AARP Rhode Island calls on Congress to act on lowering high drug costs

Published on March 14, 2022 in Rhode Island News Today

On the day before the Washington, DC-based AARP’s March 8th launch of its new ad campaign showing the impact of Congress’s failure to act on prescription drug prices, AARP Rhode Island State Director Catherine Taylor, Volunteer State President Marcus Mitchell and Volunteer Lead Federal Liaison Dr. Phil Zarlengo joined Rhode Island US Senators Jack Reed and Sheldon Whitehouse for a virtual news conference highlighting the need for Congress to act now to slash rising prescription drug costs. 

During the 26 minute and 45 second event, AARP Rhode Island, representing 132,000 members, delivered a petition signed by more than 16,114 Rhode Islanders, calling for Congress to act now and stop unfair drug prices. AARP has called for fair drug prices for years and supports legislation that passed the House in November, which would allow Medicare to negotiate drug prices, put a cap on out-of-pocket costs that older adults pay for their prescription drugs and impose penalties on drug companies that raise prices faster than the rate of inflation.

“Americans are fed up with paying three times what people in other countries pay for the same drugs. More than four million people across the country, including more than 16,000 here in the Ocean State, are joining AARP to demand lower prices for prescription drugs,” said Taylor in a statement announcing the petition being delivered to Reed and Whitehouse. “There will never be a better time to lower drug prices than the historic opportunity in front of Congress. Now is the time to get it done!” Taylor says.

Big Pharma makes billions from high drug costs

“Big Pharma is making billions while seniors and taxpayers are suffering,” says AARP State President Mitchell, noting that just last month Big Pharma raised the prices of 800 prescription medications.” People are sick and tired of paying three times for prescription drugs what people in other countries are paying for these drugs, “It’s outrageous and unacceptable,” Mitchell said.

According to Mitchell, “if consumer prices had risen as fast as drug prices during the last 15 years, gas would cost $12.20 a gallon and milk would cost $13 a gallon.” This gives perspective to this issue, he said.

“Big Pharma is trying again to scare lawmakers and members of AARP and everyone else with misleading claims to stop Medicare to negotiate prices, charged Zarlengo. “We, at least, know the truth. The truth is by allowing Medicare negotiation [of prices], that process will help seniors during these times of inflation by lowing their prices of drugs and putting more money in their pocket,” he said.

Zarlengo gave the two Rhode Island Senators a message from Rhode Island seniors: “Don’t let Pharma win this time, lets lower drug prices now.”

“We hear you loud and clear,” said Senator Reed, responding to the over 16,000 signees of AARP’s petition. “Congress must address this issue of drug pricing. The system continues to force families into untenable choices between their health and other basic needs. One of the simplest things to do is to allow the federal government to negotiate drug prices for Medicare beneficiaries. I have been urging administrations, both Republican and Democratic for more than a decade to do this,” he noted.

“The VA already does this,” said Senator Whitehouse told his fellow panelists and those tuning in to the March 7 news conference. “And there is a big discrepancy in what the Veterans Administration (VA) pays for drugs and what Medicare pays for drugs. We have a reconciliation bill still in the Senate; it’s something Democrats can pass with only 50 votes. The bad news is that we need all 50 members to agree on the reconciliation measure and that has proven difficult. I hope we can agree on a package that all 50 of us can sign off on… and finally, finally, finally give Americans the drug pricing relief that they need. AARP is incredibly important in this fight. All your members make a difference. Thank you for stepping up yet again,” he said.

AARP fights Big Pharma on television and with digital advertising

In AARP’s new ad campaign, Larry Zarzecki, a retired law enforcement officer with Parkinson’s Disease who was forced to sell his home in order to afford his medications, returns to the airways as a spokesperson for AARP, illustrating the impact of the high cost of prescription drugs on seniors.  The retiree first shared his story in an AARP ad three years ago, but Congress’ failure to act means he has had no relief from the high cost of his treatments. As he says in the new ad, “I shouldn’t have to decide between my home or my medicine because Congress refuses to act. I’m tired of waiting for Congress.”

AARP’s seven-figure ad buy includes television and digital advertising in the DC area, and television in Arizona, Colorado, Georgia, New Hampshire, New York, Nevada, and Pennsylvania.

Responding to AARP’s new ad campaign, AARP Rhode Island’s Taylor said: “Larry Zarzecki was forced to sell his home in order to afford his medications.  He is but one example of Congress’ failure to act. No one should have to give up a home in order to pay for over-priced prescription medicines.  She called on Congress to put a stop to “spiraling price increases” by giving Medicare the authority to negotiate with pharmaceutical companies for lower prices.

“If the Veterans Administration can do so – paying roughly half as much for brand name prescription drugs as does Medicare Part D – then why can’t Medicare?” says Taylor.  “For a decade, Big Pharma has spent more on stock buybacks and dividends than on research and development; it’s outrageous that drug makers are charging Americans three times what people in other countries pay for the same drugs and justifying it with lies and scare tactics that simply don’t hold up,” she  added.

AARP has called for lower drug prices for years and is urging the Senate to pass legislation that would allow Medicare to negotiate drug prices, put a cap on out-of-pocket costs that older adults pay for their prescription drugs and impose penalties on drug companies that raise prices faster than the rate of inflation.

“Americans are sick and tired of Congress’ broken promises to bring down the price of prescription drugs,” said Nancy LeaMond, AARP Executive Vice President and Chief Advocacy & Engagement Officer announcing the launching of this ad campaign. “As Americans pay more and more for many consumer goods, Congress has an historic opportunity to lower drug prices and help seniors like Larry to afford their medications and other essentials,” she said.

It’s time to act NOW

According to AARP, without congressional action, pharmaceutical companies will continue to set high prices for prescription drugs and raise them without any warning or justification. The Washington, DC based advocacy group representing 38 million members recently released a report showing that 75 of the 100 brand name drugs with the highest total Medicare Part D spending have already increased their  list prices in the first month of 2022.

During the State of the Union, President Biden called for Congress to bring down the price of prescription drugs as a way to help consumers manage rising prices. The House of Representatives passed several prescription drug measures as part of the Build Back Better Act in November, but the Senate has yet to pass similar legislation.

It’s time for the Senate to put the welfare of the nation’s seniors first by passing legislation to put the brakes to spiraling prescription drug costs. This will be a hot campaign issue in the upcoming mid-term elections, just 230 days from now.

Sipping Cognac Signals an End of a Generation

Published in Pawtucket Times, November 15, 2013

On November 11, fewer aging World War II veterans attended ceremonies held throughout the country honoring them. With their medium age pegged at 92 years, many of these individuals known as the “Greatest Generation), are quickly becoming frail, their numbers dwindling as the years go by.

According to the Veteran’s Administration, our elder Word War II veterans are dying at a rate of just over 600 a day. This means there are approximately only 1.2 million veterans remaining out of the 16 million who served our nation in that war. By 2036, The National World War II Museum predicts there will be no living veterans of this global war that took place from 1939 to 1945, to recount their own personal experiences. When this happens there stories would only be told in some history books or by television documentaries.

The G.I. Generation, (coined the “The Greatest Generation” by nationally acclaimed journalist Tom Brokaw), grew in the Great Depression, and went on to fight World War II. Brokaw’s 1998 best seller, The Greatest Generation, put this generation, born between 1901 to 1924, firmly on the public’s radar screen.

Brokaw, a well-know American television journalist and author best known as the anchor and managing editor of NBC Nightly News, who now serves as a Special Correspondent for NBC News and works on documentaries for other news outlets, claims that this was “the greatest generation any society has ever produced.” He asserted that these men and women fought not for fame and recognition, but because it was just the “right thing to do.”

A Gathering to Remember

As with others of G.I Generation, old age and infirmity took its toll on the 80 members of the famed Doolittle Raiders. On Nov. 9, three of the remaining survivors gathered once more on Veterans Day weekend to honor their 76 fallen comrades-in-arms and made a final toast to them. While not related by blood, these surviving members (plus one not attending) had history that bound them tightly together.

At this invitation-only ceremony, at the National Museum of the U.S. Air Force, at Wright-Patterson Air Force Base in Ohio, the surviving three members of the famed Doolittle Raiders, Lt. Col. Richard Cole, 98, Lt. Col. Edward J. Saylor, 93, Staff Sgt. David J. Thatcher, 92, coming as far away as Texas, Montana and Washington State, came to honor their 76 deceased bomber crew members.

Health issues would keep Lt. Col. Robert L. Hite, a native of Ohio, from attending the ceremony. Hite watched the ceremony with his family members from Nashville, Tenn. Wearing the traditional dress for reunions, a blue blazer and gray pants and a Raider tie, Hite gave his own personal salute to his fallen brothers with a silver goblet a few days earlier

Thirty Seconds Over Tokyo

Over seventy-one-years ago, sixteen U.S. Army Air Force B-25 Mitchell medium bombers, carrying 80 army air force volunteer, took off from the aircraft carrier U.S.S. Hornet, to bomb industrial and military site in Tokyo and four major cities in Japan. This was America’s first air raid on the Empire of Japan that took place 133 days after Pearl Harbor, the Doolittle Raiders bailed out or crash-landed their planes (that ran out of fuel) in China, and most were led to safety by Chinese villagers and soldiers. According to the Doolittle Raiders organization, over a quarter million Chinese men, women and children were killed by the Japanese for aiding the Raiders to escape.

Although the “psychological” air attack was in retaliation for the Japanese surprise attack on Pearl Harbor, this top-secret mission, led by Lt. Col. James Doolittle, had an added benefit of boosting the sagging morale of the American public.

Meanwhile, due to the surprise attack on the Japanese homeland, Admiral Isoroku Yamamoto, who planned the raid on Pearl Harbor, decided to save face by moving up his battle plans by eight months to attack Midway Island. American code breakers were able to give date and location of this planned attack allowing the U.S. Navy to move three carriers — U.S.S Hornet, U.S.S. Enterprise, and the U.S.S. Yorktown — to ambush Yamamoto’s naval force, ultimately sinking four Japanese carriers, destroying 350 airplanes.

Later on, the Tokyo raid was credited in turning the war around in the Pacific because of the devastating defeat of the Japanese at the Battle of Midway in June 1942… The Japanese military machine could not replace those carriers nor could it replace the trained pilots and mechanics lost in the naval battle.

The Final Toast

According to Tom Casey, Business Manager for the Doolittle Raiders, on Nov. 9, an estimated ten thousand spectators, many young children, and aging veterans, lined the streets on the military base waving American flags, waiting to meet the three Lincoln sedans carrying the three Raiders who came to the National Museum of the U.S. Air Force near Dayton, Ohio.

After an afternoon memorial service with speeches and taps, a wreath was laid by the Doolittle Raider monument outside the museum as five B-25 bombers flew low over head in the famous missing man formation as a tribute. The Raiders made their last toast that evening to comrades who died in the air attack or since their mission, says Casey.

The original plan for the last toast called for the last two Raiders standing to break open the bottle of cognac, toasting each other and their departed members, stated Casey, who noted that this signify the end of the Doolittle Raider’s mission.

However, Casey remembers the two major changes were made last October at meeting in Washington, D.C. by the four surviving Raiders. Their first decision was to schedule their last public reunion in April 2013 at Fort Walton Beach Florida, the home of Eglin Air Force Base where the Raiders trained for their mission.

“They were also getting older, and travel was getting more difficult, so the second decision was made to not wait until there were only two standing members as initially planned, Casey recounts, stressing that it was important to bring together the five remaining Raiders together while they were physically able to meet to officially close their mission. Unfortunately, Major Thomas C. Griffin passed away weeks later. With the urging of General Hudson, Director of the National Museum of the United States Air Force in Dayton, Ohio, with the agreement of the surviving members the last toast would be scheduled for November 2013 on Veterans Day.

At the evening ceremony, before attending family members of their deceased crew members, air force leadership, and other invitees, a historian read the names of all 80 Doolittle raiders, with the three surviving veterans calling out “here.”

Among the many speakers, Chief of Staff of the Air Force Gen. Mark A. Welsh told over 600 attendees, “As far as I’m concerned, this is the greatest professional honor I’ve ever had to speak here with this crowd at this event.”

Welsh admitted that first book he read as a youngster was Thirty Seconds over Tokyo. “It was given to me by my father, also a World War II vet, with the words that I should read it closely because this is this what America is all about. I’ve never forgotten those words,” he said.

“The Doolittle raiders have been celebrated in book and in journals … in magazines … in various papers. They’ve had buildings named after them … had streets named after them. People play them in movies,” Welsh added.

“They [the survivors] hate to hear this, but Jimmy Doolittle and his Raiders are truly lasting American heroes, but they are also Air Force heroes. They pioneered the concept of global strike … the idea that no target on earth is safe from American air power, states Welsh.

Concluding the emotional ceremony, Cole, representing his fellow Doolittle Raider survivors, opened the 1896 Cognac (denoting Doolittle’s birth year) and gave his final toast.

Casey notes that this bottle was presented to General Doolittle on his sixtieth birthday by a representative of the Hennessy Cognac Company. “That evening was the first time ever the bottle was taken out of its original box and shown to the public and displayed,” he said.

“Gentlemen, I propose a toast,” Cole told the remaining Doolittle Raiders. “To the gentlemen we lost on the mission and those who have passed away since. Thank you very much and may they rest in peace,” then he sipped the cognac from an engraved silver goblet.

The 80 silver goblets in the ceremony were presented to the Raiders in 1959 by the city of Tucson, Ariz. The Raiders’ names were engraved twice, the second upside-down. During the ceremony, white-gloved cadets presented the personal goblets to the three survivors, while their long-time manager poured the 117 year old cognac into the into the participants’ goblets. Those of the deceased were turned upside-down.

The four remaining members of the Doolittle Raiders will continue to keep their heroic tales alive by personally sharing their experiences. When the last cup is turned upside down, it will be their oral histories, history books or documentaries that will give us an impersonal small glimpse of what it took to answer the call to duty and to do that job well.

Herb Weiss, LRI ’12, is a Pawtucket-based writer who covers aging, health care and medical issues. He can be reached at hweissri@aol.com.

Retiring Senior Advocate Played Key Role in Shaping Long-Term are Policy Debates  

Published in Pawtucket Times on November 18, 2002

Sheila Cabral Sousa, a long-time and well-respected senior advocate, leaves her post as executive director of the Rhode Island Association of Facilities and Services for the Aging to become a broker with statewide Residential properties.

Sousa has played a key role in shaping the Ocean State’s long-term care policy during her 12-year tenure representing nonprofit providers who operate nursing facilities, assisted living facilities and senior housing sites.

Sousa’s professional life experience would help her to successfully lead a major statewide nonprofit provider group, providing a continuum of  long-term care services to Rhode Island’s vulnerable elderly.

As a teenager, Sousa dreamed of becoming a lawyer. Once she received her bachelor of education degree from Rhode Island College, the young woman entered the Suffolk University School of Law in Boston.

Ultimately, she would complete a four-year night program, receiving a J.D. in 1971. Eight years in private practice would sharpen her legal skills, skills that would become valuable in helping her to lobby and shape public policy.

In 1979, a job offers given to her husband brought the young couple to Washington, D.C. Briefly, Sousa owned an operated an antique and collectible store in Alexandria, Va., until she found employment in the federal government.

While working for the Veterans Administration, her experience working on the Board of Veterans Appeals gave her a working knowledge of medical issues.

After the couple divorced, Sousa came back home to Rhode Island in 1986, where she would become the field manager for the Richard Licht campaign.  Her efforts helped him to become Lieutenant governor. From there, she became executive director of the Rhode Island Mental Health Association, a position that would give her an understanding of mental health issues in Rhode Island and a familiarity with the state legislature.

In 1989, Sousa would take the helm of the Rhode Island Association of Facilities and Services for the Aging (RIAFSA)

For 13 years, she would give credibility and recognition to the views of the nonprofit provider group to lawmakers, state policy makers and to the general public.  As executive director, Sousa would not represent one segment of the long-term care continuum, but the full spectrum, from nursing facilities, assisted-living facilities to senior housing.

Sousa leaves her position with many admirers.

“Enormously intelligent,” “quick-witted” and “a very committed advocate for social justice, women’s issues and the elderly” are traits used to describe Sousa, as quoted by Maureen Maigret, director of public policy for Lt. Gov. Charles Fogarty.

“Sousa was not afraid to push people to really examine all the policy issues. She really forced one to take a look at all the angles of an issue to make sure the best results happened,” said Maigret, whose personal and professional friendship with Sousa spans back to the 1970s.

According to Maigret, Sousa has a strong interest in elderly housing issues and has called for the need of supportive housing services to be offered to the residents.

“Through Sousa’s efforts, the Rhode Island Housing Resources Commission wrote a report looking at the need for supportive housing for the elderly and those with disabilities,” Maigret stated, adding that this report will be released in the near future.

Adds Susan Sweet, a consultant to nonprofit agencies and an elder rights advocate who is also a longtime friend of Sousa, “She can pierce the babble of irrationality with her quick and sharp wit and is never afraid to do so. She is fearless and funny, smart and compassionate. Quite a combination, adds Sweet.

“Wherever she spends her time, she will bring her considerable strengths to it and it will do well and do good things,” added Sweet.

Steve Horowitz, CEO of East Greenwich-based St. Elizabeth Community and RIAFSA’s past president told All About Seniors that Sousa is “a dynamic person” and a “visionary,’ and that she was the nonprofits first and only executive director.

“She was instrumental in bringing RIAFSA to the table when the state discussed policy issues,” he said.

“She didn’t look at an issue as to how it would affect us today, but how it would impact RIAFSA down the road,” said Horowitz.

Furthermore, Sousa had a tough job because she worked with only a part-time assistant.

“If you see her accomplishments over the years, you would think we had a staff of five people-based on all the work that was done,” noted Horowitz.

Roberta Hawkins, executive director of the Alliance for Better Long-Term Care and the state ombudsman, called Sousa a tireless woman who worked extremely hard on behalf of her nonprofit providers without ever losing sight of the elderly clients that they served.

“I will miss her tenacious nature and wonderful sense of humor. Her sense of humor brought levity to intense policy decisions, observes Hawkins.

While Sousa worked hard, she also enjoyed life, too. She is a great cook and has a love for Irish country dancing and music and playing poker, her colleagues say. She is also quite an interior decorator, with an eye for color, too.

Sousa, 60, is not  turning her attention toward her new challenging mountains to climb.

“It’s tie to try new career options,” she said.

Some people say that everyone is replacement.” But in Sousa’s case, and to those who have come to love and admire her, the person who takes the helm of RIAFSA will have big shoes to fill.

A farewell party for Sousa will be held on Thursday, Nov 21, 2002, from 4 to 6 pm, ag Green Tea, 5600 Post Road, East Greenwich. For more information, call Steve Horowitz at 471-6069.