Tag Archives for Lt. Gov. Charles Fogarty

Alliance for Better Long-Term Care Celebrates 25th Anniversary

Published in Pawtucket Times on October 20, 2003

Next Friday, nursing home advocates, state officials, residents and their families and friends along with long-term care providers are invited to North Kingston to celebrate the 25th anniversary of the Alliance for Better Long-Term Care.

With its emergence on the advocacy scene in 1988, the Alliance for Better Home Care (later renamed the Alliance for Better Long-Term Care) has effectively defended the rights o those who can no longer speak for themselves – the elderly who receive care in the state’s nursing homes. Later in the late 1990s, the nonprofit group expanded its advocacy role into the assisted living, home care and hospice sectors. (This would result in the above-mentioned organizational name change).

Back in 1986, a thirty-something Roberta Hawkins had just raised her two daughters, Robin and Cindy. The former facility worker with 15 years’ experience under the belt working at Warwick-based Levitons Manufacturing Co., sought out a new career in human services.  Hawkins enrolled at Rhode Island College to become a  social worker.

At this time, she joined the federally funded program, Volunteers in Service to America (VISTA) “to make a difference.”

Hawkins would later be assigned to assist low-income Rhode Islanders in applying for eligible federal and state benefits. However, poor nursing home care provided at the Rhode Island Nursing Home in Providence would later lead to refocusing of the nonprofit group’s mission, one that would aim to protect the health and dignity of the Ocean State’s growing nursing home resident population.

With VISTA funds and small grants drying up at the beginning of the Reagan years, around 1888, Hawkins’ nonprofit group received funding from the Department of Elderly Affairs to refocus her group’s new advocacy role in the state. The Alliance for Better Nursing Home Care was born.

Hawkins, along with six fellow VISTA volunteers, would later form the staff of the newly created statewide, advocacy group.  Three years later, Hawkins would take over the helm of the group.  Three years later, Hawkins would take over the helm of the group. Ultimately, she would become the sole staffer, with an organizational budget of $ 8,000.  Volunteer staff, consisting mostly of family members of nursing home residents, would help Hawkins formulate advocacy strategy, recruit new members, write and disseminate a newsletter and organize fundraisers.

Twenty-five years later, Hawkins Alliance for Long-Term Care has an operating budget of $ 770,000 with a staff of 14 people and a core group of 40 volunteers.  Several years ago, the Department of Elderly Affairs (DEA) out-sourced ombudsman duties to this non-profit group.

Since its inception, the Alliance for Better Long-Term Care has assisted families in both understanding and choosing the most appropriate care setting to place their loved ones, said Hawkins, in a multiple of care settings – from assisted-living nursing homes or to their own homes, through the provision of home care services.

As the state’s official ombudsman agency, Hawkins and her staff work to educate family members and residents of their state and federal rights.  Care complaints are investigated a resolution mediated between residents and the long-term care providers.

As an advocate, Hawkins testifies on behalf of nursing home residents at legislative and regulatory hearings.

Where does Hawkins go from here?

Hawkins said she looks forward to making  bigger changes in the Ocean State’s long-term care delivery system.

“When delivering services, state agencies sometimes cut people off from the services when they reach a certain age,” like rehabilitation and mental health services, she said.  “That’s totally inappropriate,” she adds.

Hawkins also told All About Seniors she will continue to work toward “putting the home back into nursing homes.” The facility must truly become are a resident’s home, she urged.

Rhode Island’s most visible nursing home advocate also wants to see facility staff adequately paid for the valuable work they perform.

“We must get rid of the staff that do not care about providing good care to the elderly and keep those who really do, by paying them livable wages and providing a good working atmosphere,” she said.

Hawkins has gained the respect of a wide variety of state officials, aging advocates and providers in her 25 years of advocacy.

Lt. Gov. Charles Fogarty, who worked with Hawkins when he was a state senator and as chair of the state’s Long Term Care Coordinating Council (LTCCC), said Rhode Island is fortunate to have such a dedicated and committed advocate.

“We all sleep better at night knowing that she is there for us to advocate on behalf of the thousands of frail and vulnerable elderly in long-term care settings,” he said.

Lucille Massemino, administrator of Charlesgate Nursing Center, a Providence-based 160-bed skilled nursing facility and a former m ember of its board of directors, said she sees Hawkins as a passionate advocate pushing for the quality of life of nursing home residents.

“She is very assertive with administrators, knowing the needs of residents and prodding facilities towards fulfilling those needs,” she said.

Meanwhile, Hugh Hall, president of the Rhode Island Health Care Association has seen Hawkins in action over the past 18 years, working tirelessly for the improvement of Rhode Island’s long-term care services.

“She has lobbied the state legislature for better care in nursing homes [urging lawmakers to pay facilities an adequate reimbursement rate and calling for the state to address a nurse staffing shortage],” he said.

Hawkins said she plans to stay around as long as she is effective and as long as her passion to fight for nursing home residents remains. For the sake of the tens of thousands of Ocean State seniors and young disabled people who need long-term care services, hopefully we’ll see her around advocating on their behalf for a long time to come.

Statehouse Rally Calls for Passage of Nursing Home Payment Reforms

Published in Pawtucket Times on June 9, 2003

In the final days of this year’s legislative session, the Coalition to Ensure Funding for Quality Long-Term Care rallied its troops at the Statehouse rotunda to push for the passage of two legislative proposals that would fix an ailing Medicaid reimbursement system.

The goal of last Wednesday’s rally was to keep the Coalition’s two legislative proposals on the radar map of the Rhode Island General Assembly, which has been bogged down with a multitude of heated legislative issues – separation of powers , fire code changes, smoking bans in restaurants to name a few.

Even with an expected $ 225 million budget deficit for fiscal year 2004, the long-term care advocates, including provider groups, consumer advocates, state policy makers and legislators, urged lawmakers to pay a fair Medicaid rate for nursing facilities, required by state and federal law to provide quality of care to 9,000-plus vulnerable Rhode Island seniors who need intensive, 24-hour-a-day care.

Rally supporters gave a thumbs-up to two legislative proposals ( H 5803/ S 0899). The companion bills, if enacted would revise the state’s Principles of address the inadequate funding of the state’s nursing facilities.

The two legislative proposals, still in the House and Senate Financial Committee, reflected the findings of an 18-month study of B.D.O. Seidman, a consulting firm hired by the state Department of Human Resources to re view and recommend fixes to the state’s flawed reimbursement system.

A major finding of this state-financed study found that the state was underpaying facilities in excess of $ 29 million annually.

These bills call for an additional $ 14 million to state funding for Medicaid reimbursement to nursing facilities. With the infusion of state dollars, the federal government would then kick in $ 16 million for a total increase of $ 30 million.

Eighty percent of the state’s nursing facility residents rely on the Medicaid program to pay for their care, John Gage, administrator of the Coventry-based Riverview Health Care Community and a Coalition member, told those who intended the rally.

Many facilities are left struggling to remain open because Medicaid does not pay for the actual cost of care, he said, noting a number of Ocean State nursing facilities have already filed for bankruptcy of receivership, and some are even closing their doors.

An inadequate reimbursement rate continues to fuel Rhode Island’s critical nursing shortage, too, said Gage. Due to the current  reimbursement system, facilities are hard-pressed to come up with the necessary funds for increases in salaries and benefits to retain nursing staff.

Lt. Gov. Charles Fogarty, who chairs the state’s Long-Term Care Coordinating Council, warned the crowd that Rhode Island’s nursing home industry “is on verge of a meltdown.”

He- along with Sen. Stephen D. Alves (D-West Warwick) and Rep. Steven M. Costantino (D-Providence), sponsors of the Coalition’s nursing home payment reform bills – urged Gov. Donald Carcieri and House and Senate leaders to include funding in the fiscal year 2004 budget to begin the steps needed for Medicaid reform.

Throughout the afternoon rally, until 6:00 p.ml, the Coalition gathered hundreds of signatures to support efforts to increased Medicaid reimbursement to nursing facilities.

Meanwhile, posters strategy placed outside the House and Senate chambers illustrated the rally supporters point that the state is not paying enough for care  of family members in nursing facilities.

At one poster site, piles of dirt were placed on a 6-foot table.  A  poster said: “Did you know this mulch topsoil costs more than $ 5.63 – that’s more than the Medicaid system’s pay for an hour’s worth of nursing facility care for your loved one.  Isn’t your grandmother’s care worth more than the cost of a pile of dirt.”

In a previous All About Seniors column, this writer called for lawmakers to fix the state’s flawed Medicaid reimbursement system once and for all.

The legislative session will soon be ending, and immediate action must be taken now by lawmakers to pass the Coalition’s two legislative proposal, with Gov. Carcieri hopefully signing the bills into laws.

State policy makers must no longer use a Band-Aid approach to fix  broken Medicaid payment system, especially with the graying of the Ocean State’s population. A growing number of Rhode Islanders will soon require this level of intensive care.

It’s time for lawmakers to ratchet up the Medicaid rates to pay for actual costs of care, allowing facilities to deliver quality services.

Retiring Senior Advocate Played Key Role in Shaping Long-Term are Policy Debates  

Published in Pawtucket Times on November 18, 2002

Sheila Cabral Sousa, a long-time and well-respected senior advocate, leaves her post as executive director of the Rhode Island Association of Facilities and Services for the Aging to become a broker with statewide Residential properties.

Sousa has played a key role in shaping the Ocean State’s long-term care policy during her 12-year tenure representing nonprofit providers who operate nursing facilities, assisted living facilities and senior housing sites.

Sousa’s professional life experience would help her to successfully lead a major statewide nonprofit provider group, providing a continuum of  long-term care services to Rhode Island’s vulnerable elderly.

As a teenager, Sousa dreamed of becoming a lawyer. Once she received her bachelor of education degree from Rhode Island College, the young woman entered the Suffolk University School of Law in Boston.

Ultimately, she would complete a four-year night program, receiving a J.D. in 1971. Eight years in private practice would sharpen her legal skills, skills that would become valuable in helping her to lobby and shape public policy.

In 1979, a job offers given to her husband brought the young couple to Washington, D.C. Briefly, Sousa owned an operated an antique and collectible store in Alexandria, Va., until she found employment in the federal government.

While working for the Veterans Administration, her experience working on the Board of Veterans Appeals gave her a working knowledge of medical issues.

After the couple divorced, Sousa came back home to Rhode Island in 1986, where she would become the field manager for the Richard Licht campaign.  Her efforts helped him to become Lieutenant governor. From there, she became executive director of the Rhode Island Mental Health Association, a position that would give her an understanding of mental health issues in Rhode Island and a familiarity with the state legislature.

In 1989, Sousa would take the helm of the Rhode Island Association of Facilities and Services for the Aging (RIAFSA)

For 13 years, she would give credibility and recognition to the views of the nonprofit provider group to lawmakers, state policy makers and to the general public.  As executive director, Sousa would not represent one segment of the long-term care continuum, but the full spectrum, from nursing facilities, assisted-living facilities to senior housing.

Sousa leaves her position with many admirers.

“Enormously intelligent,” “quick-witted” and “a very committed advocate for social justice, women’s issues and the elderly” are traits used to describe Sousa, as quoted by Maureen Maigret, director of public policy for Lt. Gov. Charles Fogarty.

“Sousa was not afraid to push people to really examine all the policy issues. She really forced one to take a look at all the angles of an issue to make sure the best results happened,” said Maigret, whose personal and professional friendship with Sousa spans back to the 1970s.

According to Maigret, Sousa has a strong interest in elderly housing issues and has called for the need of supportive housing services to be offered to the residents.

“Through Sousa’s efforts, the Rhode Island Housing Resources Commission wrote a report looking at the need for supportive housing for the elderly and those with disabilities,” Maigret stated, adding that this report will be released in the near future.

Adds Susan Sweet, a consultant to nonprofit agencies and an elder rights advocate who is also a longtime friend of Sousa, “She can pierce the babble of irrationality with her quick and sharp wit and is never afraid to do so. She is fearless and funny, smart and compassionate. Quite a combination, adds Sweet.

“Wherever she spends her time, she will bring her considerable strengths to it and it will do well and do good things,” added Sweet.

Steve Horowitz, CEO of East Greenwich-based St. Elizabeth Community and RIAFSA’s past president told All About Seniors that Sousa is “a dynamic person” and a “visionary,’ and that she was the nonprofits first and only executive director.

“She was instrumental in bringing RIAFSA to the table when the state discussed policy issues,” he said.

“She didn’t look at an issue as to how it would affect us today, but how it would impact RIAFSA down the road,” said Horowitz.

Furthermore, Sousa had a tough job because she worked with only a part-time assistant.

“If you see her accomplishments over the years, you would think we had a staff of five people-based on all the work that was done,” noted Horowitz.

Roberta Hawkins, executive director of the Alliance for Better Long-Term Care and the state ombudsman, called Sousa a tireless woman who worked extremely hard on behalf of her nonprofit providers without ever losing sight of the elderly clients that they served.

“I will miss her tenacious nature and wonderful sense of humor. Her sense of humor brought levity to intense policy decisions, observes Hawkins.

While Sousa worked hard, she also enjoyed life, too. She is a great cook and has a love for Irish country dancing and music and playing poker, her colleagues say. She is also quite an interior decorator, with an eye for color, too.

Sousa, 60, is not  turning her attention toward her new challenging mountains to climb.

“It’s tie to try new career options,” she said.

Some people say that everyone is replacement.” But in Sousa’s case, and to those who have come to love and admire her, the person who takes the helm of RIAFSA will have big shoes to fill.

A farewell party for Sousa will be held on Thursday, Nov 21, 2002, from 4 to 6 pm, ag Green Tea, 5600 Post Road, East Greenwich. For more information, call Steve Horowitz at 471-6069.