compassion to stay focused on seeing the person they love instead of the symptoms of the disease,” added Arledge.

Liz Morancy, executive director of the Alzheimer’s Association’s Rhode Island chapter, calls of Rhode Islanders to watch a Rhode Island PBS program. “The 13th State,” on Wednesday, Sept. 28, 2004 at 7:30 p.m.

Scheduled one day before the re-airing of “The Forgetting,” the 30-minute local PBS program will feature a panel discussion about Alzheimer’s.

Panelists included Dr. Cynthia Holzer, of Roger Williams Hospital, along with 84-year-old Sterling Ivision, who is in the early stages of Alzheimer’s, and his daughter Kate Meleny.

“The Forgetting’ shows what a really hard, hard disease Alzheimer’s is,” said Morancy, “but by listening to Ivision, you will learn that he still drives and lives independently. People who have early-stage Alzheimer’s can still have a quality of life.”

Check out the Web site, www.pbs.org/theforgetting. This site will provide advice, resources, and chances for caregivers of Alzheimer’s victims to share emotions and insights. In addition, a downloadable viewer’s guide will provide practical information and answer questions.

Expanding Vaccinations Initiative Will Save State Money

Published in Pawtucket Times on January 5, 2004

During last year’s legislative session, the Ocean State Adult Immunization Coalition (OSAIC) approached the Rhode Island General Assembly for funding to promote the group’s efforts to get the word out about the importance of Rhode Island seniors getting influenza and pneumococcal vaccinations.

OSAIC’s message was quite simple – “Avoid a Hospital Stay: Get Your Flu Shot Now!”

The Providence-based nonprofit, a coalition of 40 agencies including hospitals, nursing facilities, vaccine manufacturers, medical societies, managed care groups, the R.I. Department of Health, the R.I. Health Care Association, and Blue Cross Blue Shield of R.I., call vaccinations a cost-effective way to prevent these unnecessary hospitalizations and deaths.

According OSAIC, pneumonia and influenza deaths together are considered the  sixth-leading cause of death in the nation. Since 1999, when this initiative began, there have been more than 300 deaths and 6,800 hospitalizations that were attributed to influenza and pneumococcal diseases in the Ocean State.

OSAIC stated that the cost of a flu shot is $ 15 and a pneumonia shot is $ 30.

On the other hand, the average length of stay for an older person with influenza is five days, costing $ 12,000. Treatment in a hospital for pneumonia lasts six days and costs $ 12,000l

At the conclusion of last year’s General Assembly session, lawmakers allocated $ 50,000 to OSAIC to push its many immunization initiatives. Charles Harris, owner of Harris Health Centers and an OSAIC executive board member, noted last year’s funding enabled his group to work closely with providers to create a system to identify vaccine recipients.

“We also were able to assist the state’s Health Department to expand the statewide vaccine record system,” he said.

OSAIC also worked with managed care providers to assist them in informing their beneficiaries through newsletters and reminders about the many benefits of flue and pneumonia vaccinates,” Harris added.

Furthermore, Harris said OSAIC reached out to the state’s media outlets to educate Ocean State seniors as to the importance of vaccine shots and the locations where they could get those shots. Meanwhile, an outreach program, utilizing both providers and pharmacists, also encouraged older Rhode Islanders to get their shots.

To get the  facts out, OSAIC senior volunteers even managed the nonprofit’s group’s flue hot line.

“Last year’s funding appropriation has even allowed us to begin our work this spring to urge seniors to get their pneumonia vaccines,” Harris noted.

“It also enabled OSAIC to bring its message into the state’s nursing facilities. Most nursing facility residents or staff who requested a shot got one, even with the flue vaccine shortage,” he said.

OSAIC is now posed to ratchet up its efforts to protect more of the state’s seniors. Look for the nonprofit group to push for making vaccinations a standard of care, Harris told All About Seniors.

“Rhode Island’s age 65 and over uninsured should receive these inoculations either free or at a nominal cost,” Harris said.

Senate Finance Committee Chair Stephen D. Alves, and Rep. Stephen M. Constantino (D-Providence), who serves as vice chair of the House Finance Committee, were key in getting OSAIC’s $ 50,000 funding allocation last year.

When the 2004 legislative session kicks off this columnist hopes that Sen. Alves and Rep. Costantino will again bring their passion for this preventative care issue to their respective committees and to the House and Senate floors during budget debates.

Even with a huge budget deficient looming, Gov. Don Carcieri and state lawmakers must see that preventative medicine is a worthy cost containment approach for reining in skyrocketing health care costs. Even with state dollars allocated up front, the savings will be ultimately realized down the road.

If Gov. Carcieri and state lawmakers choose to act “penny-wise” but pound-foolish” Rhode Islanders taxpayers will ultimately become the losers in the upcoming legislative session.

An Aging Baby Boomer’s Reflections on Losing a Parent

Published on December 29, 2003, Pawtucket Times

              Last week, Frank M. Weiss, my 89-year-old father, died. While he had been ailing and was well along in years, it was quite a shock to receive the phone call from my sister Mickie that he had died.

               The death of a parent can be considered a major milestone in an aging baby boomer’s life.  In her 264-page book published by Cambridge University Press. Debra Umberson, author of “Death of a Parent: Transition to a New Adult Identity,” says “the death of a parent launches a period of self-realization and the transformations of the adult identity.”

              Umberson, a professor and chair of sociology at the University of Texas at Austin, states a parent’s death is “the turning point in one’s emotional and social lives of adults and can bring changes in how a person views themselves and their relationship with the outside world.”

             A parent’s death creates an “opening that pushes them into the final transition into adulthood, Umberson says.

           Dad’s death did create for me an opportunity for reflection on his life.

            My dad loved his wife, Sally, very much.  Married for more than 62 years, she was the most important person in his life.

            His four children were also very important to him, too.

           Over the years, I remember Dad always telling me on our weekly phone calls how proud he was of Mickie, Nancy, Jim and me.  He also loved his five grandchildren, Leslie, Jennifer, Kim, Stephanie and Jamie, and his three great-grandchildren, Jacquelyn, Allison and Haleigh.

           Dad warmly accepted Justin, Deb and Patty, his children’s son and daughters-in-laws into the Weiss family.

           As a youngster, I remember Dad working hard to support the family.  Although he worked long hours, he would always find time to go to a ball game or just spend time with his kids.

           Fast forward to the adult years.  When my siblings became adults, he would continue to be our biggest fan.

          Even during the ups and downs in our personal and professional careers, Dad was alway there giving us advice, encouragement, support and oftentimes, financial backing.

          Coming from a Jewish heritage, we always joked about how appropriate it was for Dad to be in the “Schmata” business, otherwise known as the clothing business.  He worked for more than 30 years at Colbert Volks, a well-known woman’s clothing store in Dallas, Texas.  He could see a style or trend before it happened, aways predicting what new coat styles would sell in a particular season.

         How ironic, I thought when Mickie informed me that he suddenly died at Colbert Volks, shopping for a present to give to my mother.

          Dad was like the Energizer rabbit – he kept working, working and working. No retirement for this man.  Two years after his bypass surgery, my 70-year old Dad wanted to chart a new course in his career.  he began a second job and worked at C”est Simone, a national manufacturer of women’s appear, until the mid-70s.

         I will always remember:

         Stories of Dad’s childhood. He was a great football player and a Gold Gloves boxer, I was told.

          Shooting hoops in the backyard for ice cream.  He always lost– we always won, getting that double-dipped chocolate ice cream as a prize.

          At restaurants, I remember Dad drinking cup after cup of black coffee, with the decaf coffee never being quite hot enough for  his tastes.

         Dad would touch people in simple ways. He had a roll of Susan B. Anthony dollars, giving out the coins to anyone who crossed his path. “Don’t spend them ,” they’re lucky coins,” he would say.

        My dad was very honest.  Once a coat manufacturer sent him a box containing money hoping to entice  him to purchase  coats from the company. Dad never accepted that money.

         He was a practical joker. I remember being told a story about the day he sat as a very young child, at a street curb and put his leg in front of a truck, daring the vehicle to go.  This particular time the joke was on him – the truck moved, his leg didn’t, and bones in one leg were broken.

       As a teenager, Dad would tip over outhouses throughout his neighborhood.  He would  assure me that nobody was in them.

         Years later, at this sister-in-law’s house in Pikesville, Maryland, Dad walked over to her neighbor’s house and gave his advice on how to plant a tree.  Heeding his advice, the neighbor dug the hole deeper, deeper, and deeper, until the ball of the tree was five feet from the top of the hole. Later a local landscaper would come by and inform the tree planter that the hole was too deep.

        Throughout his long life, Dad cared about people.

       During his Army days, as an officer of the day, he ordered a cook to put cold cuts out for a group of soldiers who came by to eat after being out in the rain all day.  The watery beef stew was not good enough for these guys, he would later tell me.  While his superiors called him on the carpet for that act of kindness, he stood up to the military bureaucracy, demanding them to be accountable to their troops.

        By tapping his business colleagues, Dad would successfully raise money for the AMC Cancer Society to help those battling that dreaded disease.

        Later, he would be recognized by the organization for his fund-raising efforts. For those who know me, perhaps that is where I get my skills in fundraising.

         In thinking back, I thought dad seemed to know that death was near.  A week before he died, in my last phone conversation with him, I sensed he knew he was ready to go.

        Dad had made peace with is life experiences, the good and the bad, telling me that “he had lived a good, prosperous life, had a beautiful wife and was very proud of each child and their accomplishments in their lives.”

        Due to my mother’s Alzheimer’s and his failing health, years ago he was forced to sell and move away from the house he had lived in for more than 50 years, the family  homestead and a place with  happy memories from him.

       In his final days, Dad  was in constant pain and had great difficulty walking. Dad went the way most of us would want to go on December 18, 2003 –very fast and in no pain.

       Over the coming weeks, I am sure that I will continue to process my Dad’s sudden death, a major  milestone in my life.

       I am reminded of this phrase from the movie “Summer of 42”: “Life is made up of small comings and goings – and for everything we take with us – we leave a part of ourselves behind.”

       So true. While Dad’s love may well propel me into adulthood. I can assure you that my memories of him won’t be left behind.

        Herb Weiss is a Pawtucket-based freelance writer covering aging, health care and medical issues.  He can be reached at hweissri@aol.com.