Agency Offers Hope

Published in Senior Digest on November 2006

According to the Alzheimer’s Association Rhode Island Chapter (AARIC), it is estimated that 25,000 Ocean State residents are afflicted with Alzheimer’s disease. When you combine 100,000 caregivers with that number you have a devastating disorder that touches many people.

Don’t expect the incidence of Alzheimer’s disease to decrease any time soon, warns Liz Morancy, AARIC’s executive director. “Getting older is the biggest risk factor, and we are an aging state in an aging nation,” she says.  “The course of the disease varies from person to person, as does the rate of decline.”

“The costs to society are enormous, too, costing the health care system and business well over $32 billion,” Morancy notes. The federal government and states will be hit hard by the rising costs when they struggle to provide assistance and services to an increasing number of people with Alzheimer’s disease, she predicts.

Not every episode of forgetfulness is the advent of Alzheimer’s disease, Morancy notes, saying that it is common to forget words or information, especially when you have multiple responsibilities; you’re under stress, feeling fatigued or are distracted. She quickly rattles off many of the early symptoms: constant forgetfulness; lack of awareness that you have forgotten something; forgetting recently learned information; and memory loss that interferes with your daily life. One’s ability to use numbers and drastic personality changes can also be associated with this mental disorder.

Caregivers work a “36-hour day” taking care of their afflicted loved ones with Alzheimer’s adds Morancy. “A caregiver in Rhode Island traditionally has been a woman who is the wife, daughter or daughter-in-law of the patient. If she is the daughter, the majority of the time she is also taking care of young children. As the caregiver ages, she must cope with her own physical health problems, too,” Morancy said.

However, today “we have noticed an increasing number of men taking on the caregiver role and responsibility,” Morancy says. “A husband may take care of his wife without the assistance of children who live far away.”

There are only a few “modest drugs” that can slow the effects of Alzheimer’s disease, according to Morancy. She hopes that more effective treatments will become available in the next few years. In order to keep loved ones with Alzheimer’s independent and in their homes for as long as possible, caregivers need the support services from home care and adult day care programs.

For caregivers and their families, the Rhode Island Chapter of the Alzheimer’s Association has become a beacon of hope and a valuable resource in surviving the stresses of caregiving, Morancy says.

Established 17 years ago, the organization started off as an all-volunteer agency with a $50,000 budget. Today the nonprofit agency has eight staff members and a budget of $700,000 with hundreds of volunteers working in a variety of capacities, according to Morancy, who has led the chapter for more than 15 years.

With the 14th Annual Memory Walk, sponsored by AARIC last month, public awareness of this devastating disorder was ratcheted up a little higher, Morancy says. The group’s family support and education activities will be bolstered by the $ 250,000 raised by more than 1,300 supporters who walked the three-mile course in Providence and Newport.

“Our Memory Walk is a key funding source for us,” admitted Morancy. “Oftentimes, major private foundations do not recognize the reality of the increasing number of elderly, and they do not fund programs addressing their needs adequately. Sadly, children advocates are pitted against those working on behalf of seniors,” she says.

Morancy says AARIC offers caregiver and family assisted at 18 affiliated support groups that regularly meet throughout the Ocean State. The chapter also provides a help line and care consultation, education and training programs geared to both health care professionals and caregivers.

Additionally caregivers can obtain pamphlets, books, and videos through the chapter and participate in a safe return program that helps to locate persons with Alzheimer’s who wander away from home.  There are few people in Rhode Island whose lives have not been touched by the Alzheimer’s disease, and there are many lives that have been touched through the programs and services of AARIC.

Delegates Reject Bush’s Policies

Published in Senior Digest on January 2006

President George Bush and congressional Republican leaders supporting Social Security reform through private savings accounts, saw their policy soundly rejected at the White House Conference on Aging (WHCoA) held last month in Washington, D.C.

According to AARP State Director Kathleen Connell, who was appointed to the Rhode Island WHCoA delegation by U.S. Sen. Jack Reed, Bush’s private sector approach to Social Security reform got a big thumbs down.

The president also took a hit on his new Medicare prescription drug benefit program, which offers insurance coverage through the private sector. Delegates voted for a strategy that calls for replacing the new Medicare drug benefit with a government-run program.

By the end of the fifth WHCoA, 50 resolutions dealing with a variety of policy issues were approved by the 1,200 delegates. Most of the top 10 resolutions concern the need to create a comprehensive national strategy to address the long-term care of the nation’s frailest and most vulnerable seniors.

While the delegates took a couple of swings at Bush, the president made an obvious political snub when he failed to appear at the four-day conference and sent Health and Human Services Secretary Michael O. Leavitt, as a replacement. That goes in the record books as the first time a president was no-show at the national aging conference, held every decade since 1962.  Presidents John Kennedy, Richard Nixon, Ronald Reagan and Bill Clinton did make a showing to welcome the delegates.

Moya Thompson, WHCoA deputy director for outreach, stated the conference’s Policy Committee had initially approved 73 resolutions, sharing them with the 1,200 delegates before they arrived in Washington.  Thompson said that three voting sessions were scheduled at the beginning of the WHCoA, with each delegate having an opportunity to vote once to choose their top 50 resolutions. The 50 resolutions that received the most votes were presented at the conference.

According to Thompson, 56 implementation strategy workshops, at least one for each of the 50 resolutions, were held. By law, the resolutions must be delivered to the president and Congress six months after conference, Thompson said.

Counnell said many of the delegates felt that the WHCoA agenda was controlled too much by the Policy Committee appointed by the Bush administration and the Republican-controlled Congress. “This was very visible to those attending,” she said.

Another organizational issue, Connell said, was concern over the Policy Committee not allowing delegates to submit resolutions for a vote in addition to the selected 73. At previous conferences, she said, additional resolutions could be considered if petitioned by 10 percent of the delegates.

Connell said that the Rhode Island delegates were a very cohesive group. “Everybody was on the same page in advocating for issues. Given the size of our delegation, we were very effective,” she said.

Corinne Calise Russo, director of the state Department of Elderly Affairs, said she was pleased that the top vote-getting resolution was the reauthorization of the Older Americans Act, a priority of the Rhode Island delegation.

Russo, appointed by Gov. Donald Carcieri as a delegate, said, “Delegates throughout the nation attending the conference felt that the Older Americans Act should be enacted with increased funding for all of the act’s titles, within the first six months following the end of the conference.”

Ensuring older Americans have transportation options to maintain  their mobility and independence was another resolution that received strong support, Russo said, stressing the importance of keeping seniors independent and driving for as long as possible. She believes the resolution can be implemented at the state level by using new signage on highways, making lane markings extremely visible in rain and at night and designing larger and more visible crossing signs at busy intersections.

While older worker issues and affordable housing designed to allow seniors to age in place are in the top 50 resolutions, and are high on Russo’s agenda, she stressed federal and state policy makers must not forget the growing numb er of grandparents who are raising their grandchildren.

“We need to expand our national family caregiver programs funded by the Older Americans Act, to provide more support for older persons taking on this new role,” she said.

Better Understanding of Strokes Can Help Seniors Protect Their Health

Published in Pawtucket Times on May 19, 2003

Even if Americans know about the negative impact of their lifestyle choices, that knowledge may not be enough to change their behaviors, especially those behaviors that lead to strokes.

According to a new survey released by the National Council on Aging (NCOA), Americans understand that those who have had a stroke are at a greater risk for a future one, ye stroke survivors are not taking all the possible steps to protect their health.

Strokes can result from a sudden interruption of blood flow to any part of the brain, which can ultimately injure or kill brain tissue.

Strokes can lead to severe impairments, including debilitation from paralysis, short-term memory loss and even speech and vision problems. About one-third of all strokes are recurrent, even though there are lifestyle changes and medications available today that can help to reduce that risk.

In this telephone survey, which was funded by a grant from Sanofi=Synthelabo and Bristol-Myers Squibb, 66 percent of the survey respondents said they knew someone who had suffered a stroke, but many of those who survived were not exercising regularly (32 percent), refraining from smoking (19 percent) or watching their diet (18 percent). These simple lifestyle changes are known to help prevent future strokes.

“Those who have already had a stroke can make changes to their everyday routines  to lower their risk for a second stroke or heart attack,” Mark Alberts, M.D., professor of neurology, at Northwestern University Medial School in Chicago, stated in a NCOA release.

“It is particularly important that stroke survivors and their families or caregivers work closely with their physicians to develop an individualized treatment plan, which will often include medication,”  says Alberts.

Along with the basic lifestyle changes, taking appropriate medications can also reduce the risk of recurrent strokes.

For instance, the researchers say many patients may benefit from antiplatelet therapy that prevents blood platelets from sticking together and clotting, helping to reduce stroke risks.

According to the NCOA study, after surviving a stroke, men have a 42 percent chance of having another within five years, and women a 24 percent chance during that same time period.

The general public seems to be confused regarding what stroke risks factors and symptoms are, the researchers found.

The NCOA survey findings indicate that many Americans incorrectly identified excessive stress (87 percent), overexertion while exercising (56 percent), dehydration (38 percent), asthma attacks (24 percent) and wearing constrictive clothing (16 percent) as risks factors for stroke.

Additionally, survey respondents also mistakenly selected shortness of breath (53 percent) and heart palpitations (50 percent) as stroke symptoms. Nearly two-thirds of those surveyed failed to recognize that age increases stroke risk, especially for those over age 65.

Although seniors are at the greatest risk of having a stroke, they seem to show little concern, researchers noted. While two-thirds of all strokes occur among those ages 65 and older, only 12 percent of those surveyed in that age group noted they are more concerned about suffering a stroke, given other choices like Alzheimer’s disease and diabetes.

A whopping 70 percent of the olde respondents told researchers they never talked to their doctors about stroke risk.

”For older Americans, strokes pose a significant health risk so it is alarming to us that so few seniors have discussed their personal risk for stroke with their doctors,” said James P. Firman. NCOA’s president and CEO. “Better education is clearly needed to help all Americans understand their risks of stroke to protect their health.”

Robert Marshall, Ph.D., who serves as assistant director of health at the state Department of Health, gave All About Seniors his thoughts about the NCOA research study.

He said strokes are the number-three killer in Rhode Island – in 2000, 964 Rhode Islanders age 50 and over died of stroke.

“We call these preventable deaths’ because we know that by reducing risk, such as smoking, obesity, lack of exercise, uncontrolled high blood pressure, many  people can avoid death and disability from stroke, adds Marshall.

“It is unfortunate, but not surprising, that so many strokes are recurrent,” said Marshall. “Human nature being what it is, many people find it difficult to change the behaviors that got them into trouble in the first place- things like smoking and lack of exercise,” he notes.

“We all need to do a better job supporting stroke survivors and helping them use the experience as a springboard to a longer healthier and happier life,” Marshall added.

Older Rhode Islanders can easily take charge of reducing their chances of having a stroke or a recurrent stroke.  Positive lifestyle changes (e.g., more exercise, a better diet, giving up cigarettes, and taking prescribed medications are key lifestyle changes to protecting your health.