Author Archives for Herb Weiss

Alliance for Better Long-Term Care Celebrates 25th Anniversary

Published in Pawtucket Times on October 20, 2003

Next Friday, nursing home advocates, state officials, residents and their families and friends along with long-term care providers are invited to North Kingston to celebrate the 25th anniversary of the Alliance for Better Long-Term Care.

With its emergence on the advocacy scene in 1988, the Alliance for Better Home Care (later renamed the Alliance for Better Long-Term Care) has effectively defended the rights o those who can no longer speak for themselves – the elderly who receive care in the state’s nursing homes. Later in the late 1990s, the nonprofit group expanded its advocacy role into the assisted living, home care and hospice sectors. (This would result in the above-mentioned organizational name change).

Back in 1986, a thirty-something Roberta Hawkins had just raised her two daughters, Robin and Cindy. The former facility worker with 15 years’ experience under the belt working at Warwick-based Levitons Manufacturing Co., sought out a new career in human services.  Hawkins enrolled at Rhode Island College to become a  social worker.

At this time, she joined the federally funded program, Volunteers in Service to America (VISTA) “to make a difference.”

Hawkins would later be assigned to assist low-income Rhode Islanders in applying for eligible federal and state benefits. However, poor nursing home care provided at the Rhode Island Nursing Home in Providence would later lead to refocusing of the nonprofit group’s mission, one that would aim to protect the health and dignity of the Ocean State’s growing nursing home resident population.

With VISTA funds and small grants drying up at the beginning of the Reagan years, around 1888, Hawkins’ nonprofit group received funding from the Department of Elderly Affairs to refocus her group’s new advocacy role in the state. The Alliance for Better Nursing Home Care was born.

Hawkins, along with six fellow VISTA volunteers, would later form the staff of the newly created statewide, advocacy group.  Three years later, Hawkins would take over the helm of the group.  Three years later, Hawkins would take over the helm of the group. Ultimately, she would become the sole staffer, with an organizational budget of $ 8,000.  Volunteer staff, consisting mostly of family members of nursing home residents, would help Hawkins formulate advocacy strategy, recruit new members, write and disseminate a newsletter and organize fundraisers.

Twenty-five years later, Hawkins Alliance for Long-Term Care has an operating budget of $ 770,000 with a staff of 14 people and a core group of 40 volunteers.  Several years ago, the Department of Elderly Affairs (DEA) out-sourced ombudsman duties to this non-profit group.

Since its inception, the Alliance for Better Long-Term Care has assisted families in both understanding and choosing the most appropriate care setting to place their loved ones, said Hawkins, in a multiple of care settings – from assisted-living nursing homes or to their own homes, through the provision of home care services.

As the state’s official ombudsman agency, Hawkins and her staff work to educate family members and residents of their state and federal rights.  Care complaints are investigated a resolution mediated between residents and the long-term care providers.

As an advocate, Hawkins testifies on behalf of nursing home residents at legislative and regulatory hearings.

Where does Hawkins go from here?

Hawkins said she looks forward to making  bigger changes in the Ocean State’s long-term care delivery system.

“When delivering services, state agencies sometimes cut people off from the services when they reach a certain age,” like rehabilitation and mental health services, she said.  “That’s totally inappropriate,” she adds.

Hawkins also told All About Seniors she will continue to work toward “putting the home back into nursing homes.” The facility must truly become are a resident’s home, she urged.

Rhode Island’s most visible nursing home advocate also wants to see facility staff adequately paid for the valuable work they perform.

“We must get rid of the staff that do not care about providing good care to the elderly and keep those who really do, by paying them livable wages and providing a good working atmosphere,” she said.

Hawkins has gained the respect of a wide variety of state officials, aging advocates and providers in her 25 years of advocacy.

Lt. Gov. Charles Fogarty, who worked with Hawkins when he was a state senator and as chair of the state’s Long Term Care Coordinating Council (LTCCC), said Rhode Island is fortunate to have such a dedicated and committed advocate.

“We all sleep better at night knowing that she is there for us to advocate on behalf of the thousands of frail and vulnerable elderly in long-term care settings,” he said.

Lucille Massemino, administrator of Charlesgate Nursing Center, a Providence-based 160-bed skilled nursing facility and a former m ember of its board of directors, said she sees Hawkins as a passionate advocate pushing for the quality of life of nursing home residents.

“She is very assertive with administrators, knowing the needs of residents and prodding facilities towards fulfilling those needs,” she said.

Meanwhile, Hugh Hall, president of the Rhode Island Health Care Association has seen Hawkins in action over the past 18 years, working tirelessly for the improvement of Rhode Island’s long-term care services.

“She has lobbied the state legislature for better care in nursing homes [urging lawmakers to pay facilities an adequate reimbursement rate and calling for the state to address a nurse staffing shortage],” he said.

Hawkins said she plans to stay around as long as she is effective and as long as her passion to fight for nursing home residents remains. For the sake of the tens of thousands of Ocean State seniors and young disabled people who need long-term care services, hopefully we’ll see her around advocating on their behalf for a long time to come.

Entering One’s 60s Marks a New Beginning  

Published in Pawtucket Times on October 13, 2003

During the turbulent 1960s, young protestors would say “Never trust anyone 30 years old.

Forty years later, the younger generation sees the benefits of successfully making it to age 30.

Last week, an article in a local newspaper even told readers – the twenty something crowd now celebrates their entry into their 30s. This life stage decade has now become a major milestone in growing older.

Aging baby boomers realize   they care entering their senior years when they receive AARP’s invitation to become a member. This little notification announces your chronological age is quickly tilting  toward your later years. Some would joke your senior years.

What about moving into your 60s. You’re still at the peak of your professional career, but five years shy of age 65, society’s milestone for moving into the rank and file of the retired.

Dr. Justin Aurbach, a Dallas-based endodontist, who also happens to be my brother-in-law, recently turned age 60. He told All About Seniors some of his thoughts about becoming a 60-year-old.’

While some become frail or face debilitating chronic conditions as they enter their early 60s, my aging brother-in-law is still in relatively good shape. He acknowledged that he can’t run a four-minute mile, but he never could at any age. But the 60-year-old plays a little golf, walks, jobs, and does a little light weightlifting. He’s a believer in vitamins and takes “lots of them.”

“Professionally, I believe I am on the top of my game and still improving. Not only am I technically better, but my years of life experience have made me wiser in respect to knowing what can and can not be done in my life,” Justin said.

Researchers have found that being plugged into a network of family and friends is a key ingredient to successful aging. Justin told me he has been very lucky to have numerous friends who have part of his extended family.

“They are the kind of friends who will go to bat for you when the chips are down.”

Family support is very important to Justin, who recognizes their positive support to him throughout the years.

“My wife has always been supportive of me both in my professional endeavors and personal goals,” he said, bragging about his three children and two granddaughters, he said.

Looking back over the years, Justin relives the ups and downs of his life. “There have been times of sadness, during my 60 years,”

he said, like the loss of his mother, common parental problems that he experienced while raising his children and failure to quickly achieve some of his professional goals. Looking at the glass half-full rather than half empty, he added. That’s just a small price to pay for all the wonderful things living brings to you.”

As Justin  looks into the next decade, he said he wonders if there is enough time to accomplish all of his personal and professional goals.

“I certainly keep forging ahead at a break neck race,” he said, noting new goals will always replace those that have been accomplished.

“Some of the accomplishments in science and technology, like the breaking of the sound barrier, the development of computers and nuclear energy, advances  made in medical technology leading to the advent of non-invasive texts, the near elimination of many dreaded diseases and a greater understanding of genetics and molecular biology have resulted in significant human lifespan,” Jusin said.

Justin noted being age 60 becomes even more wonderful when you look back on what you have accomplished.

But in your 60s, “It’s a time of excitement, fun and learning,” he said, urging others to never stop learning and gaining more knowledge.

At age 60, Justin firmly believes his life is just beginning for him.

He urged those turning this age to look at the vent with joy because you are coming into the “best part of your life.”

“Age is more than a matter of your chronological age, it is a combination of your attitude and mental state you have about your life,” he said.

For this writer, aging has always been like a bottle of wine, as you age you get better just like the wine.

For those turning age 60, exercise and eating a healthy diet, developing a strong support network, and continuing to learn and seek out knowledge is important. Now is the time to  take some time to reflect upon the ups and downs of your life and use the knowledge and wisdom gained to make better choices into your later years, the 70s and beyond.

Most important, share your newly gained insights with your children, grandchildren, and younger colleagues. Give them the gift of your hard-earned insights.

Justin said turning age 60 is like a new beginning for him.

“I feel like a newborn who is just beginning his trek into the wonderful world we live in,” he said.

Hopefully, all those entering their sixth decade will have that positive attitude about aging, too.

Walkers Fight Alzheimer’s One Step at a Time

Published in the Pawtucket Times on September 22, 2003

Next Sunday, 87-year-old Ray Bonenfant continues his fight against the devastating Alzheimer’s Disease.

The Greenville resident and more than 1,000 participants are expected to walk three miles to raise money and public awareness regarding Alzheimer’s Disease during the Alzheimer Association’s 2003 Memory Walk in Providence, Newport, and Westerly.

Taking part in the Sept. 28 charitable event- the nonprofit group’s largest of the year – is just a continuation of Bonenfant’s personal fight against the ravages of Alzheimer’s, a disease that afflicts his wife and 25,000 Ocean State seniors. It is projected that in the next decade, 29,000 Rhode Islanders will be diagnosed with Alzheimer’s.

Bonenfant, a former controller at a New Hampshire company, began participating in the Alzheimer’s Associations annual fundraiser eight years ago, shorting after his wife, Eugenie, was admitted to an Alzheimer’s unit at the Village of Waterman Lake.

Participating in this fundraiser was one way he could personally improve the quality of life of caregivers and enhance the care and support services for families of Alzheimer’s patients.

Local news coverage of the impending 1993 Memory Walk caught Bonenfant’s attention and he joined hundreds of Rhode Islanders who came together with the goal of raising funds for the Alzheimer’s Association Rhode Island Chapter.

At this event, he signed up 30 of his family members and friends to participate in the three-mile walk, raising almost $ 700.

For the last eight walks, Bonenfant, who serves as a board member and treasurer of the Providence-based nonprofit group, has been one of the top individual fundraisers. “Walking to raise money gives me a lot of satisfaction,” he said, admitting that he also enjoys the competition of raising money.

Bonenfant also looks at participating in another way. “It is a good family day,” he added.

Last year, Bonenfant and 14 family members and friends raised a whopping $9,000. This year, he expects to ratchet this sizeable amount up to $10,000 with the assistance of loyal family members (two daughters, five grandchildren and their spouses and two great grandchildren). Of course, he’ll have several good friends on hand, too.

Bonenfant told Everything About Seniors he will be back next year to raise money.

“I am shooting for a decade of fund-raising,” he said, adding that daily exercise keeps him physically fit and will enable him to easily walk the three miles at Rogers  Williams Zoon.

Elizabeth Morancy, executive director of the Alzheimer’s Association’s Rhode Island Chapter, noted her nonprofit group is one of 80 chapters hosting a Memory Walk fundraiser.

Morancy, remembered that only 135 walkers gathered at India Point Park in Providence to walk at the first fundraiser held 11 years ago. The 1993 Memory Walk raised a total of $13,000, she said.

This year, Morancy expects more than 1,000 walkers to gather in Providence at Roger Williams Park Zoo, in Newport strolling down Bellevue Avenue and at the beach in Westerly, who will raise $ 210,000.

“Alzheimer’s is a devastating disease that affects the entire family,” noted Morancy. “It is absolutely imperative that we find effective treatments for Alzheimer’s patients while we continue to provide caregiver support to their families,” she said.

Morancy said funds raised by the annual Memory Walk funds the group’s Helpline and supports educational programs for professionals and provides assistance to the affiliated statewide support groups.

Moreover, Memory Walk funds also enable the nonprofit group to translate literature into different languages and to offer workshops in both Spanish and English, Morancy said.

Register today to participate in next Sunday’s 11th Annual Memory Walk and take small steps to ending the devastating impact of Alzheimer’s.

For those interested in walking, ask your family, friends and co-workers to sponsor you. Memory Walk brochures are available by calling 800-244-1428.