Alzheimer’s News often Confusing to Interpret

Published in Pawtucket Times on March 26, 2001

Everyday hundreds of thousands of caregivers scan newspapers, senior papers, Time, Newsweek, Modern Maturity or even National Enquirer in hopes of learning a little more about new, effective treatments for Alzheimer’s Disease.

Oftentimes it is confusing to determine which treatments are promising and which ones that are not, due to the diverse opinions in the research community. For instance, one article might report on Vitamin E; others might state how Ginko really improves your memory and is good for Alzheimer’s patients to take. Others might describe studies that indicate that estrogen replacement therapy is not really an effective treatment for Alzheimer’s Disease for some women. Or some might even warn the reader “Don’t eat off of aluminum plate

s” because research seems to indicate that an accumulation of heavy metals, such as aluminum, in the brain may surely cause Alzheimer’s.

Here are some helpful tips for unraveling the mysteries of Alzheimer’s Disease as reported in media.

Beware of glitzy headlines. Time limitations keep people from reading every article in their daily, weekly or monthly newspapers. As a result, many readers just quickly scan the headlines for information. Don’t judge an article by its glitzy title. The content of an article is much more balanced than the headline that is catchy and written to draw the readers in.

Look for authoritative commentary. You can consider an article more credible when it provides multiple quotes on the indications of an Alzheimer’s treatment. The reporter has done a good job in reporting if there is authoritative commentary on the significance of the study.  Two likely sources might be staffers from either the National Alzheimer’s Association  or the National Institutes of Health, a major funder of Alzheimer’s research studies.  Remember that the National Alzheimer’s Association’s point of view tends to be less biased and a more reliable opinion that those of researchers that have ties to a pharmaceutical company that issued the press release.

Disputes on findings. Keep in mind that even if a research study is reported there might be those persons who believe that the study is not well designed or has major research flaws. On the other hand, the study might just be accepted by the scientific community as a solid study. However, there might still be serious disagreements about how to interpret the results or how to classify it. Some researchers might consider it a major study while others would categories it as a minor one.  A well-researched article will include the quotes of those who oppose the findings.

Are you still confused by how to cull articles for tips on safe and effective treatments for Alzheimer’s? Where do we go from here? Caregivers should view any articles written about new Alzheimer’s treatments as informational in nature. The article can open the door to the researcher community and it now becomes your responsibility to do homework and find out more details about what the research findings indicate.

If the article describes the results of an actual published research study, obtain the scientific journal with the published study and carefully read it. If the findings are reported from a presentation at a conference, attempt to track the researcher down for more information.  Finally, cruise the Internet and check out the official Web sites of the Alzheimer’s Association or the National Institute of Aging to determine if they can provide information about a reported new treatment.

Finally, don’t hesitate to call your local chapter or the National Alzheimer’s Association to solicit their comments. They will gladly share all the information they have. Remember these groups closely monitor research studies and their implications for treatment.

Bipartisan Support Key for Passage of Aging Proposals

Published in Pawtucket Times on March 19, 2001

The operative word in national legislative circles these days in bipartisianship.

Both sides of the political aisle working together will have to be part of the picture if the long-term care field is going to see any significant legislative changes, policy sources indicate.

Why is that so? In the Senate, “there’s a 50-50 split between the two major political parties,” notes Bill Benson, President of Benson Consulting Group, a Maryland-based organization. What’s more, the division “has resulted in an unprecedented agreement between Senate Democrats and Republicans to share power,” according to Benson, a former top official with the U.S. Administration on Aging.

Democrats and Republicans alike have been following the failing health of Republican Senator Strom Thurmond, 98, of South Carolina.

If Thurmond retires or dies before the end of this term in 2002, it’s likely that his state’s Democratic governor would appoint a Democrat, a move that would shift the majority in the Senate to the Democratic Party.

Yet, Benson says that any legislative proposal would still need bipartisan support to get out of the Senate. “To get a Republican proposal enacted, you will either have to get lots of Democrats to cross party lines, or bring in Vice President Cheney to be a tie breaker,” he noted.

Meanwhile, in the House, the Republican majority holds but a razor thin margin.

“Like in the Senate, if both parties don’t work together in the House, you’re looking at legislative gridlock,” he says.

Benson notes that the Bush Administration is also moving to stall the lengthy regulatory and administrative actions taken by Clinton toward the end of his administration.

One such item that is temporarily halted is Clinton’s guidelines for managed care organizations that serve Medicare beneficiaries.

President Bush campaigned on Medicare reform and wants to bring his proposal to Congress.

His proposal provides a private sector alternative to traditional fee-for-service Medicare by offering block grants to states to help seniors pay for their pharmaceuticals.

This approach may be derailed by the Democratic Party, which added to its seats in Congress during the recent election, Benson explains.

He notes that Senator Charles Grassley (IA), Chairman of the Senate Finance Committee, has declared that he will not push Bush’s Medicare or prescription drug plans because they lack votes for passage.

Yet, Benson also predicts that the fact that Congress is closely divided increases the chance that something will be done about providing prescription drug coverage to seniors through Medicare. Otherwise, Benson adds, Medicare reform will amount to nothing more than talk this year.

Meanwhile, Robert Greenwood, American Health Care Association for Homes and Services for the Aging (AAHSA), says that bold, revolutionary proposals won’t be forthcoming from the nation’s evenly divided Congress.

Instead, legislators will take an incremental approach toward program development.

“A long term care agenda has not emerged yet,” Greenwood observes. “We don’t even have an administrator for the Health Care Financing Administration, the agency that manages the Medicaid program.”

Greenwood says, in the long run,” We’re hopeful that the Bush Administration will take seriously its responsibility to provide long-term care providers with the needed resources to provide quality of care and to fund a regulatory system that allows providers to do their job while still protecting vulnerable residents.”

Aging gracefully depends mostly on a positive attitude

Published in Pawtucket Times on March 2001

Years ago, my father gave ma a book, “Life’s Little Instruction Book”.  This book, listed as a best seller by the The New York Times, gave readers 511 suggestions, observations and reminders on how to live a happy, fulfilling and rewarding life.  I give you my version of the book, which can hopefully provide you with a rewarding life slanted toward how to age gracefully.

If I could offer you one tip on how to face the downside of growing older, I say practice looking on the bright side of things.  Every day you have a choice when you get up – the glass must be half-full rather than half-empty.  Attitudes become everything as you get older.

It seems that at the snap of a finger, we find ourselves past the prime of youth.   It is so easy to continually reflect on our successes and especially the bad hands we are dealt in life.  Savor your personal and professional victories but forgive yourself for your defeats.

View your past as a canceled check.  Let go of our past regrets and mistakes made in your youth and middle ages.  But also forgive yourself for your weaknesses.  Even for losing those long ago opportunities that passed right through your fingers, like sand in a clasped hand.  But don’t forget to forgive others too, those who hurt you personally or professionally.  You cannot live or end your life peacefully if you are still holding on to anger, bitterness and grudges, all tied to your past.

You must live in the present with an eye toward the future.  There is not enough time left for any one of us to live with past guilt or grudges.  Let go of the past.  Focus on the future, but live the present.

Don’t be afraid to “tell your life story.”  You have a huge reserve of untapped wisdom about living to share with others, especially the young, who can benefit from it.  Insights you have learned throughout the cyclical ups and downs of your life should be shared with your children and their children.  Younger generations will be at a serious loss if you choose to be silent and not share your knowledge.

Life is not a spectator sport.  Go for the gusto and stay as physically active as you can.  Research tells us “if you rest, you rust.”  Physical exercise elevates your mood and benefits your cardiovascular system.

Research tells us that you must also exercise your brain.  Take time to read daily newspapers, magazines or a local senior publication.  Spend your time working on a challenging crossword puzzle or even playing chess, or possibly mahjong.

Find meaningful things in your life that are bigger than you.  Engage in acts of loving kindness to others.  Research indicates that volunteer work can be a protective buffer from the curve balls that life may throw at us as we get older – or is that as we grow more mature?

Don’t be afraid of asking for help or support.  No one is an island, and we need to become more interdependent as we get older.  Research tells us the more types of relationships we have, from family members, friends, belonging to groups, the healthier you will be.  So, strive to keep up your social contact and personal connection with others.

Finally, no matter what your physical condition, there are always opportunities every day in your environment to help care for somebody.  Take advantage of every opportunity.